Factors associated with age of diagnosis among children with autism spectrum disorders

Pediatrics

Volumn 116, Issue 6, 2005, Pages 1480-1486

  Mandell, David S ^a   Novak, Maytali M ^a   Zubritsky, Cynthia D ^a  

^a UNIVERSITY OF PENNSYLVANIA   (United States)

Author keywords

Autism; Developmental delay; Medical home; Referral consultation

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; ASPERGER SYNDROME; AUTISM; CHILD; CLINICAL FEATURE; CONTROLLED STUDY; FEMALE; HEALTH SURVEY; HUMAN; MAJOR CLINICAL STUDY; MALE; PATIENT REFERRAL; PHYSICIAN; PRIMARY MEDICAL CARE; PRIORITY JOURNAL; RURAL AREA; UNITED STATES; URBAN AREA; AGE; PRESCHOOL CHILD; SOCIOECONOMICS;

ADOLESCENT; ADULT; AGE FACTORS; AUTISTIC DISORDER; CHILD; CHILD, PRESCHOOL; FEMALE; HUMANS; MALE; PENNSYLVANIA; SOCIOECONOMIC FACTORS;

EID: 33644700178     PISSN: 00314005     EISSN: 02105721     Source Type: Journal    
DOI: 10.1542/peds.2005-0185     Document Type: Article

References (65)

