Creating a framework for online cancer services research to facilitate timely and interdisciplinary applications

Journal of Medical Internet Research

Volumn 7, Issue 3, 2005, Pages

  Whitten, Pamela ^a   Kreps, Gary L ^b   Eastin, Matthew S ^c  

^a MICHIGAN STATE UNIVERSITY   (United States)

^b GEORGE MASON UNIVERSITY   (United States)

^c OHIO STATE UNIVERSITY   (United States)

Author keywords

Behavior change; Cancer communication; Cancer survivorship; Health outcomes; Online information services

Indexed keywords

BEHAVIOR CHANGE; CANCER; CANCER PATIENT; CANCER RESEARCH; CANCER SURVIVOR; DATA BASE; E-MAIL; HEALTH CARE; HEALTH HAZARD; INFORMATION SERVICE; INTERDISCIPLINARY RESEARCH; INTERNET; MEDICAL CARE; METHODOLOGY; PUBLICATION; REVIEW; RISK ASSESSMENT;

EID: 29144492098     PISSN: 14388871     EISSN: 14388871     Source Type: Journal    
DOI: 10.2196/jmir.7.3.e34     Document Type: Review

References (67)

1. Kreps GJ. The impact of communication on cancer risk, incidence, morbidity, mortality, and quality of life. Health Commun 2003;15(2):161-169.
2. Eysenbach G. The impact of the Internet on cancer outcomes. CA Cancer J Clin 2003;53(6):356-371.
3. Jadad AR, Sigouin C, Cocking L, Booker L, Whelan T, Browman G. Internet use among physicians, nurses, and their patients. JAMA 2001 Sep 26;286(12):1451-1452.
4. Fox S, Rainie L. The online health care revolution: How the web helps Americans take better care of themselves. Washington, DC: The Pew Internet & American Life Project; Nov 26, 2000.
5. Baker L, Wagner TH, Singer S, Bundorf MK. Use of the Internet and email for health care information: results from a national survey. JAMA 2003 May 14;289(18):2400-2406.
6. Ziebland S, Chapple A, Dumelow C, Evans J, Prinjha S, Rozmovits L. How the internet affects patients' experience of cancer: a qualitative study. BMJ 2004 Mar 6;328(7439):564.
7. Buller C, Xu X, Marquis V, Schwanke R, Xu PX. Molecular effects of Eya1 domain mutations causing organ defects in BOR syndrome. Hum Mol Genet 2001 Nov 15;10(24):2775-2781.
8. Fogel J. Internet use for cancer information among racial/ethnic populations and low literacy groups. Cancer Control 2003;10(5 Suppl):45-51.
9. Monnier J, Laken M, Carter CL. Patient and caregiver interest in internet-based cancer services. Cancer Pract 2002;10(6):305-310.
10. Helft PR, Hlubocky F, Daugherty CK. American oncologists' views of internet use by cancer patients: a mail survey of American Society of Clinical Oncology members. J Clin Oncol 2003 Mar 1;21(5):942-947.
11. Eysenbach G, Köhler C. How do consumers search for and appraise health information on the world wide web? Qualitative study using focus groups, usability tests, and in-depth interviews. BMJ 2002 Mar 9;324(7337):573-577.
12. Eysenbach G. SARS and population health technology. J Med Internet Res 2003 Jun 30;5(2):e14.
13. Mills ME, Davidson R. Cancer patients' sources of information: use and quality issues. Psychooncology 2002 Sep;11(5):371-378.
14. Peterson MW, Fretz PC. Patient use of the internet for information in a lung cancer clinic. Chest 2003 Feb;123(2):452-457.
15. Smith RP, Devine P, Jones H, Denittis A, Whittington R, Metz JM. Internet use by patients with prostate cancer undergoing radiotherapy. Urology 2003 Aug;62(2):273-277.
16. Bowen D, Ludwig A, Bush N, et al. Early experience with a Web-based intervention to inform risk of breast cancer. J Health Psychol 2003;8(1):175-187.
17. Edgar L, Greenberg A, Remmer J. Providing internet lessons to oncology patients and family members: a shared project. Psychooncology 2002;11(5):439-446.
18. Rozmovits L, Ziebland S. What do patients with prostate or breast cancer want from an Internet site? A qualitative study of information needs. Patient Educ Couns 2004 Apr;53(1):57-64.
