-
1
-
-
0031984571
-
Effects of pediatric chronic physical disorders on child and family adjustment
-
Wallander JL, Varni JW. Effects of pediatric chronic physical disorders on child and family adjustment. J Child Psychol Psychiatry 1998; 39: 29-46.
-
(1998)
J Child Psychol Psychiatry
, vol.39
, pp. 29-46
-
-
Wallander, J.L.1
Varni, J.W.2
-
3
-
-
0023278304
-
Chronic illness, disability, and mental and social well-being: Findings of the Ontario Child Health Study
-
Cadman D, Boyle M, Szatmari P, Offord DR. Chronic illness, disability, and mental and social well-being: Findings of the Ontario Child Health Study. Pediatrics 1987; 79: 805-813.
-
(1987)
Pediatrics
, vol.79
, pp. 805-813
-
-
Cadman, D.1
Boyle, M.2
Szatmari, P.3
Offord, D.R.4
-
4
-
-
28144452270
-
Congenital cardiovascular disease: Statistics
-
American Heart Association. Retrieved April 12, 2006, from
-
American Heart Association. Congenital cardiovascular disease: statistics. 2006. Retrieved April 12, 2006, from http://www.americanheart.org/presenter.jhtml?identifier=4576.
-
(2006)
-
-
-
5
-
-
33750221059
-
Congenital heart defects: Quick references and fact sheets
-
March of Dimes. Retrieved April 12, 2006 from
-
March of Dimes. Congenital heart defects: Quick references and fact sheets. 2006. Retrieved April 12, 2006 from http://search.marchofdimes.com/cgi-bin/ MsmGo.exe?grab_id=17&page_id=1639680&query=Birth+ Defects&hiword=BIRTHED+BIRTHING+BIRTHS+Birth+DEFEC+DEFECT+Defects+
-
(2006)
-
-
-
6
-
-
0029778224
-
An empirical study of parents' reaction to the diagnosis of congenital heart disease in infants
-
Cohn JK. An empirical study of parents' reaction to the diagnosis of congenital heart disease in infants. Soc Work Health Care 1996; 23: 67-79.
-
(1996)
Soc Work Health Care
, vol.23
, pp. 67-79
-
-
Cohn, J.K.1
-
7
-
-
0036246379
-
Distress and hopelessness among parents of children with congenital heart disease, parents of children with other disease, and parents of healthy children
-
Lawoko S, Soares JF. Distress and hopelessness among parents of children with congenital heart disease, parents of children with other disease, and parents of healthy children. J Psychosom Res 2002; 52: 193-208.
-
(2002)
J Psychosom Res
, vol.52
, pp. 193-208
-
-
Lawoko, S.1
Soares, J.F.2
-
8
-
-
0002272449
-
Resiliency in families: A conceptual model of family adjustment and adaptation in response to stress and crisis
-
In: McCubbin HI, Thompson AI, McCubbin MA (eds). 1st Edn. University of Wisconsin Publishers, Madison, Wisconsin
-
McCubbin HI, Thompson AI, McCubbin MA. Resiliency in families: A conceptual model of family adjustment and adaptation in response to stress and crisis. In: McCubbin HI, Thompson AI, McCubbin MA (eds). Family Assessment: Resiliency, Coping and Adaptation - Inventories for Research and Practice, 1st Edn. University of Wisconsin Publishers, Madison, Wisconsin, 1996, pp 1-64.
-
(1996)
Family Assessment: Resiliency, Coping and Adaptation - Inventories for Research and Practice
, pp. 1-64
-
-
McCubbin, H.I.1
Thompson, A.I.2
McCubbin, M.A.3
-
9
-
-
1442358732
-
Great expectations: A position description for parents as caregivers: Part I
-
Sullivan-Bolyai S, Sadler L, Knafl KA, Gilliss CL. Great expectations: A position description for parents as caregivers: Part I. Pediatr Nurs 2003; 29: 457-461.
-
(2003)
Pediatr Nurs
, vol.29
, pp. 457-461
-
-
Sullivan-Bolyai, S.1
Sadler, L.2
Knafl, K.A.3
Gilliss, C.L.4
-
10
-
-
0026279225
-
Family adaptation to a child's chronic illness
-
Austin JK. Family adaptation to a child's chronic illness. Annu Rev Nurs Res 1991; 9: 103-120.
-
(1991)
Annu Rev Nurs Res
, vol.9
, pp. 103-120
-
-
Austin, J.K.1
-
11
-
-
0039400560
-
The self in later years of life: Changing perspectives on psychological well-being
-
In: Sperry, Prosen (eds). Garland Pub, New York
-
Heidrich SM, Ryff CD. The self in later years of life: Changing perspectives on psychological well-being. In: Sperry, Prosen (eds). Aging in the Twenty-first Century: A Developmental Perspective. Garland Pub, New York, 1996, pp 73-100.