1. Mandell DS, Listerud J, Levy SE, Pinto-Martin JA. Race differences in the age at diagnosis among Medicaid-eligible children with autism. J Am Acad Child Adolesc Psychiatry. 2002;41:1447-1453
2. American Academy of Pediatrics. The pediatrician's role in the diagnosis and management of autistic spectrum disorder in children. Pediatrics. 2001;107:1221-1226
3. Committee on Children with Disabilities. Technical report: the pediatrician's role in the diagnosis and management of autistic spectrum disorder in children. Pediatrics. 2001;107(5). Available at: www.pediatrics.org/cgi/content/full/107/5/e85
4. Campbell M, Schopler E, Cueva J, Hallin A. Treatment of autistic disorder. J Am Acad Child Adolesc Psychiatry. 1996;35:134-143
5. Rapin I. Current concepts: autism. New Engl J Med. 1997;337:97-104
6. Volkmar F, Cook E, Pomeroy J, Realmuto G, Tanguay P. Practice parameters for the assessment and treatment of children, adolescents and adults with autism and other pervasive developmental disorders. J Am Acad Child Adolesc Psychiatry. 1999;38(suppl):32S-54S
7. Lord C. Follow-up of two-year-olds referred for possible autism. J Child Psychol Psychiatry. 1995;36:1365-1382
8. Mars AE, Mauk JE, Dowrick PW. Symptoms of pervasive developmental disorders as observed in prediagnostic home videos of infants and toddlers. J Pediatr. 1998;132:500-504
9. Jacobson J, Mulick J, Green G. Cost-benefit estimates for early intensive behavioral intervention for young children with autism - general model and single state case. Behav Interventions. 1998;13:201-226
10. Jacobson J, Mulick J. System and cost research issues in treatments for people with autistic disorders. J Autism Dev Disord. 2000;30:585-593
11. Jarbrink K, Knapp M. The economic impact of autism in Britain. Autism. 2001;5:7-22
12. American Psychiatric Association. Diagnostic and Statistical Manual of Mental Disorders, 4th ed., Text Revision. Washington, DC: American Psychiatric Association; 2000
13. Charman T, Baird G. Practitioner review: diagnosis of autism spectrum disorder in 2- and 3-year-old children. J Child Psychol Psychiatry. 2002;43:289-305
14. Charman T, Baron-Cohen S, Swettenham J, Baird G, Cox A, Drew A. Testing joint attention, imitation and play as infancy precursors to language and theory of mind. Cogn Dev. 2000;15:481-498
15. Baird G, Charman T, Cox A, et al. Screening and surveillance for autism and pervasive developmental disorders. Arch Dis Child. 2001;84:468-475
16. Baron-Cohen S, Wheelwright S, Cox A, et al. Early identification of autism by the Checklist for Autism in Toddlers (CHAT). J R Soc Med. 2000;93:521-525
17. Howlin P. Prognosis in autism: do specialist treatments affect long-term outcome? Eur Child Adolesc Psychiatry. 1997;6:55-72
18. Levy SE, Mandell DS, Merhar S, Ittenbach RF, Pinto-Martin JA. Use of complementary and alternative medicine among children recently diagnosed with autistic spectrum disorder. J Dev Behav Pediatr. 2003;24:418-423
19. Yeargin-Allsopp M, Rice C, Karapurkar T, Doernberg N, Boyle C, Murphy C. Prevalence of autism in a US metropolitan area. JAMA. 2003;289:49-55
20. Shah K. What do medical students know about autism. Autism. 2001;5:127-133
21. Palfrey J, Singer J, Walker D, Butler J. Early identification of children's special needs: a study in five metropolitan communities. J Pediatr. 1987;111:651-659
22. Knafl K, Ayres L, Gallo A, Zoeller L, Breitmayer B. Learning from stories: parents' accounts of the pathway to diagnosis. Pediatr Nurs. 1995;21:411-415
23. Shevell M, Majnemer A, Rosenbaum P, Abrahamowicz M. Profile of referrals for early childhood developmental delay to ambulatory subspecialty clinics. J Child Neurol. 2001;16:645-650
24. Smith B, Chung MC, Vostanis P. The path to care in autism: is it better now? J Autism Dev Disord. 1994;24:551-563
25. Palmer R, Blanchard S, Jaen C, Mandell D. The association between school district resources and identification of children with autistic disorder. Am J Public Health. 2005;95:125-130
26. Mandell D, Palmer R. Differences among states in the identification of autistic spectrum disorders. Arch Pediatr Adolesc Med. 2005;159:266-269
27. Coonrod E, Stone W. Early concerns of parents of children with autistic and nonautistic disorders. Infants Young Child. 2004;17:258-269
28. Daley T. From symptom recognition to diagnosis: children with autism in urban India. Soc Sci Med. 2004;58:1323-1335
29. Cooper-Patrick L, Gallo J, Powe N, Steinwachs D, Eaton W, Ford D. Mental health service utilization by African Americans and whites: the Baltimore Epidemiologic Catchment Area Follow-Up. Med Care. 1999;37:1034-1045
30. Cooper-Patrick L, Gallo J, Gonzales J, et al. Race, gender, and partnership in the patient-physician relationship. JAMA. 1999;282:583-589
31. United States Department of Education. Twenty-Fifth Annual Report to Congress on the Implementation of the Individuals with Disabilities Education Act. Jessup, MD: Bureau of Special Education; 2003
32. Tukey J. Explanatory Data Analysis. Reading, MA: Addison-Wesley; 1977