19. Brooks BA. Using the Internet for patient education. Orthop Nurs 2001;20(5):69-77.
20. Eysenbach G, Wyatt J. Using the Internet for surveys and health research. J Med Internet Res 2002 Nov 22;4(2):E13.
21. Nguyen HQ, Carrieri-kohlman V, Rankin SH, Slaughter R, Stulbarg MS. Internet-based patient education and support interventions: a review of evaluation studies and directions for future research. Comput Biol Med 2004 Mar;34(2):95-112.
22. Pereira JL, Koski S, Hanson J, Bruera ED, Mackey JR. Internet usage among women with breast cancer: an exploratory study. Clin Breast Cancer 2000 Jul;1(2):148-53; discussion 154-5.
23. Al-bahrani A, Plusa S. The quality of patient-orientated internet information on colorectal cancer. Colorectal Dis 2004 Sep;6(5):323-326.
24. Junghans TB, Sevin IF, Ionin B, Seifried H. Cancer information resources: digital and online sources. Toxicology 2002 Apr 25;173(1-2):13-34.
25. Matthews SC, Camacho A, Mills PJ, Dimsdale JE. The internet for medical information about cancer: help or hindrance? Psychosomatics 2003;44(2):100-103.
26. Civan A, Pratt W. Online health information: multiple dimensions of quality. Proc Medinfo 2004:1557.
27. Hoffman-goetz L, Clarke JN. Quality of breast cancer sites on the World Wide Web. Can J Public Health 2000;91(4):281-284.
28. Hirsh GS. Children's relevance criteria and information seeking on electronic resources. J Am Soc Inf Sci 1999;50(14):1265-1283.
29. Swan K. Non print media and technology literacy standards for assessing technology integration. Journal of Educational Computing Research 2000;23(1):85-100.
30. Whitaker WA. Human navigation. In: Forsythe C, Grose E, Ratner J, editors. Human Factors and Web Development. Mahwah, NJ: Lawrence Erlbaum Associates; 1998.
31. Fogg BJ, Marshall J, Kameda T, et al. Web credibility research: a method for online experiments and some early study results. Proceedings of ACM CHI 2001 Conference on Human Factors in Computing Systems. New York: ACM Press; 2001:295-296.
32. Kim J, Moon JY. Designing towards emotional usability in customer interfaces: trustworthiness of cyber-banking system interfaces. Interact Comput 1997;10(1):1-29.
33. Flower J. American health care, Internet style. Physician Exec 2004 May-June.
34. Strover S, Chapman G, Waters J. Beyond community networking and CTCs: access development, and public policy. Telecomm Policy 2002;7:465-485.
35. Wilson K, Wallin J, Reiser C. Social stratification and the digital divide. Soc Sci Comput Rev 2003;2(2):133-143.
36. Kreps GL. Disseminating cancer treatment information to physicians: the case of the Physician Data Query (PDQ) system. In Thornton BC, Kreps GL, editors. Perspectives on Health Communication. Prospect Heights, IL: Waveland Press; 1993:146-152.
37. Eastin MS. Credibility assessments of online health information: the effects of source expertise and knowledge of content. Journal of Computer Mediated Communication 2001;6(4).
38. Treisman A. Search, similarity, and integration of features between and within dimensions. J Exp Psychol Hum Percept Perform 1991 Aug;17(3):652-676.
39. Diaz JA, Griffith RA, Ng JJ, Reinert SE, Friedmann PD, Moulton AW. Patients' use of the Internet for medical information. J Gen Intern Med 2002 Mar;17(3):180-185.
40. Grover F, Wu HD, Blanford C, Holcomb S, Tidler D. Computer-using patients want Internet services from family physicians. J Fam Pract 2002 Jun;51(6):570-572.
41. Basch EM, Thaler HT, Shi W, Yakren S, Schrag D. Use of information resources by patients with cancer and their companions. Cancer 2004 Jun 1;100(11):2476-2483.
42. Landro L. Survivor: Taking Control of Your Fight Against Cancer. New York: Simon & Schuster; Oct 2, 1998.
