Disparities in diagnoses received prior to a diagnosis of autism spectrum disorder

Journal of Autism and Developmental Disorders

Volumn 37, Issue 9, 2007, Pages 1795-1802

  Mandell, David S ^a,b   Ittenbach, Richard F ^a,c   Levy, Susan E ^a,c   Pinto Martin, Jennifer A ^a,d  

^a UNIVERSITY OF PENNSYLVANIA   (United States)

^b UNIVERSITY OF PENNSYLVANIA   (United States)

^c CHILDREN S HOSPITAL OF PHILADELPHIA   (United States)

^d UNIVERSITY OF PENNSYLVANIA SCHOOL OF NURSING   (United States)

Author keywords

African Americans; Autism spectrum disorder; Autistic disorder; Child health services; Community mental health services; Minorities

Indexed keywords

AFRICAN AMERICAN; ARTICLE; ATTENTION DEFICIT DISORDER; AUTISM; CAUCASIAN; CHILD; CONTROLLED STUDY; ETHNICITY; FEMALE; HUMAN; MAJOR CLINICAL STUDY; MALE; MEDICAID; MENTAL HEALTH SERVICE; PRIORITY JOURNAL;

AFRICAN AMERICANS; ATTENTION DEFICIT DISORDER WITH HYPERACTIVITY; AUTISTIC DISORDER; CHILD; DIAGNOSIS, DIFFERENTIAL; DIAGNOSTIC ERRORS; EARLY DIAGNOSIS; EUROPEAN CONTINENTAL ANCESTRY GROUP; FEMALE; HUMANS; MALE; PREVALENCE; SEVERITY OF ILLNESS INDEX; TIME FACTORS;

EID: 34748896553     PISSN: 01623257     EISSN: 15733432     Source Type: Journal    
DOI: 10.1007/s10803-006-0314-8     Document Type: Article

References (55)

