Conceptualization and measurement of quality of life in dementia: The dementia quality of life instrument (DQoL)

Gerontologist

Volumn 39, Issue 1, 1999, Pages 25-35

  Brod, Meryl ^a   Stewart, Anita L ^b   Sands, Laura ^a   Walton, Pam ^a  

^a Goldman Institute on Aging   (United States)

^b UNIVERSITY OF CALIFORNIA   (United States)

Author keywords

Alzheimer's; Cognitive impairment; Disease specific domains; Patient perceptions

Indexed keywords

AGED; ARTICLE; DEMENTIA; FEMALE; HUMAN; INTERVIEW; MAJOR CLINICAL STUDY; MALE; QUALITY OF LIFE; RELIABILITY;

EID: 0033055048     PISSN: 00169013     EISSN: None     Source Type: Journal    
DOI: 10.1093/geront/39.1.25     Document Type: Article

References (49)

1. Albert, S., Del Castillo-Castaneda, C., Sano, M., Jacobs, D., Marder, K., Bell, K., Bylsma, F., Lafleche, C., Brandt, J., Albert, M., & Stern, Y. (1996). Quality of life in patients with Alzheimer's disease as reported by patient proxies. Journal of the American Geriatrics Society, 44, 1342-1347.
2. Allender, J., & Kaszniak, A. (1989). Processing of emotional cues in patients with dementia of the Alzheimer's type. International Journal of Neuroscience, 46, 147-155.
3. Anderson, S. W., & Tranel, D. (1989). Awareness of disease states following cerebral infarction, dementia and head trauma: Standardized assessment. The Clinical Neuropsycholosist, 3, 327-339.
4. Andrews, F., & Withey, S. (1976). Social indicators of well-being. New York: Plenum Press.
5. Auchus, A., Goldstein, F., Green, J., & Green, R. (1994). Unawareness of cognitive impairments in Alzheimer's disease. Neuropsychiatry, Neuropsychology, and Behavioral Neurology, 7(1), 25-29.
6. Birren, J., Lubben, J., & Rowe, J. (1991). The concept of measurement of quality of life in the frail elderly. San Diego: Academic Press.
7. Brod, M. (1998). Quality of life issues in patients with diabetes and lower extremity ulcers: Patients and caregivers. Quality of Life Research, 7, 365-372.
8. Callahan, S. (1992). Ethics and dementia: Current issues . . . quality of life. Alzheimer Disease and Associated Disorders, 6(3), 138-144.
9. Campbell, A., Converse, P., & Rodgers, W. (1976). The quality of American life. New York: Russell Sage Foundation.
10. Cronbach, L., & Meehl, P. (1955). Construct validity in psychological tests. Psychological Bulletin, 52, 281-302.
11. Epstein, R., Deverka, P., Chute, C., Panser, L., Oesterling, J., Lieber, M., Schwarts, S., & Patrick, D. (1992). Validation of a new quality of life questionnaire for benign prostatic hyperplasia. Journal of Clinical Epidemiology, 45, 1431-1445.
12. Flanagan, J. (1982). Measurement of quality of life: Current state of the art. Archives of Physical Medicine and Rehabilitation, 63, 56-59.
13. George, L., & Bearon, L. (1980). Quality of life in older persons: Meaning and measurement. New York: Human Sciences Press.
14. Grut, M., Jorm, A., Fratiglioni, L., Forsell, Y., Viitanen, M., & Winblad, B. (1993). Memory complaints of elderly people in a population survey: Variation according to dementia stage and depression. Journal of the American Geriatrics Society, 41, 1295-1300.
15. Guyatt, G., Berman, L., Townsend, M., Pugsley, S., & Chambers, L. (1987). A measure of quality of life for clinical trials in lung disease. Thorax, 42, 773-778.
16. Hammond, G., & Aoki, T. (1992). Measurement of health status in diabetic patients: Diabetes impact measurement scales. Diabetes Care, 15, 469-477.
17. Hollister, L., & Gruber, N. (1996). Drug treatment of Alzheimer's disease - Effects on caregiver burden and patient quality of life. Drugs and Aging, 8(1), 47-55.
18. Howard, K., & Rockwood, K. (1995). Quality of life in Alzheimer's disease. Dementia, 6, 113-116.
19. Kitzinger, J. (1994). Focus groups: Methods or madness? In M. Boulton (Ed.), Challenge and innovation: Methodological advances in social research on HIV/AIDS (pp. 159-175). Philadelphia: Taylor and Francis.
20. Kiyak, H. A., Teri, L., & Borson, S. (1994). Physical and functional health assessment in normal aging and in Alzheimer's disease: Self-reports vs family reports. The Gerontologist, 34, 324-330.
21. Krueger, R. (1996). Group dynamics and focus groups. In B. Spilker (Ed.), Quality of life and pharmacoeconomics in clinical trials (2nd ed., pp. 397-402). New York: Lippencott-Raven.
22. Lawton, P. (1994). Quality of life in Alzheimer disease. Alzheimer Disease and Associated Disorders, 8(3), 138-150.
23. Lawton, M., van Haitsma, K., & Klapper, J. (1996). Observed affect in nursing home residents with Alzheimer's disease. Journal of Gerontology: Psychological Sciences, 51B, P3-P14.
24. Logsdon, R., Whitehouse, P., & Teri, L. (1996, November). Quality of life in Alzheimer's disease: Implications for research. Paper presented at the Annual Meeting of The Gerontological Society of America, Washington, DC.
