Access to and utilization of neurologists by people with multiple sclerosis

Neurology

Volumn 70, Issue 13 PART 2, 2008, Pages 1141-1149

  Minden, Sarah L ^a,b   Hoaglin, D C ^b   Hadden, L ^b   Frankel, D ^c   Robbins, T ^b   Perloff, J ^d  

^a BRIGHAM AND WOMEN S HOSPITAL   (United States)

^b ABT ASSOCIATES   (United States)

^c National Multiple Sclerosis Society   (United States)

^d BRANDEIS UNIVERSITY   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; ARTICLE; DATA COLLECTION METHOD; DEMOGRAPHY; ECONOMIC ASPECT; FEMALE; GEOGRAPHIC AND GEOLOGICAL PHENOMENA; HEALTH INSURANCE; HUMAN; INTERVIEW; LOGISTIC REGRESSION ANALYSIS; MAJOR CLINICAL STUDY; MALE; MULTIPLE SCLEROSIS; PHYSIOTHERAPIST; PRIORITY JOURNAL; RACE;

EID: 41549163928     PISSN: 00283878     EISSN: None     Source Type: Journal    
DOI: 10.1212/01.wnl.0000306411.46934.ef     Document Type: Article

References (48)

1. Smetana GW, Landon BE, Bindman AB, et al. A comparison of outcomes resulting from generalist vs specialist care for a single discrete medical condition: a systematic review and methodologic critique. Arch Intern Med 2007;167:10-20.
2. Gabriel SE. Primary care: specialists or generalists. Mayo Clin Proc 1996;71:415-419.
3. Donohoe MT. Comparing generalist and specialty care. Arch Intern Med 1998;158:1596-1608.
4. Lawthers AG, Pransky GS, Peterson LE, Himmelstein JH. Rethinking quality in the context of persons with disability. Int J Qual Health Care 2003;15:287-299.
5. Iezzoni LI, Davis RB, Soukup J, O'Day B. Satisfaction with quality and access to health care among people with disabling conditions. Int J Qual Health Care 2002;14:369-381.
6. Bockenek WL, Mann N, Lanig IS, DeJong G, Beatty LA. Primary care for persons with disability. In: Delisa JA, Gans BM, Bockenek WL, eds. Rehabilitation Medicine: Principles and Practice. 3rd ed. Philadelphia: Lippincott-Raven, 1998;905-928.
7. DeJong G. Primary care for persons with disabilities: an overview of the problem. Am J Phys Med Rehabil 1997;76(3 suppl):S2-8.
8. O'Day B, Palsbo SE, Dhont K, Scheer J. Health plan selection criteria by people with impaired mobility. Medical Care 2002;40:732-742.
9. Kroll T, Neri MT. Experiences with care co-ordination among people with cerebral palsy, multiple sclerosis, or spinal cord injury. Disabil Rehabil 2003;25:1106-1114.
10. Kroll T, Beatty PW, Bingham S. Primary care satisfaction among adults with physical disabilities: the role of patient-provider communication. Manage Care Q 2003;11:11-19.
11. Donnelly C, McColl MA, Charlifue S, et al. Utilization, access and satisfaction with primary care among people with spinal cord injuries: a comparison of three countries. Spinal Cord 2007;45:25-36.
12. Halper J, Burks JS. Care patterns in multiple sclerosis: principal care, comprehensive team care, consortium care. J Neurol Rehab 1994;4:67-75.
13. Burks J. Multiple sclerosis care: an integrated disease-management model. J Spinal Cord Med 1998;21:113-116.
14. Ward CD, Phillips M, Smith A, Moran M. Multidisciplinary approaches in progressive neurological disease: can we do better? J Neurol Neurosurg Psychiatry 2003;74(suppl IV):iv8-iv12.
15. Schwartz CE, Brotman S, LaRocca N, Lee H. Patient perception of quality of care provided by specialists and generalists. Mult Scler 1998;4:426-432.
16. Vickrey BG, Edmonds ZV, Shatin D, et al. General neurologist and subspecialist care for multiple sclerosis: patients' perceptions. Neurology 1999;53:1190-1197.
17. Beatty PW, Hagglund KJ, Neri MT, Dhont KR, Clark MJ, Hilton SA. Access to health care services among people with chronic or disabling conditions: patterns and predictors. Arch Phys Med Rehabil 2003;84:1417-1425.
18. Hagglund KJ, Clark M, Conforti K, Shigaki CL. Access to health care services among people with disabilities receiving Medicaid. Mo Med 1999;96:447-453.
19. Minden SL, Frankel D, Hadden L, Hoaglin DC. Access to health care for people with multiple sclerosis. Mult Scler 2007;13:547-558.
20. Minden SL, Frankel D, Hadden L, Perloff J, Srinath KP, Hoaglin DC. The Sonya Slifka Longitudinal Multiple Sclerosis Study: methods and sample characteristics. Mult Scler 2006;12:24-38.
21. Minden SL, Marder WD, Harrold LN, Dor A. Multiple Sclerosis: A Statistical Portrait. A Compendium of Data on Demographics, Disability, and Health Services Utilization in the United States. Report to the National Multiple Sclerosis Society; August 1993.
22. United States Census Bureau. Census Bureau Home Page. Available at: http://www.census.gov. Accessed August 1, 2007.