1. Aman, M., & Langworthy, K. (2000). Pharmacotherapy for hyperactivity in children with autism and other pervasive developmental disorders. Journal of Autism & Developmental Disorders, 30(5), 451-459.
2. American Psychiatric Association (2000). Diagnostic and statistical manual of mental disorders, fourth edition, text revision. Washington, DC: American Psychiatric Association.
3. Baird, G., Charman, T., Cox, A., Baron-Cohen, S., Swettenham, J., Wheelwright, S., et al. (2001). Screening and surveillance for autism and pervasive developmental disorders. Archives of Disease in Childhood, 84(6), 468-475.
4. Balsa, A., & McGuire, T. (2001). Statistical discrimination in health care. Journal of Health Economics, 20, 881-907.
5. Balsa, A., McGuire, T., & Meredith, L. (2005). Testing for statistical discrimination in health care. Health Services Research, 40(1), 227-252.
6. Bonde, E. (2000). Comorbidity and subgroups in childhood autism. European Child & Adolescent Psychiatry, 9, 7-10.
7. Bryson, S., Rogers, S., & Fombonne, E. (2003). Autism spectrum disorders: Early detection, intervention, education, and psychopharmacological management. Canadian Journal of Psychiatry, 48(8), 506-516.
8. Chakrabarti, S., & Fombonne, E. (2001). Pervasive developmental disorders in preschool children. Journal of the American Medical Association, 285(24), 3093-3099.
9. Charman, T., Taylor, E., Drew, A., Cockerill, H., Brown, J., & Baird, G. (2005). Outcome at 7 years of children diagnosed with autism at age 2: Predictive validity of assessments conducted at 2 and 3 years of age and pattern of symptom change over time. Journal of Child Psychology and Psychiatry, 46(5), 500-513.
10. Collins, A., Ma, D., Whitehead, P., Martin, E., Wright, H., Abramson, R., et al. (2006). Investigation of autism and GABA receptor subunit genes in multiple ethnic groups. Neurogenetics, 7, 167-174.
11. Constantino, J., Davis, S., Todd, R., Schindler, M., Gross, M., Brophy, S., et al. (2003). Validation of a brief quantitative measure of autistic traits: Comparison of the social responsiveness scale with the autism diagnostic interview-revised. Journal of Autism and Developmental Disorders, 33(4), 427-433.
12. Coonrod, E., & Stone, W. (2004). Early concerns of parents of children with autistic and nonautistic disorders. Infants and Young Children, 17(3), 258-269.
13. Cooper-Patrick, L., Gallo, J., Gonzales, J., Vu, H., Powe, N., Nelson, C., et al. (1999). Race, gender, and partnership in the patient-physician relationship. Journal of the American Medical Association, 282(6), 583-589.
14. Cooper, L., Beach, M., Johnson, R., & Inui, T. (2006). Delving below the surface. Understanding how race and ethnicity influence relationships in health care. Journal of General Internal Medicine, 21(Suppl 1), S21-S27.
15. Cuccaro, M., Donnelly, S., Cope, H., Wolpert, C., Carney, R., Abramson, R., et al. (2005). Autism in african-american (aa) families: Phenotypic findings. Paper presented at the American Society of Human Genetics 55th Annual Meeting, Salt Lake City, UT.
16. Cuccaro, M., Shao, Y., Grubber, J., Slifer, M., Wolpert, C., Donnelly, S., et al. (2003). Factor analysis of restricted and repetitive behaviors in autism using the Autism Diagnostic Interview-R. Child Psychiatry & Human Development, 34(1), 3-17.
17. Cuccaro, M., Wright, H., Rownd, C., Abramson, R., Waller, J., & Fender, D. (1996). Professional perceptions of children with developmental difficulties: The influence of race and socioeconomic status. Journal of Autism & Developmental Disorders, 26(4), 461-469.
18. Cuffe, S., Waller, J., Cuccaro, M., Pumariega, A., & Garrison, C. (1996). Race and gender differences in the treatment of psychiatric disorders in young adolescents. Journal of the American Academy of Child & Adolescent Psychiatry, 34(11), 1536-1543.
19. Daley, T. (2004). From symptom recognition to diagnosis: Children with autism in urban india. Social Science and Medicine, 58, 1323-1335.
20. Dearlove, J., & Kearney, D. (1990). How good is general practice developmental screening. British Medical Journal, 300, 1177-1180.
21. Dobos, A., Dworkin, P., & Bernstein, B. (1994). Pediatricians' approaches to developmental problems: Has the gap been narrowed. Journal of Developmental and Behavioral Pediatrics, 15, 34-39.
22. Dumont-Mathieu, T., & Fein, D. (2005). Screening for autism in young children: The modified checklist for autism in toddlers (m-chat) and other measures. Mental Retardation & Developmental Disabilities Research Reviews, 11(3), 253-262.
23. Eisenmajer, R., Prior, M., Leekam, S., Wing, L., Gould, J., Welham, M., et al. (1996). Comparison of clinical symptoms in autism and asperger's disorder. Journal of the American Academy of Child & Adolescent Psychiatry, 35(11), 1523-1531.
24. Fombonne, E. (2003). Epidemiological surveys of autism and other pervasive developmental disorders: An update. Journal of Autism and Developmental Disorders, 33(4), 365-382.
25. Fombonne, E., Heavey, L., Smeeth, L., Rodrigues, L., Cook, C., Smith, P., et al. (2004). Validation of the diagnosis of autism in general practitioner records. BMC Public Health, 4(Article 5).
26. Glascoe, F. (1997). Parent's concerns about children's development: Prescreening technique or screening test? Pediatrics, 99(4), 522-528.
27. Goldstein, S., & Schwebach, A. (2004). The comorbidity of pervasive developmental disorder and attention deficit hyperactivity disorder: Results of a retrospective chart review. Journal of Autism & Developmental Disorders, 34(3), 329-339.
