Evaluating the responsiveness of the endometriosis health profile questionnaire: The EHP-30

Quality of Life Research

Volumn 13, Issue 3, 2004, Pages 705-713

  Jones, Georgina ^a,b,c,d   Jenkinson, Crispin ^b   Kennedy, Stephen ^a  

^a UNIVERSITY OF OXFORD   (United Kingdom)

^b UNIVERSITY OF OXFORD   (United Kingdom)

^c UNIVERSITY OF SHEFFIELD   (United Kingdom)

^d NORTHERN GENERAL HOSPITAL   (United Kingdom)

Author keywords

Endometriosis; Quality of Life; Questionnaires; Surgery

Indexed keywords

CALCULATION; CONSERVATIVE TREATMENT; DISEASE ASSOCIATION; ENDOMETRIOSIS; HEALTH CARE; HEALTH STATUS; HUMAN; MEDICAL ASSESSMENT; POSTOPERATIVE PERIOD; PRIORITY JOURNAL; QUESTIONNAIRE; REVIEW; STANDARDIZATION;

ADULT; ENDOMETRIOSIS; ENGLAND; FEMALE; FOLLOW-UP STUDIES; HUMANS; MIDDLE AGED; PAIN MEASUREMENT; PSYCHOMETRICS; QUALITY OF LIFE; QUESTIONNAIRES; SENSITIVITY AND SPECIFICITY; SICKNESS IMPACT PROFILE; SOCIAL SUPPORT; TIME FACTORS; TREATMENT OUTCOME;

EID: 1942422595     PISSN: 09629343     EISSN: None     Source Type: Journal    
DOI: 10.1023/B:QURE.0000021316.79349.af     Document Type: Review

References (27)

1. Kazis LE, Anderson JJ, Meenan RF. Effect sizes for interpreting changes in health status. Med Care 1989; 27: S178-S189.
2. Streiner DL, Norman G. Health Measurement Scales: A Practical Guide to their Development and Use. 2nd ed. Oxford: Oxford University Press, 1995.
3. Jones G, Kennedy S, Barnard A, Wong J, Jenkinson C. Development of an endometriosis quality-of-life instrument: The Endometriosis Health Profile-30. Obstet Gynecol 2001; 98: 258-264.
4. Guyatt G, Walter S, Norman G. Measuring change over time: Assessing the usefulness of evaluative instruments. J Chron Dis 1987; 40: 171-178.
5. Fayers PM, Machin D. Quality of Life: Assessment, Analysis and Interpretation. Chichester: John Wiley & Sons, 2000.
6. Sutton CJG, Hill D. Laser laparoscopy in the treatment of endometriosis: A 5-year study. Br J Obstet Gynaecol 1990; 97: 181-185.
7. Low YL, Edelmann RJ, Sutton C. A psychological profile of endometriosis patients in comparison to patients with pelvic pain of other origins. J Psychosom Res 1993; 37: 111-116.
8. Daniell JF. Laser laparoscopy for endometriosis. Colposcopy Gynecol Laser Surg 1984; 1: 185-192.
9. Donnez J. Today's treatments: Medical, surgical and in partnership. Int J Gynecol Obstet 1999; 1: S5-S13.
10. Adamson GD, Hurd SJ, Pasta DJ, Rodriguez BD. Laparoscopic endometriosis treatment: Is it better? Fertil Steril 1993; 59: 35-44.
11. Sutton CJ. What can we expect from the surgical management of endometriosis? Br J Clin Pract Suppl 1991; 72: 33-42.
12. Ware JE, Sherbourne EC. The MOS 36-Item Short Form Health Survey 1: Conceptual Framework and Item Selection. Med Care 1992; 30: 473-483.
13. Liang MH, Fossel AH, Larson MG. Comparisons of five health status instruments for orthopedic evaluation. Med Care 1990; 28: 263-642.
14. Fitzpatrick R, Ziebland S, Jenkinson C, Mowat A, Mowat A. A comparison of the sensitivity to change of several health status instruments in rheumatoid arthritis. J Rheumatol 1993; 20: 429-436.
15. Kosinski M, Keller SD, Hatoum HT, Kong SX, Ware JE. The SF-36 Health Survey as a generic outcome measure in clinical trials of patients with osteoarthritis and rheumatoid arthritis: Tests of data quality, scaling assumptions and score reliability. Med Care 1999; 37: MS10-MS22.
16. Jenkinson C. Measuring Health and Medical Outcomes. London: UCL Press, 1994.
17. Colwell H, Mathias SD, Pasta DJ, Henning JM, Steege JF. A health-related quality of life instrument for symptomatic patients with endometriosis: A validation study. Am J Obstet Gynecol 1998; 179: 47-55.
18. Guyatt GH, Feeny D, Patrick D. Proceedings of the international conference on the measurement of quality of life as an outcome in clinical trials: Postscript. Controlled Clin Trials 1991; 12: 266s-269s.
19. Lydick E, Epstein RS. Interpretation of quality of life changes. Qual Life Res 1993; 2: 221-226.
20. Lohr KN, Aaronson NK, Alonso J, Burnam MA, Patrick DL, Perin EB. Evaluating quality of life and health status instruments: Development of scientific review criteria. Clin Ther 1996; 18: 979-992.
21. Cohen J. Statistical Power Analysis for the Behaviourial Sciences. New York: Academic Press, 1977.
22. Guyatt GH, Eagle DJ, Sackett B. Measuring quality of life in the frail elderly. J Clin Epidemiol 1993; 46: 1433-1444.
23. Bodner C, Garratt AM, Ratcliffe J, Macdonald LM, Penney GC. Measuring health-related quality of life outcomes in women with endometriosis: Results of the gynaecology audit project in Scotland. Health Bull (Edinb) 1997; 55: 109-117.
24. Fitzpatrick R. Applications of health status measures. In: Jenkinson, C (ed.), Measuring Health and Medical Outcomes, London: UCL Press, 1994: 27-41.
25. Paterson C. Langan CE, McKaig GA, et al. Assessing patient outcomes in acute exacerbations of chronic bronchitis: The measure your medical outcome profile (MYMOP), medical outcomes study 6-item general health survey (MOS-6A) and EuroQol (EQ-5D). Qual Life Res 2000; 9: 521-527.
26. Garry R, Clayton R, Hawe J. The effect of endometriosis and its radical laparoscopic excision on quality of life indicators. Br J Obstet Gynaecol 2000; 107: 44-54.
27. Juniper EF, Guyatt GH, Willan A, Griffith LE. Determining a minimal important change in a disease-specific quality of life questionnaire. J Clin Epidemiol 1994; 47: 81-87.