메뉴 건너뛰기




Volumn 30, Issue 6, 2005, Pages 498-509

Correspondence between patients' preferences and surrogates' understandings for dying and death

Author keywords

Agreement; Communication; Dying; Family; Hospice; Proxy

Indexed keywords

ACCURACY; ADULT; AGED; ARTICLE; CONVERSATION; CORRELATION COEFFICIENT; DEATH; DEMOGRAPHY; DYING; FEMALE; HOSPICE PATIENT; HUMAN; HUMAN RELATION; INTERPERSONAL COMMUNICATION; MALE; PERCEPTION; STUDENT T TEST;

EID: 29244478598     PISSN: 08853924     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.jpainsymman.2005.06.006     Document Type: Article
Times cited : (50)

References (54)
  • 3
    • 0031018538 scopus 로고    scopus 로고
    • Perception of family members of the dying experience of older and serious ill patients
    • J. Lynn, L. Teno, and R. Phillips Perception of family members of the dying experience of older and serious ill patients Ann Inter Med 126 2 1997 97 106
    • (1997) Ann Inter Med , vol.126 , Issue.2 , pp. 97-106
    • Lynn, J.1    Teno, L.2    Phillips, R.3
  • 4
    • 0033013857 scopus 로고    scopus 로고
    • The concept of quality of life of dying persons in the context of health care
    • A.L. Stewart, J. Teno, D.L. Patrick, and J. Lynn The concept of quality of life of dying persons in the context of health care J Pain Symptom Manage 17 1999 93 108
    • (1999) J Pain Symptom Manage , vol.17 , pp. 93-108
    • Stewart, A.L.1    Teno, J.2    Patrick, D.L.3    Lynn, J.4
  • 5
    • 0034063575 scopus 로고    scopus 로고
    • Communication and decision-making in seriously ill patients: Findings of the SUPPORT project
    • K.E. Covinsky, J.D. Fuller, and K. Yaffe Communication and decision-making in seriously ill patients: findings of the SUPPORT project J Am Geriatr Soc 48 5 2000 S187 S193
    • (2000) J Am Geriatr Soc , vol.48 , Issue.5
    • Covinsky, K.E.1    Fuller, J.D.2    Yaffe, K.3
  • 6
    • 0036282057 scopus 로고    scopus 로고
    • Evolution in measuring the quality of dying
    • K.E. Steinhauser, E.C. Clipp, and J.A. Tulsky Evolution in measuring the quality of dying J Palliat Med 5 3 2002 407 414
    • (2002) J Palliat Med , vol.5 , Issue.3 , pp. 407-414
    • Steinhauser, K.E.1    Clipp, E.C.2    Tulsky, J.A.3
  • 7
    • 0344096741 scopus 로고    scopus 로고
    • Methodological challenges for measuring quality of care at the end of life
    • J.F. Fowler, K.M. Coppola, and J.M. Teno Methodological challenges for measuring quality of care at the end of life J Pain Symptom Manage 17 1999 114 119
    • (1999) J Pain Symptom Manage , vol.17 , pp. 114-119
    • Fowler, J.F.1    Coppola, K.M.2    Teno, J.M.3
  • 8
    • 0031964912 scopus 로고    scopus 로고
    • Measuring quality of care at the end of life
    • M.S. Donaldson, and M.J. Field Measuring quality of care at the end of life Arch Inter Med 158 2 1998 121 128
    • (1998) Arch Inter Med , vol.158 , Issue.2 , pp. 121-128
    • Donaldson, M.S.1    Field, M.J.2
  • 10
    • 0029317906 scopus 로고
    • Congruence of decisions between patients and their potential surrogates about life-sustaining therapies
    • M.K. Libbus, and C. Russell Congruence of decisions between patients and their potential surrogates about life-sustaining therapies J Nurs Sch 27 2 1995 135 140
    • (1995) J Nurs Sch , vol.27 , Issue.2 , pp. 135-140
    • Libbus, M.K.1    Russell, C.2
  • 11
    • 0032522694 scopus 로고    scopus 로고
    • The accuracy of substituted judgment in patients with terminal diagnoses
