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Volumn 167, Issue 1, 2007, Pages 40-46

End-of-life care: Findings from a National Survey of Informal Caregivers

Author keywords

[No Author keywords available]

Indexed keywords

AGED; ARTICLE; CAREGIVER SUPPORT; COMMUNITY CARE; CONTROLLED STUDY; DISABLED PERSON; EMOTIONAL STRESS; FEMALE; HEALTH PERSONNEL ATTITUDE; HEALTH SURVEY; HUMAN; HUMAN EXPERIMENT; INTERVIEW; MALE; PHYSICAL STRESS; PRIORITY JOURNAL; SUPPORT GROUP; SURVIVAL RATE; TERMINAL CARE;

EID: 33846084176     PISSN: 00039926     EISSN: 15383679     Source Type: Journal    
DOI: 10.1001/archinte.167.1.40     Document Type: Article
Times cited : (118)

References (47)
  • 1
    • 0033660641 scopus 로고    scopus 로고
    • Potential and active family caregivers: Changing networks and the sandwich generation
    • Spillman BC, Pezzin LE. Potential and active family caregivers: changing networks and the "sandwich generation." Milbank Q. 2000;78:347-374.
    • (2000) Milbank Q , vol.78 , pp. 347-374
    • Spillman, B.C.1    Pezzin, L.E.2
  • 2
    • 0033598322 scopus 로고    scopus 로고
    • Assistance from family members, friends, paid care givers, and volunteers in the care of terminally ill patients
    • Emanuel EJ, Fairclough DL, Slutsman J, Alpert H, Baldwin D, Emanuel LL. Assistance from family members, friends, paid care givers, and volunteers in the care of terminally ill patients. N Engl J Med. 1999;341:956-963.
    • (1999) N Engl J Med , vol.341 , pp. 956-963
    • Emanuel, E.J.1    Fairclough, D.L.2    Slutsman, J.3    Alpert, H.4    Baldwin, D.5    Emanuel, L.L.6
  • 3
    • 1642458586 scopus 로고    scopus 로고
    • Supporting family caregivers at the end of life: They don't know what they don't know
    • Rabow MW, Hauser JM, Adams J. Supporting family caregivers at the end of life: "they don't know what they don't know." JAMA. 2004;291:483-491.
    • (2004) JAMA , vol.291 , pp. 483-491
    • Rabow, M.W.1    Hauser, J.M.2    Adams, J.3
  • 4
    • 0034696509 scopus 로고    scopus 로고
    • Understanding economic and other burdens of terminal illness: The experience of patients and their caregivers
    • Emanuel EJ, Fairclough DL, Slutsman J, Emanuel LL. Understanding economic and other burdens of terminal illness: the experience of patients and their caregivers. Ann Intern Med. 2000;132:451-459.
    • (2000) Ann Intern Med , vol.132 , pp. 451-459
    • Emanuel, E.J.1    Fairclough, D.L.2    Slutsman, J.3    Emanuel, L.L.4
  • 5
    • 0242490526 scopus 로고    scopus 로고
    • End-of-life care and the effects of bereavement on family caregivers of persons with dementia
    • Schulz R, Mendelsohn AB, Haley WE, et al. End-of-life care and the effects of bereavement on family caregivers of persons with dementia. N Engl J Med. 2003;349:1936-1942.
    • (2003) N Engl J Med , vol.349 , pp. 1936-1942
    • Schulz, R.1    Mendelsohn, A.B.2    Haley, W.E.3
  • 6
    • 32644457434 scopus 로고    scopus 로고
    • Mortality after the hospitalization of a spouse
    • Christakis NA, Allison PD. Mortality after the hospitalization of a spouse. N Engl J Med. 2006;354:719-730.
    • (2006) N Engl J Med , vol.354 , pp. 719-730
    • Christakis, N.A.1    Allison, P.D.2
  • 7
    • 0033572972 scopus 로고    scopus 로고
    • Caregiving as a risk factor for mortality: The Caregiver Health Effects Study
    • Schulz R, Beach SR. Caregiving as a risk factor for mortality: the Caregiver Health Effects Study. JAMA. 1999;282:2215-2219.
