Quality of health care for children: Role of health and chronic illness in inpatient care experiences

Archives of Pediatrics and Adolescent Medicine

Volumn 161, Issue 9, 2007, Pages 828-834

  Mack, Jennifer W ^a,c   Co, John Patrick T ^b   Goldmann, Donald A ^a,d   Weeks, Jane C ^c   Cleary, Paul D ^d  

^a BOSTON CHILDREN S HOSPITAL   (United States)

^b MASSACHUSETTS GENERAL HOSPITAL   (United States)

^c DANA FARBER CANCER INSTITUTE   (United States)

^d YALE UNIVERSITY   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ADOLESCENT; ARTICLE; CHILD; CHILD HEALTH CARE; CHRONIC DISEASE; CONTROLLED STUDY; FEMALE; HEALTH CARE QUALITY; HEALTH STATUS; HEALTH SURVEY; HOSPITAL PATIENT; HUMAN; INFANT; MAJOR CLINICAL STUDY; MALE; PARENT; PRIORITY JOURNAL;

CHILD; CHILD, HOSPITALIZED; CHRONIC DISEASE; CONTINUITY OF PATIENT CARE; FEMALE; HEALTH CARE SURVEYS; HEALTH STATUS; HUMANS; INPATIENTS; LENGTH OF STAY; MALE; MULTIVARIATE ANALYSIS; OUTCOME AND PROCESS ASSESSMENT (HEALTH CARE); QUALITY OF HEALTH CARE; UNITED STATES;

EID: 34548441998     PISSN: 10724710     EISSN: 15383628     Source Type: Journal    
DOI: 10.1001/archpedi.161.9.828     Document Type: Article

References (38)

