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Volumn 12, Issue 3, 2003, Pages 412-421

Developing user involvement in research

Author keywords

Clinical trials; Health policy; Research; Strategy; User involvement

Indexed keywords

TAMOXIFEN;

EID: 0037637539     PISSN: 09621067     EISSN: None     Source Type: Journal    
DOI: 10.1046/j.1365-2702.2003.00755.x     Document Type: Review
Times cited : (13)

References (87)
  • 1
    • 84992984729 scopus 로고    scopus 로고
    • Consumer involvement and inter-agency collaboration in clinical audit
    • Barnard S. (1998) Consumer involvement and inter-agency collaboration in clinical audit. Health and Social Care 6(2), 130-142.
    • (1998) Health and Social Care , vol.6 , Issue.2 , pp. 130-142
    • Barnard, S.1
  • 3
    • 0027450603 scopus 로고
    • New approach for recruitment into randomised controlled clinical trials
    • Baum M. (1993) New approach for recruitment into randomised controlled clinical trials. Lancet 341(March 27), 812-813.
    • (1993) Lancet , vol.341 , Issue.27 MARCH , pp. 812-813
    • Baum, M.1
  • 4
    • 0028281114 scopus 로고
    • Clinical trials - A brave new partnership: A response to Mrs Thornton
    • Baum M. (1994) Clinical trials - a brave new partnership: a response to Mrs Thornton. Journal of Medical Ethics 20, 23-25.
    • (1994) Journal of Medical Ethics , vol.20 , pp. 23-25
    • Baum, M.1
  • 6
    • 0012542835 scopus 로고    scopus 로고
    • Quality in personal social services: The developing role of user involvement in the UK
    • (Davies C, Finlay L. & Bulhnan A., eds). Sage Publications, London
    • Beresford P., Croft S., Evans C. & Harding T. (2000) Quality in personal social services: the developing role of user involvement in the UK. In Changing Practice in Health and Social Care (Davies C, Finlay L. & Bulhnan A., eds). Sage Publications, London, pp. 189-197.
    • (2000) Changing Practice in Health and Social Care , pp. 189-197
    • Beresford, P.1    Croft, S.2    Evans, C.3    Harding, T.4
  • 7
    • 0029912547 scopus 로고    scopus 로고
    • Why we need observational studies to evaluate the effectiveness of health care
    • Black N. (1996) Why we need observational studies to evaluate the effectiveness of health care. British Medical Journal 312, 1215-1218.
    • (1996) British Medical Journal , vol.312 , pp. 1215-1218
    • Black, N.1
  • 8
    • 2342441332 scopus 로고    scopus 로고
    • Cancer Research Campaign (2000) Breast cancer statistics. Available at: http://www.crc.org.uk/cancer/cancer_intro.html.
    • (2000) Breast Cancer Statistics
  • 9
    • 0019965584 scopus 로고
    • Attitudes towards clinical trials among patients and the public
    • Cassileth B.R., Lusk E.J., Miller D.S. & Hurwitz S. (1982) Attitudes towards clinical trials among patients and the public. JAMA 248(8), 968-970.
    • (1982) JAMA , vol.248 , Issue.8 , pp. 968-970
    • Cassileth, B.R.1    Lusk, E.J.2    Miller, D.S.3    Hurwitz, S.4
  • 11
    • 0142054341 scopus 로고    scopus 로고
    • New national consumer advisory group for cancer research
    • Consumers in NHS Research Support Unit (2000) New national consumer advisory group for cancer research. Consumers in NHS Research Support Unit News 2(Autumn), 2.
    • (2000) Consumers in NHS Research Support Unit News , vol.2 , Issue.AUTUMN , pp. 2
  • 12
    • 0013029501 scopus 로고    scopus 로고
    • Cochrane Collaboration Consumer Network (2002) Introduction. Available at: http://www.cochraneconsumer.com.
    • (2002) Introduction
  • 13
    • 0013029501 scopus 로고    scopus 로고
    • Consumers in NHS Research (2002) Introduction. Available at: http://www.conres.co.uk.
    • (2002) Introduction
  • 14
    • 0041977311 scopus 로고
    • Evaluating the outcomes of health care
    • (Gabe J., Calnan M. & Bury M., eds). Routledge, London
    • Coulter A. (1991) Evaluating the outcomes of health care. In The Sociology of the Health Service (Gabe J., Calnan M. & Bury M., eds). Routledge, London.
