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Volumn 13, Issue 3, 2007, Pages 245-254

A Process to Facilitate Decision Making in Pediatric Stem Cell Transplantation: The Individualized Care Planning and Coordination Model

Author keywords

Care coordination; Care planning; Decision making; Palliative care; Pediatrics; Stem cell transplantation

Indexed keywords

ACUTE GRANULOCYTIC LEUKEMIA; ALLOGENEIC STEM CELL TRANSPLANTATION; CANCER PALLIATIVE THERAPY; CHILD CARE; CLINICAL COMPETENCE; CLINICAL TRIAL; CONCEPTUAL FRAMEWORK; DOCTOR PATIENT RELATION; EMPATHY; FAMILY; HEALTH CARE ACCESS; HEALTH CARE DELIVERY; HUMAN; INTERDISCIPLINARY COMMUNICATION; LEUKEMIA RELAPSE; MEDICAL DECISION MAKING; MEDICAL ETHICS; PHYSICIAN ATTITUDE; PROGNOSIS; QUALITY OF LIFE; REVIEW; STEM CELL TRANSPLANTATION; TREATMENT PLANNING;

EID: 33847048974     PISSN: 10838791     EISSN: 15236536     Source Type: Journal    
DOI: 10.1016/j.bbmt.2006.11.013     Document Type: Review
Times cited : (31)

References (56)
  • 2
    • 0031205134 scopus 로고    scopus 로고
    • Psychosocial consequences of bone marrow transplantation in donor and nondonor siblings
    • Packman W.L., Crittenden M.R., Schaeffer E., et al. Psychosocial consequences of bone marrow transplantation in donor and nondonor siblings. J Dev Behav Pediatr 18 (1997) 244-253
    • (1997) J Dev Behav Pediatr , vol.18 , pp. 244-253
    • Packman, W.L.1    Crittenden, M.R.2    Schaeffer, E.3
  • 3
    • 0029066726 scopus 로고
    • The impact of paediatric bone marrow transplantation on quality of life
    • Nespoli L., Verri A.P., Locatelli F., et al. The impact of paediatric bone marrow transplantation on quality of life. Qual Life Res 4 (1995) 233-240
    • (1995) Qual Life Res , vol.4 , pp. 233-240
    • Nespoli, L.1    Verri, A.P.2    Locatelli, F.3
  • 4
    • 0037229996 scopus 로고    scopus 로고
    • Recent advances in allogeneic hematopoietic stem cell transplantation
    • Devine S.M., Adkins D.R., Khoury H., et al. Recent advances in allogeneic hematopoietic stem cell transplantation. J Lab Clin Med 141 (2003) 7-32
    • (2003) J Lab Clin Med , vol.141 , pp. 7-32
    • Devine, S.M.1    Adkins, D.R.2    Khoury, H.3
  • 5
    • 8044242350 scopus 로고    scopus 로고
    • Allogeneic bone marrow transplantation versus chemotherapy in high-risk childhood acute lymphoblastic leukaemia in first remission. Associazione Italiana di Ematologia ed Oncologia Pediatrica (AIEOP) and the Gruppo Italiano Trapianto di Midollo Osseo (GITMO)
    • Uderzo C., Valsecchi M.G., Balduzzi A., et al. Allogeneic bone marrow transplantation versus chemotherapy in high-risk childhood acute lymphoblastic leukaemia in first remission. Associazione Italiana di Ematologia ed Oncologia Pediatrica (AIEOP) and the Gruppo Italiano Trapianto di Midollo Osseo (GITMO). Br J Haematol 96 (1997) 387-394
    • (1997) Br J Haematol , vol.96 , pp. 387-394
    • Uderzo, C.1    Valsecchi, M.G.2    Balduzzi, A.3
  • 6
    • 33645304577 scopus 로고    scopus 로고
    • Curing childhood acute myeloid leukemia (AML) at the halfway point: promises to keep and miles to go before we sleep
    • Woods W.G. Curing childhood acute myeloid leukemia (AML) at the halfway point: promises to keep and miles to go before we sleep. Pediatr Blood Cancer 46 (2006) 565-569
    • (2006) Pediatr Blood Cancer , vol.46 , pp. 565-569
    • Woods, W.G.1
  • 7
    • 0035880944 scopus 로고    scopus 로고
