Identifying expressions of pleasure and displeasure by persons with profound and multiple disabilities

Journal of Intellectual and Developmental Disability

Volumn 31, Issue 1, 2006, Pages 28-38

  Petry, Katja ^a   Maes, Bea ^a  

^a UNIVERSITY OF LEUVEN   (Belgium)

Author keywords

Affective communication; Displeasure; Happiness; Multiple disability; Pleasure; Profound disability; Quality of life

Indexed keywords

ADOLESCENT; ADULT; AFFECT; ARTICLE; CONTROLLED STUDY; CORRELATION ANALYSIS; DISABILITY; FEMALE; HUMAN; MALE; MOOD; PARENT; QUESTIONNAIRE; RESEARCH; SCHOOL CHILD; VIDEORECORDING;

ADOLESCENT; ADULT; AFFECT; CHILD; DISABLED PERSONS; FACIAL EXPRESSION; FEMALE; HAPPINESS; HUMANS; MALE; MENTALLY DISABLED PERSONS; MOTOR ACTIVITY; NONVERBAL COMMUNICATION; OBSERVER VARIATION; PERSONAL SATISFACTION; QUALITY OF LIFE; VIDEO RECORDING;

EID: 33645104399     PISSN: 13668250     EISSN: 14699532     Source Type: Journal    
DOI: 10.1080/13668250500488678     Document Type: Article

References (39)

