메뉴 건너뛰기




Volumn 31, Issue 1, 2008, Pages 4-11

Parents' perspectives on having their children interviewed for research

Author keywords

Genetic condition; Interviewing children; Qualitative research

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; ATTITUDE TO HEALTH; CHILD; CHILD ADVOCACY; CHILD PSYCHOLOGY; ETHICS; FEMALE; GENETIC DISORDER; HUMAN; HUMAN EXPERIMENT; HUMAN RELATION; INTERVIEW; MALE; MIDDLE AGED; NURSING METHODOLOGY RESEARCH; PARENT; PARENTAL CONSENT; PATIENT SELECTION; PSYCHOLOGICAL ASPECT; QUALITATIVE RESEARCH; QUESTIONNAIRE; RESEARCH SUBJECT; UNITED STATES;

EID: 40649106758     PISSN: 01606891     EISSN: 1098240X     Source Type: Journal    
DOI: 10.1002/nur.20231     Document Type: Article
Times cited : (9)

References (36)
  • 1
    • 0028959392 scopus 로고
    • Informed consent, parental permission, and assent in pediatric practice
    • American Academy of Pediatrics Committee on Bioethics
    • American Academy of Pediatrics Committee on Bioethics. (1995). Informed consent, parental permission, and assent in pediatric practice. Pediatrics, 95, 314-317.
    • (1995) Pediatrics , vol.95 , pp. 314-317
  • 2
    • 52349103466 scopus 로고    scopus 로고
    • Angst, D. (1992). Defining and managing cystic fibrosis: The experience of school age children and families. Publication Number AAT 9224755, Dissertation Abstracts International-B 53/04, p. 1779, October, 1992. Abstract retrieved June 8, 2006, from http://wwwlib.umi.com/dissertations/fullcit/9224755
    • Angst, D. (1992). Defining and managing cystic fibrosis: The experience of school age children and families. Publication Number AAT 9224755, Dissertation Abstracts International-B 53/04, p. 1779, October, 1992. Abstract retrieved June 8, 2006, from http://wwwlib.umi.com/dissertations/fullcit/9224755
  • 4
    • 52349122828 scopus 로고    scopus 로고
    • Code of Federal Regulations, 2005, June 23, Title 45, Public Welfare, Department of Health and Human Services, Part 46, Federal Policy for the Protection of Research Subjects, Subpart D, Additional Protection for Children Involved as Subjects in Research. 48 Federal Register 9818. Retrieved November 20, 2006, from
    • Code of Federal Regulations. (2005, June 23). Title 45, Public Welfare, Department of Health and Human Services, Part 46, Federal Policy for the Protection of Research Subjects, Subpart D, Additional Protection for Children Involved as Subjects in Research. 48 Federal Register 9818. Retrieved November 20, 2006, from http://www.hhs.gov/ohrp/humansubjects/guidance/45cfr46. htmsubpartd
  • 5
    • 0032605976 scopus 로고    scopus 로고
    • Deatrick, J.A., Knafl, K.A., & Murphy-Moore, C. (1999). Clarifying the concept of normalization. Image: Journal of Nursing Scholarship, 31, 209-214.
    • Deatrick, J.A., Knafl, K.A., & Murphy-Moore, C. (1999). Clarifying the concept of normalization. Image: Journal of Nursing Scholarship, 31, 209-214.
  • 6
    • 0000905171 scopus 로고    scopus 로고
    • Creating conversation: Reflections on cultural sensitivity in family interviewing
    • Dennis, R.E., & Giangreco, M.F. (1996). Creating conversation: Reflections on cultural sensitivity in family interviewing. Exceptional Children, 63, 103-116.
    • (1996) Exceptional Children , vol.63 , pp. 103-116
    • Dennis, R.E.1    Giangreco, M.F.2
  • 9
    • 2442551507 scopus 로고    scopus 로고
    • Interviewing children and adolescents
    • J.A. Gubrium & J.F. Holstein Eds, Thousand Oaks, CA: Sage
    • Eder, D., & Fingerson, L. (2002). Interviewing children and adolescents. In J.A. Gubrium & J.F. Holstein (Eds.), Handbook of interview research: Context and method (pp. 181-202). Thousand Oaks, CA: Sage.
    • (2002) Handbook of interview research: Context and method , pp. 181-202
    • Eder, D.1    Fingerson, L.2
  • 11
    • 52349113650 scopus 로고    scopus 로고
