메뉴 건너뛰기




Volumn 24, Issue 4, 2006, Pages 515-529

Adult Congenital Heart Disease: the Patient's Perspective

Author keywords

[No Author keywords available]

Indexed keywords

CONGENITAL HEART DISEASE; DOCTOR PATIENT RELATION; FRUSTRATION; HEALTH CARE PERSONNEL; HUMAN; INTERPERSONAL COMMUNICATION; MEDICAL PRACTICE; MORTALITY; PATIENT EDUCATION; PEER GROUP; PRIORITY JOURNAL; PROGNOSIS; REVIEW; SELF CONCEPT; SOCIAL PSYCHOLOGY; SOCIAL SUPPORT;

EID: 33750696708     PISSN: 07338651     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.ccl.2006.08.004     Document Type: Review
Times cited : (36)

References (30)
  • 1
    • 0000372608 scopus 로고    scopus 로고
    • 32nd Bethesda Conference: "care of the adult with congenital heart disease
    • Webb G.D., and Williams R. 32nd Bethesda Conference: "care of the adult with congenital heart disease. J Am Coll Cardiol 37 5 (2001) 1161-1198
    • (2001) J Am Coll Cardiol , vol.37 , Issue.5 , pp. 1161-1198
    • Webb, G.D.1    Williams, R.2
  • 2
    • 21344444848 scopus 로고    scopus 로고
    • The adult with congenital heart disease: born to be bad?
    • Warnes C.A. The adult with congenital heart disease: born to be bad?. J Am Coll Cardiol 46 1 (2005) 1-8
    • (2005) J Am Coll Cardiol , vol.46 , Issue.1 , pp. 1-8
    • Warnes, C.A.1
  • 3
    • 0037843159 scopus 로고    scopus 로고
    • Management of grown up congenital heart disease: the Task Force on the Management of Grown Up Congenital Heart Disease of the European Society of Cardiology
    • Deanfield J., Thaulow E., Warnes C.A., et al. Management of grown up congenital heart disease: the Task Force on the Management of Grown Up Congenital Heart Disease of the European Society of Cardiology. Eur Heart J 24 11 (2003) 1035-1084
    • (2003) Eur Heart J , vol.24 , Issue.11 , pp. 1035-1084
    • Deanfield, J.1    Thaulow, E.2    Warnes, C.A.3
  • 4
    • 0000326548 scopus 로고    scopus 로고
    • Canadian consensus conference on adult congenital heart disease 1996
    • Connelly M.S., Webb G.D., Somerville J., et al. Canadian consensus conference on adult congenital heart disease 1996. Can J Cardiol 14 3 (1998) 395-452
    • (1998) Can J Cardiol , vol.14 , Issue.3 , pp. 395-452
    • Connelly, M.S.1    Webb, G.D.2    Somerville, J.3
  • 5
    • 33644984522 scopus 로고    scopus 로고
    • Guidelines for outpatient management of complex congenital heart disease
    • Wernovsky G., Rome J.J., Tabbutt S., et al. Guidelines for outpatient management of complex congenital heart disease. Congenit Heart Dis 1 1-2 (2006) 10-26
    • (2006) Congenit Heart Dis , vol.1 , Issue.1-2 , pp. 10-26
    • Wernovsky, G.1    Rome, J.J.2    Tabbutt, S.3
  • 6
    • 0027398136 scopus 로고
    • Second natural history study of congenital heart defects: results of treatment of patients with ventricular septal defects
    • Kidd L., Driscoll D., and Gersony W. Second natural history study of congenital heart defects: results of treatment of patients with ventricular septal defects. Circulation 87 2 Suppl (1993) 138-151
    • (1993) Circulation , vol.87 , Issue.2 SUPPL , pp. 138-151
    • Kidd, L.1    Driscoll, D.2    Gersony, W.3
  • 7
    • 1642403234 scopus 로고    scopus 로고
    • Prevalence and correlates of successful transfer from pediatric to adult health care among a cohort of young adults with complex congenital heart defects
    • Reid G.J., Irvine M.J., McCrindle B.W., et al. Prevalence and correlates of successful transfer from pediatric to adult health care among a cohort of young adults with complex congenital heart defects. Pediatrics 113 3 Pt 1 (2004) e197-e205
    • (2004) Pediatrics , vol.113 , Issue.3 PART 1
    • Reid, G.J.1    Irvine, M.J.2    McCrindle, B.W.3
  • 8
    • 0033568143 scopus 로고    scopus 로고
    • Determinants of survival and length of survival in adults with Eisenmenger syndrome
    • Cantor W.J., Harrison D.A., Moussadji J.S., et al. Determinants of survival and length of survival in adults with Eisenmenger syndrome. Am J Cardiol 84 6 (1999) 677-681
    • (1999) Am J Cardiol , vol.84 , Issue.6 , pp. 677-681
    • Cantor, W.J.1    Harrison, D.A.2    Moussadji, J.S.3
  • 9
