Uncertainty in the information provided during genetic counseling

Patient Education and Counseling

Volumn 32, Issue 1-2, 1997, Pages 129-139

  Van Zuuren, F J ^a   Van Schie, E C M ^b   Van Baaren, N K ^a  

^a UNIVERSITY OF AMSTERDAM   (Netherlands)

^b LEIDEN UNIVERSITY   (Netherlands)

Author keywords

Controllability; Genetic information; Predictability

Indexed keywords

ARTICLE; COMPETENCE; GENETIC COUNSELING; GENETIC RISK; GENETIC SUSCEPTIBILITY; HEALTH PROMOTION; PRIORITY JOURNAL; RELIABILITY;

ADULT; AGED; COHORT STUDIES; COMMUNICATION; FEAR; FEMALE; GENETIC COUNSELING; GENETIC DISEASES, INBORN; HUMANS; MALE; MIDDLE AGED; PATIENT EDUCATION; REPRODUCIBILITY OF RESULTS; RISK FACTORS; STRESS, PSYCHOLOGICAL;

EID: 0030870556     PISSN: 07383991     EISSN: None     Source Type: Journal    
DOI: 10.1016/S0738-3991(97)00052-9     Document Type: Article

References (38)

1. Kessler S Psychological aspects of genetic counseling. VI. A critical review of the literature dealing with education and reproduction. Am J Med Gen. 34:1989;340-353.
2. Frets PG. The reproductive decision after genetic counseling. Dissertation, Erasmus University Rotteram, 1990.
3. Tibben A, Frets PG, van der Kamp JJP, Niermeijer MF, vander Vlis Vegter M, Roos RAC, Rooijmans HGM, van Ommen G-JB, Verhage F On attitudes and appreciation six months after predictive DNA testing for Huntington's disease in the Dutch program. Am J Med Gen. 48:1993;103-111.
4. Lips CJM, Vroom THM, Beemer FA, Höppener JWM, ten Kroode HFJ, Dingelstad JAM De ontdekking van genen verantwoordelijk voor erfelijke tumorsyndromen; klinische en maatschappelijke gevolgen. [The discovery of genes responsible for hereditary tumors]. Ned Tijdschr Geneeskd. 138:1994;60-63.
5. Lippman A Research studies in applied human genetics: A quantitative analysis and critical review of recent literature. Am J Med Gen. 41:1991;105-110.
6. Farrant W. 'Who's for amniocentesis?' The politics of prenatal screening. In: Homans H, editor. The sexual politics of reproduction. London: Gower, 1985, pp. 96-177.
7. Harper PS. Genetic counselling. An introduction. In: Harper PS, editor. Practical Genetic Counselling. London: Wright, 1988, pp. 3-17.
8. Witmer JM, Wedl L, Black B Genetic counseling: ethical and professional role implications. J Couns Developm. 64:1986;337-340.
9. Lippman-Hand A, Fraser FC Genetic counseling: provision and reception of genetic information. Am J Med Gen. 3:1979;113-127.
10. Richard R. Follow-up study by telephone, six weeks after the final communication with the clinical geneticist. In: Evers-Kieboom G, Fryns J-P, Cassiman J-J, van den Berghe H, editors. Psychosocial aspects of genetic counseling. Birth Defects: Original Article Series. New York: Wiley, 1992;28:37-40.
11. Spijker HG van. Support in decision making processes in the post-counseling period. In: Evers-Kieboom G, Fryns J-P, Cassiman J-J, Van den Berghe H, editors. Psychosocial aspects of genetic counseling, New York: Wiley, 1992:29-35.
12. Lippman-Hand A, Fraser FC Genetic counseling-the postcounseling period: I. Parents' perceptions of uncertainty. Am J Med Gen. 4:1979;51-71.
13. Zuuren FJ van. Health care technology: Some of its psychological implications. In: Miedema S, Biesta G, Boog B, Smaling A, Wardekker W, Levering B, editors. The politics of human science; Human science at the intersection of politics, education, social change, and political decision making. Brussels: VUB University Press / Concord (MA): Paul and Company, 1994:211-29.
14. Miller SM. Predictability and human stress: Towards a clarification of evidence and theory. In: Berkowitz L, editor. Advances in experimental social psychology. New York: Academic Press, 1981;14:203-56.