    • Second allogeneic bone marrow transplantation in acute leukemia: results of a survey by the European Cooperative Group for Blood and Marrow Transplantation
    • Bosi A., Laszlo D., Labopin M., et al. Second allogeneic bone marrow transplantation in acute leukemia: results of a survey by the European Cooperative Group for Blood and Marrow Transplantation. J Clin Oncol 19 (2001) 3675-3684
    • (2001) J Clin Oncol , vol.19 , pp. 3675-3684
    • Bosi, A.1    Laszlo, D.2    Labopin, M.3
  • 8
    • 12444269015 scopus 로고    scopus 로고
    • Cancer-related deaths in children and adolescents
    • Bradshaw G., Hinds P.S., Lensing S., et al. Cancer-related deaths in children and adolescents. J Palliat Med 8 (2005) 86-95
    • (2005) J Palliat Med , vol.8 , pp. 86-95
    • Bradshaw, G.1    Hinds, P.S.2    Lensing, S.3
  • 9
    • 0031600540 scopus 로고    scopus 로고
    • Peak and nadir experiences and their consequences described by pediatric oncology nurses
    • Olson M.S., Hinds P.S., Euell K., et al. Peak and nadir experiences and their consequences described by pediatric oncology nurses. J Pediatr Oncol Nurs 15 (1998) 13-24
    • (1998) J Pediatr Oncol Nurs , vol.15 , pp. 13-24
    • Olson, M.S.1    Hinds, P.S.2    Euell, K.3
  • 11
    • 0036041126 scopus 로고    scopus 로고
    • Current controversies: which patients with acute myeloid leukaemia should receive bone marrow transplantation?. An American view
    • Chen A.R., Alonzo T.A., Woods W.G., et al. Current controversies: which patients with acute myeloid leukaemia should receive bone marrow transplantation?. An American view. Br J Haematol 118 (2002) 378-384
    • (2002) Br J Haematol , vol.118 , pp. 378-384
    • Chen, A.R.1    Alonzo, T.A.2    Woods, W.G.3
  • 12
    • 0036192638 scopus 로고    scopus 로고
    • Predicting factors for admission to an intensive care unit and clinical outcome in pediatric patients receiving hematopoietic stem cell transplantation
    • Diaz M.A., Vicent M.G., Prudencio M., et al. Predicting factors for admission to an intensive care unit and clinical outcome in pediatric patients receiving hematopoietic stem cell transplantation. Haematologica 87 (2002) 292-298
    • (2002) Haematologica , vol.87 , pp. 292-298
    • Diaz, M.A.1    Vicent, M.G.2    Prudencio, M.3
  • 13
    • 33847031868 scopus 로고    scopus 로고
    • Therapy preference and decision making among patients with severe sickle cell anemia and their families
    • Epub ahead of print
    • Hankins J., Hinds P., Day S., et al. Therapy preference and decision making among patients with severe sickle cell anemia and their families. Pediatr Blood Cancer 26 (2006) Epub ahead of print
    • (2006) Pediatr Blood Cancer , vol.26
    • Hankins, J.1    Hinds, P.2    Day, S.3
  • 14
    • 33847084470 scopus 로고    scopus 로고
    • Having a child to save a sibling: reassessing risks and benefits of creating stem cell donors
    • Epub ahead of print
    • Morgan E.R., Girod J., and Rinehart J.S. Having a child to save a sibling: reassessing risks and benefits of creating stem cell donors. Pediatr Blood Cancer 17 (2006) Epub ahead of print
    • (2006) Pediatr Blood Cancer , vol.17
    • Morgan, E.R.1    Girod, J.2    Rinehart, J.S.3
  • 15
    • 4744347005 scopus 로고    scopus 로고
    • Treatment of CML in pediatric patients: should imatinib mesylate (STI-571, Gleevec) or allogeneic hematopoietic cell transplant be front-line therapy?
