Patients' information needs and decision-making processes: What can be learned from genetic counselees?

Health Psychology

Volumn 25, Issue 2, 2006, Pages 211-219

  Shiloh, Shoshana ^a   Gerad, Liora ^a,b   Goldman, Boleslav ^a,b  

^a TEL AVIV UNIVERSITY   (Israel)

^b GERTNER INSTITUTE FOR EPIDEMIOLOGY AND HEALTH POLICY RESEARCH   (Israel)

Author keywords

Genetic counseling; Natural decision making; Risky decision making; Shared decision making

Indexed keywords

ADULT; ARTICLE; CONCEPTUAL FRAMEWORK; CONTROLLED STUDY; FEMALE; GENETIC COUNSELING; GENETIC RISK; HUMAN; INFORMATION DISSEMINATION; INTERVIEW; MAJOR CLINICAL STUDY; MALE; MEDICAL DECISION MAKING; MEDICAL INFORMATION; PATIENT EDUCATION; PATIENT INFORMATION; RISK ASSESSMENT; THEORETICAL MODEL;

ADULT; FEMALE; GENETIC COUNSELING; HEALTH SERVICES NEEDS AND DEMAND; HUMANS; INFORMATION STORAGE AND RETRIEVAL; INTERVIEWS; ISRAEL; MALE; PATIENT EDUCATION; PATIENT PARTICIPATION;

EID: 33645765333     PISSN: 02786133     EISSN: None     Source Type: Journal    
DOI: 10.1037/0278-6133.25.2.211     Document Type: Article

References (60)