15. Paterson JP, Neufeld RWJ Clear danger: Situational determinants of the appraisal of threat. Psychol Bull. 101:1987;404-416.
16. Steptoe A. Psychobiological stress responses. In: Johnston M, Wallace L, editors. Stress and medical procedures. New York: Oxford University Press, 1990:3-25.
17. Perrez M, Reicherts M. Stress: Stress, coping and health, a situation-behavior approach; Theory, methods, applications. Seattle: Hogreve and Huber, 1992.
18. Shilo S, Sagi M Effect of framing on the perception of genetic recurrence risks. Am J Med Gen. 33:1989;130-135.
19. Huys J, Evers-Kieboom G, d'Ydewalle G. Framing biases in genetic risk perception. In: Caverni J-P, Fabre J-P, Gonzalez M, editors. Cognitive Biases. North-Holland: Elsevier Science Publishers, 1990:59-68.
20. Levin IP, Schnittjer SK, Thee SL Information framing effects in social and personal decisions. J Exp Soc Psychol. 24:1988;520-529.
21. Marteau TM Framing of information: Its influence upon decisions of doctors and patients. Br J Soc Psychol. 28:1989;89-94.
22. Rybash JM, Roodin PA The framing of heuristic influences: Judgements about younger and older adults' decision to refuse medical treatment. Appl Cogn Psychol. 3:1989;171-180.
23. van Schie ECM, Van der Pligt J Influencing risk preference in decision making: The effects of framing and salience. Organiz Behav Hum Dec Processes. 63(3):1995;264-275.
24. Erev J, Cohen BL Verbal versus numerical probabilities: Efficiency, biases and the preference paradox. Organiz Behav Hum Dec Processes. 45:1990;1-18.
25. Kessler S, Levine EK Psychological aspects of genetic counseling. IV. The subjective assessment of probability. Am J Med Gen. 28:1987;361-370.
26. Zuuren FJ van. The standard of neutrality during genetic counseling: an empirical investigation, 1997 (this issue).
27. Cioffi D When good news is bad news: Medical wellness as a non-event in undergraduates. Health Psychology. 13:1994;63-72.
28. Lerman C, Daly M, Masny A, Balshem A Attitudes about genetic testing for breast-ovarian cancer susceptibility. J Clin Oncol. 12:1994;843-850.
29. Lerman C, Croyle R Psychological issues in genetic testing for breast cancer susceptibility. Arch Intern Med. 154:1994;609-616.
30. Wiggins S, Whyte P, Huggins M, Adams S, Theilman J, Bloch M, Sheps SB, Schechter MT, Hayden MR The psychological consequences of predictive testing for Huntington's diseasee. N Engl J Med. 327:1992;1401-1405.
31. Leonard CO, Chase GA, Childs B Genetic counseling: A consumers' view. N Engl J Med. 287(9):1972;433-439.
32. Scheier MF, Carver CS Effects of optimism on psychological and physical well-being: Theoretical overview and empirical update. Cogn Ther Res. 16:1992;201-228.
33. Wallston BS, Wallston KA, Kaplan GD, Maides SA Development and validation of the health locus of control (HLC) scale. J Cons Clin Psychol. 44:1976;580-585.
34. Lazarus RS, Launier R. Stress-related transactions between person and environment. In: Pervin LA, Lewis M, editors. Perspectives in interactional psychology. New York: Plenum, 1978:287-321.
35. Miller SM The interacting effects of coping styles and situational variables in gynecologic settings: Implications for research and treatment. J Psychosom Obst Gyn. 9:1988;23-24.
36. Zuuren FJ van, Wolfs HM Styles of coping under threat; Personal and situational aspects of monitoring and blunting. Pers Indiv Diff. 12(2):1991;141-149.
37. Zuuren FJ van Coping style and anxiety during prenatal diagnosis. J Repr Inf Psychol. 11:1993;57-59.
38. Marteau TM Psychological implications of genetic screening. Birth Defects: Original Article Series. 28(1):1992;185-190.