    • D.P. Sulmasy, P.B. Terry, and C.S. Weisman The accuracy of substituted judgment in patients with terminal diagnoses Ann Intern Med 128 8 1998 621 629
    • (1998) Ann Intern Med , vol.128 , Issue.8 , pp. 621-629
    • Sulmasy, D.P.1    Terry, P.B.2    Weisman, C.S.3
  • 12
    • 0028291847 scopus 로고
    • More talk, less paper: Predicting the accuracy of substituted judgements
    • D.P. Sulmasy, K.B. Haller, and P.B. Terry More talk, less paper: predicting the accuracy of substituted judgements Am J Med 96 1994 432 438
    • (1994) Am J Med , vol.96 , pp. 432-438
    • Sulmasy, D.P.1    Haller, K.B.2    Terry, P.B.3
  • 13
    • 0026694357 scopus 로고
    • Agreement between patients and their self-selected surrogates on difficult medical decisions
    • H. Hare, C. Pratt, and C. Nelson Agreement between patients and their self-selected surrogates on difficult medical decisions Arch Intern Med 152 1992 1049 1054
    • (1992) Arch Intern Med , vol.152 , pp. 1049-1054
    • Hare, H.1    Pratt, C.2    Nelson, C.3
  • 14
    • 0028140328 scopus 로고
    • Myth of substituted judgement: Surrogate decision making regarding life support is unreliable
    • J. Suhl, P. Simons, T. Reedy, and T. Garrick Myth of substituted judgement: surrogate decision making regarding life support is unreliable Arch Intern Med 154 1994 90 96
    • (1994) Arch Intern Med , vol.154 , pp. 90-96
    • Suhl, J.1    Simons, P.2    Reedy, T.3    Garrick, T.4
  • 15
    • 0027180001 scopus 로고
    • Medical treatment preferences of nursing home residents: Relationship to function and concordance with surrogate decision-makers
    • M.B. Gerety, L.K. Chiodo, D.B. Kanten, M.R. Tuley, and J.E. Cornell Medical treatment preferences of nursing home residents: relationship to function and concordance with surrogate decision-makers J Am Geriatr Soc 1993 1993 953 960
    • (1993) J Am Geriatr Soc , vol.1993 , pp. 953-960
    • Gerety, M.B.1    Chiodo, L.K.2    Kanten, D.B.3    Tuley, M.R.4    Cornell, J.E.5
  • 16
    • 85047692242 scopus 로고
    • Surrogates' predictions of seriously ill patients' resuscitation preferences
    • P.M. Layde, C.A. Beam, and S.K. Broste Surrogates' predictions of seriously ill patients' resuscitation preferences Arch Fam Med 4 1995 518 524
    • (1995) Arch Fam Med , vol.4 , pp. 518-524
    • Layde, P.M.1    Beam, C.A.2    Broste, S.K.3
  • 18
    • 0023791347 scopus 로고
    • Physicians' and spouses' predictions of elderly patients' resuscitation preferences
    • R.F. Uhlmann, R.A. Pearlman, and K.C. Cain Physicians' and spouses' predictions of elderly patients' resuscitation preferences J Gerontol 43 5 1988 M115 M121
    • (1988) J Gerontol , vol.43 , Issue.5
    • Uhlmann, R.F.1    Pearlman, R.A.2    Cain, K.C.3
  • 19
    • 0031667090 scopus 로고    scopus 로고
    • Surrogates' agreement with patients' resuscitation preferences: Effect of age, relationship, and SUPPORT intervention. Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatment
    • A.M. Marbella, N.A. Desbiens, N. Mueller-Rizner, and P.M. Layde Surrogates' agreement with patients' resuscitation preferences: effect of age, relationship, and SUPPORT intervention. Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatment J Crit Care 13 3 1998 140 145
    • (1998) J Crit Care , vol.13 , Issue.3 , pp. 140-145
    • Marbella, A.M.1    Desbiens, N.A.2    Mueller-Rizner, N.3    Layde, P.M.4
  • 20
    • 0037210223 scopus 로고    scopus 로고
    • Judging the quality of care at the end of life: Can proxies provide reliable information?