    • (1999) JAMA , vol.282 , pp. 2215-2219
    • Schulz, R.1    Beach, S.R.2
  • 8
    • 1842784026 scopus 로고    scopus 로고
    • Out-of-hospital death: Advance care planning, decedent symptoms, and caregiver burden
    • Tilden VP, Tolle SW, Drach LL, Perrin NA. Out-of-hospital death: advance care planning, decedent symptoms, and caregiver burden. J Am Geriatr Soc. 2004;52:532-539.
    • (2004) J Am Geriatr Soc , vol.52 , pp. 532-539
    • Tilden, V.P.1    Tolle, S.W.2    Drach, L.L.3    Perrin, N.A.4
  • 9
    • 0030176336 scopus 로고    scopus 로고
    • Effect of home care on the place of death of advanced cancer patients
    • De Conno F, Caraceni A, Groff L, et al. Effect of home care on the place of death of advanced cancer patients. Eur J Cancer. 1996;32A:1142-1147.
    • (1996) Eur J Cancer , vol.32 A , pp. 1142-1147
    • De Conno, F.1    Caraceni, A.2    Groff, L.3
  • 10
    • 33644917988 scopus 로고    scopus 로고
    • Factors influencing death at home in terminally ill patients with cancer: Systematic review
    • Gomes B, Higginson IJ. Factors influencing death at home in terminally ill patients with cancer: systematic review. BMJ. 2006;332:515-521.
    • (2006) BMJ , vol.332 , pp. 515-521
    • Gomes, B.1    Higginson, I.J.2
  • 11
    • 0032924097 scopus 로고    scopus 로고
    • Who dies at home? determinants of site of death for community-based long-term care patients
    • Fried TR, Pollack DM, Drickamer MA, Tinetti ME. Who dies at home? determinants of site of death for community-based long-term care patients. J Am Geriatr Soc. 1999;47:25-29.
    • (1999) J Am Geriatr Soc , vol.47 , pp. 25-29
    • Fried, T.R.1    Pollack, D.M.2    Drickamer, M.A.3    Tinetti, M.E.4
  • 12
    • 0033550496 scopus 로고    scopus 로고
    • Quality end-of-life care: Patients' perspectives
    • Singer PA, Martin DK, Kelner M. Quality end-of-life care: patients' perspectives. JAMA. 1999;281:163-168.
    • (1999) JAMA , vol.281 , pp. 163-168
    • Singer, P.A.1    Martin, D.K.2    Kelner, M.3
  • 13
    • 0034669456 scopus 로고    scopus 로고
    • Factors considered important at the end of life by patients, family, physicians, and other care providers
    • Steinhauser KE, Christakis NA, Clipp EC, McNeilly M, McIntyre L, Tulsky JA. Factors considered important at the end of life by patients, family, physicians, and other care providers. JAMA. 2000;284:2476-2482.
    • (2000) JAMA , vol.284 , pp. 2476-2482
    • Steinhauser, K.E.1    Christakis, N.A.2    Clipp, E.C.3    McNeilly, M.4    McIntyre, L.5    Tulsky, J.A.6
  • 14
    • 0348047527 scopus 로고    scopus 로고
    • Family perspectives on end-of-life care at the last place of care
    • Teno JM, Clarridge BR, Casey V, et al. Family perspectives on end-of-life care at the last place of care. JAMA. 2004;291:88-93.
    • (2004) JAMA , vol.291 , pp. 88-93
    • Teno, J.M.1    Clarridge, B.R.2    Casey, V.3
  • 15
    • 10344260879 scopus 로고    scopus 로고
    • Resurrecting treatment histories of dead patients: A study design that should be laid to rest
    • Bach PB, Schrag D, Begg CB. Resurrecting treatment histories of dead patients: a study design that should be laid to rest. JAMA. 2004;292:2765-2770.