33. Howlin P, Moore A. Diagnosis of autism. A survey of over 1200 patients in the UK. Autism. 1997;1:135-162
34. Aday LA, Lee ES, Spears B, Chung CW, Youssef A, Bloom B. Health insurance and utilization of medical care for children with special health care needs. Med Care. 1993;31:1013-1026
35. Dubay L, Kenney G. Health care access and use among low-income children: who fairs best. Health Aff. 2001;20:112-121
36. Moffitt R, Slade E. Health care coverage for children who are on and off welfare. Future Child. 1997;7:87-98
37. Starfield B, Shi L. The medical home, access to care, and insurance: a review of evidence. Pediatrics. 2004;113:1493-1498
38. Rosenbach M, Irvin C, Coulam R. Access for low-income children: is health insurance enough? Pediatrics. 1999;103:1167-1174
39. Fisher E, Wennberg J. Health care quality, geographic variations, and the challenge of supply-sensitive care. Perspect Biol Med. 2003;46:69-79
40. Kawachi I, Berkman L. Neighborhoods and Health. New York, NY: Oxford University Press; 2003
41. Sturm R, Ringel J, Andreyeva T. Geographic disparities in children's mental health care. Pediatrics. 2003;112(4). Available at: www.pediatrics.org/cgi/content/full/112/4/e308
42. Wennberg J, Fisher E, Skinner J. Geography and the debate over Medicare reform. Health Aff. 2002;Suppl Web Exclusives:W96-W114
43. Cohen P, Hesselbart C. Demographic factors in the use of children's mental health services. Am J Public Health. 1993;83:49-52
44. Slade E. The relationship between school characteristics and the availability of mental health and related health services in middle and high schools in the United States. J Behav Health Serv Res. 2003;30:382-392
45. Gillberg C, Billstedt E. Autism and Asperger syndrome: coexistence with other clinical disorders. Acta Psychiatr Scand. 2000;102:321-333
46. Dearlove J, Kearney D. How good is general practice developmental screening. Br Med J. 1990;300:1177-1180
47. Dobos A, Dworkin P, Bernstein B. Pediatricians' approaches to developmental problems: has the gap been narrowed? J Dev Behav Pediatr. 1994;15:34-39
48. King T, Glascoe F. Developmental surveillance of infants and young children in pediatric primary care. Curr Opin Pediatr. 2003;15:624-629
49. Li P, Logan S. The current state of screening in general practice. J Public Health Med. 1996;18:350-356
50. Sices L, Feudtner C, McLaughlin J, Drotar D, Williams M. How do primary care physicians identify young children with developmental delays? A national survey. J Dev Behav Pediatr. 2003;24:409-417
51. Glascoe F. Evidence-based approach to developmental and behavioural surveillance using parents' concerns. Child Care Health Dev. 2000;26:137-149
52. Glascoe F. Are overreferrals on developmental screening tests really a problem? Arch Pediatr Adolesc Med. 2001;155:54-59
53. Eisenmajer R, Prior M, Leekam S, et al. Comparison of clinical symptoms in autism and Asperger's disorder. J Am Acad Child Adolesc Psychiatry. 1996;35:1523-1531
54. Fombonne E, Heavey L, Smeeth L, et al. Validation of the diagnosis of autism in general practitioner records. BMC Public Health. 2004;4:5
55. Hill A, Bolte S, Petrova G, Beltcheva D, Tacheva S, Poustka F. Stability and interpersonal agreement of the interview-based diagnosis of autism. Psychopathology. 2001;34:187-191
56. Mahoney W, Szatmari P, MacLean J, et al. Reliability and accuracy of differentiating pervasive developmental disorder subtypes. J Am Acad Child Adolesc Psychiatry. 1998;37:278-285
57. Fombonne E. Epidemiological surveys of autism and other pervasive developmental disorders: an update. J Autism Dev Disord. 2003;33:365-382
58. Cooley W, McAllister J. Building medical homes: improvement strategies in primary care for children with special health care needs. Pediatrics. 2004;133:1499-1506
59. Palfrey J, Sofis L, Davidson E, Liu J, Freeman L, Ganz M. The pediatric alliance for coordinated care: evaluation of a medical home model. Pediatrics. 2004;113:1507-1516
60. Bethell C, Read D, Brockwood K. Using existing population-based data sets to measure the American Academy of Pediatrics definition of medical home for all children and children with special health care needs. Pediatrics. 2004;113:1529-1538
61. Strickland B, McPherson M, Weissman G, van Dyck P, Huang Z, Newacheck P. Access to the medical home: results from the national survey of children with special health care needs. Pediatrics. 2004;113:1485-1492
62. Ohta M, Nagai Y, Hara H, Sasaki M. Parental perception of behavioral symptoms in Japanese autistic children. J Autism Dev Disord. 1987;17:549-563
63. Guerin R. The American Board of Pediatrics 2003-04 Workforce Data. Chapel Hill, NC: American Board of Pediatrics; 2004
64. Krauss M, Gulley S, Sciegaj M, Wells N. Access to specialty medical care for children with mental retardation, autism and other special health care needs. Ment Retard. 2003;41:329-339
65. Volkmar F, Lord C, Bailey A, Schultz R, Klin A. Autism and pervasive developmental disorders. J Child Psychol Psychiatry. 2004;45:135-155