-
(1996)
Aging in the Twenty-first Century: A Developmental Perspective
, pp. 73-100
-
-
Heidrich, S.M.1
Ryff, C.D.2
-
12
-
-
0031777371
-
Trajectories of adaptation in pediatric chronic illness: The importance of the individual
-
Frank RG, Thayer JF, Hagglund KJ, et al. Trajectories of adaptation in pediatric chronic illness: The importance of the individual. J Consult Clin Psychol 1998; 66: 521-532.
-
(1998)
J Consult Clin Psychol
, vol.66
, pp. 521-532
-
-
Frank, R.G.1
Thayer, J.F.2
Hagglund, K.J.3
-
13
-
-
0002342948
-
The social context of coping with childhood chronic illness: Family systems and social support
-
In: LaGreca AM, Siegel LJ, Wallander JL, Walker CE (eds). The Guilford Press. New York, NY
-
Kazak AE. The social context of coping with childhood chronic illness: family systems and social support. In: LaGreca AM, Siegel LJ, Wallander JL, Walker CE (eds). Stress and coping in child health. The Guilford Press. New York, NY, 1992, pp 262-278.
-
(1992)
Stress and Coping in Child Health
, pp. 262-278
-
-
Kazak, A.E.1
-
14
-
-
0022032616
-
Adaptation in family systems: A developmental perspective
-
Melito R. Adaptation in family systems: A developmental perspective. Family Process, 1985; 24: 89-100.
-
(1985)
Family Process
, vol.24
, pp. 89-100
-
-
Melito, R.1
-
15
-
-
33750218467
-
Chronic illness in children and families
-
In: Mott SR, James SR, Spherac AM (eds). 2nd Edn. Lippincott Publishing, Inc, Philadelphia
-
Mott SR, James SR, Spherac AM. Chronic illness in children and families. In: Mott SR, James SR, Spherac AM (eds). Nursing Care of Children and Families, 2nd Edn. Lippincott Publishing, Inc, Philadelphia, 1990, pp 613-639.
-
(1990)
Nursing Care of Children and Families
, pp. 613-639
-
-
Mott, S.R.1
James, S.R.2
Spherac, A.M.3
-
16
-
-
0036121681
-
Understanding family resilience
-
Patterson JM. Understanding family resilience. J Clin Psychol 2001; 58: 233-246.
-
(2001)
J Clin Psychol
, vol.58
, pp. 233-246
-
-
Patterson, J.M.1
-
17
-
-
0001652187
-
Family development's first forty years
-
Duvall EM. Family development's first forty years. Fam Relations, 1988; 37: 127-134.
-
(1988)
Fam Relations
, vol.37
, pp. 127-134
-
-
Duvall, E.M.1
-
18
-
-
0024632621
-
Disability parameters: Chronic strain and adaptation of physically handicapped children and their mothers
-
Wallander JL, Varni JW, Babani L, Banis HT, DeHaan CB, Wilcox KT. Disability parameters: Chronic strain and adaptation of physically handicapped children and their mothers. J Pediatr Psychol 1989; 14: 23-42.
-
(1989)
J Pediatr Psychol
, vol.14
, pp. 23-42
-
-
Wallander, J.L.1
Varni, J.W.2
Babani, L.3
Banis, H.T.4
DeHaan, C.B.5
Wilcox, K.T.6
-
19
-
-
0003704999
-
-
Springer, New York
-
Lazarus RS, Folkman S. Stress, appraisal, and coping. Springer, New York, 1984.
-
(1984)
Stress, Appraisal, and Coping
-
-
Lazarus, R.S.1
Folkman, S.2
-
20
-
-
0034208321
-
Family stresses, strengths, and outcomes after critical injury
-
Leske JS. Family stresses, strengths, and outcomes after critical injury. Critical Care Nursing Clinics of North America 2000; 12: 237-244.
-
(2000)
Critical Care Nursing Clinics of North America
, vol.12
, pp. 237-244
-
-
Leske, J.S.1
-
21
-
-
0037316898
-
Comparison of family stresses, strengths, and outcomes after trauma and surgery
-
Leske JS. Comparison of family stresses, strengths, and outcomes after trauma and surgery. AACN Clinical Issues 2003; 14: 33-41.
-
(2003)
AACN Clinical Issues
, vol.14
, pp. 33-41
-
-
Leske, J.S.1
-
22
-
-
0029881382
-
Behavioral adjustment of children with surgically palliated complex congenital heart disease
-
Casey FA, Sykes DH, Craig BG, Mulholland HC. Behavioral adjustment of children with surgically palliated complex congenital heart disease. J Pediatr Psychol 1996; 21: 335-352.