    • Ethical conduct of clinical research involving children
    • Field, M.J, Behrman, R.E, Eds, Institute of Medicine of the National Academies. Washington, DC: The National Academies Press
    • Field, M.J., Behrman, R.E. (Eds.). (2004). Ethical conduct of clinical research involving children. Committee on Clinical Research Involving Children, Board on Health Sciences Policy, Institute of Medicine of the National Academies. Washington, DC: The National Academies Press.
    • (2004) Committee on Clinical Research Involving Children, Board on Health Sciences Policy
  • 12
    • 0035511714 scopus 로고    scopus 로고
    • The needs of parents with chronically sick children: A literature review
    • Fisher, H.R. (2001). The needs of parents with chronically sick children: A literature review. Journal of Advanced Nursing, 36, 600-607.
    • (2001) Journal of Advanced Nursing , vol.36 , pp. 600-607
    • Fisher, H.R.1
  • 14
    • 52349118466 scopus 로고    scopus 로고
    • Gallo, A., Knafl, K., & Angst, D. (2001). Parent's interpretation and use of genetic information. Funded by the National Institutes of Health, National Human Genome Research Institute, Ethical, Legal & Social Implications Program. Abstract retrieved May 10, 2005, from http://crisp.cit. nih.gov/crisp/CRISP_LIB.getdoc? textkey=6383482&p_grant_num=IR01HG002036- 01A2&p_query=&ticket=39522903&p_audit_session_id= 246091132&p_keywords=
    • Gallo, A., Knafl, K., & Angst, D. (2001). Parent's interpretation and use of genetic information. Funded by the National Institutes of Health, National Human Genome Research Institute, Ethical, Legal & Social Implications Program. Abstract retrieved May 10, 2005, from http://crisp.cit. nih.gov/crisp/CRISP_LIB.getdoc? textkey=6383482&p_grant_num=IR01HG002036- 01A2&p_query=&ticket=39522903&p_audit_session_id= 246091132&p_keywords=
  • 15
    • 52349090237 scopus 로고    scopus 로고
    • Self-perception and family functioning in healthy school-age siblings of children with asthma and diabetes and healthy children
    • Gallo, A.M., & Szychlinski, C. (2003). Self-perception and family functioning in healthy school-age siblings of children with asthma and diabetes and healthy children. Journal of Family Nursing, 9, 414-434.
    • (2003) Journal of Family Nursing , vol.9 , pp. 414-434
    • Gallo, A.M.1    Szychlinski, C.2
  • 17
    • 0008697667 scopus 로고    scopus 로고
    • Team research using qualitative methods: Investigating children's involvement in clinical research
    • Hall, J.M., Stevens, P.E., & Fletsch, P.K. (2001). Team research using qualitative methods: Investigating children's involvement in clinical research. Journal of Family Nursing, 7, 7-31.
    • (2001) Journal of Family Nursing , vol.7 , pp. 7-31
    • Hall, J.M.1    Stevens, P.E.2    Fletsch, P.K.3
  • 18
    • 0036832524 scopus 로고    scopus 로고
    • Developmental strategies for interviewing children
    • Instone, S.L. (2002). Developmental strategies for interviewing children. Journal of Pediatric Health Care, 16, 304-305.
    • (2002) Journal of Pediatric Health Care , vol.16 , pp. 304-305
    • Instone, S.L.1
  • 19
    • 0030267677 scopus 로고    scopus 로고
    • Family response to childhood chronic illness: Description of management styles
    • Knafl, K., Breitmayer, B., Gallo, A., & Zoeller, L. (1996). Family response to childhood chronic illness: Description of management styles. Journal of Pediatric Nursing, 11, 315-326.
    • (1996) Journal of Pediatric Nursing , vol.11 , pp. 315-326
    • Knafl, K.1    Breitmayer, B.2    Gallo, A.3    Zoeller, L.4
  • 20
    • 0242718788 scopus 로고    scopus 로고
    • The challenge of normalization for families of children with chronic conditions
    • Knafl, K.A., & Deatrick, J.A. (2002). The challenge of normalization for families of children with chronic conditions. Pediatric Nursing, 28, 49-53.
