A review of quality of life and psychosocial issues in scoliosis

Spine

Volumn 31, Issue 26, 2006, Pages 3027-3038

  Tones, Megan ^a   Moss, Nathan ^a   Polly Jr , David W ^b  

^a QUEENSLAND UNIVERSITY OF TECHNOLOGY   (Australia)

^b UNIVERSITY OF MINNESOTA   (United States)

Author keywords

Adolescent; Adult; Body image; Disability; HRQL; Psychological intervention; Psychosocial; Scoliosis

Indexed keywords

BEHAVIOR; BODY IMAGE; BRACE; DETERIORATION; EMOTION; EXERCISE; FAMILY FUNCTIONING; HEALTH STATUS; HUMAN; IDIOPATHIC SCOLIOSIS; MOTHER CHILD RELATION; NEUROSIS; OUTCOMES RESEARCH; PATIENT COMPLIANCE; PATIENT SATISFACTION; PERSONALITY; PRIORITY JOURNAL; PSYCHOSOCIAL DISORDER; QUALITY OF LIFE; REVIEW; SELF CONCEPT; SELF ESTEEM; SOCIAL BEHAVIOR; SOCIAL DISABILITY; SOCIAL PSYCHOLOGY; SPINE SURGERY; WELLBEING;

ADOLESCENT; ADULT; BODY IMAGE; DISABLED PERSONS; HUMANS; QUALITY OF LIFE; SCOLIOSIS; TREATMENT OUTCOME;

EID: 33845746722     PISSN: 03622436     EISSN: 15281159     Source Type: Journal    
DOI: 10.1097/01.brs.0000249555.87601.fc     Document Type: Review

References (62)