    • 0034763380 scopus 로고    scopus 로고
    • What do adult patients with congenital heart disease know about their disease, treatment, and prevention of complications? A call for structured patient education
    • Moons P., De Volder E., Budts W., et al. What do adult patients with congenital heart disease know about their disease, treatment, and prevention of complications? A call for structured patient education. Heart 86 1 (2001) 74-80
    • (2001) Heart , vol.86 , Issue.1 , pp. 74-80
    • Moons, P.1    De Volder, E.2    Budts, W.3
  • 10
    • 33750697239 scopus 로고    scopus 로고
    • American Medical Association. E-8.12. Patient information page. Available at: http://www.ama-assn.org/ama/pub/category/8497.html. Accessed May 9, 2006.
  • 11
    • 0023884532 scopus 로고
    • On truth-telling and the diagnosis of Alzheimer's disease
    • Erde E.L., Nadal E.C., and Scholl T.O. On truth-telling and the diagnosis of Alzheimer's disease. J Fam Pract 24 4 (1988) 401-406
    • (1988) J Fam Pract , vol.24 , Issue.4 , pp. 401-406
    • Erde, E.L.1    Nadal, E.C.2    Scholl, T.O.3
  • 12
    • 0035082033 scopus 로고    scopus 로고
    • Illness understanding in children and adolescents with heart disease
    • Veldtman G.R., Matley S.L., Kendall L., et al. Illness understanding in children and adolescents with heart disease. West J Med 174 3 (2001) 173-174
    • (2001) West J Med , vol.174 , Issue.3 , pp. 173-174
    • Veldtman, G.R.1    Matley, S.L.2    Kendall, L.3
  • 13
    • 33750738215 scopus 로고    scopus 로고
    • What are the goals of patient education?
    • Feudtner C. What are the goals of patient education?. Heart 84 (2000) 395-397
    • (2000) Heart , vol.84 , pp. 395-397
    • Feudtner, C.1
  • 14
    • 18044400714 scopus 로고    scopus 로고
    • Task force 4: organization of delivery systems for adults with congenital heart disease
    • Landzberg M.J., Murphy Jr. D.J., Davidson W.R., et al. Task force 4: organization of delivery systems for adults with congenital heart disease. J Am Coll Cardiol 37 5 (2001) 1161-1198
    • (2001) J Am Coll Cardiol , vol.37 , Issue.5 , pp. 1161-1198
    • Landzberg, M.J.1    Murphy Jr., D.J.2    Davidson, W.R.3
  • 15
    • 0030957504 scopus 로고    scopus 로고
    • Near misses and disasters in the treatment of grown-up congenital heart patients
    • Somerville J. Near misses and disasters in the treatment of grown-up congenital heart patients. J R Soc Med 90 (1997) 124-127
    • (1997) J R Soc Med , vol.90 , pp. 124-127
    • Somerville, J.1
  • 16
    • 0033981567 scopus 로고    scopus 로고
    • Psychosocial profile of adults with complex congenital heart disease
    • Horner T., Lieberthson R., and Jellinek M.S. Psychosocial profile of adults with complex congenital heart disease. Mayo Clin Proc 75 1 (2000) 31-36
    • (2000) Mayo Clin Proc , vol.75 , Issue.1 , pp. 31-36
    • Horner, T.1    Lieberthson, R.2    Jellinek, M.S.3
  • 17
    • 0032110384 scopus 로고    scopus 로고
    • Growing up with congenital heart disease: the dilemmas of adolescents and young adults
    • Tong E.M., Sparacino P.S., Messias D.K., et al. Growing up with congenital heart disease: the dilemmas of adolescents and young adults. Cardiol Young 8 3 (1998) 303-309
    • (1998) Cardiol Young , vol.8 , Issue.3 , pp. 303-309
    • Tong, E.M.1    Sparacino, P.S.2    Messias, D.K.3
  • 18
    • 13844254309 scopus 로고    scopus 로고
    • What does it mean to live with a congenital heart disease? A qualitative study on the lived experiences of adult patients
    • Claessens P., Moons P., de Casterle B.D., et al. What does it mean to live with a congenital heart disease? A qualitative study on the lived experiences of adult patients. Eur J Cardiovasc Nurs 4 1 (2005) 3-10
    • (2005) Eur J Cardiovasc Nurs , vol.4 , Issue.1 , pp. 3-10
    • Claessens, P.1    Moons, P.2    de Casterle, B.D.3
  • 19
    • 0034750584 scopus 로고    scopus 로고
    • A life less ordinary: growing up and coping with congenital heart disease
    • McMurray R., Kendall L., Parson J.M., et al. A life less ordinary: growing up and coping with congenital heart disease. Coron Health Care 5 1 (2001) 51-57