    • (2004) JAMA , vol.292 , pp. 2765-2770
    • Bach, P.B.1    Schrag, D.2    Begg, C.B.3
  • 16
    • 0037395394 scopus 로고    scopus 로고
    • The last 2 years of life: Functional trajectories of frail older people
    • Covinsky KE, Eng C, Lui LY, Sands LP, Yaffe K. The last 2 years of life: functional trajectories of frail older people. J Am Geriatr Soc. 2003;51:492-498.
    • (2003) J Am Geriatr Soc , vol.51 , pp. 492-498
    • Covinsky, K.E.1    Eng, C.2    Lui, L.Y.3    Sands, L.P.4    Yaffe, K.5
  • 18
    • 0030271875 scopus 로고    scopus 로고
    • How reliable are relatives' retrospective reports of terminal illness? patients and relatives' accounts compared
    • Hinton J. How reliable are relatives' retrospective reports of terminal illness? patients and relatives' accounts compared. Soc Sci Med. 1996;43:1229-1236.
    • (1996) Soc Sci Med , vol.43 , pp. 1229-1236
    • Hinton, J.1
  • 19
    • 0037210223 scopus 로고    scopus 로고
    • Judging the quality of care at the end of life: Can proxies provide reliable information?
    • McPherson CJ, Addington-Hall JM. Judging the quality of care at the end of life: can proxies provide reliable information? Soc Sci Med. 2003;56:95-109.
    • (2003) Soc Sci Med , vol.56 , pp. 95-109
    • McPherson, C.J.1    Addington-Hall, J.M.2
  • 21
    • 0030909364 scopus 로고    scopus 로고
    • Chronic disability trends in elderly United States populations: 1982-1994
    • Manton KG, Corder L, Stallard E. Chronic disability trends in elderly United States populations: 1982-1994. Proc Natl Acad Sci U S A. 1997;94:2593-2598.
    • (1997) Proc Natl Acad Sci U S A , vol.94 , pp. 2593-2598
    • Manton, K.G.1    Corder, L.2    Stallard, E.3
  • 22
    • 0035933153 scopus 로고    scopus 로고
    • Changes in the prevalence of chronic disability in the United States black and nonblack population above age 65 from 1982 to 1999
    • Manton KG, Gu X. Changes in the prevalence of chronic disability in the United States black and nonblack population above age 65 from 1982 to 1999. Proc Natl Acad Sci U S A. 2001;98:6354-6359.
    • (2001) Proc Natl Acad Sci U S A , vol.98 , pp. 6354-6359
    • Manton, K.G.1    Gu, X.2
  • 23
    • 5744235001 scopus 로고    scopus 로고
    • Resolving inconsistencies in trends in old-age disability: Report from a technical working group
    • Freedman VA, Crimmins E, Schoeni RF, et al. Resolving inconsistencies in trends in old-age disability: report from a technical working group. Demography. 2004;41:417-441.
    • (2004) Demography , vol.41 , pp. 417-441
    • Freedman, V.A.1    Crimmins, E.2    Schoeni, R.F.3
  • 24
    • 33744492311 scopus 로고    scopus 로고
    • Caregivers of frail elders: Updating a national profile
    • Wolff JL, Kasper JD. Caregivers of frail elders: updating a national profile. Gerontologist. 2006;46:344-356.
    • (2006) Gerontologist , vol.46 , pp. 344-356
    • Wolff, J.L.1    Kasper, J.D.2
  • 25
    • 1642283870 scopus 로고    scopus 로고
    • Challenged to care: Informal caregivers in a changing health system
    • Donelan K, Hill CA, Hoffman C, et al. Challenged to care: informal caregivers in a changing health system. Health Aff (Millwood). 2002;21:222-231.
    • (2002) Health Aff (Millwood) , vol.21 , pp. 222-231
    • Donelan, K.1    Hill, C.A.2    Hoffman, C.3
  • 26
    • 0035403793 scopus 로고    scopus 로고
    • Medicare beneficiaries' costs of care in the last year of life
    • Hogan C, Lunney J, Gabel J, Lynn J. Medicare beneficiaries' costs of care in the last year of life. Health Aff (Millwood). 2001;20:188-195.
