Psychosocial problems of bereaved families of HIV-infected hemophiliacs in Japan

Social Science and Medicine

Volumn 62, Issue 10, 2006, Pages 2397-2410

  Mizota, Yuri ^a   Ozawa, Megumi ^a   Yamazaki, Yoshihiko ^a   Inoue, Yoji ^b  

^a UNIVERSITY OF TOKYO   (Japan)

^b MIE PREFECTURAL COLLEGE OF NURSING   (Japan)

Author keywords

Bereavement; Discrimination; Hemophilia; HIV AIDS; Japan; Posttraumatic stress disorder

Indexed keywords

HUMAN IMMUNODEFICIENCY VIRUS; MENTAL HEALTH;

BEREAVEMENT; DAILY LIFE ACTIVITY; EMOTIONALITY; FAMILY RELATION; GRIEF; GUILT; HEALTH SURVEY; HEMOPHILIA; HUMAN; HUMAN IMMUNODEFICIENCY VIRUS INFECTION; INTERVIEW; JAPAN; PSYCHOLOGICAL WELL BEING; PSYCHOSOCIAL DISORDER; QUESTIONNAIRE; RATING SCALE; REVIEW;

EID: 33645056688     PISSN: 02779536     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.socscimed.2005.10.032     Document Type: Article

References (72)