    • (1991) The Sociology of the Health Service
    • Coulter, A.1
  • 15
    • 0026738552 scopus 로고
    • Decision-making during serious illness: What role do patients really want to play?
    • Degner L.F. & Sloane J.A. (1992) Decision-making during serious illness: what role do patients really want to play? Journal of Clinical Epidemiology 45, 941-950.
    • (1992) Journal of Clinical Epidemiology , vol.45 , pp. 941-950
    • Degner, L.F.1    Sloane, J.A.2
  • 16
    • 0040226033 scopus 로고
    • Her Majesty's Stationery Office, London
    • Department of Health (1989) NHS & Community Care Act. Her Majesty's Stationery Office, London.
    • (1989) NHS & Community Care Act
  • 17
    • 0142117656 scopus 로고
    • Her Majesty's Stationery Office, London
    • Department of Health (1991) The Patient's Chater. Her Majesty's Stationery Office, London.
    • (1991) The Patient's Chater
  • 19
    • 0003665913 scopus 로고    scopus 로고
    • The Stationary Office, London
    • Department of Health (1997a) The New NHS. Modern, Dependable. The Stationary Office, London.
    • (1997) The New NHS. Modern, Dependable
  • 21
    • 0003591601 scopus 로고    scopus 로고
    • The Stationary Office, London
    • Department of Health (1998a). A First Class Service. The Stationary Office, London.
    • (1998) A First Class Service
  • 24
    • 0003490265 scopus 로고    scopus 로고
    • The Stationary Office, London
    • Department of Health (1999a) Saving Lives. Our Healthier Nation. The Stationary Office, London.
    • (1999) Saving Lives. Our Healthier Nation
  • 28
    • 0142117655 scopus 로고    scopus 로고
    • Needs of the patients top the new NHS agenda
    • Summer. NHS Executive & Department of Health, Leeds
    • Department of Health (2000b) Needs of the patients top the new NHS agenda. National Health Service News, Summer. NHS Executive & Department of Health, Leeds.
    • (2000) National Health Service News
  • 29
    • 0142117655 scopus 로고    scopus 로고
    • Needs of the patients top the new NHS agenda
    • Summer. NHS Executive & Department of Health, Leeds
    • Department of Health (2000c) Needs of the patients top the new NHS agenda. In National Health Service News, Summer. NHS Executive & Department of Health, Leeds.
    • (2000) National Health Service News
  • 33
    • 0032537396 scopus 로고    scopus 로고
    • Tamoxifen for early breast cancer: An overview of the randomised trials
    • Early Breast Cancer Trialists' Collaborative Group (1998) Tamoxifen for early breast cancer: an overview of the randomised trials. Lancet 351, 1451-1467.
    • (1998) Lancet , vol.351 , pp. 1451-1467
  • 36
    • 0029671048 scopus 로고    scopus 로고
    • Survival outcome of care by specialist surgeons in breast cancer: A study of 3786 patients in the west of Scotland
    • Gillis C.R. & Hole D.J. (1996) Survival outcome of care by specialist surgeons in breast cancer: a study of 3786 patients in the west of Scotland. British Medical Journal 312, 145-148.
    • (1996) British Medical Journal , vol.312 , pp. 145-148
    • Gillis, C.R.1    Hole, D.J.2
  • 37
    • 0025815098 scopus 로고
    • Accrual to cancer clinical trials: Directions from the research literature
    • Gotay C.C. (1991) Accrual to cancer clinical trials: directions from the research literature. Social Science and Medicine 33(5), 569-577.
    • (1991) Social Science and Medicine , vol.33 , Issue.5 , pp. 569-577
    • Gotay, C.C.1
  • 38
    • 0028239030 scopus 로고
    • Relationship between preferences for decisional control and illness information among women with breast cancer: A quantitative and qualitative analysis
    • Hack T.F., Degner L.F. & Dyck D.G. (1994) Relationship between preferences for decisional control and illness information among women with breast cancer: a quantitative and qualitative analysis. Social Science and Medicine 39, 279-289.