1. Negrini S, Grivas TB, Kotwicki T, et al. Why we treat adolescent idiopathic scoliosis? What we want to obtain and avoid for our patients. 2nd International Conference on Conservative Management of Spinal Deformities, Consensus Meeting held in Milan, Italy, January 13-14, 2005.
2. Freidel K, Petermann F, Reichel D, et al. Quality of life in women with idiopathic scoliosis. Spine 2002;27:E87-91.
3. Perez-Grueso FS, Fernandez-Baillo N, de Robles SA, et al. The low lumber spine below Cotrel-Dubousset instrumentation. Spine 2000;25:2333-41.
4. Kahanovitz N, Weiser S. The psychological impact of idiopathic scoliosis on the adolescent female: a preliminary multi-centre study. Spine 1988;14:483-5.
5. Danielsson AJ, Wiklund I, Pehrsson K, et al. Health-related quality of life in patients with adolescent idiopathic scoliosis: a matched follow-up at least 20 years after a brace or surgery. Eur Spine J 2001;10:278-88.
6. Asher M, Min Lai S, Burton D, et al. Discrimination validity of the Scoliosis Research Society-22 Patient Questionnaire: relationship to idiopathic scoliosis curve pattern and curve size. Spine 2003;28:74-7.
7. Haher TR, Gorup JM, Shin TM, et al. Results of the Scoliosis Research Society Instrument for evaluation of surgical outcome in adolescent idiopathic scoliosis: a multicentre study of 244 patients. Spine 1999;24:1435-40.
8. Wilson PL, Newton PO, Wenger DR, et al. A multicentre study analysing the relationship of a standardised idiopathic scoliosis and the Scoliosis Research Society Outcomes Instrument. Spine 2002;27:2036-40.
9. Asher M, Min Lai S, Burton D, et al. The influence of spine and trunk deformity on preoperative idiopathic scoliosis patients' health related quality of life questionnaire responses. Spine 2004;29:861-8.
10. Bago J, Climent JM, Ey A, et al. The Spanish version of the SRS-22 Patient Questionnaire for idiopathic scoliosis: transcultural adaptation and reliability analysis. Spine 2004;29:1676-80.
11. Climent JM, Bago J, Ey A, et al. Validity of the Spanish version of the Scoliosis Research Society-22 (SRS-22) Patient Questionnaire. Spine 2005;30:705-9.
12. Watanabe K, Hasegawa K, Hirano T, et al. Use of the Scoliosis Research Society Outcomes Instrument to evaluate patient outcome in untreated idiopathic scoliosis patients in Japan: I. Comparison with nonscoliosis group: preliminary/limited review in a Japanese population. Spine 2005;30:1197-201.
13. Watanabe K, Hasegawa K, Hirano T, et al. Use of the Scoliosis Research Society Outcomes Instrument to evaluate patient outcome in untreated idiopathic scoliosis patients in Japan: II. Relations between spinal deformity and patient outcomes. Spine 2005;30:1202-5.
14. Alanay A, Cil A, Berk H, et al. Reliability and validity of adapted Turkish version of Scoliosis Research Society-22 (SRS-22) Questionnaire. Spine 2005;30:2464-8.
15. Feise RY, Donaldson S, Crowther ER, et al. Construction and validation of the scoliosis quality of life index in adolescent idiopathic scoliosis. Spine 2005;30:1310-5.
16. Climent JM, Sanchez J. Group for the Study of Quality of Life in Spine Deformities: impact of the type of brace on the quality of life of adolescents with spine deformities. Spine 1999;24:1903-8.
17. Ugwonali OF, Lomas G, Choe JC, et al. Effect of bracing on the quality of life of adolescents with idiopathic scoliosis. Spine J 2004;4:254-60.
18. Rinella A, Lenke L, Peelle M, et al. Comparison of SRS questionnaire results submitted by both parents and patients in the operative treatment of idiopathic scoliosis. Spine 2004;29:303-10.
19. Neuwirth M, Osborn K. The Scoliosis Source Book. Chicago: Contemporary Books, 2001.
20. Weiss HR. Rehabilitation of adolescent patients with scoliosis: what do we know? A review of the literature. Pediatr Rehabil 2003;6:183-94.
21. Glassman SD, Berven S, Bridwell, et al. Correlation of radiographic parameters and clinical symptoms in adult scoliosis. Spine 2005;30:682-8.
22. White SF, Asher MA, Lai S. Appearance after primary posterior instrumentation and fusion for idiopathic scoliosis. Spine 1999;24:1693-700.
23. Asher M, Min Lai S, Burton D, et al. The reliability and concurrent validity of the Scoliosis Research Society-22 Patient Questionnaire for idiopathic scoliosis. Spine 2003;28:63-9.
24. Bervin S, Deviren V, Demir-Deviren S, et al. Studies in the modified scoliosis research society outcomes instrument in adults: validation, reliability and discriminatory capacity. Spine 2003;18:2164-8.
25. Danielsson AJ, Nachemson AL. Back pain and function 23 years after fusion for adolescent idiopathic scoliosis: a case-control study. Part II. Spine 2003;28:E373-83.
26. Danielsson AJ, Nachemson AL. Back pain and function 22 years after brace treatment for adolescent idiopathic scoliosis: a case-control study. Part I. Spine 2003;28:2078-86.
27. Parsch D, Gaertner V, Brocai DRC, et al. The effects of spinal fusion on the long-term outcome of idiopathic scoliosis: a case control study. J Bone Joint Surg Br 2001;83:1133-6.
28. Schwab F, Dubey A, Pagala M, et al. Adult scoliosis: a health assessment analysis by SF-36. Spine 2003;28:602-6.
29. Gotze C, Liljenqvist UR, Slomka A, et al. Quality of life and back pain: outcome 16.7 years after Harrington instrumentation. Spine 2002;27:1456-63.
30. Schwab F, Dubey A, Gamez L, et al. Adult scoliosis: prevalence, SF-36 and nutritional parameters in an elderly volunteer population. Spine 2005;10:1082-5.