28. Guevara, J., Mandell, D., Rostain, A., Zhao, H., & Hadley, T. (2006). Disparities in the reporting and treatment of health conditions in children: An analysis of the medical expenditure panel survey. Health Services Research, 41(2), 532-549.
29. Hatton, D., Hooper, S., Bailey, D., Skinner, M., Sullivan, K., & Wheeler, A. (2002). Problem behavior in boys with fragile X syndrome. American Journal of Medical Genetics, 108(2), 105-116.
30. Hill, A., Bolte, S., Petrova, G., Beltcheva, D., Tacheva, S., & Poustka, F. (2001). Stability and interpersonal agreement of the interview-based diagnosis of autism. Psychopathology, 34(4), 187-191.
31. Howlin, P., & Moore, A. (1997). Diagnosis of autism. A survey of over 1200 patients in the UK. Autism, 1, 135-162.
32. Institute of Medicine (2002). Unequal treatment. Washington, DC: Institute of Medicine.
33. Kilgus, M., Pumariega, A., & Cuffe, S. (1995). Influence of race on diagnosis in adolescent psychiatric inpatients. Journal of the American Academy of Child & Adolescent Psychiatry, 34(1), 67-72.
34. Lord, C., Risi, S., DiLavore, P., Shulman, C., Thurm, A., & Pickles, A. (2006). Autism from 2 to 9 years of age. Archives of General Psychiatry, 63(6), 649-701.
35. Mahoney, W., Szatmari, P., MacLean, J., Bryson, S., Bartolucci, G., Walter, S., et al. (1998). Reliability and accuracy of differentiating pervasive developmental disorder subtypes. Journal of the American Academy of Child & Adolescent Psychiatry, 37(3), 278-285.
36. Mandell, D., Listerud, J., Levy, S., & Pinto-Martin, J. (2002). Race differences in the age at diagnosis among medicaid-eligible children with autism. Journal of the American Academy Of Child And Adolescent Psychiatry, 41(12), 1447-1453.
37. Mandell, D., & Novak, M. (2005). The role of culture in families' treatment decisions for children with autism spectrum disorders. Mental Retardation & Developmental Disabilities Research Reviews, 11, 110-115.
38. Mandell, D., Novak, M., & Zubritsky, C. (2005a). Factors associated with the age of diagnosis among children with autism spectrum disorders. Pediatrics, 116(6), 1480-1486.
39. Mandell, D., Walrath, C., Manteuffel, B., Sgro, G., & Pinto-Martin, J. (2005b). Characteristics of children with autistic spectrum disorders served in comprehensive community-based mental health settings. Journal of Autism and Developmental Disorders, 35(3), 113-121.
40. Medicode. (1987). International classification of diseases (9th ed.). Salt Lake City, UT: Med-Index Publications.
41. Noterdaeme, M., Amorosa, H., Mildenberger, K., Sitter, S., & Minow, F. (2001). Evaluation of attention problems in children with autism and children with a specific language disorder. European Child & Adolescent Psychiatry, 10(1), 58-66.
42. Ohta, M., Nagai, Y., Hara, H., & Sasaki, M. (1987). Parental perception of behavioral symptoms in Japanese autistic children. Journal of Autism & Developmental Disorders, 17(4), 549-563.
43. Remington, G., Sloman, L., Konstantareas, M., Parker, K., & Gow, R. (2002). Clomipramine versus haloperidol in the treatment of autistic disorder: A double-blind, placebo-controlled, crossover study. Journal of Clinical Psychopharmacology, 21(4), 440-444.
44. Roter, D., Hall, J., Kern, D., Barker, L., Cole, K., & Roca, R. (1995). Improving physicians' interviewing skills and reducing patients' emotional distress: A randomized clinical trial. Archives of Internal Medicine, 155, 1877-1884.
45. Roter, D., Stewart, M., Putnam, S., Lipkin M. Jr, Stiles, W., & Inui, T. (1997). Communication patterns of primary care physicians. Journal of the American Medical Association, 277, 350-356.
46. Shah, K. (2001). What do medical students know about autism. Autism, 5(2), 127-133.
47. Shevell, M., Majnemer, A., Rosenbaum, P., & Abrahamowicz, M. (2001). Profile of referrals for early childhood developmental delay to ambulatory subspecialty clinics. Journal of Child Neurology, 16(9), 645-650.
48. Sices, L., Feudtner, C., McLaughlin, J., Drotar, D., & Williams, M. (2003). How do primary care physicians identify young children with developmental delays? A national survey. Journal of Developmental and Behavioral Pediatrics, 24(6), 409-417.
49. Spiker, D., Lotspeich, L., Dimiceli, S., Myers, R., & Risch, N. (2002). Behavioral phenotypic variation in autism multiplex families: Evidence for a continuous severity gradient. American Journal of Medical Genetics, 114(2), 129-136.
50. Tadevosyan-Leyfer, O., Dowd, M., Mankoski, R., Winklosky, B., Putnam, S., McGrath, L., et al. (2003). A principal components analysis of the autism diagnostic interview-revised. Journal of the American Academy of Child & Adolescent Psychiatry, 42(7), 864-872.
51. Tukey, J. (1977). Explanatory data analysis. Reading, MA: Addison-Wesley.
52. Volkmar, F., & Pauls, D. (2003). Autism. Lancet, 362(9390), 1133-1141.
53. Wissow, L., Larson, S., Anderson, J., & Hadjisky, E. (2005). Pediatric residents' responses that discourage discussion of psychosocial problems in primary care. Pediatrics, 115(6), 1569-1578.
54. Wu, P., Hoven, C., Bird, H., Moore, R., Cohen, P., Alegria, M., et al. (1999). Depressive and disruptive disorders and mental health service utilization in children and adolescents. Journal of the American Academy of Child & Adolescent Psychiatry, 38(9), 1081-1090.
55. Yeargin-Allsopp, M., Rice, C., Karapurkar, T., Doernberg, N., Boyle, C., & Murphy, C. (2003). Prevalence of autism in a US metropolitan area. Journal of the American Medical Association, 289(1), 49-55.