    • (1994) Social Science and Medicine , vol.39 , pp. 279-289
    • Hack, T.F.1    Degner, L.F.2    Dyck, D.G.3
  • 41
    • 0142117653 scopus 로고    scopus 로고
    • The randomised controlled trial: A critique
    • Hicks C. (1998) The randomised controlled trial: a critique. Nurse Researcher 6(1), 19-32.
    • (1998) Nurse Researcher , vol.6 , Issue.1 , pp. 19-32
    • Hicks, C.1
  • 42
    • 2342441332 scopus 로고    scopus 로고
    • Imperial Cancer Research Fund (2000) Breast cancer statistics. Available at: http://www.icrf.co.uk.
    • (2000) Breast Cancer Statistics
  • 43
    • 0020771201 scopus 로고
    • Informed consent: What does it mean?
    • Kirby J. (1983) Informed consent: what does it mean? Journal of Medical Ethics 9, 69-75.
    • (1983) Journal of Medical Ethics , vol.9 , pp. 69-75
    • Kirby, J.1
  • 44
    • 84995024293 scopus 로고
    • The methodology of focus group interviews: The importance of interaction between the research participants
    • Kitzinger J. (1994) The methodology of focus group interviews: the importance of interaction between the research participants. Sociology of Health and Illness 16(1), 103-121.
    • (1994) Sociology of Health and Illness , vol.16 , Issue.1 , pp. 103-121
    • Kitzinger, J.1
  • 45
    • 84971585775 scopus 로고
    • Introducing focus groups
    • Kitzinger J. (1995) Introducing Focus Groups. British Medical Journal 311(29), 299-302.
    • (1995) British Medical Journal , vol.311 , Issue.29 , pp. 299-302
    • Kitzinger, J.1
  • 46
    • 0002415104 scopus 로고    scopus 로고
    • The management of primary breast cancer
    • Liberati A. & Grilli R. (1996) The management of primary breast cancer. Effective Health Care 2(6), 1-16.
    • (1996) Effective Health Care , vol.2 , Issue.6 , pp. 1-16
    • Liberati, A.1    Grilli, R.2
  • 47
    • 0025957282 scopus 로고
    • Patients' willingness to enter clinical trials: Measuring the association with perceived benefit and preference for decision participation
    • Llewellyn-Thomas H.A., McGreal M.J., Theil E.C., Fine S. & Erlichman C. (1991) Patients' willingness to enter clinical trials: measuring the association with perceived benefit and preference for decision participation. Social Science and Medicine 32, 35-42.
    • (1991) Social Science and Medicine , vol.32 , pp. 35-42
    • Llewellyn-Thomas, H.A.1    McGreal, M.J.2    Theil, E.C.3    Fine, S.4    Erlichman, C.5
  • 48
    • 0034728801 scopus 로고    scopus 로고
    • Responses of local research ethics committees to a study with approval from a multicentre research ethics committee
    • Lux A.L., Edwards S.W. & Osbourne J.P. (2000) Responses of local research ethics committees to a study with approval from a multicentre research ethics committee. British Medical Journal 320, 1182-1183.
    • (2000) British Medical Journal , vol.320 , pp. 1182-1183
    • Lux, A.L.1    Edwards, S.W.2    Osbourne, J.P.3
  • 49
    • 79959274161 scopus 로고    scopus 로고
    • The use of focus group interviews in nursing research
    • Macleod Clark J., Maben J. & Jones K. (1996) The use of focus group interviews in nursing research. NTResearch 1(2), 143-153.
    • (1996) NTResearch , vol.1 , Issue.2 , pp. 143-153
    • Macleod Clark, J.1    Maben, J.2    Jones, K.3
  • 50
    • 0033385558 scopus 로고    scopus 로고
    • Improving communication with cancer patients
    • Maguire P. (1999) Improving communication with cancer patients. European Journal of Cancer 35(10), 1415-1422.
    • (1999) European Journal of Cancer , vol.35 , Issue.10 , pp. 1415-1422
    • Maguire, P.1
  • 51
    • 0028696265 scopus 로고
    • A survey of the opinions of 'informed consent' of women currently involved in clinical trials within a breast unit
    • Maslin A.M. (1994) A survey of the opinions of 'informed consent' of women currently involved in clinical trials within a breast unit. European Journal of Cancer Care 3, 153-162.
