Children's competence to consent to medical treatment

Hastings Center Report

Volumn 36, Issue 6, 2006, Pages 25-34

  Alderson, Priscilla ^a   Sutcliffe, Katy ^b   Curtis, Katherine ^c  

^a UNIVERSITY OF LONDON   (United Kingdom)

^b UNIVERSITY OF LONDON   (United Kingdom)

^c CITY UNIVERSITY   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 33846170870     PISSN: 00930334     EISSN: None     Source Type: Journal    
DOI: 10.1353/hcr.2006.0000     Document Type: Article

References (48)

1. A. Buchanan and D. Brock, Deciding for Others (New York: Cambridge University Press, 1989);
2. G. Melton, G. Koocher, and M. Saks, eds., Children's Competence to Consent (New York: Plenum Press, 1983);
3. W. Gaylin and R. Macklin, Who Speaks for the Child? (New York: Plenum Press, 1982);
4. L. Kopelman and J. Moskop, eds., Children and Health Care: Moral and Social Issues (Dordecht, the Netherlands: Kluwer, 1989).
5. J. Sugarman et al., "Empirical Research on Informed Consent," Hastings Center Report 29, no. 1 (1999): S1-S42.
6. S. Mendus, "Kant: An Honest but Narrow-Minded Bourgeois?" in Women in Western Political Philosophy, ed. E. Kennedy and S. Mendus (Brighton, U.K.: Harvester, 1987), 1-20.
7. K. Sutcliffe, P. Alderson, and K. Curtis, Children as Partners in Their Diabetes Care (London: SSRU, Institute of Education, University of London, 2004); http://eppi.ioe.ac.uk/ssru_docs/DiabetesReportFinal.pdf.
8. A.B. Hill, Biting off the Bracelet (Philadelphia: University of Pennsylvania Press, 1979).
9. P. Alderson, Children's Consent to Surgery (Buckingham, U.K.: Open University Press, 1993).
10. J. Marsh, "To Cut or Not to Cut?" in Surgically Shaping Children, ed. E. Parens (Washington, D.C.: Johns Hopkins University Press, 2006).
11. For example, the still widely cited article by T. Grisso and L. Vierling, "Minors' Consent to Treatment: A Developmental Perspective," Professional Psychology 9 (1978): 412-27.
12. For example, M. Bluebond-Langner, The Private Worlds of Dying Children (Princeton, N.J.: Princeton University Press, 1978);
13. D. Bearison, They Never Want to Tell You (London: Harvard University Press, 1991);
14. P. Alderson and C. Goodey, Enabling Education (London: Tufnell Press, 1998);
15. C.D. Clark, In Sickness and In Play (New Brunswick, N.J.: Rutgers University Press, 2003).
16. P. Christensen and A. James, eds., Research With Children (London: Routledge Falmer, 2000).
17. B. Bradley, Visions of Infancy: A Critical Introduction to Child Psychology (Cambridge, U.K.: Polity Press, 1989);
18. J. Morss, Growing Critical: Alternatives to Developmental Psychology (London: Routledge, 1996);
19. E. Burman, Deconstructing Developmental Psychology (London: Routledge, 1994);
20. M. Donaldson, Children's Minds (Glasgow: Fontana, 1978);
21. B. Mayall, Towards a Sociology for Childhood (Buckingham, U.K.: Open University Press, 2002);
22. A. James and A. Prout, Constructing and Reconstructing Childhood (London: Routledge Falmer, 1997).
23. A. Strauss and J. Corbin, Basics of Qualitative Research (London: Sage, 1998).
24. Declaration of Helsinki (Fernay-Voltaire, France: World Medical Association, 1964/2000); The Nuremberg Code, at http://ohsr.od.nih.gov/ guidelines/nuremberg.html.
25. "Diabetes Control and Complications Trial Report," New England Journal of Medicine 329 (1993): 683-98; National Service Framework for Diabetes Standards, (London: Department of Health, 2001).
26. Sutcliffe, Alderson, and Curtis, Children as Partners in Their Diabetes Care.
27. H. Als, "Reading the Premature Infant," in Developmental Interventions in the Neonatal Intensive Care Nursery, ed. E. Goldson (New York: Oxford University Press, 1999), 18-85.
28. S. Melzak "Secrecy, Privacy, Survival, Repressive Regimes and Growing Up," Bulletin of Ann Freud Centre 15 (1992): 205-24.
29. A. Dreger, One Of Us: Conjoined Twins and the Future of Normal (Cambridge, Mass.: Cambridge University Press, 2004), shows the wide extent to which apparently abnormal people insist that they are normal.
30. H. Mortensen and P. Hougaard, "Comparison of Metabolic Control in a Cross Sectional Study of 2,873 Children and Adolescents with IDDM from 18 countries," Diabetes Care 20 (1997): 714-20.
31. This is clearly described in the English case Gillick v. Wisbech & W. Norfolk AHA (1984) 1 All ER.
32. P. Alderson, Choosing for Children: Parents' Consent to Surgery (Oxford, U.K.: Oxford University Press, 1990).
33. Slater v. Baker & Stapleton, 1767/94 ER 60 (England).
34. Nuremberg Code.
35. Ibid.
36. R. Faden and T. Beauchamp, A History and Theory of Informed Consent (New York: Oxford University Press, 1986), 257.
37. Gillick v. Wisbech & W. Norfolk AHA; Age of Legal Capacity (Scotland) Act (1991), section 4 (2).
38. American Association of Pediatrics, "Informed Consent, Parental Permission and Assent in Pediatric Practice" (RE9510), Pediatrics 95 (1995): 314-7;
39. J. Rosato, "The Ethics of Clinical Trials: A Child's View," Journal of Law, Medicine & Ethics 28, no. 4 (2000): 362-68.
40. M. Liebel, A Will of Their Own: Cross-Cultural Perspectives on Working Children (London: Zed Books, 2004).
41. L.F. Ross, Children, Families, and Health Care Decision-Making (Oxford, U.K.: Clarendon Press, 1998).
42. Alderson, Children's Consent to Surgery.
43. Dreger, One of Us.
44. A. Frank, "Emily's Scars," in Surgically Shaping Children, ed. E. Parens (New York: Johns Hopkins University Press, 2006).
45. As did the children discussed in Bluebond-Langner, The Private Worlds of Dying Children;
46. Bearison, They Never Want to Tell You;
47. Alderson and Goodey, Enabling Education;
48. and Clark, In Sickness and In Play.