    • Pulsipher M.A. Treatment of CML in pediatric patients: should imatinib mesylate (STI-571, Gleevec) or allogeneic hematopoietic cell transplant be front-line therapy?. Pediatr Blood Cancer 43 (2004) 523-533
    • (2004) Pediatr Blood Cancer , vol.43 , pp. 523-533
    • Pulsipher, M.A.1
  • 16
    • 0029827152 scopus 로고    scopus 로고
    • Ethical problems in bone marrow transplantation in children
    • Massimo L. Ethical problems in bone marrow transplantation in children. Bone Marrow Transplant 18 Suppl 2 (1996) 8-12
    • (1996) Bone Marrow Transplant , vol.18 , Issue.SUPPL. 2 , pp. 8-12
    • Massimo, L.1
  • 18
    • 24644453084 scopus 로고    scopus 로고
    • Pediatric advance care planning
    • Hammes B.J., Klevan J., Kempf M., et al. Pediatric advance care planning. J Palliat Med 8 (2005) 766-773
    • (2005) J Palliat Med , vol.8 , pp. 766-773
    • Hammes, B.J.1    Klevan, J.2    Kempf, M.3
  • 19
    • 18744427850 scopus 로고    scopus 로고
    • Decision aids for people facing health treatment or screening decisions
    • Art. No.: CD001431. DOI:10.1002/14651858.CD001431
    • O'Connor A.M., Stacey D., Entwistle V., et al. Decision aids for people facing health treatment or screening decisions. Cochrane Database Syst Rev Issue 1 (2003) Art. No.: CD001431. DOI:10.1002/14651858.CD001431
    • (2003) Cochrane Database Syst Rev , Issue.Issue 1
    • O'Connor, A.M.1    Stacey, D.2    Entwistle, V.3
  • 20
    • 0038283178 scopus 로고    scopus 로고
    • To show our humanness: relational and communicative competence in pediatric palliative care
    • Browning D. To show our humanness: relational and communicative competence in pediatric palliative care. Bioethics Forum 18 (2002) 23-28
    • (2002) Bioethics Forum , vol.18 , pp. 23-28
    • Browning, D.1
  • 21
    • 20644449052 scopus 로고    scopus 로고
    • Silence is not golden: communicating with children dying from cancer
    • Beale E.A., Baile W.F., and Aaron J. Silence is not golden: communicating with children dying from cancer. J Clin Oncol 23 (2005) 3629-3631
    • (2005) J Clin Oncol , vol.23 , pp. 3629-3631
    • Beale, E.A.1    Baile, W.F.2    Aaron, J.3
  • 22
    • 33847011500 scopus 로고    scopus 로고
    • The American Heritage Dictionary of the English Language. 4th ed. Available at: http://dictionary.reference.com/search?q=empathy. Accessed September 7, 2006.
  • 23
    • 33847050626 scopus 로고    scopus 로고
    • The American Heritage Dictionary of the English Language. 4th ed. Available at http://dictionary.reference.com/search?q=compassion. Accessed September 7, 2006.
  • 24
    • 0038635107 scopus 로고    scopus 로고
    • Institute of Medicine of the National Academies, National Academies Press, Washington, DC
    • Institute of Medicine of the National Academies. Priority Areas for National Action: Transforming Health Care Quality (2001), National Academies Press, Washington, DC
    • (2001) Priority Areas for National Action: Transforming Health Care Quality
  • 25
    • 33847081848 scopus 로고    scopus 로고
    • National Consensus Project for Quality Palliative Care (2004). Clinical practice guidelines for quality palliative care. Available at: http://www.nationalconsensusproject.org. Accessed September 12, 2006.
