-
1
-
-
0033660641
-
Potential and active family caregivers: Changing networks and the sandwich generation
-
Spillman BC, Pezzin LE. Potential and active family caregivers: changing networks and the "sandwich generation." Milbank Q. 2000;78:347-374.
-
(2000)
Milbank Q
, vol.78
, pp. 347-374
-
-
Spillman, B.C.1
Pezzin, L.E.2
-
2
-
-
0033598322
-
Assistance from family members, friends, paid care givers, and volunteers in the care of terminally ill patients
-
Emanuel EJ, Fairclough DL, Slutsman J, Alpert H, Baldwin D, Emanuel LL. Assistance from family members, friends, paid care givers, and volunteers in the care of terminally ill patients. N Engl J Med. 1999;341:956-963.
-
(1999)
N Engl J Med
, vol.341
, pp. 956-963
-
-
Emanuel, E.J.1
Fairclough, D.L.2
Slutsman, J.3
Alpert, H.4
Baldwin, D.5
Emanuel, L.L.6
-
3
-
-
1642458586
-
Supporting family caregivers at the end of life: They don't know what they don't know
-
Rabow MW, Hauser JM, Adams J. Supporting family caregivers at the end of life: "they don't know what they don't know." JAMA. 2004;291:483-491.
-
(2004)
JAMA
, vol.291
, pp. 483-491
-
-
Rabow, M.W.1
Hauser, J.M.2
Adams, J.3
-
4
-
-
0034696509
-
Understanding economic and other burdens of terminal illness: The experience of patients and their caregivers
-
Emanuel EJ, Fairclough DL, Slutsman J, Emanuel LL. Understanding economic and other burdens of terminal illness: the experience of patients and their caregivers. Ann Intern Med. 2000;132:451-459.
-
(2000)
Ann Intern Med
, vol.132
, pp. 451-459
-
-
Emanuel, E.J.1
Fairclough, D.L.2
Slutsman, J.3
Emanuel, L.L.4
-
5
-
-
0242490526
-
End-of-life care and the effects of bereavement on family caregivers of persons with dementia
-
Schulz R, Mendelsohn AB, Haley WE, et al. End-of-life care and the effects of bereavement on family caregivers of persons with dementia. N Engl J Med. 2003;349:1936-1942.
-
(2003)
N Engl J Med
, vol.349
, pp. 1936-1942
-
-
Schulz, R.1
Mendelsohn, A.B.2
Haley, W.E.3
-
6
-
-
32644457434
-
Mortality after the hospitalization of a spouse
-
Christakis NA, Allison PD. Mortality after the hospitalization of a spouse. N Engl J Med. 2006;354:719-730.
-
(2006)
N Engl J Med
, vol.354
, pp. 719-730
-
-
Christakis, N.A.1
Allison, P.D.2
-
7
-
-
0033572972
-
Caregiving as a risk factor for mortality: The Caregiver Health Effects Study
-
Schulz R, Beach SR. Caregiving as a risk factor for mortality: the Caregiver Health Effects Study. JAMA. 1999;282:2215-2219.
-
(1999)
JAMA
, vol.282
, pp. 2215-2219
-
-
Schulz, R.1
Beach, S.R.2
-
8
-
-
1842784026
-
Out-of-hospital death: Advance care planning, decedent symptoms, and caregiver burden
-
Tilden VP, Tolle SW, Drach LL, Perrin NA. Out-of-hospital death: advance care planning, decedent symptoms, and caregiver burden. J Am Geriatr Soc. 2004;52:532-539.
-
(2004)
J Am Geriatr Soc
, vol.52
, pp. 532-539
-
-
Tilden, V.P.1
Tolle, S.W.2
Drach, L.L.3
Perrin, N.A.4
-
9
-
-
0030176336
-
Effect of home care on the place of death of advanced cancer patients
-
De Conno F, Caraceni A, Groff L, et al. Effect of home care on the place of death of advanced cancer patients. Eur J Cancer. 1996;32A:1142-1147.