1. A.A. Alonzo, and N.R. Reynolds Stigma, HIV and AIDS: An exploration and elaboration of a stigma trajectory Social Science & Medicine 41 3 1995 303 315
2. A. Asai HIV and the primary care physician in Japan Journal of Acquired Immune Deficiency Syndromes & Human Retrovirology 14 Suppl. 2 1997 S30 S34
3. N. Asukai Huanshogai: gaishogo sutoresu shogai (PTSD). [Anxiety disorder: Posttraumatic stress disorder (PTSD)] Clinical Neurology, extra number volume 1999 171 177
4. N. Asukai, H. Kato, N. Kawamura, Y. Kim, K. Yamamoto, and J. Kishimoto Reliability and validity of the Japanese-language version of the impact of event scale-revised (IES-R-J): Four studies of different traumatic events The Journal of Nervous & Mental Disease 190 3 2002 175 182
5. N. Asukai, and Y. Miyake Posttraumatic stress disorder as a function of the traumatic event, posttraumatic stress and pretrauma vulnerability Psychiatry & Clinical Neurosciences 52 Suppl. 1998 S75 S81
6. G.A. Bonanno, and S. Kaltman Toward an integrative perspective on bereavement Psychological Bulletin 125 6 1999 760 776
7. G.A. Bonanno, and S. Kaltman The varieties of grief experience Clinical Psychology Review 21 5 2001 705 734
8. J. Breslau Globalizing disaster trauma: Psychiatry, science, and culture after the Kobe earthquake Ethos 28 2 2000 174 197
9. Y. Caspi, C. Poole, R.F. Mollica, and M. Frankel Relationship of child loss to psychiatric and functional impairment in resettled Cambodian refugees The Journal of Nervous & Mental Disease 186 8 1998 484 491
10. M.A. Chesler Participatory action research with self-help groups: An alternative paradigm for inquiry and action American Journal of Community Psychology 19 5 1991 757 768
11. J.W. Creswell Qualitative inquiry and research design: Choosing among five traditions 1998 Sage Thousand Oaks
12. Y. Doi, and M. Minowa Factor structure of the 12-item General Health Questionnaire in the Japanese general adult population Psychiatry & Clinical Neurosciences 57 4 2003 379 383
13. K.J. Doka Disenfranchised grief K.J. Doka Disenfranchised grief: Recognizing hidden sorrow 1989 Lexington Books New York 3 11
14. K.J. Doka AIDS, fear, and society 1997 Taylor & Francis Washington, DC
15. A. Duran, C.W. Turner, and D.A. Lund Social support, perceived stress, and depression following the death of a spouse in later life D.A. Lund Older bereaved spouses; Research with practical applications 1989 Hemisphere Publishing New York 69 78
16. M. Eisenbruch Cross-cultural aspects of bereavement. II: Ethnic and cultural variations in the development of bereavement practice Culture, Medicine & Psychiatry 8 4 1984 315 347
17. N. Elia Grief and loss in HIV/AIDS work M.G. Winiarski HIV mental health for the 21st century 1997 New York University Press New York 67 81
18. M. Eriguchi, Y. Takeda, Y. Fujii, K. Shimada, and N. Kawasaki A survey on surgeons' attitudes and practices in the care of HIV-infected patients in Japan Biomedicine & Pharmacotherapy 49 4 1995 211 214
19. E.A. Feldman HIV and blood in Japan; Transforming private conflict into public scandal E.A. Feldman R. Bayer Blood feuds: AIDS, blood and the politics of medical disaster 1999 Oxford University Press New York 60 93
20. D.P. Goldberg The detection of psychiatric illness by questionnaire 1972 Oxford University Press Maundsley monographs, Oxford
21. D.P. Goldberg, R. Gater, N. Sartorius, T.B. Ustun, M. Piccinelli, and O. Gureje The validity of two versions of the GHQ in the WHO study of mental illness in general health care Psychological Medicine 27 1 1997 191 197
22. D.P. Goldberg, and P. Williams A user's guide to the General Health Questionnaire 1988 NFER-Nelson Windsor
23. G. Goldstein, and G. Kenet The impact of chronic disease on the family Haemophilia 8 3 2002 461 465
24. L.W. Green, M.A. George, M. Daniel, C.J. Frankish, C.J. Herbert, and W.R. Bowie Study of participatory research in health promotion: Review and recommendations for the development of participatory research in health promotion in Canada 1995 Institute of Health Promotion Research, University of British Columbia & B.C. Consortium for Health Promotion Research, Royal Society of Canada Ottawa
25. S.D. Harlow, E.L. Goldberg, and G.W. Comstock A longitudinal study of the prevalence of depressive symptomatology in elderly widowed and married women Archives of General Psychiatry 48 12 1991 1065 1068
26. S. Honda, Y. Shibata, and M. Nakane GHQ 12komoku situmonsi wo motiita seisinigakuteki shogai no sukuri-ningu. [Screening psychiatric disorders by using GHQ-12] Journal of Health and Welfare Statistics 48 10 2001 5 10
27. W. Hosaka Koseisho AIDS fairu [AIDS file of the Ministry of Health and Welfare] 1997 Iwanami Shoten Tokyo
28. C. Hyde Reflections on a journey: A research story C.K. Riessman Qualitative studies in social work research 1994 Sage Thousand Oaks 169 189
29. Japanese Foundation for AIDS Prevention. (2004). National surveillance of coagulation disorders in Japan, 2003 fiscal year report (in Japanese).
30. S. Kaltman, and G.A. Bonanno Trauma and bereavement: Examining the impact of sudden and violent deaths Journal of Anxiety Disorders 17 2 2003 131 147
31. S. Konishi Hanzai higaisha izoku: Trauma to sapoto. [The bereaved of crime victim: Trauma and support] 1998 Tokyo Shoseki Tokyo
32. S. Konishi Study on victimization of crime: The trauma of crime victims in Japan Psychiatry & Clinical Neurosciences 52 Suppl. 1998 S139 S144
33. Kyoto Chapter of Friends of Hemophilia Society. (1989). Yunyu ketueki seizai higai jittai chosa anketo. [Survey of the actual damage from importation of blood product].
34. R.B. Leflar Informed consent and patients' rights in Japan Houston Law Review 33 1 1996 1 112
35. D.R. Lehman, C.B. Wortman, and A.F. Williams Long-term effects of losing a spouse or child in a motor vehicle crash Journal of Personality & Social Psychology 52 1 1987 218 231