1. Institute of Medicine. Envisioning the National Health Care Quality Report. Washington, DC: National Academy Press; 2001.
2. Cleary PD, McNeil BJ. Patient satisfaction as an indicator of quality care. Inquiry. 1988;25(1):25-36.
3. Draper M, Cohen P, Buchan H. Seeking consumer views: what use are results of hospital patient satisfaction surveys? Int J Qual Health Care. 2001;13(6):463-468.
4. Homer CJ, Marino B, Cleary PD, et al. Quality of care at a children's hospital. Arch Pediatr Adolesc Med. 1999;153(11):1123-1129.
5. Halfon N, Schuster M, Valentine W, McGlynn E. Improving the quality of healthcare for children: implementing the results of the AHSR research agenda conference. Health Serv Res. 1998;33(4 Pt 2):955-976.
6. Homer CJ, Fowler FJ, Gallagher PM, et al. The Consumer Assessment of Health Plan Study (CAHPS) survey of children's health care. Jt Comm J Qual Improv. 1999;25(7):369-377.
7. Cleary PD. The increasing importance of patient surveys [editorial]. Qual Health Care. 1999;8(4):212.
8. Cleary PD, Edgman-Levitan S. Health care quality: incorporating consumer perspectives. JAMA. 1997;278(19):1608-1612.
9. Fremont AM, Cleary PD, Hargraves JL, Rowe RM, Jacobson NB, Ayanian JZ. Patient-centered processes of care and long-term outcomes of myocardial infarction. J Gen Intern Med. 2001;16(12):800-808.
10. Zaslavsky A, Zaborski L, Ding L, et al. Adjusting performance measures to ensure equitable plan comparisons. Health Care Financ Rev. 2001;22(3):109-126.
11. Hargraves JL, Wilson IB, Zaslavsky A, et al. Adjusting for patient characteristics when analyzing reports from patients about hospital care. Med Care. 2001;39(6):635-641.
12. Zaslavsky AM, Cleary PD. Dimensions of plan performance for sick and healthy members of the Consumer Assessments of Health Plans Study 2.0 survey. Med Care. 2002;40(10):951-964.
13. Kim M, Zaslavsky AM, Cleary PD. Adjusting Pediatric Consumer Assessment of Health Plans Study (CAHPS) scores to ensure fair comparison of health plan performances. Med Care. 2005;43(1):44-52.
14. Hall JA, Milburn MA, Roter DL, Daltroy LH. Why are sicker patients less satisfied with their medical care? tests of two explanatory models. Health Psychol. 1998;17(1):70-75.
15. Hall JA, Milburn MA, Epstein AM. A causal model of health status and satisfaction with medical care. Med Care. 1993;31(1):84-94.
16. Patrick DL, Scrivens E, Charlton JR. Disability and patient satisfaction with medical care. Med Care. 1983;21(11):1062-1075.
17. Kroll T, Beatty PW, Bingham S. Primary care satisfaction among adults with physical disabilities: the role of patient-provider communication. Manag Care Q. 2003;11(1):11-19.
18. Linn LS, Greenfield S. Patient suffering and patient satisfaction among the chronically ill. Med Care. 1982;20(4):425-431.
19. Roberts RE, Pascoe GC, Attkisson CC. Relationship of service satisfaction to life satisfaction and perceived well-being. Eval Program Plann. 1983;6(3-4):373-383.
20. Szilagyi PG, Shenkman E, Brach C, et al. Children with special health care needs enrolled in the State Children's Health Insurance Program (SCHIP): patient characteristics and health care needs. Pediatrics. 2003;112(6, pt 2):e508.
21. Kirk S. Negotiating lay and professional roles in the care of children with complex health care needs. J Adv Nurs. 2001;34(5):593-602.
22. Kirk S, Glendinning C. Supporting "expert" parents: professional support and families caring for a child with complex health care needs in the community. Int J Nurs Stud. 2002;39(6):625-635.
23. Nuutila L, Salantera S. Children with long-term illness: parents' experiences of care. J Pediatr Nurs. 2006;21(2):153-160.
24. Reliability and Validity of the Picker Questionnaires. Boston, MA: Picker Institute; 1999.
25. Review of the Pediatric Inpatient Survey. Boston, MA: Picker Institute; 1999.
26. 1991 Federal policy for the protection of human subjects (common rule). Fed Regist. 1991;56:28 012-28 018. To be codified at 45 CFR §46.101-46.115.
27. Co JP, Ferris TG, Marino BG, Homer CJ, Perrin JM. Are hospital characteristics associated with parental views of pediatric inpatient care quality? Pediatrics. 2003;111(2):308-314.
28. Silver EJ, Stein RE. Access to care, unmet health needs, and poverty status among children with and without chronic conditions. Ambul Pediatr. 2001;1(6):314-320.
29. Mayer ML, Skinner AC, Slifkin RT; National Survey of Children With Special Health Care Needs. Unmet need for routine and specialty care: data from the National Survey of Children With Special Health Care Needs. Pediatrics. 2004;113(2):e109-e115.
30. Newacheck PW, Hung YY, Wright KK. Racial and ethnic disparities in access to care for children with special health care needs. Ambul Pediatr. 2002;2(4):247-254.
31. Christakis DA, Wright JQ, Zimmerman FJ, Bassett AL, Connell FA. Continuity of care is associated with high-quality care by parental report. Pediatrics. 2002;109(4):e54.
32. O'Malley AS. Current evidence on the impact of continuity of care. Curr Opin Pediatr. 2004;16(6):693-699.
33. Christakis DA, Feudtner C, Pihoker C, Connell FA. Continuity and quality of care for children with diabetes who are covered by Medicaid. Ambul Pediatr. 2001;1(2):99-103.
34. Ireys HT, Perry JJ. Development and evaluation of a satisfaction scale for parents of children with special health care needs. Pediatrics. 1999;104(5, pt 2):1182-1191.
35. Marchetti F, Bonatti M, Marfisi RM, La Gamba G, Biasini GC, Tognoni G; Italian Collaborative Group on Paediatric Chronic Diseases. Parental and primary care physicians' views on the management of chronic diseases: a study in Italy. Acta Paediatr. 1995;84(10):1165-1172.
36. Britto MT, Devellis RF, Hornung RW, DeFriese GH, Atherton HD, Slap GB. Health care preferences and priorities of adolescents with chronic illness. Pediatrics. 2004;114(5):1272-1280.
37. Jedlicka-Köhler I, Gotz M, Eichler I. Parents' recollection of the initial communication of the diagnosis of cystic fibrosis. Pediatrics. 1996;97(2):204-209.
38. Spencer N, Coe C. Parent reported longstanding health problems in early childhood: a cohort study. Arch Dis Child. 2003;88(7):570-573.