-
(1996)
Eur J Cancer
, vol.32 A
, pp. 1142-1147
-
-
De Conno, F.1
Caraceni, A.2
Groff, L.3
-
10
-
-
33644917988
-
Factors influencing death at home in terminally ill patients with cancer: Systematic review
-
Gomes B, Higginson IJ. Factors influencing death at home in terminally ill patients with cancer: systematic review. BMJ. 2006;332:515-521.
-
(2006)
BMJ
, vol.332
, pp. 515-521
-
-
Gomes, B.1
Higginson, I.J.2
-
11
-
-
0032924097
-
Who dies at home? determinants of site of death for community-based long-term care patients
-
Fried TR, Pollack DM, Drickamer MA, Tinetti ME. Who dies at home? determinants of site of death for community-based long-term care patients. J Am Geriatr Soc. 1999;47:25-29.
-
(1999)
J Am Geriatr Soc
, vol.47
, pp. 25-29
-
-
Fried, T.R.1
Pollack, D.M.2
Drickamer, M.A.3
Tinetti, M.E.4
-
12
-
-
0033550496
-
Quality end-of-life care: Patients' perspectives
-
Singer PA, Martin DK, Kelner M. Quality end-of-life care: patients' perspectives. JAMA. 1999;281:163-168.
-
(1999)
JAMA
, vol.281
, pp. 163-168
-
-
Singer, P.A.1
Martin, D.K.2
Kelner, M.3
-
13
-
-
0034669456
-
Factors considered important at the end of life by patients, family, physicians, and other care providers
-
Steinhauser KE, Christakis NA, Clipp EC, McNeilly M, McIntyre L, Tulsky JA. Factors considered important at the end of life by patients, family, physicians, and other care providers. JAMA. 2000;284:2476-2482.
-
(2000)
JAMA
, vol.284
, pp. 2476-2482
-
-
Steinhauser, K.E.1
Christakis, N.A.2
Clipp, E.C.3
McNeilly, M.4
McIntyre, L.5
Tulsky, J.A.6
-
14
-
-
0348047527
-
Family perspectives on end-of-life care at the last place of care
-
Teno JM, Clarridge BR, Casey V, et al. Family perspectives on end-of-life care at the last place of care. JAMA. 2004;291:88-93.
-
(2004)
JAMA
, vol.291
, pp. 88-93
-
-
Teno, J.M.1
Clarridge, B.R.2
Casey, V.3
-
15
-
-
10344260879
-
Resurrecting treatment histories of dead patients: A study design that should be laid to rest
-
Bach PB, Schrag D, Begg CB. Resurrecting treatment histories of dead patients: a study design that should be laid to rest. JAMA. 2004;292:2765-2770.
-
(2004)
JAMA
, vol.292
, pp. 2765-2770
-
-
Bach, P.B.1
Schrag, D.2
Begg, C.B.3
-
16
-
-
0037395394
-
The last 2 years of life: Functional trajectories of frail older people
-
Covinsky KE, Eng C, Lui LY, Sands LP, Yaffe K. The last 2 years of life: functional trajectories of frail older people. J Am Geriatr Soc. 2003;51:492-498.
-
(2003)
J Am Geriatr Soc
, vol.51
, pp. 492-498
-
-
Covinsky, K.E.1
Eng, C.2
Lui, L.Y.3
Sands, L.P.4
Yaffe, K.5
-
17
-
-
0038316599
-
Patterns of functional decline at the end of life
-
Lunney JR, Lynn J, Foley DJ, Lipson S, Guralnik JM. Patterns of functional decline at the end of life. JAMA. 2003;289:2387-2392.
-
(2003)
JAMA
, vol.289
, pp. 2387-2392
-
-
Lunney, J.R.1
Lynn, J.2
Foley, D.J.3
Lipson, S.4
Guralnik, J.M.5
-
18
-
-
0030271875
-
How reliable are relatives' retrospective reports of terminal illness? patients and relatives' accounts compared
-
Hinton J. How reliable are relatives' retrospective reports of terminal illness? patients and relatives' accounts compared. Soc Sci Med. 1996;43:1229-1236.
-
(1996)
Soc Sci Med
, vol.43
, pp. 1229-1236
-
-
Hinton, J.1
-
19
-
-
0037210223
-
Judging the quality of care at the end of life: Can proxies provide reliable information?