    • (1994) European Journal of Cancer Care , vol.3 , pp. 153-162
    • Maslin, A.M.1
  • 54
    • 50249166774 scopus 로고
    • Breast cancer - Epidemiology, risk factors and genetics
    • (Dixon J., ed.). BMJ Publishing Group, London
    • McPherson K., Steel C.M. & Dixon J. (1995) Breast cancer - epidemiology, risk factors and genetics. In ABC of Breast Disease (Dixon J., ed.). BMJ Publishing Group, London, pp. 18-21.
    • (1995) ABC of Breast Disease , pp. 18-21
    • McPherson, K.1    Steel, C.M.2    Dixon, J.3
  • 57
    • 84970460785 scopus 로고
    • Why things go wrong in focus groups
    • Morgan D. (1995) Why things go wrong in focus groups. Qualitative Health Research 5(4), 516-523.
    • (1995) Qualitative Health Research , vol.5 , Issue.4 , pp. 516-523
    • Morgan, D.1
  • 61
    • 0026855748 scopus 로고
    • Developing Flanagan's critical incident technique to elicit indicators of high and low quality nursing care from patients and their nurses
    • Norman I.J., Redfern S.J., Tomalin D.A. & Oliver S. (1992) Developing Flanagan's critical incident technique to elicit indicators of high and low quality nursing care from patients and their nurses. Journal of Advanced Nursing 17(5), 590-600.
    • (1992) Journal of Advanced Nursing , vol.17 , Issue.5 , pp. 590-600
    • Norman, I.J.1    Redfern, S.J.2    Tomalin, D.A.3    Oliver, S.4
  • 67
    • 0001457476 scopus 로고
    • Qualitative data analysis for applied policy research
    • (Bryman A. & Burgess R., eds). Routledge, London
    • Ritchie J. & Spencer L. (1994) Qualitative data analysis for applied policy research. In Analysing Qualitative Data (Bryman A. & Burgess R., eds). Routledge, London, pp. 172-194.
    • (1994) Analysing Qualitative Data , pp. 172-194
    • Ritchie, J.1    Spencer, L.2
  • 72
    • 0030936769 scopus 로고    scopus 로고
    • Informed consent: The intricacies
    • Smith R. (1997) Informed consent: the intricacies. British Medical Journal 314, 1059-1060.
    • (1997) British Medical Journal , vol.314 , pp. 1059-1060
    • Smith, R.1
  • 73
    • 0000151536 scopus 로고    scopus 로고
    • Gaining patients' consent - Telling parents all relevant details might reduce recruitment of children to trials
    • Stephenson T. & Walker D. (1996) Gaining patients' consent - telling parents all relevant details might reduce recruitment of children to trials. British Medical Journal 313(7053), 362-363.
    • (1996) British Medical Journal , vol.313 , Issue.7053 , pp. 362-363
    • Stephenson, T.1    Walker, D.2
  • 74
    • 0028000976 scopus 로고
    • Centralised treatment, entry to trials and survival
    • Stiller C.A. (1994) Centralised treatment, entry to trials and survival. British Journal of Cancer 70, 352-362.
    • (1994) British Journal of Cancer , vol.70 , pp. 352-362
    • Stiller, C.A.1
  • 75
    • 0029054491 scopus 로고
    • The recruitment of patients into clinical trials
    • Tannock I. (1995) The recruitment of patients into clinical trials. British Journal of Cancer 71, 1134-1135.
    • (1995) British Journal of Cancer , vol.71 , pp. 1134-1135
    • Tannock, I.1
  • 76
    • 0018698078 scopus 로고
    • Randomised comparative studies in the treatment of cancer in the United Kingdom: Room for improvement?
    • Tate H.C., Rawlinson J.B. & Freedman L.S. (1979) Randomised comparative studies in the treatment of cancer in the United Kingdom: room for improvement? Lancet II, 623-625.
    • (1979) Lancet II , pp. 623-625
    • Tate, H.C.1    Rawlinson, J.B.2    Freedman, L.S.3
  • 77
    • 0028130499 scopus 로고
    • Fundamental dilemmas of the randomised clinical trial process: Results of a survey of the 1737 Eastern Cooperative Oncology Group Investigators
    • Taylor K.M., Feldstein M.L., Skeel R.T., Pandya K.J., Ng P. & Carbone P.P. (1994) Fundamental dilemmas of the randomised clinical trial process: results of a survey of the 1737 Eastern Cooperative Oncology Group Investigators. Journal of Clinical Oncology 12(9), 1796-1805.