    • (2001) Coron Health Care , vol.5 , Issue.1 , pp. 51-57
    • McMurray, R.1    Kendall, L.2    Parson, J.M.3
  • 20
    • 0026891747 scopus 로고
    • Growing up heartsick: the experiences of young women with congenital heart disease
    • Gantt L.T. Growing up heartsick: the experiences of young women with congenital heart disease. Health Care Women Int 13 3 (1992) 241-248
    • (1992) Health Care Women Int , vol.13 , Issue.3 , pp. 241-248
    • Gantt, L.T.1
  • 21
    • 0025727151 scopus 로고
    • Long-term psychologic implications of congenital heart disease: a 25-year follow-up
    • Brandhagen D.J., Feldt R.H., and Williams D.E. Long-term psychologic implications of congenital heart disease: a 25-year follow-up. Mayo Clin Proc 66 5 (1991) 474-479
    • (1991) Mayo Clin Proc , vol.66 , Issue.5 , pp. 474-479
    • Brandhagen, D.J.1    Feldt, R.H.2    Williams, D.E.3
  • 22
    • 0034181618 scopus 로고    scopus 로고
    • Emerging adulthood: a theory of development form the late teens through the twenties
    • Arnett J.J. Emerging adulthood: a theory of development form the late teens through the twenties. Am Psychol 55 5 (2000) 469-480
    • (2000) Am Psychol , vol.55 , Issue.5 , pp. 469-480
    • Arnett, J.J.1
  • 23
    • 33748268904 scopus 로고    scopus 로고
    • Links quality of life and health status in adults with congenital heart disease: a direct comparison with healthy counterparts
    • Moons P., Van Deyk K., De Bleser L., et al. Links quality of life and health status in adults with congenital heart disease: a direct comparison with healthy counterparts. Eur J Cardiovasc Prev Rehabil 13 3 (2006) 407-413
    • (2006) Eur J Cardiovasc Prev Rehabil , vol.13 , Issue.3 , pp. 407-413
    • Moons, P.1    Van Deyk, K.2    De Bleser, L.3
  • 24
    • 0017597222 scopus 로고    scopus 로고
    • Rehabilitation success: the interrelationships of multiple criteria
    • Albrecht G.L., and Higgins P. Rehabilitation success: the interrelationships of multiple criteria. J Health Soc Behav 18 (1997) 36-45
    • (1997) J Health Soc Behav , vol.18 , pp. 36-45
    • Albrecht, G.L.1    Higgins, P.2
  • 25
    • 33750734657 scopus 로고    scopus 로고
    • Weinberg N. Another perspective: attitudes of people with disabilities. In: Attitudes toward persons with disabilities. New York: Springer; 1998. p. 141-53.
  • 26
    • 0033051553 scopus 로고    scopus 로고
    • The disability paradox: high quality of life against all odds
    • Albrecht G.L., and Devlieger P.J. The disability paradox: high quality of life against all odds. Soc Sci Med 48 (1999) 977-988
    • (1999) Soc Sci Med , vol.48 , pp. 977-988
    • Albrecht, G.L.1    Devlieger, P.J.2
  • 27
    • 23844522293 scopus 로고    scopus 로고
    • Positive consequences of surviving a stroke
    • Gillen G. Positive consequences of surviving a stroke. Am J Occup Ther 59 3 (2005) 346-350
    • (2005) Am J Occup Ther , vol.59 , Issue.3 , pp. 346-350
    • Gillen, G.1
  • 28
    • 23944498070 scopus 로고    scopus 로고
    • Is the severity of congenital heart disease associated with the quality of life and perceived health of adult patients?
    • Moons P., Van Deyk K., De Geest S., et al. Is the severity of congenital heart disease associated with the quality of life and perceived health of adult patients?. Heart 91 9 (2005) 1193-1198
    • (2005) Heart , vol.91 , Issue.9 , pp. 1193-1198
    • Moons, P.1    Van Deyk, K.2    De Geest, S.3
  • 29
    • 33750701107 scopus 로고    scopus 로고
    • Patrick Mathieu Unlimited, Ontario, Canada
    • Mathieu P. What's Your Expiry Date? (2005), Patrick Mathieu Unlimited, Ontario, Canada
    • (2005) What's Your Expiry Date?
    • Mathieu, P.1
  • 30
    • 13544268449 scopus 로고    scopus 로고
    • Individual quality of life in adults with congenital heart disease: a paradigm shift
    • Moons P., Van Deyk K., and Marquet K. Individual quality of life in adults with congenital heart disease: a paradigm shift. Eur Heart J 26 3 (2005) 298-307
    • (2005) Eur Heart J , vol.26 , Issue.3 , pp. 298-307
    • Moons, P.1    Van Deyk, K.2    Marquet, K.3


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.