Criteria for evidence-based patient information;Kriterien für evidenzbasierte patienteninformationen

Zeitschrift fur Arztliche Fortbildung und Qualitatssicherung

Volumn 99, Issue 6, 2005, Pages 343-351

  Steckelberg, Anke ^a   Berger, Bettina ^a   Köpke, Sascha ^a   Heesen, Christoph ^b   Mühlhauser, Ingrid ^a  

^a UNIVERSITY OF HAMBURG   (Germany)

^b UNIVERSITY MEDICAL CENTER HAMBURG EPPENDORF   (Germany)

Author keywords

Evidence based medicine; Framing of data; Informed choice; Patient information; Patient involvement

Indexed keywords

ACCURACY; DECISION MAKING; ETHICS; EVALUATION; EVIDENCE BASED MEDICINE; HEALTH EDUCATION; HUMAN; INFORMATION SERVICE; INTERPERSONAL COMMUNICATION; PATIENT EDUCATION; PATIENT INFORMATION; PATIENT PARTICIPATION; PHYSIOTHERAPY; POLYARTHRITIS; PRACTICE GUIDELINE; QUALITY CONTROL; REVIEW; SENSITIVITY AND SPECIFICITY;

EVIDENCE-BASED MEDICINE; HUMANS; INFORMED CONSENT; PATIENTS;

EID: 23844478920     PISSN: 14317621     EISSN: 16180992     Source Type: Journal    
DOI: None     Document Type: Review

References (47)