-
(1996)
J Pediatr Psychol
, vol.21
, pp. 335-352
-
-
Casey, F.A.1
Sykes, D.H.2
Craig, B.G.3
Mulholland, H.C.4
-
23
-
-
0025045175
-
Chronic illness in infancy and parenting stress: A comparison of three groups of parents
-
Goldberg S, Morris P, Simmons RJ, Fowler RS, Levison H. Chronic illness in infancy and parenting stress: A comparison of three groups of parents. J Pediatr Psychol 1990; 15: 347-358.
-
(1990)
J Pediatr Psychol
, vol.15
, pp. 347-358
-
-
Goldberg, S.1
Morris, P.2
Simmons, R.J.3
Fowler, R.S.4
Levison, H.5
-
24
-
-
0037939622
-
Parental stress in relation to the severity of congenital heart disease in the offspring
-
Morelius E, Lundh U, Nelson N. Parental stress in relation to the severity of congenital heart disease in the offspring. Pediatr Nurs 2002; 28: 28-33.
-
(2002)
Pediatr Nurs
, vol.28
, pp. 28-33
-
-
Morelius, E.1
Lundh, U.2
Nelson, N.3
-
25
-
-
0037491751
-
Parenting stress and children with heart disease
-
Uzark K, Jones K. Parenting stress and children with heart disease. J Pediatr Healthcare 2003; 17: 163-168.
-
(2003)
J Pediatr Healthcare
, vol.17
, pp. 163-168
-
-
Uzark, K.1
Jones, K.2
-
26
-
-
0030210398
-
Parenthood transition for parents of an infant diagnosed with a congenital heart condition
-
Svavarsdottir EK, McCubbin MA. Parenthood transition for parents of an infant diagnosed with a congenital heart condition. J Pediatr Nurs 1996; 11: 207-216.
-
(1996)
J Pediatr Nurs
, vol.11
, pp. 207-216
-
-
Svavarsdottir, E.K.1
McCubbin, M.A.2
-
27
-
-
0034181677
-
Psychological distress and styles of coping in parents of children awaiting elective cardiac surgery
-
Utens EM, Versluis-Den Bieman HJ, Verhulst FC, Witsenburg M, Bogers AJ, Hess J. Psychological distress and styles of coping in parents of children awaiting elective cardiac surgery. Cardiol Young 2000; 10L 239-244.
-
(2000)
Cardiol Young
, vol.10 L
, pp. 239-244
-
-
Utens, E.M.1
Versluis-Den Bieman, H.J.2
Verhulst, F.C.3
Witsenburg, M.4
Bogers, A.J.5
Hess, J.6
-
28
-
-
0037945597
-
Does age at the time of elective cardiac surgery or catheter intervention in children influence the longitudinal development of psychological distress and styles of coping of parents?
-
Utens EM, Versluis-Den Bieman HJ, Witsenburg M, Bogers AJ, Hess J, Verhulst FC. Does age at the time of elective cardiac surgery or catheter intervention in children influence the longitudinal development of psychological distress and styles of coping of parents? Cardiol Young 2002; 12: 524-530.
-
(2002)
Cardiol Young
, vol.12
, pp. 524-530
-
-
Utens, E.M.1
Versluis-Den Bieman, H.J.2
Witsenburg, M.3
Bogers, A.J.4
Hess, J.5
Verhulst, F.C.6
-
29
-
-
33845771293
-
Neurodevelopmental outcome in preschool survivors of complex congenital heart disease: Implications for clinical practice
-
In Press
-
Brosig C, Mussatto KA, Kuhn E, Tweddell JS. Neurodevelopmental outcome in preschool survivors of complex congenital heart disease: Implications for clinical practice. J Pediatr Health Care, In Press.
-
J Pediatr Health Care
-
-
Brosig, C.1
Mussatto, K.A.2
Kuhn, E.3
Tweddell, J.S.4
-
30
-
-
15344344255
-
Central nervous system outcomes in children with complex congenital heart disease
-
Wernovsky G, Shillingford AJ, Gaynor JW. Central nervous system outcomes in children with complex congenital heart disease. Curr Opin Cardiol 2005; 20: 94-99.
-
(2005)
Curr Opin Cardiol
, vol.20
, pp. 94-99
-
-
Wernovsky, G.1
Shillingford, A.J.2
Gaynor, J.W.3
-
31
-
-
15344344457
-
Late neurodevelopmental outcome after repair of total anomalous pulmonary venous connection
-
Kirshbom PM, Flynn TB, Clancy RR, et al. Late neurodevelopmental outcome after repair of total anomalous pulmonary venous connection. J Thorac Cardiovasc Surg 2005; 129: 1091-1097.
-
(2005)
J Thorac Cardiovasc Surg
, vol.129
, pp. 1091-1097
-
-
Kirshbom, P.M.1
Flynn, T.B.2
Clancy, R.R.3
-
33
-
-
24944448809
-
Living with congenital or acquired cardiac disease in childhood: Maternal perceptions of the impact on the child and family
-
Wray J, Maynard L. Living with congenital or acquired cardiac disease in childhood: Maternal perceptions of the impact on the child and family. Cardiol Young 2005; 15: 133-140.