1. Arthur, M. (2004). Patterns amongst behavior states, socio-communicative, and activity variables in educational programs for students with profound and multiple disabilities. Journal of Developmental and Physical Disabilities, 16, 125-149.
2. Arthur, M., Butterfield, N., & Sigafoos, J. (1995). Promoting communication: Strategies to promote increased opportunities for communicative interactions. In M. Arthur, N. Butterfield, & J. Sigafoos (Eds.), Partners in everyday communicative exchanges: A guide to promoting interaction involving people with severe intellectual disability (pp. 46-71). Sydney: MacLennan & Petty.
3. Bloomberg, K., West, D., & Iacono, T. A. (2003). Picture it: An evaluation of a training program for carers of adults with severe and multiple disabilities. Journal of Intellectual & Developmental Disability, 28, 260-282.
4. Bradley, V. J., Taylor, M., Mulkern, V., & Leff, J. (1997). Quality issues and personnel: In search of competent community support workers. In R. L. Schalock (Ed.), Quality of life. Vol. II: Applications to persons with disabilities (pp. 149-164). Washington: American Association on Mental Retardation.
5. Cummins, R. A. (1997). Self-rated quality of life scales for people with an intellectual disability: A review. Journal of Applied Research in Intellectual Disability, 10, 199-216.
6. Daelman, M. (2003). Een analyse van de presymbolische communicatie bij blinde kinderen met een meervoudige handicap (doctoraatsproefschrift) [An analysis of the presymbolic communication of blind children with multiple disabilities. (Doctoral dissertation)]. Leuven: K. U. Leuven, Centrum voor Orthopedagogiek.
7. Diener, E. (2000). Subjective well-being: the science of happiness and a proposal for a national index. American Psychologist, 55, 34-43.
8. Dobson, S., Upadhyaya, S., & Stanley, B. (2002). Using an interdisciplinary approach to training to develop the quality of communication with adults with profound learning disabilities by care staff. International Journal of Language & Communication Disorders, 37, 41-57.
9. Felce, D., Jones, E., & Lowe, K. (2002). Active support: Planning daily activities and support for people with severe mental retardation. In S. Holburn, & P. M. Vietze (Eds.), Personcentered planning. Research, practice and future directions (pp. 247-269). Baltimore: P. H. Brookes.
10. Green, C. W., & Reid, D. H. (1996). Defining, validating, and increasing indices of happiness among people with profound multiple disabilities. Journal of Applied Behavior Analysis, 29, 67-78.
11. Grove, N., Bunning, K., Porter, J., & Olsson, C. (1999). See what I mean: Interpreting the meaning of communication by people with severe and profound intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 12, 190-203.
12. Guess, D., Roberts, S., & Rues, J. (2002). Longitudinal analysis of state patterns and related variables among infants and children with significant disabilities. Research and Practice for Persons with Severe Disabilities, 27, 112-124.
13. Hagopian, L. P., Long, E. S., & Rush, K. S. (2004). Preference assessment procedures for individuals with developmental disabilities. Behavior Modification, 28, 668-677.
14. Hatton, C. (2004). Choice. In E. Emerson, C. Hatton, T. Thompson, & T. R. Parmenter (Eds.), The international handbook of applied research in intellectual disabilities (pp. 335-351). Chichester: John Wiley & Sons.
15. Heal, L. W., & Sigelman, C. K. (1996). Methodological issues in quality of life measurement. In R. L. Schalock (Ed.), Quality of life. Vol. I: Conceptualization and measurement (pp. 91-104). Washington: American Association on Mental Retardation.
16. Hogg, J., Reeves, D., Roberts, J., & Mudford, O. C. (2001). Consistency, context and confidence in judgements of affective communication in adults with profound intellectual and multiple disabilities. Journal of Intellectual Disability Research, 45, 18-29.
17. Lancioni, G. E., O'Reilly, M. F., & Emerson, E. (1996). A review of choice research with people with severe and profound developmental disabilities. Research in Developmental Disabilities, 17, 391-411.
18. Logan, K. R., & Gast, D. L. (2001). Conducting preference assessments and reinforcer testing for individuals with profound multiple disabilities: Issues and procedures. Exceptionality, 9, 123-134.
19. Lyons, G. (2003). Life satisfaction for children with profound and multiple disabilities: Seeking eudemonia. (Doctoral dissertation). Newcastle: University of Newcastle, Faculty of Education and Arts.
20. McVilly, K. R., Burton Smith, R. M., & Davidson, J. A. (2000). Concurrence between subject and proxy ratings of quality of life for people with and without intellectual disabilities. Journal of Intellectual & Developmental Disability, 25, 19-40.
21. Nafstad, A., & Rødbroe, I. (1999). Co-creating communication. Perspectives on diagnostic education for individuals who are congenitally deafblind and individuals whose impairments may have similar effects. Dronninglund: Forlaget Nord-Press.
22. Nind, M., & Hewett, D. (2001). A practical guide to intensive interaction. Kidderminster: British Institute of Learning Disabilities.
23. Oliver, C. (2004). The neglect of psychological disorder in people with severe and profound intellectual disabilities. Journal of Intellectual Disability Research, 48, 360.
24. Perry, J., & Felce, D. (2002). Subjective and objective quality of life assessment: Responsiveness, response bias, and resident: proxy concordance. Mental Retardation, 40, 445-456.
25. Reid, D. H., & Green, C. W. (2002). Person-centered planning with people who have severe multiple disabilities: Validated practices and misapplications. In S. Holburn, & P. M. Vietze (Eds.), Person-centered planning. Research, practice and future directions (pp. 183-202). Baltimore: P. H. Brookes.
26. Rødbroe, I., & Souriau, J. (1999). Communication. In J. McInnes (Ed.), A guide to planning and support for individuals who are deafblind (pp. 119-149). Toronto: University of Toronto Press.
27. Roemer, M. H. P., & Van Dam, L. (2004). Verstaanbaar maken. Communicatie met mensen met een zeer ernstige verstandelijke (meervoudige) handicap: Inventarisatie en overdracht van ervaringskennis (Proefschrift) [Making oneself understood. Communication with people with profound intellectual (multiple) disabilities: Inventory and transfer of practical knowledge (Doctoral dissertation).]. Maastricht: University of Maastricht, Faculty of Social Sciences.
28. Schalock, R. L. (Ed.), (1996). Quality of Life. Vol. I: Conceptualization and measurement. Washington: American Association on Mental Retardation.
29. Schalock, R. L., Bonham, G. S., & Marchand, C. B. (2000). Consumer based quality of life assessment: A path model of perceived satisfaction. Evaluation and Program Planning, 23, 75-85.
30. Schalock, R. L., Brown, I., Brown, R., Cummins, R. A., Felce, D., Matikka, L., Keith, K. D., & Parmenter, T. R. (2002). Conceptualization, measurement, and application of quality of life for people with intellectual disabilities: Report of an international panel of experts. Mental Retardation, 40, 457-470.
31. Schalock, R. L., & Felce, D. (2004). Quality of life and subjective well-being: Conceptual and measurement issues. In E. Emerson, C. Hatton, T. Thompson, & T. R. Parmenter (Eds.), The international handbook of applied research in intellectual disabilities (pp. 261-279). Chichester: John Wiley & Sons.
32. Stancliffe, R. J. (2000). Proxy respondents and quality of life. Evaluation and Program Planning, 23, 89-93.
33. Van der Maat, S. (1992). Communicatie tussen personen met een diep mentale handicap en hun opvoed(st) ers [Communication between persons with a profound intellectual disability and their primary caregivers]. Leuven: Garant.
34. Vlaskamp, C., & Zijlstra, R. (2004). Leisure time or killing time? An analysis of leisure provision for persons with profound intellectual and multiple disabilities (Congress Abstract). Journal of Intellectual Disability Research, 48, 358.
35. Wakefield, P., & Ogletree, B. (1995). Training team members to respond to the communicative behaviors of children with profound handicaps. Focus on Autistic Behavior, 10, 1-15.
36. Warren, S., Yoder, P., Gazdag, G., Kyoungran, K., & Jones, H. (1993). Facilitating prelinguistic communication skills in young children with developmental delay. Journal of Speech and Hearing Research, 36, 83-97.
37. Zijlstra, R. (2003). Dansen met olifanten. Een onderzoek naar de implementatie van het opvoedingsprogramma in de zorg voor mensen met ernstige meervoudige beperkingen. [Dancing with elephants. A study of the implementation of an educational program in the care for persons with profound multiple disabilities.] Groningen: Stichting Kinderstudies.
38. Zijlstra, H. P., & Vlaskamp, C. (2004). The impact of medical health conditions of children with profound and multiple disabilities (PMD) on professional support in day care centres (Congress Abstract). Journal of Intellectual Disability Research, 48, 356.
39. Zijlstra, R. H. P., Vlaskamp, C., & Buntinx, W. H. E. (2001). Direct care staff turnover: An indicator of the quality of life of individuals with profound multiple disabilities. European Journal on Mental Disability, 22, 38-55.