    • C.J. McPherson, and J.M. Addington-Hall Judging the quality of care at the end of life: can proxies provide reliable information? Soc Sci Med 56 1 2003 95 109
    • (2003) Soc Sci Med , vol.56 , Issue.1 , pp. 95-109
    • McPherson, C.J.1    Addington-Hall, J.M.2
  • 21
    • 0034673992 scopus 로고    scopus 로고
    • In search of a good death: Observations of patients, families, and providers
    • K.E. Steinhauser, E.C. Clipp, and M. McNeilly In search of a good death: observations of patients, families, and providers Ann Intern Med 132 2000 825 832
    • (2000) Ann Intern Med , vol.132 , pp. 825-832
    • Steinhauser, K.E.1    Clipp, E.C.2    McNeilly, M.3
  • 22
    • 0034669456 scopus 로고    scopus 로고
    • Factors considered important at the end of life by patients, family, physicians, and other care providers
    • K.E. Steinhauser, N.A. Christakis, and E.C. Clipp Factors considered important at the end of life by patients, family, physicians, and other care providers JAMA 284 2000 2476 2482
    • (2000) JAMA , vol.284 , pp. 2476-2482
    • Steinhauser, K.E.1    Christakis, N.A.2    Clipp, E.C.3
  • 23
    • 0022596990 scopus 로고
    • An alternative in terminal care: Results of the National Hospice Study
    • D.S. Greer, V. Mor, and J.N. Morris An alternative in terminal care: results of the National Hospice Study J Chronic Dis 39 1 1986 9 26
    • (1986) J Chronic Dis , vol.39 , Issue.1 , pp. 9-26
    • Greer, D.S.1    Mor, V.2    Morris, J.N.3
  • 24
    • 0028825863 scopus 로고
    • A controlled trial to improve care for seriously ill hospitalized patients: The study to understand prognoses and preferences for outcomes and risks of treatments (SUPPORT)
    • SUPPORT Principal Investigators A controlled trial to improve care for seriously ill hospitalized patients: the study to understand prognoses and preferences for outcomes and risks of treatments (SUPPORT) JAMA 274 20 1995 1591 1598
    • (1995) JAMA , vol.274 , Issue.20 , pp. 1591-1598
    • Principal Investigators, S.1
  • 26
    • 0034881825 scopus 로고    scopus 로고
    • Patient-focused, family-centered end-of-life medical care: Views of the guidelines and bereaved family members
    • J.M. Teno, V.A. Casey, L.C. Welch, and S. Edgman-Levitan Patient-focused, family-centered end-of-life medical care: views of the guidelines and bereaved family members J Pain Symptom Manage 22 3 2001 738 751
    • (2001) J Pain Symptom Manage , vol.22 , Issue.3 , pp. 738-751
    • Teno, J.M.1    Casey, V.A.2    Welch, L.C.3    Edgman-Levitan, S.4
  • 27
    • 0031903703 scopus 로고    scopus 로고
    • Measuring quality of life for patients with terminal illness: The Missoula-VITAS quality of life index
    • I.R. Byock, and M.P. Merriman Measuring quality of life for patients with terminal illness: the Missoula-VITAS quality of life index Palliat Med 12 4 1998 231 244
    • (1998) Palliat Med , vol.12 , Issue.4 , pp. 231-244
    • Byock, I.R.1    Merriman, M.P.2
  • 28
    • 0031051008 scopus 로고    scopus 로고
    • Validity of the McGill Quality of Life Questionnaire in the palliative care setting: A multi-centre Canadian study demonstrating the importance of the existential domain