    • (1994) Journal of Clinical Oncology , vol.12 , Issue.9 , pp. 1796-1805
    • Taylor, K.M.1    Feldstein, M.L.2    Skeel, R.T.3    Pandya, K.J.4    Ng, P.5    Carbone, P.P.6
  • 78
    • 0023119880 scopus 로고
    • Informed consent: The physician's perspective
    • Taylor K. & Kelner M. (1987) Informed consent: the physician's perspective. Social Science and Medicine 24(2), 135-143.
    • (1987) Social Science and Medicine , vol.24 , Issue.2 , pp. 135-143
    • Taylor, K.1    Kelner, M.2
  • 79
    • 0021339672 scopus 로고
    • Physician's reasons for not entering eligible patients in a RCT of surgery for breast cancer
    • Taylor K., Margolese. R. & Soskolnes C.L. (1984) Physician's reasons for not entering eligible patients in a RCT of surgery for breast cancer. New England Journal of Medicine 310(21), 1363-1367.
    • (1984) New England Journal of Medicine , vol.310 , Issue.21 , pp. 1363-1367
    • Taylor, K.1    Margolese, R.2    Soskolnes, C.L.3
  • 80
    • 0026601352 scopus 로고
    • Breast cancer trials: A patient's viewpoint
    • Thornton H.M. (1992) Breast cancer trials: a patient's viewpoint. Lancet 339, 44-45.
    • (1992) Lancet , vol.339 , pp. 44-45
    • Thornton, H.M.1
  • 81
    • 0030833822 scopus 로고    scopus 로고
    • The voice of the breast cancer patient - A lonely cry in the wilderness
    • Thornton H. (1997) The voice of the breast cancer patient - a lonely cry in the wilderness. European Journal of Cancer 33(6), 825-828.
    • (1997) European Journal of Cancer , vol.33 , Issue.6 , pp. 825-828
    • Thornton, H.1
  • 82
    • 0027453807 scopus 로고
    • Fully informed consent can be needlessly cruel
    • Tobias J. & Souhami S. (1993) Fully informed consent can be needlessly cruel. British Medical Journal 307, 1199-1201.
    • (1993) British Medical Journal , vol.307 , pp. 1199-1201
    • Tobias, J.1    Souhami, S.2
  • 83
    • 0032101830 scopus 로고    scopus 로고
    • Entry into clinical trials in breast cancer: The importance of specialist teams
    • Twelves C.J., Thompson C.S., Young J. & Gould A. (1998) Entry into clinical trials in breast cancer: the importance of specialist teams. European Journal of Cancer 34(7), 1004-1007.
    • (1998) European Journal of Cancer , vol.34 , Issue.7 , pp. 1004-1007
    • Twelves, C.J.1    Thompson, C.S.2    Young, J.3    Gould, A.4
  • 84
    • 0003396733 scopus 로고    scopus 로고
    • The United Kingdom Central Council Commission for Nursing and Midwifery, London
    • United Kingdom Central Council for Nursing Midwifery and Health Visiting (1999) Fitness for Practice. The United Kingdom Central Council Commission for Nursing and Midwifery, London.
    • (1999) Fitness for Practice
  • 85
    • 0026498336 scopus 로고
    • The selection of cases for randomised trials: A registry survey of concurrent trial and non-trial patients
    • Ward L.C., Fielding J.W.L., Dunn J.A. & Kelly K.A. (1992) The selection of cases for randomised trials: a registry survey of concurrent trial and non-trial patients. British Journal of Cancer 66, 943-950.
    • (1992) British Journal of Cancer , vol.66 , pp. 943-950
    • Ward, L.C.1    Fielding, J.W.L.2    Dunn, J.A.3    Kelly, K.A.4
  • 86
    • 0003846707 scopus 로고    scopus 로고
    • Welsh Office, Cardiff
    • Welsh Office (1998) Putting Patients First. Welsh Office, Cardiff.
    • (1998) Putting Patients First
  • 87
    • 0004177253 scopus 로고
    • World Medical Association, Venice, Italy
    • World Medical Association (1983) Declaration of Helsinki. World Medical Association, Venice, Italy.
    • (1983) Declaration of Helsinki


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