Promoting patient empowerment in the healthcare system: Highlighting the need for patient-centered drug policy

Expert Review of Pharmacoeconomics and Outcomes Research

Volumn 7, Issue 3, 2007, Pages 281-289

  Loukanova, Svetla ^a   Molnar, Rachael ^b   Bridges, John F P ^c  

^a UNIVERSITY OF HEIDELBERG   (Germany)

^b CASE WESTERN RESERVE UNIVERSITY SCHOOL OF MEDICINE   (United States)

^c JOHNS HOPKINS BLOOMBERG SCHOOL OF PUBLIC HEALTH   (United States)

Author keywords

Adherence; Drug management; Health outcomes; Health policy; Patient empowerment; Satisction

Indexed keywords

ACCESS TO INFORMATION; DOCTOR PATIENT RELATION; EMPOWERMENT; HEALTH CARE ACCESS; HEALTH CARE POLICY; HEALTH STATUS; HUMAN; MEDICAL DECISION MAKING; MEDICAL INFORMATION; MEDLINE; PATIENT ADVOCACY; PATIENT AUTONOMY; PATIENT COMPLIANCE; PATIENT DECISION MAKING; PATIENT EDUCATION; PATIENT PARTICIPATION; PATIENT SATISFACTION; QUALITY OF LIFE; REVIEW; SELF CONCEPT; SELF ESTEEM; THEORETICAL MODEL;

EID: 34547586409     PISSN: 14737167     EISSN: 17448379     Source Type: Journal    
DOI: 10.1586/14737167.7.3.281     Document Type: Review

References (74)