1. Auerbach, S. M., & Pegg, P. O. (2002). Appraisal of desire for control over health care: Structure, stability, and relation to health locus of control and to the "Big Five" personality traits. Journal of Health Psychology, 7, 393-408.
2. Beach, L. R., & Potter, R. E. (1992). The pre-choice screening of options. Acta Psychologica, 81, 115-126.
3. Benbassat, J., Pilpel, D., & Tidhar, M. (1998). Patients' preferences for participation in clinical decision making: A review of published surveys. Behavioral Medicine, 24, 81-88.
4. Berkenstadt, M., Shiloh, S., Barkai, G., Katznelson, M. B., & Goldman, B. (1999). Perceived personal control (PPC): A new concept in measuring outcome and process in genetic counseling. American Journal of Medical Genetics, 82, 53-59.
5. Biesecker, B. B., & Peters, K. F. (2001). Process studies in genetic counseling: Peering into the black box. American Journal of Medical Genetics, 106, 191-198.
6. Bringle, R. G., & Antley, R. M. (1980). Elaboration of the definition of genetic counseling into a model for counselee decision-making. Social Biology, 27, 304-318.
7. Carver, C. S., Harris, S. D., Lehman, J. M., Durel, L. A., Antoni, M. H., Spencer, S. M., & Pazo-Kaderman, C. (2000). How important is the perception of personal control? Studies of early stage breast cancer patients. Personality and Social Psychology Bulletin, 26, 139-149.
8. Charles, C., Gafni, A., & Whelan, T. (1999). Decision making in the physician-patient encounter: Revisiting the shared treatment decision-making model. Social Science and Medicine, 49, 651-661.
9. Cohen, M. S. (1995). The bottom line: Naturalistic decision aiding. In G. A. Klein, J. Orasanu, R. Calderwood, & C. E. Zsambok (Eds.), Decision making in action: Models and methods (pp. 265-269). Norwood, NJ: Ablex Publishing.
10. Edwards, W. (1961). Behavioral decision theory. Annual Review of Psychology, 12, 473-498.
11. Elstein, A. S. (2001). Naturalistic decision making and clinical judgment. Journal of Behavioral Decision Making, 14, 353-384.
12. Endsley, M. R. (1997). The role of situation awareness in naturalistic decision making. C. E. Zsambok & G. Klein (Eds.), Naturalistic decision making (pp. 269-284). Mahwah, NJ: Erlbaum.
13. Feldman-Stewart, D., Brundage, M. D., Hayter, C., Groome, P., Nickel, C., Downes, H., & Mackillop, W. J. (2000). What questions do patients with curable prostate cancer want answered? Medical Decision Making, 20, 7-19.
14. Fiske, S. T., & Taylor, S. E. (1991). Social cognition. New York: McGraw-Hill.
15. Frets, P. G., & Niermeijer, M. F. (1990). Reproductive planning after genetic counseling: A perspective from the last decade. Clinical Genetics, 38, 295-306.
16. Frosch, D. L., & Kaplan, R. M. (1999). Shared decision making in clinical medicine: Past research and future directions. American Journal of Preventive Medicine, 17, 285-294.
17. Gafni, A., Charles, C., & Whelan, T. (1998). The physician-patient encounter: The physician as a perfect agent for the patient versus the informed treatment decision-making model. Social Science and Medicine, 47, 347-354.
18. Harris, J. (1992). You can't ask if you don't know what to ask: A survey of the information needs and resources of hospital outpatients. New Zealand Medical Journal, 105, 199-202.
19. Huber, O. (1995). Ambiguity and perceived control. Swiss Journal of Psychology, 54, 200-210.
20. Huber, O. (1997). Beyond gambles and lotteries: Naturalistic risky decisions. In R. Ranyard, W. R. Crzier, & O. Svenson (Eds.), Decision making: Cognitive models and explanations (pp. 145-164). London: Routledge.
21. Huber, O., Beutter, C., Montoya, J., & Huber, O. W. (2001). Risk-defusing behaviour: Towards an understanding of risky decision making. European Journal of Cognitive Psychology, 13, 409-426.
22. Huber, O., & Macho, S. (2001a). Cues for controllability and option attractivity in risky decision tasks: Effect on perceived controllability and choice. Unpublished manuscript.
23. Huber, O., & Macho, S. (2001b). Probabilistic set-up and the search improbability information in quasi-naturalistic decision tasks. Risk, Decision and Policy, 6, 1-16.
24. Huber, O., Wider, R., & Huber, O. W. (1997). Active information search and complete information presentation in naturalistic risky decision tasks. Acta Psychologica, 95, 15-29.
25. Johnston, M., Morrisin, V., MacWalter, R., & Partridge, C. (1999). Perceived control, coping and recovery from disability following stroke. Psychology and Health, 14, 181-192.
26. Kessler, S. (2001). Psychological aspects of genetic counseling: XIV. Nondirectiveness and counseling skills. Genetic Testing, 5, 187-191.
27. Lantos, J. (1993). Informed consent: The whole truth for patients. Cancer, 72, 2811-2815.
28. Larson, C. O., Nelson, E. C., Gustafson, D., & Batalden, P. B. (1996). The relationship between meeting patients' information needs and their satisfaction with hospital care and general health status outcomes. International Journal for Quality in Health Care, 8, 447-156.
29. Lau, R. R., & Hartman, K. A. (1983). Common-sense representations of common illness. Health Psychology, 2, 167-185.
30. Lippman-Hand, A., & Fraser, F. C. (1979). Genetic counseling: The postcounseling period - I. Parents' perceptions of uncertainty. American Journal of Medical Genetics, 4, 51-71.
31. Lipshitz, R., Klein, G., Orasanu, J., & Salas, E. (2001). Taking stock of naturalistic decision making. Journal of Behavioral Decision Making, 14, 331-352.
