Quality of life in dementia: Do professional caregivers focus on the significant domains?

American Journal of Alzheimer's Disease and other Dementias

Volumn 22, Issue 3, 2007, Pages 176-183

  Gerritsen, Debby L ^a   Ettema, Teake P ^b   Boelens, Ellen ^c   Bos, Joke ^d   Hoogeveen, Frans ^e   De Lange, Jacomine ^f   Meihuizen, Lucinda ^g   Schölzel Dorenbos, Carla J M ^h   Dröes, Rose Marie ^b  

^a RADBOUD UNIVERSITY NIJMEGEN   (Netherlands)

^b VU UNIVERSITY MEDICAL CENTER   (Netherlands)

^c Nursing Home de Schiphorst   (Netherlands)

^d AOC de Pijp   (Netherlands)

^e Stichting Florence   (Netherlands)

^f NETHERLANDS INSTITUTE OF MENTAL HEALTH AND ADDICTION   (Netherlands)

^g Stichting Zorgpartners Midden Holland   (Netherlands)

^h SLINGELAND HOSPITAL   (Netherlands)

Author keywords

Dementia; Professional caregivers; Quality of life

Indexed keywords

ARTICLE; CAREGIVER; DAILY LIFE ACTIVITY; DEMENTIA; HUMAN; NETHERLANDS; PROFESSIONAL COMPETENCE; QUALITY OF LIFE; QUESTIONNAIRE;

EID: 34347402471     PISSN: 15333175     EISSN: None     Source Type: Journal    
DOI: 10.1177/1533317507299771     Document Type: Article

References (25)

1. Spector A, Orrell M. Quality of life in dementia: a comparison of the perceptions of people with dementia and care staff in residential homes. Alzheimer Dis Assoc Disord. 2006;20(3):160-165.
2. Brod M, Stewart AL, Sands L, Walton P. Conceptualization and measurement of quality of life in dementia: the dementia quality of life instrument (DQOL). Gerontologist. 1999;39:25-35.
3. Logsdon RG, Gibbons LE, McCurry SM, Teri L. Quality of life in Alzheimer's disease: patient and caregiver reports. J Ment Health Aging. 1999;5:21-32.
4. Rabins PV, Kasper JD, Kleinmann L, Black BS, Patrick DL. Concepts and methods in the development of the ADRQL: an instrument for assessing health-related quality of life in persons with Alzheimer's disease. J Ment Health Aging. 1999;5:33-48.
5. Ettema TP, Dröes RM, De Lange J, Ooms ME, Mellenbergh GJ, Ribbe MW. The concept of quality of life in dementia in the different stages of the disease. Int Psychogeriatr. 2005;17:353-370.
6. Thorgrimsen L, Selwood A, Spector A, et al. Whose quality of life is it anyway? The validity and reliability of the Quality of Life-Alzheimer's Disease (QoL-AD) scale. Alzheimer Dis Assoc Disord. 2003;17(4):201-208.
7. Ready RE, Ott BR, Grace J. Patient versus informant perspectives of quality of life in mild cognitive impairment and Alzheimer's disease. Int J Geriatr Psychiatry. 2004;19:256-265.
8. Dröes RM, Boelens-van der Knoop ECC, Bos J, et al. Quality of life in dementia in perspective: an explorative study of variations in opinions among people with dementia and their professional caregivers, and in literature. Dementia: Int J Social Research Practice. In press.
9. Kane R L, Rockwood T, Hyer K, et al. Rating the importance of nursing home residents" quality of life. J Am Geriatr Soc. 2005;53:2076-2082.
10. Kane RL, Rockwood T, Hyer K, et al. Nursing home staff's perceived ability to influence quality of life. J Nurs Care Qual. 2006;21:248-255.
11. Winzelberg GS, Williams CS, Preisser JS, Zimmerman S, Sloane PD. Factors associated with nursing assistant quality-of-life rating for residents with dementia in longterm care facilities. Gerontologist. 2005;45(special issue 1):106-114.
12. Dröes RM, Meiland FJM, Schmitz M, van Tilburg W. Effect of combined support for people with dementia and carers versus regular day care on behaviour and mood of persons with dementia: results from a multi-centre implementation study. Int J Geriatr Psychiatry. 2004;19:1-12.
13. Kane RA, Kling KC, Bershadsky B, et al. Quality of life measures for nursing home residents. J Gerontol. 2003;58:M240-M248.
14. Van Campen C, Kerkstra A. Perceived quality of life of elderly somatic nursing-home patients. Construction of a measuring instrument [in Dutch], Tijdschr Gerontol Geriatr. 1998;29(1):11-18.
15. Rijckmans MJ, Garretsen HF, van de Goor LA, Bongers IM. Key concepts of demand-driven health care: an approach based on client"s needs. Med Law. 2005;24(3):463-477.
16. Kitwood T. Dementia Reconsidered, the Person Comes First. Maidenhead: Open University Press; 1997.
17. Finnema E, Dröes RM, Ribbe M, van Tilburg W. A review of psychosocial models in psychogeriatrics: implications for care and research. Alzheimer Dis Assoc Disord. 2000;14(2):68-80.
18. Brooker D. Dementia care mapping: a review of the research literature. Gerontologist. 2005;45(special issue 1):11-18.
19. Van der Kooij, CH. Just Being Friendly? The Maieutical Care Concept and Introducing Integrated Emotion-oriented Care in Psychogeriatric Nursing Home Units [in Dutch]. Den Haag: Lemma; 2002.
20. Nolan MR, Davies S, Brown J, Keady J, Nolan J. Beyond ""person-"centered" care: a new vision for gerontological nursing. J Clin Nurs. 2004;13(3a):45-53.
21. Byrne-Davis LMT, Bennet PD, Wilcock GK. How are quality of life ratings made? Toward a model of quality of life in people with dementia. Qual Life Res. 2006;15:855-865.
22. Guse LW, Masesar MA. Quality of life and successful aging in long-term care: perceptions of residents. Issues Ment Health Nurs. 1999;20:527-539.
23. Gerritsen DL, Steverink N, Ooms ME, Ribbe MW. Finding a useful conceptual basis for enhancing the quality of life of nursing home residents. Qual Life Res. 2004;13:611-624.
24. Steverink N, Lindenberg S. Which social needs are important for subjective well-being? What happens to them with aging? Psychol Aging. 2006;21:281-290.
25. Schölzel-Dorenbos CJM, Ettema TP, Boelens-van der Knoop E, et al. Evaluating the outcome of psychosocial and farmacological interventions on quality of life of people with dementia: when to use what quality of life instrument? Int J Geriatr Psychiatry. In press.