1. Whitney SN, McGuire AL, McCullough LB. A typology of shared decision making, informed consent, and simple consent. Ann. Intern. Med. 140(1), 54-59 (2004).
2. Vogt F, Schwappach DL, Bridges JF. Accounting for tastes: a German perspective on the inclusion of patient preferences in healthcare. Pharmacoeconomics 24(5), 419-423 (2006).
3. Bridges JF, Jones C. Patient-based health technology assessment: a vision of the future. Int. J. Technol. Assess. Health Care 23(1), 30-35 (2007).
4. Sherrod B, Brown HN. Patient satisfaction: get the edge. Nurs. Manage. 36(4), 61-64 (2005).
5. Sofaer S, Firminger K. Patient perceptions of the quality of health services. Annu. Rev. Public Health 26, 513-559 (2005).
6. Martin GW. Empowerment of dying patients: the strategies and barriers to patient autonomy. J. Adv. Nurs. 28(4), 737-744 (1998).
7. Quill TE, Brody H. Physician recommendations and patient autonomy: finding a balance between physician power and patient choice. Ann. Intern. Med. 125(9), 763-769 (1996).
8. McNutt RA. Shared medical decision making: problems, process, progress. JAMA 292(20), 2516-2518 (2004).
9. Davison BJ, Degner LF. An empowerment information intervention improved participation in treatment decision making in men with recently diagnosed prostate cancer. Cancer Nurs. 20, 187-196 (1997).
10. Anderson RM, Funnell MM. Patient empowerment: reflections on the challenge of fostering the adoption of a new paradigm. Patient Educ. Couns. 57(2), 153-157 (2005).
11. Wensing M. Evidence-based patient empowerment. Qual. Health Care 9(4), 200-201 (2000).
12. Linhorst DM, Hamilton G, Young E, Eckert A. Opportunities and barriers to empowering people with severe mental illness through participation in treatment planning. Soc. Work 47(4), 425-434 (2002).
13. Segal L. The importance of patient empowerment in health system reform. Health Policy 44(1), 31-44 (1998).
14. Finfgeld DL. Empowerment of individuals with enduring mental health problems: results from concept analyses and qualitative investigations. Adv. Nurs. Sci. 27(1), 44-52 (2004).
15. Zimmerman MA. Psychological empowerment: issues and illustrations. Am. J. Community Psychol. 23(5), 581-599 (1995).
16. Anderson RM, Funnell MM. Compliance and adherence are dysfunctional concepts in diabetes care. Diabetes Educ. 26(4), 597-604 (2000).
17. Nachshen JS, Minnes P. Empowerment in parents of school-aged children with and without developmental disabilities. J. Intellect. Disabil. Res. 49(12), 889-904 (2005).
18. Gibson CH. A concept analysis of empowerment. J. Adv. Nurs. 16(3), 354-361 (1991).
19. Chamberlin J. User/consumer involvement in mental health service delivery. Epidemiol. Psichiatr. Soc. 14(1), 10-14 (2005).
20. Anderson RM, Fitzgerald JT, Funnell MM et al. Evaluation of an activated patient diabetes education newsletter. Diabetes Educ. 20(1), 29-34 (1994).
21. Hibbard JH, Stockard J, Mahoney ER, Tusler M. Development of the Patient Activation Measure (PAM): conceptualizing and measuring activation in patients and consumers. Health Serv. Res. 39(4 Pt 1), 1005-1026 (2004).
22. Menon ST, Toward a model of psychological health empowerment: implications for health care in multicultural communities. Nurse Educ. Today 22(1), 28-43 (2002).
23. Man DW, Lam CS, Bard CC. Development and application of the Family Empowerment Questionnaire in brain injury. Brain Injury, 17(5), 437-450 (2003).
24. Anderson RM, Funnell MM, Fitzgerald JT, Marrero DG. The Diabetes Empowerment Scale: a measure of psychosocial self-efficacy. Diabetes Care 23(6), 739-743 (2000).
25. Ellis-Stoll CC, Popkess-Vawter S. A concept analysis on the process of empowerment. Adv. Nurs. Sci. 21(2), 62-68 (1998).
26. Awe C, Lin SJ. A patient empowerment model to prevent medication errors. J. Med. Syst. 27(6), 503-517 (2003).
27. Deakin TA, Cade JE, Williams R, Greenwood DC. Structured patient education: the diabetes X-PERT programme makes a difference. Diabet. Med. 23(9), 944-954 (2006).
28. Johansson K, Leino-Kilpi H, Salantera S et al. Need for change in patient education: a Finnish survey from the patient's perspective. Patient Educ. Couns. 51(3), 239-245 (2003).
29. Kane RJ. Information is the key to patient empowerment. Ann. Health Law 11, 25-44 (2002).
30. Olauson A. The Agrenska centre: a socioeconomic case study of rare diseases. Pharmacoeconomics 20(Suppl. 3), 73-75 (2002).
31. Davis ED, Vander Meer JM, Yarborough PC, Roth SB. Using solution-focused therapy strategies in empowerment-based education. Diabetes Educ. 25(2), 249-252, 255-257 (1999).
32. Anderson RM, Funnell MM, Butler PM, Arnold MS, Fitzgerald JT, Feste CC. Patient empowerment. Results of a randomized controlled trial. Diabetes Care 18(7), 943-949 (1995).
33. Skelton AM. Patient education for the millennium: beyond control and emancipation? Patient Educ. Couns. 31(2), 151-158 (1997).
34. Dewalt DA, Berkman ND, Sheridan S et al. Literacy and health outcomes: a systematic review of the literature. J. Gen. Int. Med. 19(12), 1228-1239 (2004).
35. Kalichman SC, Cherry J, Cain D. Nurse-delivered antiretroviral treatment adherence intervention for people with low literacy skills and living with HIV/AIDS. J. Assoc. Nurses AIDS Care 16(5), 3-15 (2005).
36. Speros C. Health literacy: concept analysis. J. Adv. Nurs. 50(6), 633-640 (2005).
37. Bastian H, Kaiser T, Matschewsky S. Promotion of general health and scientific literacy via consumer and patient information: the role of the IQWiG. Z. Arztl. Fortbild. Qualitatssich. 99(6), 379-385 (2005).
38. Levin-Zamir D, Peterburg Y. Health literacy in health systems: perspectives on patient self-management in Israel. Health Promot. Int. 16(1), 87-94 (2001).
39. TenHave TR, Van Horn B, Kumanyika S, Askov E, Matthews Y, Adams-Campbell LL. Literacy assessment in a cardiovascular nutrition education setting. Patient Educ. Couns. 31(2), 139-150 (1997).
40. Brennan P, Safran C, Report of conference track 3: patient empowerment. Int. J. Med. Inform. 69(2-3), 301-304 (2003).