    • S.R. Cohen, B.M. Mount, and E. Bruera Validity of the McGill Quality of Life Questionnaire in the palliative care setting: a multi-centre Canadian study demonstrating the importance of the existential domain Palliat Med 11 1997 3 20
    • (1997) Palliat Med , vol.11 , pp. 3-20
    • Cohen, S.R.1    Mount, B.M.2    Bruera, E.3
  • 29
    • 0031450702 scopus 로고    scopus 로고
    • Barriers to communication about end-of-life care in AIDS patients
    • J.R. Curtis, and D.L. Patrick Barriers to communication about end-of-life care in AIDS patients J Gen Intern Med 12 1997 736 741
    • (1997) J Gen Intern Med , vol.12 , pp. 736-741
    • Curtis, J.R.1    Patrick, D.L.2
  • 30
    • 0032797871 scopus 로고    scopus 로고
    • The quality of patient-clinician communication about end-of-life care: A study of patients with AIDS and their primary care clinicians
    • J.R. Curtis, D.L. Patrick, E. Caldwell, H. Greenlee, and A.C. Collier The quality of patient-clinician communication about end-of-life care: a study of patients with AIDS and their primary care clinicians AIDS 13 1999 1123 1131
    • (1999) AIDS , vol.13 , pp. 1123-1131
    • Curtis, J.R.1    Patrick, D.L.2    Caldwell, E.3    Greenlee, H.4    Collier, A.C.5
  • 31
    • 0034640831 scopus 로고    scopus 로고
    • Why don't patients with AIDS and their clinicians talk about end-of-life care? Barriers to communication for patients with AIDS and their primary care clinicians
    • J.R. Curtis, D.L. Patrick, E. Caldwell, and A.C. Collier Why don't patients with AIDS and their clinicians talk about end-of-life care? Barriers to communication for patients with AIDS and their primary care clinicians Arch Intern Med 160 2000 1597 1601
    • (2000) Arch Intern Med , vol.160 , pp. 1597-1601
    • Curtis, J.R.1    Patrick, D.L.2    Caldwell, E.3    Collier, A.C.4
  • 32
    • 0036308907 scopus 로고    scopus 로고
    • Patients' perspectives on physicians' skills at end-of-life care: Differences between patients with COPD, cancer, and AIDS
    • J.R. Curtis, M.D. Wenrich, and J.D. Carline Patients' perspectives on physicians' skills at end-of-life care: differences between patients with COPD, cancer, and AIDS Chest 122 2002 356 362
    • (2002) Chest , vol.122 , pp. 356-362
    • Curtis, J.R.1    Wenrich, M.D.2    Carline, J.D.3
  • 33
    • 0036797707 scopus 로고    scopus 로고
    • A good death: A qualitative study of patients with advanced AIDS
    • C.M. Pierson, J.R. Curtis, and D.L. Patrick A good death: a qualitative study of patients with advanced AIDS AIDS Care 14 2002 587 598
    • (2002) AIDS Care , vol.14 , pp. 587-598
    • Pierson, C.M.1    Curtis, J.R.2    Patrick, D.L.3
  • 34
    • 0036048246 scopus 로고    scopus 로고
    • A measure of the quality of dying and death: Initial validation using after-death interviews with family members
    • J.R. Curtis, D.L. Patrick, and R.A. Engelberg A measure of the quality of dying and death: initial validation using after-death interviews with family members J Pain Symptom Manage 24 2002 17 31
    • (2002) J Pain Symptom Manage , vol.24 , pp. 17-31
    • Curtis, J.R.1    Patrick, D.L.2    Engelberg, R.A.3
  • 35
    • 0028033880 scopus 로고
    • The Memorial Symptom Assessment Scale: An instrument for the evaluation of symptom prevalence, characteristics and distress