32. Loewenstein, G. F., Weber, E. U., Hsee, C. K., & Welch, N. (2001). Risk as feeling. Psychological Bulletin, 127, 267-286.
33. Marteau, T. M., & Dormandy, E. (2001). Facilitating informed choice in prenatal testing: How well are we doing? American Journal of Medical Genetics, 106, 185-190.
34. McJannett, M., Butow, P., Tattersall, M. H. N., & Thompson, J. F. (2003). Asking questions can help: Development of a question prompt list for cancer patients seeing a surgeon. European Journal of Cancer Prevention, 12, 397-405.
35. Michie, S., French, D., Allanson, A., Bobrow, M., & Marteau, T. M. (1997). Information recall in genetic counseling: A pilot study of its assessment. Patient Education and Counseling, 32, 93-100.
36. Michie, S., Marteau, T. M., & Bobrow, M. (1997). Genetic counseling: The psychological impact of meeting patients' expectations. Journal of Medical Genetics, 34, 237-241.
37. Michie, S., Smith, D., McClennan, A., & Marteau, T. M. (1997). Patient decision making: An evaluation of two different methods of presenting information about a screening test. British Journal of Health Psychology, 2, 317-326.
38. Miller, S. M., Brody, D. S., & Summerton, J. (1988). Styles of coping with stress: Implications for health. Journal of Personality and Social Psychology, 54, 142-148.
39. Nair, K., Dolovich, L., Cassels, A., McCormack, J., Levine, M., Gray, J., et al. (2002). What patients want to know about their medications. Canadian Family Physician, 48, 104-110.
40. Nerenz, D. R., & Leventhal, H. (1983). Self-regulation theory in chronic illness. In T. G. Burish & L. A. Bradley (Eds.), Coping with chronic disease: Research and applications (pp. 13-38). New York: Academic Press.
41. Scott, J. T., & Thompson, D. R. (2003). Assessing the information needs of post-myocardial infarction patients: A systematic review. Patient Education and Counseling, 50, 167-177.
42. Shiloh, S. (1996a). Decision making in the context of genetic risk. In T. Marteau & M. Richards (Eds.), The troubled helix: Social and psychological implications of the new human genetics (pp. 82-103). Cambridge, England: Cambridge University Press.
43. Shiloh, S. (1996b). Genetic counseling: A new area of interest for psychologists. Professional Psychology: Research and Practice, 27, 475-486.
44. Shiloh, S., Berkenstadt, M., Miran, N., Bat-Miriam-Katznelson, M., & Goldman, B. (1997). Mediating effects of perceived personal control in coping with a health threat: The case of genetic counseling. Journal of Applied Social Psychology, 27, 1146-1173.
45. Skinner, E. A. (1996). A guide to constructs of control. Journal of Personality and Social Psychology, 71, 549-570.
46. Snyder, C. R., Tennen, H., Affleck, G., & Cheavens, J. (2000). Social, personality, clinical, and health psychology tributaries: The merging of a scholarly "river of dreams." Personality and Social Psychology Review, 4, 16-29.
47. Talbot, F., Nouwen, A., Gingras, J., Bélanger, A., & Audet, J. (1999). Relation of diabetes intrusiveness and personal control to symptoms of depression among adults with diabetes. Health Psychology, 18, 537-542.
48. Tang, P. C., & Newcomb, C. (1998). Informing patients: A guide for providing patient health information. Journal of the American Medical Informatics Association, 5, 563-570.
49. Taylor, S. E. (1983). Adjustment to threatening events: A theory of cognitive adaptation. American Psychologist, 38, 1161-1172.
50. Teigen, K. H., Brun, W., & Frydenlund, R. (1999). Judgments of risk and probability: The role of frequentistic information. Journal of Behavioral Decision Making, 12, 123-139.
51. Thompson, S. C. (1981). Will it hurt less if I can control it? A complex answer to a simple question. Psychological Bulletin, 90, 89-101.
52. Trevena, L., & Barratt, A. (2003). Integrated decision making: Definitions for a new discipline. Patient Education and Counseling, 50, 265-268.
53. Tversky, A., & Fox, C. R. (1995). Weighing risk and uncertainty. Psychological Review, 102, 269-283.
54. U.S. Congress, Office of Technology Assessment. (1992). Cystic fibrosis and DNA tests: Implications of carrier screening. Washington, DC: U.S. Government Printing Office.
55. van Zuuren, F. J. (1997). The standard of neutrality during genetic counseling: An empirical investigation. Patient Education and Counseling, 32, 69-79.
56. van Zuuren, F. J., van Schie, E. C. M., & van Baaren, N. K. (1997). Uncertainty in the information provided during genetic counseling. Patient Education and Counseling, 32, 129-139.
57. Verplanten, B., & Svenson, O. (1997). Personal involvement in human decision making: Conceptualizations and effects on decision processes. In R. Ranyard, W. R. Crzier, & O. Svenson (Eds.), Decision making: Cognitive models and explanations (pp. 40-57). London: Routledge.
58. Vlek, C. (1987). Risk assessment, risk perception and decision making about courses of action involving genetic risk: An overview of concepts and methods. Birth Defects: Original Article Series, 23, 171-207.
59. Wertz, D. C., Sorenson, J. R., & Heeren, T. C. (1987). Communication in health professional-lay encounters: How often does each party know what the other wants to discuss? In B. D. Ruben (Ed.), Information and behavior (pp. 329-342). New Brunswick, NJ: Transaction Publishers.
60. Williamson, J., Ranyard, R., & Cuthbert, L. (2000). Risk management in everyday insurance decisions: Evidence from a simulation study. Risk, Decision and Policy, 5, 19-38.