    • (2002) Pediatric Nursing , vol.28 , pp. 49-53
    • Knafl, K.A.1    Deatrick, J.A.2
  • 21
    • 0037831250 scopus 로고    scopus 로고
    • Conducting a qualitative child interview: Methodological considerations
    • Kortesluoma, R.-L., Hentinen, M., & Nikkonen, M. (2003). Conducting a qualitative child interview: Methodological considerations. Journal of Advanced Nursing, 42, 434-441.
    • (2003) Journal of Advanced Nursing , vol.42 , pp. 434-441
    • Kortesluoma, R.-L.1    Hentinen, M.2    Nikkonen, M.3
  • 24
    • 0003392970 scopus 로고
    • National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research, Washington, DC: U.S. Government Printing Office
    • National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research. (1978). The Belmont Report: Ethical principles and guidelines for the protection of human subjects of research. Washington, DC: U.S. Government Printing Office.
    • (1978) The Belmont Report: Ethical principles and guidelines for the protection of human subjects of research
  • 27
    • 52349116666 scopus 로고    scopus 로고
    • Pediatric Research Equity Act, Cong. Rec. Retrieved April 2, 2007, from
    • Pediatric Research Equity Act. (2003; enacted). 108th Cong., 149 Cong. Rec. Retrieved April 2, 2007, from http://www.fda.gov/cder/pediatric/S-650-PREA. pdf
    • (2003) enacted). 108th Cong , vol.149
  • 28
    • 16244406415 scopus 로고    scopus 로고
    • Children in research: Informed consent and critical factors affecting mothers
    • Fletsch, P.K., & Stevens, P.E. (2001). Children in research: Informed consent and critical factors affecting mothers. Journal of Family Nursing, 7, 50-70.
    • (2001) Journal of Family Nursing , vol.7 , pp. 50-70
    • Fletsch, P.K.1    Stevens, P.E.2
  • 29
    • 0027549393 scopus 로고
    • Managing life with a chronic condition: The story of normalization
    • Robinson, C.A. (1993). Managing life with a chronic condition: The story of normalization. Qualitative Health Research, 3, 6-28.
    • (1993) Qualitative Health Research , vol.3 , pp. 6-28
    • Robinson, C.A.1
  • 31
    • 0034241415 scopus 로고    scopus 로고
    • Whatever happened to qualitative description?
    • Sandelowski, M. (2000). Whatever happened to qualitative description? Research in Nursing & Health, 23, 334-340.
    • (2000) Research in Nursing & Health , vol.23 , pp. 334-340
    • Sandelowski, M.1
  • 33
    • 0035832567 scopus 로고    scopus 로고
    • Research with children: Paediatric practice needs better evidence-gained in collaboration with parents and children
    • Smyth, R.L. (2001). Research with children: Paediatric practice needs better evidence-gained in collaboration with parents and children. British Medical Journal, 322, 1377-1378.
    • (2001) British Medical Journal , vol.322 , pp. 1377-1378
    • Smyth, R.L.1
  • 35
    • 33745760460 scopus 로고    scopus 로고
    • Children are not small adults: Documentation of assent for research involving children
    • Ungar, D., Joffe, S., & Kodish, E. (2006). Children are not small adults: Documentation of assent for research involving children. Journal of Pediatrics, 149, S31-S33.
    • (2006) Journal of Pediatrics , vol.149
    • Ungar, D.1    Joffe, S.2    Kodish, E.3
  • 36
    • 52349123187 scopus 로고    scopus 로고
    • U.S. Congress, Office of Technology Assessment. (1991). Adolescent health-I: Summary and policy options. OTA-H-468. Washington DC: US Government Printing Office. Retrieved June 20,2007 from http://www.wws. princeton.edu/ota/disk1/1991/9102/9102.PDF
    • U.S. Congress, Office of Technology Assessment. (1991). Adolescent health-Volume I: Summary and policy options. OTA-H-468. Washington DC: US Government Printing Office. Retrieved June 20,2007 from http://www.wws. princeton.edu/ota/disk1/1991/9102/9102.PDF


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.