Decision-related uncertainties perceived by people with cancer - Modelling the subject of shared decision making

Psycho-Oncology

Volumn 17, Issue 1, 2008, Pages 42-48

  Kasper, Jürgen ^a   Geiger, Friedemann ^b   Freiberger, Saskia ^c   Schmidt, Angelika ^d  

^a UNIVERSITY OF HAMBURG   (Germany)

^b UNIVERSITY HOSPITAL SCHLESWIG HOLSTEIN   (Germany)

^c LEIBNIZ INSTITUTE FOR SCIENCE AND MATHEMATICS EDUCATION   (Germany)

^d ASB Mother and Child Therapy Center   (Germany)

Author keywords

Cancer; Decision making; Oncology; Qualitative research; Uncertainty

Indexed keywords

ADULT; AGED; ARTICLE; BREAST CANCER; CANCER DIAGNOSIS; CANCER PATIENT; CANCER THERAPY; CLINICAL ARTICLE; COPING BEHAVIOR; DOCTOR PATIENT RELATION; FEMALE; HUMAN; INTERPERSONAL COMMUNICATION; INTERVIEW; KIDNEY CANCER; LUNG CANCER; MALE; MALIGNANT NEOPLASTIC DISEASE; MEDICAL DECISION MAKING; PROGNOSIS; QUALITATIVE ANALYSIS; SELF CONCEPT; STATISTICAL MODEL; THEORETICAL STUDY; TONGUE CANCER; UNCERTAINTY;

ADAPTATION, PSYCHOLOGICAL; AGED; ATTITUDE TO HEALTH; COOPERATIVE BEHAVIOR; DECISION MAKING; FEMALE; HUMANS; MALE; MIDDLE AGED; NEOPLASMS; QUALITY OF LIFE;

EID: 38649126568     PISSN: 10579249     EISSN: 10991611     Source Type: Journal    
DOI: 10.1002/pon.1190     Document Type: Article

References (30)

1. O'Connor A, Stacey D, Entwistle V et al. Decision aids for people facing health treatment or screening decisions. Cochrane Database Syst Rev:CD001431, 2003.
2. Charles C, Gafni A, Whelan T. Shared decision-making in the medical encounter: what does it mean? (Or it takes at least two to tango). Soc Sci Med 1997;44(5): 651-661.
3. Charles C, Gafni A, Whelan T. Decision-making in the physician-patient encounter: revisiting the shared treatment decision-making model. Soc Sci Med 1999; 49:681-692.
4. Elwyn G, Edwards A, Wensing M, Hood K, Atwell C, Grol R. Shared decision making: developing the OPTION scale for measuring patient involvement. Qual Saf Health Care 2003;12:93-99.
5. Whelan T, Sawka C, Levine M et al. Helping patients make informed choices: a randomized trial of a decision aid for adjuvant chemotherapy in lymph node-negative breast cancer. J Natl Cancer Inst 2003; 95(8):581-587.
6. Kasper J, Lenz M. Criteria for the development and evaluation of decision aids. Z Arztl Fortbild Qualitatssich 2005; 99:359-365.
7. Makoul G, Clayman M. An integrative model of shared decision making in medical encounters. Patient Educ Couns 2006;60(3):301-312.
8. Towle A, Godolphin W. Framework for teaching and learning informed shared decision making. Br Med J 1999;319(7212):766-771.
9. Elwyn G, Edwards A, Kinnersley P, Grol R. Shared decision making and the concept of equipoise: the competences of involving patients in healthcare choices. Br J Gen Pract 2000;50:892-899.
10. Steckelberg A, Berger B, Köpke S, Heesen C, Mühlhauser I. Criteria of evidence-based patient information. Z Arztl Fortbild Qualitatssich 2005;99:343-351.
11. Braddock C, Edwards K, Hasenberg N, Laidley T, Levinson W. Informed decision making in outpatient practice: time to get back to basics. JAMA 1999;282: 2313-2320.
12. Taylor S, Pickens J, Geden E. Interactional styles of nurse practitioners and physicians regarding patient decision making. Nurs Res 1989;38:50-55.
13. Jordan J, Ellis S, Chambers R. Defining shared decision making and concordance: are they one and the same? Postgrad Med J 2002; 78:383-384.
14. Ruland C, Bakken S. Developing, implementing, and evaluating decision support systems for shared decision making in patient care: a conceptual model and case illustration. J Biomed Inform 2002; 35:313-321.
15. Ford S, Schofield T, Hope T. What are the ingredients for a successful evidence-based patient choice consultation? A qualitative study. Soc Sci Med 2003;56: 589-602.
16. Stubblefield C, Mutha S. Provider-patient roles in chronic disease management. J Allied Health 2002;31: 87-92.
17. Kennedy AD. On what basis should the effectiveness of decision aids be judged? Health Expect 2003;6(3): 255-268.
18. Charles C, Gafni A, Whelan T, O'Brien M. Treatment decision aids: conceptual issues and future directions. Health Expect 2005; 8(2):114-125.
19. Siminoff L, Step MM. Communication model of shared decision making: accounting for cancer treatment decisions. Health Psychol 2005; 24:99-105.
20. Elwyn G, Hutchings H, Edwards A et al. The OPTION scale: measuring the extent that clinicians involve patients in decision-making tasks. Health Expect 2005;8:34-42.
21. Lerman CE, Brody DS, Caputo GC, Smith DG, Lazaro CG, Wolfson HG. Patients' perceived involvement in care scale: relationship to attitudes about illness and medical care. J Gen Intern Med 1990; 5:29-33.
22. O'Connor AM, Jacobsen MJ. Decisional conflict: assessing and supporting patients experiencing uncertainty about choices affecting their health. 2003. http://204.187.39.28/docs/Reading_DecisionalConflict2003.pdf. Accessed on 16/03/2004.
23. Bottorff JL, Rather PA, Johnson JL, Lovato CY, Joab SA. Communicating cancer risk information: the challenges of uncertainty. Patient Educ Couns 1998;33: 67-81.
24. Mishel MH. The measurement of uncertainty in illness. Nurs Res 1981;30(5):258-263.
25. Mishel MH. Reconeeptualization of the uncertainty in illness theory. J Nurs Scholarsh 1990;22(4):256-262.
26. Strauss AL, Corbin J. Grounded theory: Grundlagen qualitativer Sozialforschung. Weinheim, Beltz, PVU, 1996.
27. Fleiss JL. Measuring nominal scale agreement among many raters. Psychol Bull 1971;76(5):378-382.
28. Brashers DE, Neidig JL, Haas SM, Dobbs LK, Cardillo LW, Russell JA. Communication in the management of uncertainty: the case of persons living with HIV or AIDS. Commun Monogr 2000;67:63-84.
29. Mishel MH. Uncertainty in chronic illness. Ann Rev Nurs Res 1999;17:269-294.
30. McNutt RA. Shared medical decision making. Problems, process, progress. J Am Med Assoc 2004; 292(20):2516-2518.