    • R.K. Portenoy, H.T. Thaler, and A.B. Kornblith The Memorial Symptom Assessment Scale: an instrument for the evaluation of symptom prevalence, characteristics and distress Eur J Cancer 30A 1994 1326 1336
    • (1994) Eur J Cancer , vol.30 , pp. 1326-1336
    • Portenoy, R.K.1    Thaler, H.T.2    Kornblith, A.B.3
  • 36
    • 0028068659 scopus 로고
    • Symptom prevalence, characteristics and distress in a cancer population
    • R.K. Portenoy, H.T. Thaler, and A.B. Kornblith Symptom prevalence, characteristics and distress in a cancer population Qual Life Res 3 1994 183 189
    • (1994) Qual Life Res , vol.3 , pp. 183-189
    • Portenoy, R.K.1    Thaler, H.T.2    Kornblith, A.B.3
  • 37
    • 0019827980 scopus 로고
    • The sickness impact profile: Development and final revision of a health status measure
    • M. Bergner, R.A. Bobbitt, W.B. Carter, and B.S. Gilson The sickness impact profile: development and final revision of a health status measure Med Care 19 1981 787 805
    • (1981) Med Care , vol.19 , pp. 787-805
    • Bergner, M.1    Bobbitt, R.A.2    Carter, W.B.3    Gilson, B.S.4
  • 38
    • 4344714120 scopus 로고    scopus 로고
    • Patient-physician communication about end-of-life care for patients with severe COPD
    • J.R. Curtis, R.A. Engelberg, E.L. Nielsen, D.H. Au, and D.L. Patrick Patient-physician communication about end-of-life care for patients with severe COPD Eur Respir J 24 2004 200 205
    • (2004) Eur Respir J , vol.24 , pp. 200-205
    • Curtis, J.R.1    Engelberg, R.A.2    Nielsen, E.L.3    Au, D.H.4    Patrick, D.L.5
  • 39
    • 0033843022 scopus 로고    scopus 로고
    • Substituting proxy ratings for patient ratings in cancer clinical trials: An analysis based on a Sourthwest Oncology Group trial in patients with brain metastases
    • C.M. Moinpour, B. Lyons, S.P. Schmidt, K. Chansky, and R.A. Patchell Substituting proxy ratings for patient ratings in cancer clinical trials: an analysis based on a Sourthwest Oncology Group trial in patients with brain metastases Qual Life Res 9 2000 219 231
    • (2000) Qual Life Res , vol.9 , pp. 219-231
    • Moinpour, C.M.1    Lyons, B.2    Schmidt, S.P.3    Chansky, K.4    Patchell, R.A.5
  • 40
    • 0037413038 scopus 로고    scopus 로고
    • Agreement between proxy- and case-reported information obtained using the self-administered Ontario Familial Colon Cancer Registry epidemiologic questionnaire
    • V. Nadalin, M. Cotterchio, G. McKeown-Eyssen, and S. Gallinger Agreement between proxy- and case-reported information obtained using the self-administered Ontario Familial Colon Cancer Registry epidemiologic questionnaire Chronic Dis Can 24 1 2003 1 8
    • (2003) Chronic Dis Can , vol.24 , Issue.1 , pp. 1-8
    • Nadalin, V.1    Cotterchio, M.2    McKeown-Eyssen, G.3    Gallinger, S.4
  • 41
    • 0028791287 scopus 로고
    • Comparing methods of measurement: Why plotting difference against standard method is misleading
    • J.M. Bland, and D.G. Altman Comparing methods of measurement: why plotting difference against standard method is misleading Lancet 346 8982 1995 1085 1087
    • (1995) Lancet , vol.346 , Issue.8982 , pp. 1085-1087
    • Bland, J.M.1    Altman, D.G.2
  • 42
    • 1942454308 scopus 로고    scopus 로고
    • Assessing reproducibility for interval data in health-related quality of life questionnaires: Which coefficient should be used?