25. Lopez, Becker, Somsak, Dew, & Dekosky. (1994). Awareness of cognitive deficits and anosognosia in probable Alzheimer's disease. European Neurology, 34, 277-282.
26. Lukovits, T., & McDaniel, K. (1992). Behavioral disturbance in severe Alzheimer's disease: A comparison of family member and nursing staff reporting. Journal of the American Geriatrics Society, 40, 891-895.
27. Magaziner, J., Simonsick, E., & Kashner, T. (1988). Patient-proxy response comparability on measures of patient health and functional status. Journal of Clinical Epidemiology, 41, 1065-1074.
28. Mahendra, B. (1984). Dementia. Boston: MTP Press.
29. McGlynn, S. M., & Kaszniak, A. W. (1991). When metacognition fails: Impaired awareness of deficit in Alzheimer's disease. Journal of Cognitive Neuroscience, 3(2), 183-189.
30. McHorney, C. A., (1996). Measuring and monitoring general health status in elderly persons: Practical and methodological issues in using the SF-36 Health Survey. The Gerontologist, 36, 571-583.
31. Meenan, R., Mason, J., Anderson, J., Guccione, A., & Kazis, L. (1992). The content and properties of a revised and expanded Arthritis Impact Measurement Scales Health Status Questionnaire. Arthritis Rheumatology, 15, 469-477.
32. Nunnally, J.C (1978) Psychometric theory. (2nd ed.) New York: McGraw-Hill
33. Ott, B., Lafleche, C., Whelihan, W., Buongiorno, G., Albert, M., & Fogel, B. (1996). Impaired awareness of deficits in Alzheimer disease. Alzheimer Disease and Associated Disorders, 10(2), 68-76.
34. Parmelee, P. A., Katz, I. R., & Lawton, M. P. (1989). Depression among institutionalized aged: Assessment and prevalence. Journal of Gerontology, 44, M22-M29.
35. Reed, B., Jagust, W., & Coulter, L. (1993). Anosognosia in Alzheimer's disease: Relationships to depression, cognitive functioning, and cerebral perfusion. Journal of Clinical and Experimental Neuropsychology, 15, 231-244.
36. Reisberg, B., Ferris, S. H., & Franssen, E. (1985). An ordinal functional assessment tool for Alzheimer's type dementia. Hospital Community Psychiatry, 36, 593-595.
37. Russel, C. (1996). Passion and heretics: Meaning in life and quality of life of persons with dementia. Journal of the American Geriatrics Society, 44(11), 1400-1401.
38. Sanifort, F., Becker, M., & Diamond, R. (1996). Judgments of quality of life of individuals with severe mental disorders: Patient self-report versus provider perspectives. American Journal of Psychiatry, 153, 497-502.
39. Schacter, D., & Glisky, E. (1986). Memory remediation: Restoration, alleviation, and the acquisition of domain-specific knowledge. In B. Uzzell & Yigal Gross (Eds.), Clinical neuropsychology of intervention (pp. 257-282). Boston: Kluwer Academic.
40. Seltzer, B., Vasterling, J., Hale, M., & Khurana, R. (1995). Unawareness of cognitive and functional deficits in Alzheimer's disease: Mood and disease correlates. Neuropsychiatry, Neuropsychology, and Behavioral Neurology, 8(3), 176-181.
41. Sevush, S., & Leve, N. (1993). Denial of memory deficit in Alzheimer's disease. American Journal of Psychiatry, 150, 748-751.
42. Stewart, A., Hays, R., & Ware, J., Jr. (1992). Methods of validating health measures. In A. Stewart & J. Ware, Jr. (Eds.), Measuring functioning and well-being: The medical outcomes study approach (pp. 309-324). Durham, NC: Duke University Press.
43. Stewart, A., & King, A. (1994). Conceptualizing and measuring quality of life in older populations. In R. Abeles, H. Gift, & M. Dry (Eds.), Aging and quality of life (pp. 27-54). New York: Springer.
44. Stewart, A., Sherbourne, C., & Brod, M. (1996). Measuring health-related quality of life in older and demented populations, quality of life and pharmacoeconomics in clinical trials (2nd ed.). New York: Lippincott-Raven.
45. Teri, L., & Wagner, A. (1991). Assessment of depression in patients with Alzheimer's disease: Concordance among informants. Psychology and Aging, 6(2), 280-285.
46. Testa, M., & Simonson, D. (1996). Current concepts: Assessment of quality of life outcomes. New England Journal of Medicine, 334, 835-840.
47. Whitehouse, P. J., & Rabins, P. V. (1992). Quality of life and dementia. Alzheimer's Disease and Associated Disorders, 6(3), 135-137.
48. Yesavage, J., Brink, T., & Rose, T. (1983). Development and validation of a geriatric depression screening scale: A preliminary report. Journal of Psychiatry Research, 17, 37-49.
49. Zimmerman, S., & Magaziner, J. (1994). Methodological issues in measuring the functional status of cognitively impaired nursing home residents: The use of proxies and performance-based measures. Alzheimer Disease and Associated Disorders, 8, S281-S290.