Measuring quality of life in women with endometriosis: Tests of data quality, score reliability, response rate and scaling assumptions of the Endometriosis Health Profile Questionnaire

Human Reproduction

Volumn 21, Issue 10, 2006, Pages 2686-2693

  Jones, Georgina ^a   Jenkinson, Crispin ^b   Taylor, Nicola ^c   Mills, Abbie ^d   Kennedy, Stephen ^e  

^a UNIVERSITY OF SHEFFIELD   (United Kingdom)

^b UNIVERSITY OF OXFORD   (United Kingdom)

^c CENTRAL QUEENSLAND UNIVERSITY   (Australia)

^d UNIVERSITY OF SHEFFIELD   (United Kingdom)

^e UNIVERSITY OF OXFORD   (United Kingdom)

Author keywords

Data quality; Endometriosis; Quality of life

Indexed keywords

ADOLESCENT; ADULT; ALGORITHM; ARTICLE; CONTROLLED STUDY; CORRELATION ANALYSIS; CRONBACH ALPHA COEFFICIENT; ENDOMETRIOSIS; FACTORIAL ANALYSIS; FEMALE; GENETIC LINKAGE; HEALTH SURVEY; HUMAN; MAJOR CLINICAL STUDY; MEDICAL SOCIETY; OUTPATIENT CARE; POSTAL MAIL; QUALITY CONTROL; QUALITY OF LIFE; QUESTIONNAIRE; RATING SCALE; RELIABILITY; SCORING SYSTEM; UNITED KINGDOM;

EID: 33749636862     PISSN: 02681161     EISSN: 14602350     Source Type: Journal    
DOI: 10.1093/humrep/del231     Document Type: Article

References (31)

1. Bindman AB, Keane D and Lurie N (1990) Measuring health changes among severely ill patients: The floor phenomenon. Med Care 28,1142-1152.
2. Bjorner JB, Damsgaard MT, Watt T and Groenvold M (1998) Tests of data quality, scaling assumptions, and reliability of the Danish SF-36. J Clin Epidemiol 5,1001-1011.
3. Bodner C, Garratt AM, Ratcliffe J, Macdonald LM and Penney GC (1997) Measuring health-related quality of life outcomes in women with endometriosis: Results of the gynaecology audit project in Scotland. Health Bull (Edinb) 55,109-117.
4. Burry KA (1992) Nafarelin in the management of endometriosis: Quality of life assessment. Am J Obstet Gynecol 166,735-739.
5. Colwell H, Mathias SD, Pasta DJ, Henning JM and Steege JF (1998) A health-related quality of life instrument for symptomatic patients with endometriosis: A validation study. Am J Obstet Gynecol 179,47-55.
6. Cronbach L (1951) Coefficent alpha and the internal structure of tests. Psychometrika 16,297-334.
7. Dillman DA (1978) Mail and Telephone Surveys: The Total Design Method. Wiley, New York.
8. Edwards P, Roberts I, Clarke M, DiGuiseppi C, Pratap S, Reinhard Wentz R and Kwan I (2002) Increasing response rates to postal questionnaires: systematic review. BMJ 324,1183.
9. Gandek B, Ware JE, Aaronson NK, Alonso J, Apolone G, Bjomer J, Brazier J, Bullinger M, Fukuhara S, Kaasa S et al. (1998) Tests of data quality, scaling assumptions, and reliability of the SF-36 in eleven countries. results from the IQOLA Project. International Quality of Life Assessment. J Clin Epidemiol 51,1149-1158.
10. Garry R, Clayton R and Hawe J (2000) The effect of endometriosis and its radical laparoscopic excision on quality of life indicators. Br J Obstet Gynaecol 107,44-54.
11. Jenkinson C, Fitzpatrick R, Swash M and Levvy G (2001) ALSAQ User Manual: Amyotrophic Lateral Sclerosis. Assessment Questionnaire. Health Services Research Unit, University of Oxford, Oxford.
12. Jenkinson C, Hobart J, Tarani C, Fitzpatrick R, Swash M, and The ALS-HPS Steering Group (2002) Use of the short form health survey (SF-36) in patients with amyotrophic lateral sclerosis: Tests of data quality, score reliability, response rate and scaling assumptions. J Neurol 249,178-183.
13. Jones G, Kennedy S, Barnard A, Wong J and Jenkinson C (2001) Development of an endometriosis quality-of-life instrument. The Endometriosis Health Profile-30. Obstet Gynecol 98,258-264.
14. Jones G, Kennedy S and Jenkinson C (2002) Health-related quality of life measurement in women with common benign gynecological conditions: A systematic review. Am J Obstet Gynecol 187,501-511.
15. Jones GL, Jenkinson C and Kennedy SH (2004) Evaluating the sensitivity to change of the Endometriosis Health Profile Questionnaire. The EHP-30. Qual Life Res 13,705-713.
16. Kennedy S (1997) Is there a genetic basis to endometriosis? Semin Reprod Endocrinol 15,309-318.
17. Kind P and Carr-Hill R (1987) The Nottingham Health Profile: A useful tool for epidemiologists? Soc Sci Med 25,905-910.
18. Kline P (2000) A Psychometrics Primer. Free Association Books, London.
19. Kosinski M, Keller SD, Hatoum HT, Kong SX and Ware JE (1999) The SF-36 Health Survey as a generic outcome measure in clinical trials of patients with osteoarthritis and rheumatoid arthritis: Tests of data quality, scaling assumptions and score reliability. Med Care 37(Suppl 5),MS10-22.
20. Low WY and Edelmann RJ (1990) Psychosocial aspects of endometriosis: A review. J Psychosom Obstet Gynaecol 12,3-12.
21. Low YL, Edelmann RJ and Sutton C (1993) A psychological profile of endometriosis patients in comparison to patients with pelvic pain of other origins. J Psychosom Res 37,111-116.
22. Maclaverty CM and Shaw RW (1992) Pelvic pain and endometriosis. In Shaw RW (ed.) Endometriosis: Current Understanding and Management. Blackwell Science, Oxford, pp. 112-146.
23. McHorney CA, Ware JE, Lu JF and Sherbourne CD (1994) The MOS 36-item short-form health survey (SF-36): III. Tests of data quality, scaling assumptions, and reliability across diverse patient groups. Med Care 32,40-66.
24. Nunnally JC (1978) Psychometric Theory. Tata McGraw-Hill, New Delhi.
25. Olive DL and Schwartz LB (1993) Endometriosis. N Engl J Med 328,1759-1769.
26. Oppenheim AN (1992) Questionnaire Design, Interviewing and Attitude Measurement, New edition. Continuum Press, London.
27. Rowan K (1994) Global questions and scores. In Jenkinson C (ed.) Measuring Health and Medical Outcomes. UCL Press, London, pp. 54-76.
28. Stead ML, Crocombe WD, Fallowfield Li, Selby P, Perren TJ, Garry R, Brown JM (1999) Sexual activity questionnaires in clinical trials: acceptability to patients with gynaecological disorders. Br J Obstet Gynaecol 106,50-54.
29. Streiner DL and Norman G (1995) Health Measurement Scales: A Practical Guide to Their Development and Use, 2nd edn. Oxford University Press, Oxford.
30. de Vaus DA (1999) Surveys in Social Research. UCL Press, London.
31. Ware JE, Brook RH, Williams KN, Stewart AL and Davies-Avery A (1980) Conceptualisation and measurement of health for adults in the Health Insurance Study. Vol. 1: Model of Health and Methodology. RAND Corporation, California.