31. Gabos PG, Bojescul JA, Bowen JR, et al. Long-term follow-up of female patients with idiopathic scoliosis treated with the Wilmington orthosis. J Bone Joint Surg Br 2004;86:1891-900.
32. Kibsgard T, Brox JI, Reikeras O. Physical and mental health in young adults operated on for idiopathic scoliosis. J Orthop Sci 2004;9:360-3.
33. Payne WK, Ogilvie JW, Resnick MD, et al. Does scoliosis have a psychological impact and does gender make a difference? Spine 1997;22:1380-4.
34. Matsunaga S, Hayashi K, Naruo T, et al. Psychologic management of brace therapy for patients with idiopathic scoliosis. Spine 2005;30:547-50.
35. Clayson D, Levine DB. Adolescent scoliosis patients: personality patterns and effects of corrective surgery. Clin Orthop 1976;116:99-102.
36. Clayson D, Mahon B, Levine DB. Preoperative personality characteristics as predictors of postoperative physical and psychological patterns in scoliosis. Spine 1981;6:9-12.
37. Koch KD, Buchanan R, Birch JG, et al. Adolescents undergoing surgery for idiopathic scoliosis: how physical and psychological characteristics relate to patient satisfaction with the cosmetic result. Spine 2001;26:2119-24.
38. MacLean WE, Green NE, Pierre CB, et al. Stress and coping with scoliosis: psychological effects on adolescents and their families. J Pediatr Orthop 1989;9:257-61.
39. Andersen MO, Andersen GR, Thomsen K, et al. Early weaning might reduce the psychological strain of Boston bracing: a study of 136 patients with adolescent idiopathic scoliosis at 3.5 years after termination of brace treatment. Spine 2002;11:96-9.
40. Gratz RR, Papalia-Finlay D. Psychosocial adaptation to wearing the Milwaukee brace for scoliosis: a pilot study of adolescent females and their mothers. J Adolesc Health Care 1984;5:237-42.
41. Fallstrom K, Cochran T, Nachemson A. Long term effects on personality development in patients with adolescent idiopathic scoliosis: influence of type of treatment. Spine 1986;11:756-8.
42. Matsunaga S, Sakou T, Nozoe S. Psychological effects of brace therapy on patients with idiopathic scoliosis. J Orthop Sci 1997;2:391-5.
43. Olafsson Y, Saraste H, Ahlgren RM. Does bracing affect self-image? A prospective study on 54 patients with adolescent idiopathic scoliosis. Eur Spine J 1998;8:402-5.
44. Wickers FC, Bunch WH, Barnett PM. Psychological factors in the failure to wear the Milwaukee brace for treatment of idiopathic scoliosis. Clin Orthop 1977;126:62-6.
45. Scoloveno MA, Yarcheski A, Mahon NE. Scoliosis treatment effects on selected variables among adolescents. West J Nurs Res 1990;12:601-18.
46. LaMontagne LL, Hepworth JT, Cohen F, et al. Adolescent scoliosis: effects of corrective surgery, cognitive-behavioural intervention, and age on activity outcome. Appl Nurs Res 2004;17:168-77.
47. LaMontagne L, Hepworth JT, Salisbury MH, et al. Effects of coping instruction in reducing young adolescents' pain after major spinal surgery. Orthop Nurs 2003;22:398-403.
48. LaMontagne LL, Hepworth JT, Cohen F, et al. Cognitive-behavioural intervention effects on adolescents' anxiety and pain following spinal fusion surgery. Nurs Res 2003;52:183-90.
49. Bengtsson G, Fallstrom K, Jansson B, et al. A psychological and psychiatric investigation of the adjustment of female scoliosis patients. Acta Psychiatr Scand 1974;50:50-9.
50. Orvomaa E. Psychological evaluation of patients operated for idiopathic scoliosis by the Harrington method. Int J Rehabil Res 1998;21:169-78.
51. Danielsson AJ, Nachemson AL. Childbearing, curve progression, and sexual function in women 22 years after treatment for adolescent idiopathic scoliosis: a case-control study. Spine 2001;26:1449-56.
52. Hinrichsen GA, Revenson TA, Shinn M. Does self help help? An empirical investigation of scoliosis peer support groups. J Soc Iss 1985;41:65-87.
53. Weinstein SL, Dolan LA, Spratt KF. Health and function of patients with untreated idiopathic scoliosis: a 50-year natural history study. JAMA 2003;289:559-69.
54. Ben-Tovim DI, Walker MK. Body image, disfigurement and disability. J Psychosom Res 1995;39:283-91.
55. Liskey-Fitzwater N, Moore CL, Gurel LM. Clothing importance and self-perception of female adolescents with and without scoliosis. Cloth Text Res J 1993;11:16-22.
56. Anderson FJ. Self-concept and coping in adolescents with a physical disability. Issues Ment Health Nurs 1982;4:257-74.
57. Dekel Y, Tenenbaum G, Kudar K. An exploratory study on the relationship between postural deformities and body-image and self-esteem in adolescents: the mediating role of physical activity. Int J Sports Psychol 1996;27:183-96.
58. Sapountzi-Krepia DS, Valavanis J, Panteleakis GP, et al. Perceptions of body image, happiness and satisfaction in adolescents wearing a Boston brace for scoliosis treatment. Iss Innov Nurs Prac 2001;35:683-90.
59. Noonan KJ, Dolan L, Jacobson WC, et al. Long-term psychosocial characteristics of patients treated for idiopathic scoliosis. J Pediatr Orthop 1997;17:712-7.
60. Pratt RK, Burwell RG, Cole AA, et al. Patient and parental perception of adolescent idiopathic scoliosis before and after surgery in comparison with surface and radiographic measurements. Spine 2002;27:1543-50.
61. Padua R, Padua S, Aulisa L, et al. Patient outcomes after Harrington instrumentation for idiopathic scoliosis: a 15 to 28 year evaluation. Spine 2001;26:1268-73.
62. Karol LA. Effectiveness of bracing male patients with idiopathic scoliosis. Spine 2001;26:2001-5.