36. M. Lock Popular conceptions of mental health in Japan A.J. Marsella G.M. White Cultural conceptions of mental health and therapy 1984 D. Reidel Dordrecht 215 233
37. J. Lofland, and L.H. Lofland Analyzing social settings: A guide to qualitative observation and analysis 1995 Wadsworth Belmont
38. I. Markova, and C. Forbes Coping with haemophilia An International Review of Applied Psychology 33 4 1984 457 477
39. I. Markova, K. MacDonald, and C. Forbes Impact of haemophilia on child-rearing practices and parental cooperation Journal of Child Psychology & Psychiatry 21 2 1980 153 155
40. E. Miller A borderless age: AIDS, gender, and power in contemporary Japan 1994 UMI Dissertation Service Ann Arbor, MI
41. E. Miller The uses of culture in the making of AIDS neurosis in Japan Psychosomatic Medicine 60 4 1998 402 409
42. T. Mita, T. Nakai, N. Sekiguchi, K. Monya, K. Katayama, and Y. Kajimoto Psychiatric effects of the great Hanshin earthquake (1995): From the psychiatric outpatient department of a general hospital close to the disaster-stricken area Psychiatria et Neurogia Japonica 99 4 1997 215 233 (in Japanese)
43. T. Munakata AIDS in Japan 1994 Akashi Shoten Tokyo
44. S.A. Murphy, L.C. Johnson, and J. Lohan The aftermath of the violent death of a child: An integration of the assessments of parents' mental distress and PTSD during the first 5 years of bereavement Journal of Loss and Trauma 7 3 2002 203 222
45. Y. Nakagawa, and I. Daibo Seisin kenko chosahyo tebiki: nihonban GHQ. [Manual of the Japanese version of the General Health Questionnaire] 1985 Nihon Bunka Kagakusha Tokyo
46. E. Newman, E.A. Walker, and A. Gefland Assessing the ethical costs and benefits of trauma-focused research General Hospital Psychiatry 21 3 1999 187 196
47. M. Noda Saigai kyuuen [Disaster relief] 1995 Iwanami Shoten Tokyo
48. F. Otani Gendai no stigma: hansenbyo, seisinbyo, AIDS, and nanbyo no kannan. [Modern stigma: Hardships of Hansen's disease, mental disease, AIDS, and intractable diseases] 1993 Keiso Shobo Tokyo
49. C.M. Parkes Risk factors in bereavement: Implications for the prevention and treatment of pathological grief Psychiatric Annals 20 6 1990 308 313
50. C.M. Parkes Guidelines for conducting ethical bereavement research Death Studies 19 2 1995 171 181
51. J. Pierret Everyday life with AIDS/HIV: Surveys in the social sciences Social Science & Medicine 50 11 2000 1589 1598
52. G.M. Powell-cope, and M.A. Brown Going public as an AIDS family caregiver Social Science & Medicine 34 5 1992 571 580
53. P.C. Rosenblatt Ethics of qualitative interviewing with grieving families Death Studies 19 2 1995 139 155
54. C.M. Sanders Risk factors in bereavement outcome M. Stroebe W. Stroebe R.O. Hansson Handbook of bereavement: Theory, research, and intervention 1993 Cambridge University Press Cambridge 255 267
55. S. Sato Posttraumatic stress disorder among the bereaved: Follow-up study of 34 survivors whose family members were killed by motor vehicle accidents Japanese Journal of Clinical Psychiatry 27 12 1998 1575 1586 (in Japanese)
56. Y. Seki, Y. Yamazaki, Y. Inoue, C. Wakabayashi, and S. Seto How HIV infected haemophiliacs in Japan were informed of their HIV-positive status AIDS Care 14 5 2002 651 664
57. S.R. Shuchter, and S. Zisook The course of normal grief M. Stroebe W. Stroebe R.O. Hansson Handbook of bereavement: Theory, research, and intervention 1993 Cambridge University Press Cambridge 23 43
58. S. Simon Hemophilia and the family system Psychosomatics 25 11 1984 845 849
59. M.A. Simpson Traumatic bereavement and death-related PTSD C.R. Figley B.E. Bride N. Mazza Death and trauma: The traumatology of grieving 1997 Taylor & Francis Washington, DC 3 16
60. K. Soda, and S. Mizushima Health care systems in transition II. Japan, Part II. The current status of AIDS-HIV in Japan Journal of Public Health Medicine 20 1 1998 34 40
61. S. Sontag Illness as metaphor; AIDS and its metaphors 1990 Farrar, Straus and Giroux New York
62. D.J. Spooren, H. Henderick, and C. Jannes Survey description of stress of parents bereaved from a child killed in a traffic accident. A retrospective study of a victim support group Omega 42 2 2000-2001 171 185
63. M.J. Stewart, G. Hart, and K. Mann Living with haemophilia and HIV/AIDS: Support and coping Journal of Advanced Nursing 22 6 1995 1101 1111
64. W. Stroebe, and H. Schut Risk factors in bereavement outcome: A methodological and empirical review M. Stroebe R.O. Hansson W. Stroebe H. Schut Handbook of bereavement research: Consequences, coping, and care 2001 American Psychological Association Washington, DC 349 371
65. S.K. Stylianos, and M.L.S. Vachon The role of social support in bereavement M. Stroebe W. Stroebe R.O. Hansson Handbook of bereavement: Theory, research, and intervention 1993 Cambridge University Press Cambridge 397 410
66. D.M. Tarn, L.S. Meredith, M. Kagawa-Singer, S. Matsumura, S. Bito, and R.K. Oye Trust in one's physician: The role of ethnic match, autonomy, acculturation, and religiosity among Japanese and Japanese Americans Annals of Family Medicine 3 4 2005 339 347
67. Tokyo HIV Litigation Lawyers Group Yakugai AIDS saibansi. dai4kan. [History of trial of drug-transmitted HIV infection, Vol. 4] 2002 Nihon Hyoronsha Tokyo
68. D.S. Weiss, and C.R. Marmar The Impact of Event Scale-Revised J.P. Wilson T.M. Keane Assessing psychological trauma and PTSD 1997 The Guilford Press New York 399 411
69. F. Wright The role of the family as a support system for people with AIDS Nurse Practitioner Forum 2 2 1991 134 136
70. Y. Yamazaki S. Seto Health and QOL of medically induced HIV patients in Japan 2000 Yushindo Tokyo (in Japanese)
71. Y. Yanaga, O. Ono, and A. Shirahata Counseling for HIV-positive haemophiliacs in Japan Haemophilia 2 2 1996 109 113
72. S. Zisook, Y. Chentsova-Dutton, and S.R. Shuchter PTSD following bereavement Annals of Clinical Psychiatry 10 4 1998 157 163