  • 26
    • 0036142406 scopus 로고    scopus 로고
    • Family perspectives on the quality of pediatric palliative care
    • Contro N., Larson J., Scofield S., et al. Family perspectives on the quality of pediatric palliative care. Arch Pediatr Adolesc Med 156 (2002) 14-19
    • (2002) Arch Pediatr Adolesc Med , vol.156 , pp. 14-19
    • Contro, N.1    Larson, J.2    Scofield, S.3
  • 27
    • 3943070378 scopus 로고    scopus 로고
    • The effects of physician empathy on patient satisfaction and compliance
    • 237-235
    • Kim S.S., Kaplowitz S., and Johnston M.V. The effects of physician empathy on patient satisfaction and compliance. Eval Health Prof 27 (2004) 237-235
    • (2004) Eval Health Prof , vol.27
    • Kim, S.S.1    Kaplowitz, S.2    Johnston, M.V.3
  • 28
    • 0031252546 scopus 로고    scopus 로고
    • Decision making by parents and healthcare professionals when considering continued care for pediatric patients with cancer
    • Hinds P.S., Oakes L., Furman W., et al. Decision making by parents and healthcare professionals when considering continued care for pediatric patients with cancer. Oncol Nurs Forum 24 (1997) 1523-1528
    • (1997) Oncol Nurs Forum , vol.24 , pp. 1523-1528
    • Hinds, P.S.1    Oakes, L.2    Furman, W.3
  • 29
    • 0001506373 scopus 로고
    • On the reluctance to communicate undesirable messages (the MUM effect). A field study
    • Tesser A., Rosen S., and Tesser M. On the reluctance to communicate undesirable messages (the MUM effect). A field study. Psychol Rep 29 (1971) 651-654
    • (1971) Psychol Rep , vol.29 , pp. 651-654
    • Tesser, A.1    Rosen, S.2    Tesser, M.3
  • 30
    • 0008386364 scopus 로고
    • Recipient emotionality as a determinant of the transmission of bad news
    • Tesser A., and Conlee M.C. Recipient emotionality as a determinant of the transmission of bad news. Proc Am Psychiatric Assoc (1973) 247-248
    • (1973) Proc Am Psychiatric Assoc , pp. 247-248
    • Tesser, A.1    Conlee, M.C.2
  • 31
    • 0035155498 scopus 로고    scopus 로고
    • Attitudes and practices among pediatric oncologists regarding end-of-life care: results of the 1998 American Society of Clinical Oncology survey
    • Hilden J.M., Emanuel E.J., Fairclough D.L., et al. Attitudes and practices among pediatric oncologists regarding end-of-life care: results of the 1998 American Society of Clinical Oncology survey. J Clin Oncol 19 (2001) 205-212
    • (2001) J Clin Oncol , vol.19 , pp. 205-212
    • Hilden, J.M.1    Emanuel, E.J.2    Fairclough, D.L.3
  • 32
    • 0033857066 scopus 로고    scopus 로고
    • SPIKES: A six-step protocol for delivering bad news. Application to the patient with cancer
    • Baile W.F., Buckman R., Lenzi R., et al. SPIKES: A six-step protocol for delivering bad news. Application to the patient with cancer. Oncologist 5 (2000) 302-311
    • (2000) Oncologist , vol.5 , pp. 302-311
    • Baile, W.F.1    Buckman, R.2    Lenzi, R.3
  • 33
    • 0030937215 scopus 로고    scopus 로고
    • SIOP working committee on psychosocial issues in pediatric oncology: guidelines for communication of the diagnosis
    • Masera G., Chesler M.A., Jankovic M., et al. SIOP working committee on psychosocial issues in pediatric oncology: guidelines for communication of the diagnosis. Med Pediatr Oncol 28 (1997) 382-385
    • (1997) Med Pediatr Oncol , vol.28 , pp. 382-385
    • Masera, G.1    Chesler, M.A.2    Jankovic, M.3
  • 34
    • 0035667020 scopus 로고    scopus 로고
    • Improving advance care planning by accommodating family preferences
    • Hines S.C., Glover J.J., Babrow A.S., et al. Improving advance care planning by accommodating family preferences. J Palliat Med 4 (2001) 481-489
    • (2001) J Palliat Med , vol.4 , pp. 481-489
    • Hines, S.C.1    Glover, J.J.2    Babrow, A.S.3
  • 35
    • 33645022811 scopus 로고    scopus 로고
    • Improving the quality of end-of-life care in the pediatric intensive care unit: parents' priorities and recommendations
    • Meyer E.C., Ritholz M.D., Burns J.P., et al. Improving the quality of end-of-life care in the pediatric intensive care unit: parents' priorities and recommendations. Pediatrics 117 (2006) 649-657
    • (2006) Pediatrics , vol.117 , pp. 649-657
    • Meyer, E.C.1    Ritholz, M.D.2    Burns, J.P.3
  • 36
    • 33745315232 scopus 로고    scopus 로고
    • Companionship, control, and compassion: a social work perspective on the needs of children with cancer and their families at the end of life
    • Jones B.L. Companionship, control, and compassion: a social work perspective on the needs of children with cancer and their families at the end of life. J Palliat Med 9 (2006) 774-788
    • (2006) J Palliat Med , vol.9 , pp. 774-788
    • Jones, B.L.1
  • 37
    • 32044459218 scopus 로고    scopus 로고
    • End-of-life care preferences of pediatric patients with cancer
    • Hinds P.S., Drew D., Oakes L.L., et al. End-of-life care preferences of pediatric patients with cancer. J Clin Oncol 23 (2005) 9146-9154
    • (2005) J Clin Oncol , vol.23 , pp. 9146-9154
    • Hinds, P.S.1    Drew, D.2    Oakes, L.L.3
  • 38
    • 33847024478 scopus 로고    scopus 로고
    • The National Quality Forum Review Committee. National Framework and Preferred Practices for Palliative and Hospice Care, prerelease. Available at: http://www.qualityforum.org/publications/. Accessed September 15, 2006.