23. Medical Expenditure Panel Survey. Available at: http://www.meps.ahrq.gov. Accessed August 1, 2007.
24. National Health Interview Survey. Available at: http://www.cdc.gov/nchs/ nhis.htm. Accessed August 1, 2007.
25. Current Population Survey. Available at: http://www.census.gov/cps/. Accessed August 1, 2007.
26. Hohol MJ, Orav EJ, Weiner HL. Disease steps in multiple sclerosis: a simple approach to evaluate disease progression. Neurology 1995;45:251-255.
27. Lublin FD, Reingold SC. Defining the clinical course of multiple sclerosis: results of an international survey. National Multiple Sclerosis Society (USA) Advisory Committee on Clinical Trials of New Agents in Multiple Sclerosis. Neurology 1996;46:907-911.
28. Poser CM, Paty DW, Scheinberg L, et al. New diagnostic criteria for multiple sclerosis: guidelines for research protocols. Ann Neurol 1983;13:227-231.
29. American Medical Association. Available at: http://webapps.ama-assn.org/ doctorfinder/home.html. Accessed August 1, 2007.
30. American Board of Medical Specialists. Available at: http://www.abms.org/ . Accessed August 1, 2007.
31. Hosmer DW, Lemeshow S. Applied Logistic Regression (Second Edition). New York, NY: John Wiley & Sons, 2000:95.
32. Weinick RM, Drilea SK. Usual sources of health care and barriers to care, 1996. Stat Bull Metro Insur Co 1998;79:11-17.
33. Weinick RM, Zuvekas SH, Drilea SK. Access to health care: Sources and barriers, 1996. Agency for Healthcare Research and Quality, Rockville, MD. 1997 MEPS Research Findings No. 3. AHCPR Pub. No. 98-0001. Available at: www.meps.ahrq.gov/mepsweb/data_files/publications/rf3/rf3.pdf. Accessed August 1, 2007.
34. Pancholi M. Reasons for lacking a usual source of care: 2001. Estimates for the U.S. civilian noninstitutionalized population. Statistical Brief #32. Agency for Healthcare Research and Quality, Rockville, MD. Available at: http://www.meps.ahrq.gov/mepsweb/data_files/publications/st32/stat32.pdf. Accessed August 1, 2007.
35. Medical Advisory Board of the National Multiple Sclerosis Society. Disease Management Consensus Statement. Available at: http://www. nationalmssociety.org/Sourcebook-Early.asp. Accessed August 1, 2007.
36. Medical Advisory Board of the National Multiple Sclerosis Society. Changing therapy in relapsing multiple sclerosis: considerations and recommendations of a task force of the National Multiple Sclerosis Society. Available at: http://www.nationalmssociety.org/pdf/forpros/Exp_ChangTherapy.pdf. Accessed August 1, 2007.
37. Medical Advisory Board of the National Multiple Sclerosis Society. Rehabilitation: recommendations for persons with multiple sclerosis. Available at: http://www.nationalmssociety.org/pdf/forpros/ExpOp_Rehab.pdf. Accessed August 1, 2007.
38. Medical Advisory Board of the National Multiple Sclerosis Society. Assessment and management of cognitive impairment in multiple sclerosis. Available at: http://www.nationalmssociety.org/pdf/forpros/CogImpair-ExpOp.pdf. Accessed August 1, 2007.
39. Goldman Consensus Group. The Goldman Consensus statement on depression in multiple sclerosis. Mult Scler 2005;11:328-337.
40. Iezzoni LI, McCarthy EP, Davis RB, Siebens H. Mobility impairments and use of screening and preventive services. Am J Public Health 2000;90:955-961.
41. Vaneslow NA. Primary care and the specialist. Editorial JAMA 1998;279:1394-1395.
42. Rosenblatt RA, Hart G, Baldwin L-M, Chan L, Schneeweiss R. The generalist role of specialty physicians. JAMA 1998;279:1364-1370.
43. Aiken LH, Lewis CE, Craig J, Mendenhall RC, Blendon RJ, Rogers DE. The contribution of specialists to the delivery of primary care. N Engl J Med 1979;300:1363-1370. Abstract.
44. Koopman RJ, May KM. Specialist management and coordination of "out-of-domain" care. Fam Med 2004;36:46-50.
45. Thomas DC. Primary care for people with disabilities. Mt Sinai J Med 1999;66:188-191.
46. Weiss LJ, Blustein J. Faithful patients: the effect of long-term physician-patient relationships on the cost and use of health care by older Americans. Am J Public Health 1996;86:1742-1747.
47. Veltman A, Stewart DE, Tardif GS, Branigan M. Perceptions of primary healthcare services among people with physical disabilities. Part 1: access issues. MedGen Med 2001;3:18.
48. The National Multiple Sclerosis Society. An analysis of non-members. Report prepared for the National Multiple Sclerosis Society. New York: Roper Starch Worldwide, Inc., 1998.