-
McPherson CJ, Addington-Hall JM. Judging the quality of care at the end of life: can proxies provide reliable information? Soc Sci Med. 2003;56:95-109.
-
(2003)
Soc Sci Med
, vol.56
, pp. 95-109
-
-
McPherson, C.J.1
Addington-Hall, J.M.2
-
20
-
-
0034673992
-
In search of a good death: Observations of patients, families, and providers
-
Steinhauser KE, Clipp EC, McNeilly M, Christakis NA, McIntyre LM, Tulsky JA. In search of a good death: observations of patients, families, and providers. Ann Intern Med. 2000;132:825-832.
-
(2000)
Ann Intern Med
, vol.132
, pp. 825-832
-
-
Steinhauser, K.E.1
Clipp, E.C.2
McNeilly, M.3
Christakis, N.A.4
McIntyre, L.M.5
Tulsky, J.A.6
-
21
-
-
0030909364
-
Chronic disability trends in elderly United States populations: 1982-1994
-
Manton KG, Corder L, Stallard E. Chronic disability trends in elderly United States populations: 1982-1994. Proc Natl Acad Sci U S A. 1997;94:2593-2598.
-
(1997)
Proc Natl Acad Sci U S A
, vol.94
, pp. 2593-2598
-
-
Manton, K.G.1
Corder, L.2
Stallard, E.3
-
22
-
-
0035933153
-
Changes in the prevalence of chronic disability in the United States black and nonblack population above age 65 from 1982 to 1999
-
Manton KG, Gu X. Changes in the prevalence of chronic disability in the United States black and nonblack population above age 65 from 1982 to 1999. Proc Natl Acad Sci U S A. 2001;98:6354-6359.
-
(2001)
Proc Natl Acad Sci U S A
, vol.98
, pp. 6354-6359
-
-
Manton, K.G.1
Gu, X.2
-
23
-
-
5744235001
-
Resolving inconsistencies in trends in old-age disability: Report from a technical working group
-
Freedman VA, Crimmins E, Schoeni RF, et al. Resolving inconsistencies in trends in old-age disability: report from a technical working group. Demography. 2004;41:417-441.
-
(2004)
Demography
, vol.41
, pp. 417-441
-
-
Freedman, V.A.1
Crimmins, E.2
Schoeni, R.F.3
-
24
-
-
33744492311
-
Caregivers of frail elders: Updating a national profile
-
Wolff JL, Kasper JD. Caregivers of frail elders: updating a national profile. Gerontologist. 2006;46:344-356.
-
(2006)
Gerontologist
, vol.46
, pp. 344-356
-
-
Wolff, J.L.1
Kasper, J.D.2
-
25
-
-
1642283870
-
Challenged to care: Informal caregivers in a changing health system
-
Donelan K, Hill CA, Hoffman C, et al. Challenged to care: informal caregivers in a changing health system. Health Aff (Millwood). 2002;21:222-231.
-
(2002)
Health Aff (Millwood)
, vol.21
, pp. 222-231
-
-
Donelan, K.1
Hill, C.A.2
Hoffman, C.3
-
26
-
-
0035403793
-
Medicare beneficiaries' costs of care in the last year of life
-
Hogan C, Lunney J, Gabel J, Lynn J. Medicare beneficiaries' costs of care in the last year of life. Health Aff (Millwood). 2001;20:188-195.
-
(2001)
Health Aff (Millwood)
, vol.20
, pp. 188-195
-
-
Hogan, C.1
Lunney, J.2
Gabel, J.3
Lynn, J.4
-
27
-
-
0036933838
-
Medical expenditures during the last year of life: Findings from the 1992-1996 Medicare current beneficiary survey
-
Hoover DR, Crystal S, Kumar R, Sambamoorthi U, Cantor JC. Medical expenditures during the last year of life: findings from the 1992-1996 Medicare current beneficiary survey. Health Serv Res. 2002;37:1625-1642.