    • (2001) Health Aff (Millwood) , vol.20 , pp. 188-195
    • Hogan, C.1    Lunney, J.2    Gabel, J.3    Lynn, J.4
  • 27
    • 0036933838 scopus 로고    scopus 로고
    • Medical expenditures during the last year of life: Findings from the 1992-1996 Medicare current beneficiary survey
    • Hoover DR, Crystal S, Kumar R, Sambamoorthi U, Cantor JC. Medical expenditures during the last year of life: findings from the 1992-1996 Medicare current beneficiary survey. Health Serv Res. 2002;37:1625-1642.
    • (2002) Health Serv Res , vol.37 , pp. 1625-1642
    • Hoover, D.R.1    Crystal, S.2    Kumar, R.3    Sambamoorthi, U.4    Cantor, J.C.5
  • 28
    • 0035913575 scopus 로고    scopus 로고
    • Influence of age on Medicare expenditures and medical care in the last year of life
    • Levinsky NG, Yu W, Ash A, et al. Influence of age on Medicare expenditures and medical care in the last year of life. JAMA. 2001;286:1349-1355.
    • (2001) JAMA , vol.286 , pp. 1349-1355
    • Levinsky, N.G.1    Yu, W.2    Ash, A.3
  • 30
    • 0035397976 scopus 로고    scopus 로고
    • Estimating the cost of informal caregiving for elderly patients with cancer
    • Hayman JA, Langa KM, Kabeto MU, et al. Estimating the cost of informal caregiving for elderly patients with cancer. J Clin Oncol. 2001;19:3219-3225.
    • (2001) J Clin Oncol , vol.19 , pp. 3219-3225
    • Hayman, J.A.1    Langa, K.M.2    Kabeto, M.U.3
  • 31
    • 0035724698 scopus 로고    scopus 로고
    • National estimates of the quantity and cost of informal caregiving for the elderly with dementia
    • Langa KM, Chernew ME, Kabeto MU, et al. National estimates of the quantity and cost of informal caregiving for the elderly with dementia. J Gen Intern Med. 2001;16:770-778.
    • (2001) J Gen Intern Med , vol.16 , pp. 770-778
    • Langa, K.M.1    Chernew, M.E.2    Kabeto, M.U.3
  • 32
    • 0031229424 scopus 로고    scopus 로고
    • Family caregiving: Who provides the care, and at what cost?
    • Robinson KM. Family caregiving: who provides the care, and at what cost? Nurs Econ. 1997;15:243-247.
    • (1997) Nurs Econ , vol.15 , pp. 243-247
    • Robinson, K.M.1
  • 34
    • 33846067382 scopus 로고    scopus 로고
    • American Association of Retired Persons
    • National Alliance for Caregiving;, Accessed January 5
    • National Alliance for Caregiving; American Association of Retired Persons. Caregiving in the U.S. http://www.caregiving.org/data/ 04finalreport.pdf. Accessed January 5, 2005.
    • (2005) Caregiving in the U.S
  • 35
    • 0036772119 scopus 로고    scopus 로고
    • George LK. Research design in end-of-life research: state of science. Gerontologist. 2002;42(spec No. 3):86-98.
    • George LK. Research design in end-of-life research: state of science. Gerontologist. 2002;42(spec No. 3):86-98.
  • 37
    • 0033839748 scopus 로고    scopus 로고
    • Half the families of intensive care unit patients experience inadequate communication with physicians
    • Azoulay E, Chevret S, Leleu G, et al. Half the families of intensive care unit patients experience inadequate communication with physicians. Crit Care Med. 2000;28:3044-3049.
    • (2000) Crit Care Med , vol.28 , pp. 3044-3049
    • Azoulay, E.1    Chevret, S.2    Leleu, G.3
  • 38
    • 0035723108 scopus 로고    scopus 로고
    • Conflict associated with decisions to limit life-sustaining treatment in intensive care units
    • Breen CM, Abernethy AP, Abbott KH, Tulsky JA. Conflict associated with decisions to limit life-sustaining treatment in intensive care units. J Gen Intern Med. 2001;16:283-289.