  • 39
    • 0032111759 scopus 로고    scopus 로고
    • Studying clinical decision making by patients, parents, and healthcare providers in pediatric oncology
    • Hinds P.S., and Kelly K.P. Studying clinical decision making by patients, parents, and healthcare providers in pediatric oncology. J Pediatr Oncol Nurs 15 (1998) 1-2
    • (1998) J Pediatr Oncol Nurs , vol.15 , pp. 1-2
    • Hinds, P.S.1    Kelly, K.P.2
  • 40
    • 0035060393 scopus 로고    scopus 로고
    • End-of-life decision making by adolescents, parents, and health care providers in pediatric oncology: research to evidence-based practice guidelines
    • Hinds P.S., Oakes L., Furman W.L., et al. End-of-life decision making by adolescents, parents, and health care providers in pediatric oncology: research to evidence-based practice guidelines. Cancer Nurs. 24 (2001) 122-134
    • (2001) Cancer Nurs. , vol.24 , pp. 122-134
    • Hinds, P.S.1    Oakes, L.2    Furman, W.L.3
  • 41
    • 0034669251 scopus 로고    scopus 로고
    • Understanding of prognosis among parents of children who died of cancer: impact on treatment goals and integration of palliative care
    • Wolfe J., Klar N., Grier H.E., et al. Understanding of prognosis among parents of children who died of cancer: impact on treatment goals and integration of palliative care. JAMA 84 (2000) 2469-2475
    • (2000) JAMA , vol.84 , pp. 2469-2475
    • Wolfe, J.1    Klar, N.2    Grier, H.E.3
  • 42
  • 44
    • 0035347706 scopus 로고    scopus 로고
    • Alleviating the suffering of seriously ill children
    • Kane J.R., and Primomo M. Alleviating the suffering of seriously ill children. Am J Hospice Palliat Care 18 (2001) 1-9
    • (2001) Am J Hospice Palliat Care , vol.18 , pp. 1-9
    • Kane, J.R.1    Primomo, M.2
  • 45
    • 24644479695 scopus 로고    scopus 로고
    • Expressions of nonabandonment during the intensive care unit family conference
    • West H.F., Engelberg R.A., Wenrich M.D., et al. Expressions of nonabandonment during the intensive care unit family conference. J Palliat Med 8 (2005) 797-807
    • (2005) J Palliat Med , vol.8 , pp. 797-807
    • West, H.F.1    Engelberg, R.A.2    Wenrich, M.D.3
  • 46
    • 2942561745 scopus 로고    scopus 로고
    • Family satisfaction with family conferences about end-of-life care in the intensive care unit: increased proportion of family speech is associated with increased satisfaction
    • McDonagh J.R., Elliott T.B., Engelberg R.A., et al. Family satisfaction with family conferences about end-of-life care in the intensive care unit: increased proportion of family speech is associated with increased satisfaction. Crit Care Med 32 (2004) 1484-1488
    • (2004) Crit Care Med , vol.32 , pp. 1484-1488
    • McDonagh, J.R.1    Elliott, T.B.2    Engelberg, R.A.3
  • 47
    • 33646006403 scopus 로고    scopus 로고
    • Health-related quality of life and enrollment in phase 1 trials in children with incurable cancer
    • Barrera M., D'Agostino N., Gammon J., et al. Health-related quality of life and enrollment in phase 1 trials in children with incurable cancer. Palliat Support Care 3 (2005) 191-196
    • (2005) Palliat Support Care , vol.3 , pp. 191-196
    • Barrera, M.1    D'Agostino, N.2    Gammon, J.3
  • 48
    • 0033581362 scopus 로고    scopus 로고
    • Framework for teaching and learning informed shared decision making
    • Towle A., and Godolphin W. Framework for teaching and learning informed shared decision making. BMJ 319 (1999) 766-771