-
(2002)
Health Serv Res
, vol.37
, pp. 1625-1642
-
-
Hoover, D.R.1
Crystal, S.2
Kumar, R.3
Sambamoorthi, U.4
Cantor, J.C.5
-
28
-
-
0035913575
-
Influence of age on Medicare expenditures and medical care in the last year of life
-
Levinsky NG, Yu W, Ash A, et al. Influence of age on Medicare expenditures and medical care in the last year of life. JAMA. 2001;286:1349-1355.
-
(2001)
JAMA
, vol.286
, pp. 1349-1355
-
-
Levinsky, N.G.1
Yu, W.2
Ash, A.3
-
30
-
-
0035397976
-
Estimating the cost of informal caregiving for elderly patients with cancer
-
Hayman JA, Langa KM, Kabeto MU, et al. Estimating the cost of informal caregiving for elderly patients with cancer. J Clin Oncol. 2001;19:3219-3225.
-
(2001)
J Clin Oncol
, vol.19
, pp. 3219-3225
-
-
Hayman, J.A.1
Langa, K.M.2
Kabeto, M.U.3
-
31
-
-
0035724698
-
National estimates of the quantity and cost of informal caregiving for the elderly with dementia
-
Langa KM, Chernew ME, Kabeto MU, et al. National estimates of the quantity and cost of informal caregiving for the elderly with dementia. J Gen Intern Med. 2001;16:770-778.
-
(2001)
J Gen Intern Med
, vol.16
, pp. 770-778
-
-
Langa, K.M.1
Chernew, M.E.2
Kabeto, M.U.3
-
32
-
-
0031229424
-
Family caregiving: Who provides the care, and at what cost?
-
Robinson KM. Family caregiving: who provides the care, and at what cost? Nurs Econ. 1997;15:243-247.
-
(1997)
Nurs Econ
, vol.15
, pp. 243-247
-
-
Robinson, K.M.1
-
33
-
-
0032560037
-
A national survey of physician-assisted suicide and euthanasia in the United States
-
Meier DE, Emmons CA, Wallenstein S, Quill T, Morrison RS, Cassel CK. A national survey of physician-assisted suicide and euthanasia in the United States. N Engl J Med. 1998;338:1193-1201.
-
(1998)
N Engl J Med
, vol.338
, pp. 1193-1201
-
-
Meier, D.E.1
Emmons, C.A.2
Wallenstein, S.3
Quill, T.4
Morrison, R.S.5
Cassel, C.K.6
-
34
-
-
33846067382
-
American Association of Retired Persons
-
National Alliance for Caregiving;, Accessed January 5
-
National Alliance for Caregiving; American Association of Retired Persons. Caregiving in the U.S. http://www.caregiving.org/data/ 04finalreport.pdf. Accessed January 5, 2005.
-
(2005)
Caregiving in the U.S
-
-
-
35
-
-
0036772119
-
-
George LK. Research design in end-of-life research: state of science. Gerontologist. 2002;42(spec No. 3):86-98.
-
George LK. Research design in end-of-life research: state of science. Gerontologist. 2002;42(spec No. 3):86-98.
-
-
-
-
37
-
-
0033839748
-
Half the families of intensive care unit patients experience inadequate communication with physicians
-
Azoulay E, Chevret S, Leleu G, et al. Half the families of intensive care unit patients experience inadequate communication with physicians. Crit Care Med. 2000;28:3044-3049.
-
(2000)
Crit Care Med
, vol.28
, pp. 3044-3049
-
-
Azoulay, E.1
Chevret, S.2
Leleu, G.3
-
38
-
-
0035723108
-
Conflict associated with decisions to limit life-sustaining treatment in intensive care units
-
Breen CM, Abernethy AP, Abbott KH, Tulsky JA. Conflict associated with decisions to limit life-sustaining treatment in intensive care units. J Gen Intern Med. 2001;16:283-289.
-
(2001)
J Gen Intern Med
, vol.16
, pp. 283-289
-
-
Breen, C.M.1
Abernethy, A.P.2
Abbott, K.H.3
Tulsky, J.A.4
-
39
-
-
17644389854
-
-
Curtis JR, Engelberg RA, Wenrich MD, Shannon SE, Treece PD, Rubenfeld GD. Missed opportunities during family conferences about end-of-life care in the intensive care unit. Am J Respir Crit Care Med. 2005;171:844-849.