    • P. Schuck Assessing reproducibility for interval data in health-related quality of life questionnaires: which coefficient should be used? Qual Life Res 13 3 2004 571 586
    • (2004) Qual Life Res , vol.13 , Issue.3 , pp. 571-586
    • Schuck, P.1
  • 43
    • 0024245558 scopus 로고
    • Patient-proxy response comparability on measures of patient health and functional status
    • J. Magaziner, E.M. Simonsick, T.M. Kashner, and J.R. Hebel Patient-proxy response comparability on measures of patient health and functional status J Clin Epidemiol 41 11 1988 1065 1074
    • (1988) J Clin Epidemiol , vol.41 , Issue.11 , pp. 1065-1074
    • Magaziner, J.1    Simonsick, E.M.2    Kashner, T.M.3    Hebel, J.R.4
  • 44
    • 0034030794 scopus 로고    scopus 로고
    • How well do surrogates assess the pain of seriously ill patients?
    • N.A. Desbiens, and N. Mueller-Rizner How well do surrogates assess the pain of seriously ill patients? Crit Care Med 28 2000 1347 1352
    • (2000) Crit Care Med , vol.28 , pp. 1347-1352
    • Desbiens, N.A.1    Mueller-Rizner, N.2
  • 45
    • 0027982994 scopus 로고
    • Are bereaved family members a valid proxy for a patient's assessment of dying?
    • I. Higginson, P. Priest, and M. McCarthy Are bereaved family members a valid proxy for a patient's assessment of dying? Soc Sci Med 38 4 1994 553 557
    • (1994) Soc Sci Med , vol.38 , Issue.4 , pp. 553-557
    • Higginson, I.1    Priest, P.2    McCarthy, M.3
  • 46
    • 0026652936 scopus 로고
    • The role of health care providers and significant others in evaluating the quality of life of patients with chronic disease: A review
    • M.A. Sprangers, and N.K. Aaronson The role of health care providers and significant others in evaluating the quality of life of patients with chronic disease: a review J Clin Epidemiol 45 1992 743 760
    • (1992) J Clin Epidemiol , vol.45 , pp. 743-760
    • Sprangers, M.A.1    Aaronson, N.K.2
  • 50
    • 17444453836 scopus 로고
    • Using proxies to evaluate quality of life. Can they provide valid information about patients' health status and satisfaction with medical care?
    • A.M. Epstein, J.A. Hall, J. Tognetti, L.H. Son, and L. Conant Jr. Using proxies to evaluate quality of life. Can they provide valid information about patients' health status and satisfaction with medical care? Med Care 27 3 Suppl 1989 S91 S98
    • (1989) Med Care , vol.27 , Issue.3 SUPPL.
    • Epstein, A.M.1    Hall, J.A.2    Tognetti, J.3    Son, L.H.4    Conant Jr., L.5
  • 51
    • 0021674544 scopus 로고
    • Systematic biases in functional status assessment of elderly adults: Effects of different data sources
    • L.Z. Rubenstein, C. Schairer, G.D. Wieland, and R. Kane Systematic biases in functional status assessment of elderly adults: effects of different data sources J Gerontol 39 6 1984 686 691
    • (1984) J Gerontol , vol.39 , Issue.6 , pp. 686-691
    • Rubenstein, L.Z.1    Schairer, C.2    Wieland, G.D.3    Kane, R.4
  • 52
    • 4544377576 scopus 로고    scopus 로고
    • Promoting advance directives among elderly primary care patients
    • L.S. Wissow, A. Belote, and W. Kramer Promoting advance directives among elderly primary care patients J Gen Intern Med 19 9 2004 944 951
    • (2004) J Gen Intern Med , vol.19 , Issue.9 , pp. 944-951
    • Wissow, L.S.1    Belote, A.2    Kramer, W.3


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.