    • (1999) BMJ , vol.319 , pp. 766-771
    • Towle, A.1    Godolphin, W.2
  • 49
    • 4043137876 scopus 로고    scopus 로고
    • The need for relationship-based research in pediatric end of life care
    • Kane J.R., Hellsten M.B., and Coldsmith A. The need for relationship-based research in pediatric end of life care. J Pediatr Oncol Nurs 21 (2004) 180-185
    • (2004) J Pediatr Oncol Nurs , vol.21 , pp. 180-185
    • Kane, J.R.1    Hellsten, M.B.2    Coldsmith, A.3
  • 50
    • 33745317984 scopus 로고    scopus 로고
    • The Seattle Pediatric Palliative Care Project: effects on family satisfaction and health-related quality of life
    • Hays R.M., Valentine J., Haynes G., et al. The Seattle Pediatric Palliative Care Project: effects on family satisfaction and health-related quality of life. J Palliat Med 9 (2006) 716-728
    • (2006) J Palliat Med , vol.9 , pp. 716-728
    • Hays, R.M.1    Valentine, J.2    Haynes, G.3
  • 51
    • 33644834786 scopus 로고    scopus 로고
    • Decision making in pediatric oncology: who should take the lead?. The decisional priority in pediatric oncology model
    • Whitney S.N., Ethier A.M., Fruge E., et al. Decision making in pediatric oncology: who should take the lead?. The decisional priority in pediatric oncology model. J Clin Oncol 24 (2006) 160-165
    • (2006) J Clin Oncol , vol.24 , pp. 160-165
    • Whitney, S.N.1    Ethier, A.M.2    Fruge, E.3
  • 52
    • 24944442592 scopus 로고    scopus 로고
    • Steering Committee of the European Association for Palliative Care. Prognostic factors in advanced cancer patients: evidence-based clinical recommendationsA study by the Steering Committee of the European Association for Palliative Care
    • Maltoni M., Caraceni A., Brunelli C., et al. Steering Committee of the European Association for Palliative Care. Prognostic factors in advanced cancer patients: evidence-based clinical recommendationsA study by the Steering Committee of the European Association for Palliative Care. J Clin Oncol 23 (2005) 6240-6248
    • (2005) J Clin Oncol , vol.23 , pp. 6240-6248
    • Maltoni, M.1    Caraceni, A.2    Brunelli, C.3
  • 53
    • 2342586097 scopus 로고    scopus 로고
    • Medical home initiatives for children with special health care needs advisory committee. The medical home
    • American Academy of Pediatrics
    • American Academy of Pediatrics. Medical home initiatives for children with special health care needs advisory committee. The medical home. Pediatrics 113 (2004) 1545-1547
    • (2004) Pediatrics , vol.113 , pp. 1545-1547
  • 55
    • 28544450726 scopus 로고    scopus 로고
    • Pediatric Oncology Group (POG) studies of acute myeloid leukemia (AML): a review of four consecutive childhood AML trials conducted between 1981 and 2000
    • Ravindranath Y., Chang M., Steuber C.P., et al. Pediatric Oncology Group (POG) studies of acute myeloid leukemia (AML): a review of four consecutive childhood AML trials conducted between 1981 and 2000. Leukemia 19 (2005) 2101-2116
    • (2005) Leukemia , vol.19 , pp. 2101-2116
    • Ravindranath, Y.1    Chang, M.2    Steuber, C.P.3
  • 56
    • 33847048364 scopus 로고    scopus 로고
    • Lorenz K, Lynn K, Dy S, et al. Cancer care quality measures: symptoms and end-of-life care. Evidence report/technology assessment 137, prepared by the Southern California Evidence-Based Practice Center, 2006.


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