Concurrence between subject and proxy ratings of quality of life for people with and without intellectual disabilities

Journal of Intellectual and Developmental Disability

Volumn 25, Issue 1, 2000, Pages 19-39

  Mcvilly, Keith R ^a   Burton Smith, Rosanne M ^a   Davidson, John A ^a  

^a UNIVERSITY OF TASMANIA   (Australia)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; ARTICLE; EMPATHY; FEMALE; HUMAN; HUMAN EXPERIMENT; INTELLECTUAL IMPAIRMENT; MALE; PARENT; QUALITY OF LIFE; RELATIVE; SIBLING;

EID: 0034088687     PISSN: 1326978X     EISSN: None     Source Type: Journal    
DOI: 10.1080/132697800112767     Document Type: Article

References (42)

1. American Psychiatric Association (1994). Diagnostic and statistical manual of mental disorders, fourth edition: DSM-IV. Washington, D.C.
2. Andrews, F., & Withey, S. (1976). Social indicators of 'well-being': American's perceptions of life quality. New York: Plenum Press.
3. Barlow, J., & Kirby L. (1991). Residential satisfaction of persons with an intellectual disability living in an institution or the community. Australia & New Zealand Journal of Developmental Disabilities, 17, 7-23.
4. Boyle, C., & Brann, E. (1992). Proxy respondents and the validity of occupational and other exposure data. American Journal of Epidemiology, 136, 712-721.
5. Burnett, P. (1989). Assessing satisfaction in people with an intellectual disability living in community based residential facilities. Australian Disability Review, 1, 14-19.
6. Chun Yu, A., Jupp, J., & Taylor, A. (1996). The discriminate validity of the Lifestyle Satisfaction Scale (LSS) for the assessment of Australian adults with intellectual disabilities. Journal of Developmental & Intellectual Disability, 21, 3-15.
7. Commonwealth of Australia (1986). Commonwealth Disability Services Act (1986). Canberra, Australia: Commonwealth Government Printing Office.
8. COMPIC Development Association (1992). COMPIC pictographs. Victoria, Australia: COMPIC Development Association.
9. Cummins, R. (1993). Comprehensive Quality of Life Scale (ComQol) Fourth Edition. Toorak, Australia: School of Psychology, Deakin University.
10. Cummins, R. (1995). On the trail of the gold standard for subjective well-being. Social Indicators Research, 35, 179-200.
11. Cummins, R. (1998). The second approximation to an international standard for life satisfaction. Social Indicators Research, 43, 307-334.
12. Cummins, R., McCabe, M., Romeo, Y., & Gullone, E. (1994). The Comprehensive Quality of Life Scale: Instrument development and psychometric evaluation on college staff and students. Educational and Psychological Measurement, 54, 372-382.
13. Davey, V. & Pitfield-Smith, S. (1990). A model for wholistic evaluation. Adelaide, Australia: Barkuma Incorporated.
14. Davey, V. & Pitfield-Smith, S. (1992). Wholistic Evaluation: an evaluation package developed by Barkuma Inc. for the review of residential programs. Adelaide, Australia: Barkuma Incorporated.
15. Emerson, E. & Hatton, C. (1996). Deinstitutionalisation in the UK and Ireland: outcomes for service users. Journal of Developmental & Intellectual Disability, 21, 17-39.
16. Epstein, A., Hall. J., Tognetti, J., Son, L., & Conant, L. (1989). Using proxies to evaluate quality of life. Medical Care, 27, 91-98.
17. Evans, G., Felce, D., & Hobbs, S. (1991). Evaluating service quality. Cardiff, UK: S.C.O.V.O.
18. Felce, D., & Perry, J. (1993). Quality of life: a contribution to its definition and measurement. Cardiff, UK: Welsh Centre for Learning Disabilities.
19. Fikree, F., Gray, R., & Shah, F. (1993). Can men be trusted? A comparison of pregnancy histories reported by husbands and wives. American Journal of Epidemiology, 138, 237-242.
20. Fogarty, D., & Cummins, R. (1994). Quality of life bibliography. Melbourne, Australia: School of Psychology, Deakin University.