-
Curtis JR, Engelberg RA, Wenrich MD, Shannon SE, Treece PD, Rubenfeld GD. Missed opportunities during family conferences about end-of-life care in the intensive care unit. Am J Respir Crit Care Med. 2005;171:844-849.
-
-
-
-
40
-
-
0036317601
-
Family satisfaction with care in the intensive care unit: Results of a multiple center study
-
Heyland DK, Rocker GM, Dodek PM, et al. Family satisfaction with care in the intensive care unit: results of a multiple center study. Crit Care Med. 2002;30:1413-1418.
-
(2002)
Crit Care Med
, vol.30
, pp. 1413-1418
-
-
Heyland, D.K.1
Rocker, G.M.2
Dodek, P.M.3
-
41
-
-
0036560767
-
The vortex: Families' experiences with death in the intensive care unit
-
Kirchhoff KT, Walker L, Hutton A, Spuhler V, Cole BV, Clemmer T. The vortex: families' experiences with death in the intensive care unit. Am J Crit Care. 2002;11:200-209.
-
(2002)
Am J Crit Care
, vol.11
, pp. 200-209
-
-
Kirchhoff, K.T.1
Walker, L.2
Hutton, A.3
Spuhler, V.4
Cole, B.V.5
Clemmer, T.6
-
42
-
-
0025939964
-
Health care decision making by the elderly: I get by with a little help from my family
-
Kapp MB. Health care decision making by the elderly: I get by with a little help from my family. Gerontologist. 1991;31:619-623.
-
(1991)
Gerontologist
, vol.31
, pp. 619-623
-
-
Kapp, M.B.1
-
43
-
-
0033582204
-
The trouble with families: Toward an ethic of accommodation
-
Levine C, Zuckerman C. The trouble with families: toward an ethic of accommodation. Ann Intern Med. 1999;130:148-152.
-
(1999)
Ann Intern Med
, vol.130
, pp. 148-152
-
-
Levine, C.1
Zuckerman, C.2
-
44
-
-
12044254231
-
American Medical Association. Physicians and family caregivers: A model for partnership
-
Council on Scientific Affairs;
-
Council on Scientific Affairs; American Medical Association. Physicians and family caregivers: a model for partnership. JAMA. 1993;269:1282-1284.
-
(1993)
JAMA
, vol.269
, pp. 1282-1284
-
-
-
45
-
-
0028944147
-
Decisions about life-sustaining treatment: Impact of physicians' behaviors on the family
-
Tilden VP, Tolle SW, Garland MJ, Nelson CA. Decisions about life-sustaining treatment: impact of physicians' behaviors on the family. Arch Intern Med. 1995;155:633-638.
-
(1995)
Arch Intern Med
, vol.155
, pp. 633-638
-
-
Tilden, V.P.1
Tolle, S.W.2
Garland, M.J.3
Nelson, C.A.4
-
46
-
-
0037603457
-
The health impact of health care on families: A matched cohort study of hospice use by decedents and mortality outcomes in surviving, widowed spouses
-
Christakis NA, Iwashyna TJ. The health impact of health care on families: a matched cohort study of hospice use by decedents and mortality outcomes in surviving, widowed spouses. Soc Sci Med. 2003;57:465-475.
-
(2003)
Soc Sci Med
, vol.57
, pp. 465-475
-
-
Christakis, N.A.1
Iwashyna, T.J.2
-
47
-
-
6344233888
-
Talking with terminally ill patients and their caregivers about death, dying, and bereavement: Is it stressful? is it helpful?
-
Emanuel EJ, Fairclough DL, Wolfe P, Emanuel LL. Talking with terminally ill patients and their caregivers about death, dying, and bereavement: is it stressful? is it helpful? Arch Intern Med. 2004;164:1999-2004.
-
(2004)
Arch Intern Med
, vol.164
, pp. 1999-2004
-
-
Emanuel, E.J.1
Fairclough, D.L.2
Wolfe, P.3
Emanuel, L.L.4
|