41. Zimmerman GM, Savage LM, Chandler DC, Maccarone Buonfigli M. Psoriatic arthritis and psoriasis: role of patient advocacy organisations in the twenty first century. Ann. Rheum. Dis. 64(Suppl. 2), 93-100 (2005).
42. Findlay SD. Direct-to-consumer promotion of prescription drugs. Economic implications for patients, payers and providers. Pharmacoeconomics 19(2), 109-119 (2001).
43. Barton JH, Emanuel EJ. The patents-based pharmaceutical development process: rationale, problems, and potential reforms. JAMA 294(16), 2075-2082 (2005).
44. Olszewski AJ, Grossbard ML. Empowering targeted therapy: lessons from rituximab. Sci STKE (241), 30 (2004).
45. Rajendran PR. MSJAMA. The Internet: ushering in a new era in of medicine. JAMA 285(6), 804 (2001).
46. Liu Y, Doucette WR, Farris KB, Nayakankuppam D. Drug information-seeking intention and behavior after exposure to direct-to-consumer advertisement of prescription drugs. Res. Social Adm. Pharm. 1(2), 251-269 (2005).
47. Funnell MM, Nwankwo R, Gillard ML, Anderson RM, Tang TS. Implementing an empowerment-based diabetes self-management education program. Diabetes Educ. 31(1), 53-61 (2005).
48. Bekker H, Thornton JG, Airey CM. Informed decision making: an annotated bibliography and systematic review. Health Technol. Assess. 3(1), 1-156 (1999).
49. Epstein RM, Franks P, Fiscella K et al. Measuring patient-centered communication in patient-physician consultations: theoretical and practical issues. Soc. Sci. Med. 61(7), 1516-1528 (2005).
50. Schneider J, Kaplan SH, Greenfield S, Li W, Wilson IB. Better physician-patient relationships are associated with higher reported adherence to antiretroviral therapy in patients with HIV infection. J. Gen. Intern. Med. 19(11), 1096-1103 (2004).
51. Frankel RM. Relationship-centered care and the patient-physician relationship. J. Gen. Intern. Med. 19(11), 1163-1165 (2004).
52. Collier J, Iheanacho I. The pharmaceutical industry as an informant. Lancet 360(9343), 1405-1409 (2002).
53. Huang QR. Creating informed consumers and achieving shared decision making. Aust. Fam. Physician 32(5), 335-341 (2003).
54. Williams T. Patient empowerment and ethical decision making: the patient/ partner and the right to act. Dimens. Crit. Care Nurs. 21(3), 100-104 (2002).
55. Saltman RB. Patient choice and patient empowerment in northern European health systems: a conceptual framework. Int. J. Health Serv. 24(2), 201-229 (1994).
56. Bryan S, Gill P, Greenfield S, Gutridge K, Marshall T. The myth of agency and patient choice in health care? The case of drug treatments to prevent coronary disease. Soc. Sci. Med. 63(10), 2698-2701 (2006).
57. Bulsara C, Ward A, Joske D. Haematological cancer patients: achieving a sense of empowerment by use of strategies to control illness. J. Clin. Nurs. 13(2), 251-258 (2004).
58. Jowers JR, Schwartz AL, Tinkelman DG et al. Disease management program improves asthma outcomes. Am. J. Manag. Care 6(5), 585-592 (2000).
59. Pibernik-Okanovic M, Prasek M, Poljicanin-Filipovic T, Pavlic-Renar I, Metelko Z. Effects of an empowermentbased psychosocial intervention on quality of life and metabolic control in Type 2 diabetic patients. Patient Educ. Couns. 52(2), 193-199 (2004).
60. Howard DH, Gazmararian J, Parker RM. The impact of low health literacy on the medical costs of Medicare managed care enrollees. Am. J. Med. 118(4), 371-377 (2005).
61. Watkins SM. An interview with Steven M. Watkins, Ph.D., president and chief scientific officer, Lipomics Technologies, Inc. Interview by Vicki Glaser. Assay Drug Dev. Technol. 2(4), 339-343 (2004).
62. Bridges JF. Stated preference methods in health care evaluation: an emerging methodological paradigm in health economics. Appl. Health Econ. Health Policy 2(4), 213-224 (2003).
63. Marshall T, Bryan S, Gill P, Greenfield S, Gutridge K: Birmingham Patient Preferences Group. Predictors of patients' preferences for treatments to prevent heart disease. Heart 92(11), 1651-1655 (2006).
64. McKinley RK, Manku-Scott T, Hastings AM, French DP, Baker R. Reliability and validity of a new measure of patient satisfaction with out of hours primary medical care in the United Kingdom: development of a patient questionnaire. Br. Med. J. 314(7075), 193-198 (1997).
65. Pellino T, Tluczek A, Collins M et al. Increasing self-efficacy through empowerment: preoperative education for orthopedic patients. Orthop. Nurs. 17(4), 48-51, 54-59 (1998).
66. Hearnshaw H, Lindenmeyer A. What do we mean by adherence to treatment and advice for living with diabetes? A review of the literature on definitions and measurements. Diabet. Med. 23(7), 720-728 (2006).
67. Todd WE, Ladon EH. Disease management: maximizing treatment adherence and self-management. Disease Management & Health Outcomes 3(1), 1-10 (1998).
68. Rogers ES, Chamberlin J, Ellison ML, Crean T. A consumer-constructed scale to measure empowerment among users of mental health services. Psychiatric Services 48, 1042-1047 (1997).
69. Faulkner M. A measure of patient empowerment in hospital environments catering for older people. J. Adv. Nurs. 34(5), 676-686 (2001).
70. Webb DG, Horne R, Pinching AJ. Treatment-related empowerment: preliminary evaluation of a new measure in patients with advanced HIV disease. Int. J. STD AIDS 12, 103-107 (2001).
71. Gagnon M, Hibert R, Dube M, Dubois MF. Development and validation of an instrument measuring individual empowerment in relation to personal health care: the Health Care Empowerment Questionnaire (HCEQ). Am. J. Health Promot. 20(6), 429-435 (2006).
72. Zimmerman MA. Taking aim on empowerment research: on the distinction between individual and psychological conceptions. Am. J. Community Psychol. 18(1), 169-177 (1990).
73. Rappaport J. Studies in empowerment: introduction to the issue. Prevention in Human Services 3, 1-7 (1984).
74. Rappaport J. Terms of empowerment/exemplars of prevention: toward a theory for community psychology. Am. J. Community Psychol. 15, 121-148 (1987).