-
(2005)
Cardiol Young
, vol.15
, pp. 133-140
-
-
Wray, J.1
Maynard, L.2
-
34
-
-
0027260950
-
Behavioural and emotional problems in children and adolescents with congenital heart disease
-
Utens EM, Verhulst FC, Meijboom FJ, et al. Behavioural and emotional problems in children and adolescents with congenital heart disease. Psychol Med 1993; 23: 415-424.
-
(1993)
Psychol Med
, vol.23
, pp. 415-424
-
-
Utens, E.M.1
Verhulst, F.C.2
Meijboom, F.J.3
-
35
-
-
0031612462
-
How does the intervention of cardiac surgery affect the self-perception of children with congenital heart disease?
-
Wray J, Sensky T. How does the intervention of cardiac surgery affect the self-perception of children with congenital heart disease? Child Care Health Dev 1998; 24: 57-72.
-
(1998)
Child Care Health Dev
, vol.24
, pp. 57-72
-
-
Wray, J.1
Sensky, T.2
-
36
-
-
1842555197
-
Posttraumatic stress disorder in children after cardiac surgery
-
Connolly D, McClowry S, Hayman L, Mahony L, Artman M. Posttraumatic stress disorder in children after cardiac surgery. J Pediatr 2004; 144: 480-484.
-
(2004)
J Pediatr
, vol.144
, pp. 480-484
-
-
Connolly, D.1
McClowry, S.2
Hayman, L.3
Mahony, L.4
Artman, M.5
-
37
-
-
0242558153
-
The pediatric quality of life inventory™ in children with heart disease
-
Uzark K, Jones K, Burwinkle TM, Varni JW. The pediatric quality of life inventory™ in children with heart disease. Prog Pediatr Cardiol 2003; 18: 141-148.
-
(2003)
Prog Pediatr Cardiol
, vol.18
, pp. 141-148
-
-
Uzark, K.1
Jones, K.2
Burwinkle, T.M.3
Varni, J.W.4
-
38
-
-
23944498070
-
Is the severity of congenital heart disease associated with the quality of life and perceived health of adult patients?
-
Moons P, Van Deyk K, De Geest S, Gewillig M, Budts W. Is the severity of congenital heart disease associated with the quality of life and perceived health of adult patients? Heart 2005; 91: 1193-1198.
-
(2005)
Heart
, vol.91
, pp. 1193-1198
-
-
Moons, P.1
Van Deyk, K.2
De Geest, S.3
Gewillig, M.4
Budts, W.5
-
39
-
-
21844435494
-
Quality of life following surgery for congenital cardiac malformations in neonates and infants
-
Mussatto K, Tweddell J. Quality of life following surgery for congenital cardiac malformations in neonates and infants. Cardiol Young 2005; 15 (Suppl. 1): I174-I178.
-
(2005)
Cardiol Young
, vol.15
, Issue.SUPPL. 1
-
-
Mussatto, K.1
Tweddell, J.2
-
40
-
-
0036170508
-
Self-concept in male and female adolescents with congenital heart disease
-
Salzer-Muhar U, Herle M, Floquet P, et al. Self-concept in male and female adolescents with congenital heart disease. Clin Pediatr 2002; 41: 17-24.
-
(2002)
Clin Pediatr
, vol.41
, pp. 17-24
-
-
Salzer-Muhar, U.1
Herle, M.2
Floquet, P.3
-
41
-
-
0031966801
-
Psychopathology in young adults with congenital heart disease. Follow-up results
-
Utens EM, Bieman HJ, Verhulst FC, Meijboom FJ, Erdman RA, Hess J. Psychopathology in young adults with congenital heart disease. Follow-up results. Eur Heart J 1998; 19; 647-651.
-
(1998)
Eur Heart J
, vol.19
, pp. 647-651
-
-
Utens, E.M.1
Bieman, H.J.2
Verhulst, F.C.3
Meijboom, F.J.4
Erdman, R.A.5
Hess, J.6
-
43
-
-
0025832538
-
The impact of maternal perceptions and medical severity on the adjustment of children with congenital heart disease
-
DeMaso DR, Campis LK, Wypij D, Bertram S, Lipshitz M, Freed M. The impact of maternal perceptions and medical severity on the adjustment of children with congenital heart disease. J Pediatr Psychol 1991; 16: 137-149.
-
(1991)
J Pediatr Psychol
, vol.16
, pp. 137-149
-
-
DeMaso, D.R.1
Campis, L.K.2
Wypij, D.3
Bertram, S.4
Lipshitz, M.5
Freed, M.6
|