1. Elwyn G, Edwards A. Evidence-based patient choice? In: Edwards A, Elwyn G, editors. Evidence-based patient choice. Oxford: University press 2001;3-18.
2. Ford S, Schofield T, Hope T. What are the ingredients for a successful evidence-based patient choice consultation? A qualitative study. Social Science & Medicine 2003;56:589-602.
3. European Charta of Patients' Rights. 2002 http://home.online.no/~wkeim/ files/ european_charter.htm (Zugriff am 25.11.2004).
4. Steckelberg A, Kasper J, Redegeld M, Mühlhauser I. Risk information - barrier to informed choice? A focus group study. Soz Praventivmed 2004;49:375-80.
5. Coulter A. Evidence based patient information. BMJ 1998;317:225-6.
6. General Medical Council. Protecting patients, guiding doctors. Seeking patients' consent: the ethical considerations. www.gmc-uk.org (Zugriff am 1.09.2004).
7. Mühlhauser I, Berger M. Evidence-based patient information in diabetes. Diabet Med 2000;17:823-9.
8. Köpke S, Heesen C, Kasper J, Mühlhauser I. Steroid treatment for relapses in multiple sclerosis-the evidence urges shared decision making. Acta Neurol Scand 2004;110:1-5.
9. Howard K, Salkeld G. Home bowel cancer tests and informed choice - is current information sufficient? Aust N Z J Public Health 2003;27:513-6.
10. Jørgensen KJ, Gøtsche PC. Presentation on websites of possible benefits and harms from screening for breast cancer: cross sectional study. BMJ 2004;328:148-53.
11. Slaytor E, Ward J. How risks of breast cancer and benefits of screening are communicated to women: analyses of 58 pamphlets. BMJ 1998;317:261-4.
12. Steckelberg A, Balgenorth A, Mühlhauser I. Analyse von deutschsprachigen Verbraucher-Informationsbroschüren zum Screening auf kolorektales Karzinom. Z Arztl Fortbild Qualitatssich 2001;95:535-8.
13. Fahey T, Griffiths S, Peters TJ. Evidence based purchasing: understanding results of clinical trials and systematic reviews. BMJ 1995;311:1056-9.
14. Coulter A, Entwistle V, Gilbert D. Informing Patients: an assessment of the quality of patient information materials. London: King's Fund; 1998.
15. Coulter A, Entwistle V, Gilbert D. Sharing decisions with patients: is the information good enough? BMJ 1999;318:318-22.
16. Schünemann HJ, Best D, Vist G, Oxmann AD. Letters, numbers, symbols and words: how to communicate grades of evidence and recommendations. CMAJ 2003;169:677-80.
17. Ebell MH, Siwek J, Barry D. Strength of recommendation taxanomy (SORT): A patient-centered approach to grading evidence in the medical literature. J Am Board Fam Pract 2004;17:59-67.
18. Glasziou P, Vandenbroucke J, Chalmers I. Assessing the quality of research. BMJ 2001;328:39-41.
19. Harbour R, Miller J. A new system for grading recommendations in evidence based guidelines. BMJ 2001;323: 334-6.
20. Atkins D, Best D, Briss PA, Eccles M, Falck-Ytter Y, Flottorp S et al. Grading quality of evidence and strength of recommendations. BMJ 2004;328:1490-6.
21. Institut für Qualität und Wirtschaftlichkeit im Gesundheitswesen. Methoden. http://www.iqwig.de/media/_ber_uns/in stitut/files/2005_03_01_IQWiG_Methoden.pdf (Zugriff am 1.04.2000)
22. Entwistle VA, Sheldon TA, Sowden A, Watt IS. Evidence-informed patient choice. Int J Technol Assess Health Care 1998;14:212-25.
23. Gigerenzer G, Edwards A. Simple tools for understanding risks: from innumeracy to insight. BMJ 2003;327:741-4.
24. Burkell J. What are the chances? Evaluating risk and benefit information in consumer health materials. I Med Libr Assoc 2004;92:200-8.
25. Hoffrage U, Lindsey S, Hertwig R, Gigerienzer G. Communicating statistical information. Science 2000;290:2261-2.
26. Yamagishi K. When a 12.86% mortality is more dangerous than 24.14%: implication for risk communication. Appl Cogn Psychol 1997;11:495-506.
27. Wissensplattform Fachwissenschaft Gesundheit der Universität Hamburg. www.gesundheit.uni-hamburg.de (Zugriff am 28.11.2004).
28. Woloshin S, Schwartz LM, Welch G. Risk Charts: Putting cancer in context. J Natl Cancer Inst 2002;94:799-804.
29. Edwards A, Elwyn G, Mulley A. Explaining risks: turning numerical data into meaningful pictures. BMJ 2002;324:827-30.
30. Slovic P, Fischhoff B, Lichtenstein S. Facts versus fears: understanding perceived risks. In: Kahnemann D, Slovic P, Tversky A. Judgement under uncertainty: heuristics and biases. Cambridge UK; Cambridge University Press 1982:463-89.
31. Derry S, Loke YK. Risk of gastrointestinal haemorrhage with long term use of aspirin: meta-analysis. BMJ 2000 321:1183-7.
32. Towler B, Irwig L, Glasziou P, Kewenter J, Weller D, Silagy C. A systematic review of the effects of screening for colorectal cancer using the faecal occult blood test, Hemoccult. BMJ 1998;317:559-65.
33. Schwartz LM, Woloshin S, Welch HG. Risk Communication in clinical practice: Putting cancer in context Monogr Natl Cancer Inst 1999;25:124-33.
34. Tan LB, Murphy R. Shifts in mortality curves: saving or extending lives. Lancet 1999;354:1378-81.
35. Calman KC, Royston G. Risk language and dialects. BMJ 1997;315:939-42.
36. European Commission. A guideline on the readability of the label and package leaflet of medicinal products for human use. European Commission, Directorate-General III, 1998. http://pharmacos.eudra.org/F2/ eudralex/vol-2/C/gl981002.pdf (Zugriff am 28.11.2004)
37. Berry D, Raynor T, Knapp P, Bersellini E. Over the counter medicines and the need for immediate action: a further evaluation of European Commission recommended wordings for communicating risk. Patient Educ Couns 2004;53:129-34.
38. Heesen C, Schwickert Y, Kasper J, Köpke S, Scheunemann D, Meyer G et al. Immuntherapien der Multiplen Sklerose. Hamburg: 2004.
39. Lipkus IM, Hollands JG. The visual communication of risk. Monogr Natl Cancer Inst 1999;25:149-56.
40. Edwards A, Elwyn G, Covey J, Matthews E, Pill R. Presenting risk information - a review of the effects of "framing" and other manipulation on patient outcomes. J Health Commun 2001;6:61-82.
41. Harvard School of Public Health: Health Literacy Website. http://www.hsph.harvard.edu/healthliteracy/how_to/create_mat.html. (Zugriff am 29.11.2004).
42. Winkelman C. Writing consent forms in language that patients and research subjects understand. International Conference on Communication in Healthcare (EACH) 2004 (Poster), Bruges, Belgium (Abstractbook).
43. CHIQ - The Center for Health Information Quality. http://www.hfht.org/ chiq/ producers_guidelines.htm (Zugriff: 25.11.2004).
44. Entwistle VA, Watt IS, Davis H (1998) Developing information materials to present the findings of technology assessments to consumers. Int J Technol Assess Health Care 1998;14:47-70.
45. O'Connor AM, Stacey D, Rovner D, Holmes-Rovner M, Tetroe J, Llewellyn-Thomas H et al. Decision aids for people facing health treatment or screening decisions. The Cochrane Database of Syst Rev 2003 1.CD001431.
46. Talion D, Chard J, Dieppe P. Relation between agendas of the research community and the research consumer. Lancet 2000;355:2037-40.
47. Crawford MJ, Rutter D, Manley C, Weaver T, Bhui K, Fulop N et al. Systematic review of involving patients in the planning and development of health care. BMJ 2002;325:1263-5.