21. Fontana, A., Marcus, J., Dowds, B., & Hughes, L. (1980). Psychological impairment and psychological health in the psychological well-being of the physically ill. Psychosomatic Medicine, 42, 279-288.
22. Hudson, A., & Cummins, R. (1991). General Service Plans: An evaluation of their content within two service delivery systems. Australia & New Zealand Journal of Developmental Disabilities, 17, 401-411.
23. Halabi, S., Zurayk, H., Awaida, R., Darwish, M., & Saab, B. (1992). Reliability and validity of self and proxy reporting of morbidity data. International Journal of Epidemiology, 21, 607-612.
24. Jenkinson, J., Copeland, C., Drivas, V., Scoon, H., & Yap, M. (1992). Decision making by community residents with an intellectual disability. Australia & New Zealand Journal of Developmental Disabilities, 18, 1-8.
25. McCusker, J., & Stoddard, A. (1984). Use of a surrogate for the Sickness Impact Profile. Medical Care, 22, 789-795.
26. McVilly, K. (1995). Interviewing people with a learning disability about their residential service. British Journal of Learning Disabilities, 23, 138-142.
27. McVilly, K., & Rawlinson, R.. (1998). Quality of life issues in the development and evaluation of services for people with intellectual disability. Journal of Intellectual & Developmental Disability, 23, 199-218.
28. Mehrabian, A., & Epstein, N. (1972). A measure of emotional empathy. Journal of Personality, 40, 525-543.
29. Nevitt, M., Cummins, S., Browner, W., Seeley, D., Cauley, J., Vogt, T., & Black, D. (1992). The accuracy of self-report of fractures in elderly women: evidence from a prospective study. American Journal of Epidemiology, 135, 490-499.
30. Parmenter, T. (1992). Quality of life of people with developmental disabilities. International Review of Research in Mental Retardation, 18, 247-287.
31. Rapley, M., Ridgway, J., & Beyer, S. (1997). Staff:staff and staff:client reliability of the Schalock & Keith (1993) Quality of Life Questionnaire. Journal of Intellectual Disability Research, 42, 37-42.
32. Rende, R., & Plomin, R. (1991). Child and parent perceptions of the upsettingness of major life events. Journal of Child Psychology and Psychiatry and Allied Disciplines, 32, 627-633.
33. Rigby, K., McCarron, L., & Ribby, J. (1990). Quality of life in a nursing home: a report on the perceptions of residents and staff at Julia Farr Centre. Adelaide, Australia: South Australian Institute of Technology.
34. Rowitz, L. (1989). Editorial: Trends in mental retardation in the 1990s. Mental Retardation, 27, iii-vi.
35. Schalock, R. (1989). Services for developmentally disabled adults - development, implementation and evaluation. Baltimore, AL: University Park Press.
36. Schalock, R., & Keith, K. (1993). Quality of Life Questionnaire. Hastings NE: IDS Publishing Corporation.
37. Schalock, R., Keith, K., & Hoffman, K. (1990). Quality of Life Questionnaire: Standardisation Manual. Hastings NE: Mid Nebraska Mental Retardation Service.
38. Sigelman, C., Budd, E. Spanhel, C., & Schoenrock, C. (1981). When in doubt, say yes: acquiescence in interviews with mentally retarded persons. Mental Retardation, 2, 53-58.
39. Stancliffe, R. (1995). Assessing opportunities for choice making: A comparison of self and staff reports. American Journal on Mental Retardation, 99, 418-429.
40. Tasmanian State Government (1992). Disability Services Act (Tas) 1992. Hobart, Australia: Government Printing Office.
41. United Nations (1994). The standard rules on the equalisation of opportunities for persons with disabilities. NY: United Nations.
42. Wehmeyer, M., and Metzler, C. (1995). How self-determined are people with mental retardation? The National Consumer Survey. Mental Retardation, 33, 111-119.