    • (2001) J Gen Intern Med , vol.16 , pp. 283-289
    • Breen, C.M.1    Abernethy, A.P.2    Abbott, K.H.3    Tulsky, J.A.4
  • 39
    • 17644389854 scopus 로고    scopus 로고
    • Curtis JR, Engelberg RA, Wenrich MD, Shannon SE, Treece PD, Rubenfeld GD. Missed opportunities during family conferences about end-of-life care in the intensive care unit. Am J Respir Crit Care Med. 2005;171:844-849.
    • Curtis JR, Engelberg RA, Wenrich MD, Shannon SE, Treece PD, Rubenfeld GD. Missed opportunities during family conferences about end-of-life care in the intensive care unit. Am J Respir Crit Care Med. 2005;171:844-849.
  • 40
    • 0036317601 scopus 로고    scopus 로고
    • Family satisfaction with care in the intensive care unit: Results of a multiple center study
    • Heyland DK, Rocker GM, Dodek PM, et al. Family satisfaction with care in the intensive care unit: results of a multiple center study. Crit Care Med. 2002;30:1413-1418.
    • (2002) Crit Care Med , vol.30 , pp. 1413-1418
    • Heyland, D.K.1    Rocker, G.M.2    Dodek, P.M.3
  • 42
    • 0025939964 scopus 로고
    • Health care decision making by the elderly: I get by with a little help from my family
    • Kapp MB. Health care decision making by the elderly: I get by with a little help from my family. Gerontologist. 1991;31:619-623.
    • (1991) Gerontologist , vol.31 , pp. 619-623
    • Kapp, M.B.1
  • 43
    • 0033582204 scopus 로고    scopus 로고
    • The trouble with families: Toward an ethic of accommodation
    • Levine C, Zuckerman C. The trouble with families: toward an ethic of accommodation. Ann Intern Med. 1999;130:148-152.
    • (1999) Ann Intern Med , vol.130 , pp. 148-152
    • Levine, C.1    Zuckerman, C.2
  • 44
    • 12044254231 scopus 로고
    • American Medical Association. Physicians and family caregivers: A model for partnership
    • Council on Scientific Affairs;
    • Council on Scientific Affairs; American Medical Association. Physicians and family caregivers: a model for partnership. JAMA. 1993;269:1282-1284.
    • (1993) JAMA , vol.269 , pp. 1282-1284
  • 45
    • 0028944147 scopus 로고
    • Decisions about life-sustaining treatment: Impact of physicians' behaviors on the family
    • Tilden VP, Tolle SW, Garland MJ, Nelson CA. Decisions about life-sustaining treatment: impact of physicians' behaviors on the family. Arch Intern Med. 1995;155:633-638.
    • (1995) Arch Intern Med , vol.155 , pp. 633-638
    • Tilden, V.P.1    Tolle, S.W.2    Garland, M.J.3    Nelson, C.A.4
  • 46
    • 0037603457 scopus 로고    scopus 로고
    • The health impact of health care on families: A matched cohort study of hospice use by decedents and mortality outcomes in surviving, widowed spouses
    • Christakis NA, Iwashyna TJ. The health impact of health care on families: a matched cohort study of hospice use by decedents and mortality outcomes in surviving, widowed spouses. Soc Sci Med. 2003;57:465-475.
    • (2003) Soc Sci Med , vol.57 , pp. 465-475
    • Christakis, N.A.1    Iwashyna, T.J.2
  • 47
    • 6344233888 scopus 로고    scopus 로고
    • Talking with terminally ill patients and their caregivers about death, dying, and bereavement: Is it stressful? is it helpful?
    • Emanuel EJ, Fairclough DL, Wolfe P, Emanuel LL. Talking with terminally ill patients and their caregivers about death, dying, and bereavement: is it stressful? is it helpful? Arch Intern Med. 2004;164:1999-2004.
    • (2004) Arch Intern Med , vol.164 , pp. 1999-2004
    • Emanuel, E.J.1    Fairclough, D.L.2    Wolfe, P.3    Emanuel, L.L.4


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