Applications and implications of advances in human genetics: Perspectives from a group of Black Americans

Community Genetics

Volumn 10, Issue 2, 2007, Pages 82-92

  Sheldon, Jane P ^a   Epstein Jayaratne, Toby ^b   Feldbaum, Merle B ^b   DiNardo, Courtney D ^b   Petty, Elizabeth M ^b  

^a UNIVERSITY OF MICHIGAN DEARBORN   (United States)

^b UNIVERSITY OF MICHIGAN   (United States)

Author keywords

Blacks; Cultural mistrust; Genetic beliefs; Genetic discrimination; Genetic science; Human traits; Opinions; Race differences

Indexed keywords

ADULT; AFRICAN AMERICAN; ATTITUDE TO HEALTH; CAUCASIAN; CONTROLLED STUDY; FEMALE; HEALTH CARE; HUMAN; HUMAN GENETICS; INTERVIEW; MALE; PRIORITY JOURNAL; RACE DIFFERENCE; REVIEW; TELEMEDICINE;

ADULT; AFRICAN AMERICANS; ATTITUDE TO HEALTH; EUROPEAN CONTINENTAL ANCESTRY GROUP; FEMALE; GENETICS, MEDICAL; HUMANS; INTELLIGENCE; MALE; MIDDLE AGED; QUALITATIVE RESEARCH; SPORTS; STEREOTYPING; VIOLENCE;

EID: 33947512740     PISSN: 14222795     EISSN: None     Source Type: Journal    
DOI: 10.1159/000099085     Document Type: Review

References (39)

1. Resnick D: The Human Genome Diversity Project: ethical problems and solutions. Politics Life Sci 1999;18:15-23.
2. Burchard EG, Ziv E, Coyle N, Gomez SL, Tang H, Karter AJ, Mountain JL, Perez-Stable EJ, Sheppard D, Risch N: The importance of race and ethnic background in biomedical research and clinical practice. N Engl J Med 2003;348:1170-1175.
3. Corbie-Smith G, Thomas SB, Williams MV, Moody-Ayers S: Attitudes and beliefs of African Americans toward participation in medical research. J Gen Intern Med 1999;14:537-546.
4. Graves JL: The emperor's new clothes: biological theories of race at the millennium. New Brunswick, Rutgers University Press, 2001.
5. Marks J: Human biodiversity: genes, race, and history. New York, Aldine de Gruyter, 1995.
6. Juengst ET: Group identity and human diversity: keeping biology straight from culture. Am J Hum Genet 1998;63:673-677.
7. Foster MW, Sharp RR: Genetic research and culturally specific risks: one size does not fit all. Trends Genet 2000;16:93-95.
8. Gostin LO: Genetic discrimination: The use of genetically based diagnostic and prognostic tests by employers and insurers. Am J Law Med 1991;17:109-144.
9. Alper JS, Beckwith J: Racism: a central problem for the Human Genome Diversity Project. Politics Life Sci 1999;18:285-288.
10. Laskey SL, Williams J, Pierre-Louis J, O'Riordan M, Matthews A, Robin NH: Attitudes of African American premedical students towards genetic testing and screening. Genet Med 2003;5:49-54.
11. Freimuth VS, Quinn SC, Thomas SB, Cole G, Zook E, Duncan T: African Americans' views on research and the Tuskegee Syphilis Study. Soc Sci Med 2001;52:797-808.
12. Singer E, Antonucci T, Van Hoewyk J: Racial and ethnic variations in knowledge and attitudes about genetic testing. Genet Test 2004;8:31-43.
13. Peters N, Rose A, Armstrong K: The association between race and attitudes about predictive genetic testing. Cancer Epidemiol Biomarkers Prev 2004;13:361-365.
14. Furr LA: Perceptions of genetics research as harmful to society: differences among samples of African-Americans and European-Americans. Genet Test 2002;6:25-30.
15. Jayaratne TE, Ybarra O, Sheldon JP, Brown TN, Feldbaum M, Pfeffer CA, Petty EM: White Americans' genetic lay theories of race differences and sexual orientation: their relationship with prejudice toward Blacks and gay men and lesbians. Group Processes Intergroup Relations, in press.
16. Patton MQ: Qualitative Evaluation and Research Methods. Newbury Park, Sage, 1990.
17. Black E: War against the weak: Eugenics and American's Campaign to Create a Master Race. New York, Four Walls Eight Windows, 2003.
18. Jones J: Bad Blood: The Tuskegee Syphilis Experiment. New York, Free Press, 1981
19. Jensen A. How much can we boost I.Q. and scholastic achievement? Harv Educ Rev 1969;39:1-123.
20. Herrnstein RJ, Murray C: The Bell Curve: Intelligence and Class Structure in American Life. New York, Free Press, 1994.
21. Rushton JP: Race, Evolution & Behavior. New Jersey, Transaction Publishers, 1999.
22. Terrell F, Terrell S: An inventory to measure cultural mistrust among Blacks. West J Black Stud 1981;5:180-185.
23. Whaley AL: Cultural mistrust and mental health services for African Americans: a review and meta-analysis. Couns Psychol 2001;29:513-531.
24. Whaley AL: Cultural mistrust: an important psychological construct for diagnosis and treatment of African Americans. Prof Psychol Res Pr 2001;32:555-562.
25. Smedley A, Smedley BD: Race as biology is fiction, racism as a social problem is real: anthropological and historical perspectives on the social construction of race. Am Psychol 2005;60:16-26.
26. Boulware LE, Cooper LA, Ratner LE, LaVeist TA, Powe NR: Race and trust in the health care system. Public Health Rep 2003;118:358-365.
27. Corbie-Smith G, Thomas SB, St. George DM: Distrust, race, and research. Arch Intern Med 2002;162:2458-2463.
28. Gamble VN: Under the shadow of Tuskegee: African Americans and health care. Am J Public Health 1997;87:1773-1778.
29. Schwartz RS: Racial profiling in medical research. N Engl J Med 2001;344:1392-1393.
30. Rothman BK: Genetic Maps and Human Imaginations: The Limits of Science in Understanding Who We Are. New York, Norton, 1998.
31. Chin MH, Humikowski CA: When is risk stratification by race or ethnicity justified in medical care? Acad Med 2002;77:202-207.
32. Collins FS, Green ED, Guttmacher AL, Guyer MS: A vision for the future of genomics research. Nature 2003;422:835-847.
33. Duckpoo FC: It's more than the Human Genome Diversity Project. Politics Life Sci 1999;18:296-297.
34. Dula A: Toward an African-American perspective on bioethics. J Health Care Poor Underserved 1991;2:259-269.
35. Dula A: African American suspicion of the healthcare system is justified: what do we do about it? Camb Q Healthc Ethics 1994;3:347-357.
36. Flack HE, Pellegrino ED (eds): African-American Perspectives on Biomedical Ethics. Washington, Georgetown University Press, 1992.
37. McGary H: Distrust, social justice, and health care. Mt Sinai J Med1999;66:236-240.
38. Am Psychol 2005;601-128.
39. American Association of Physical Anthropologists: AAPA statement on biological aspects of race. Am J Phys Anthropol 1996;101:569-570.