43. Mullen PD, Simons-morton DG, Ramírez G, Frankowski RF, Green LW, Mains DA. A meta-analysis of trials evaluating patient education and counseling for three groups of preventive health behaviors. Patient Educ Couns 1997 Nov;32(3):157-173.
44. Fleisher L, Bass S, Ruzek SB, McKeown-Conn N. Relationships among Internet health information use, patient behavior and self efficacy in newly diagnosed cancer patients who contact the National Cancer Institute's NCI Atlantic Region Cancer Information Service (CIS). Proc AMIA Symp 2002:260-264.
45. Mandelblatt JS, Yabroff KR, Kerner JF. Equitable access to cancer services: A review of barriers to quality care. Cancer 1999 Dec 1;86(11):2378-2390.
46. Centers for Disease Control and Prevention (CDC), Rowland JH, Mariotto A, Aziz NA, et al. Cancer survivorship-United States, 1971-2001. MMWR Morb Mortal Wkly Rep 2004 Jun 25;53(24):526-529.
47. Rowland JH, Aziz N, Tesauro G, Feuer EJ. The changing face of cancer survivorship. Semin Oncol Nurs 2001 Nov;17(4):236-240.
48. Ehrenberger HE. Cancer clinical trial patients in the information age: a pilot study. Cancer Pract 2001;9(4):191-197.
49. Eakin BL, Brady JS, Lusk SL. Creating a tailored, multimedia, computer-based intervention. Comput Nurs 2001;19(4):152-60; quiz 161-3.
50. Klemm P, Hardie T. Depression in Internet and face-to-face cancer support groups: a pilot study. Oncol Nurs Forum 2002 May;29(4):E45-E51.
51. Klemm P, Bunnell D, Cullen M, Soneji R, Gibbons P, Holecek A. Online cancer support groups: a review of the research literature. Comput Inform Nurs 2003;21(3):136-142.
52. Fogel J, Albert SM, Schnabel F, Ditkoff BA, Neugut AI. Racial/ethnic differences and potential psychological benefits in use of the internet by women with breast cancer. Psychooncology 2003 Mar;12(2):107-117.
53. Frank SR. Digital health care - the convergence of health care and the Internet. J Ambul Care Manage 2000 Apr;23(2):8-17.
54. Patrick K, Intille SS, Zabinski MF. An ecological framework for cancer communication: implications for research. J Med Internet Res 2005;7(3):e23.
55. Eng TR. Emerging technologies for cancer prevention and other population health challenges. J Med Internet Res 2005;7(3):e30.
56. LaCoursiere SP, Knobf MT, McCorkle R. Cancer patients' relf-reported attitudes about the Internet. J Med Internet Res 2005;7(3):e22.
57. Grama LM, Beckwith M, Bittinger W, et al. The role of user input in shaping online information from the National Cancer Institute. J Med Internet Res 2005;7(3):e25.
58. Rimer BK, Lyons EJ, Ribisl KM, et al. How new subscribers use cancer-related online mailing lists. J Med Internet Res 2005;7(3):e32.
59. Walther JB, Pingree S, Hawkins RP, Buller DB. Attributes of interactive online health information systems. J Med Internet Res 2005;7(3):e33.
60. Wood FB, Benson D, LaCroix E, Siegel ER, F, S. Use of Internet audience measurement data to gauge market share for online health information services. J Med Internet Res 2005;7(3):e31.
61. Metz JM, Coyle C, Hudson C, Hampshire M. An Internet-based cancer clinical trials matching resource. J Med Internet Res 2005;7(3):e24.
62. Cooper CP, Mallon KP, Leadbetter S, Pollack LA, Peipins LA. Cancer Internet search activity on a major search engine, United States 2001-2003. J Med Internet Res 2005;7(3):e36.
63. Evers KE, Cummins CO, Prochaska JO, Prochaska JM. Online health behavior and disease management programs: are we ready for them? Are they ready for us? J Med Internet Res 2005;7(3):e27.
64. Graham AL, Abrams DB. Reducing the cancer burden of lifestyle factors: opportunities and challenges of the Internet. J Med Internet Res 2005;7(3):e26.
65. Bradley CJ. The need for online information on the economic consequences of cancer diagnosis, treatment, and survivorship. J Med Internet Res 2005;7(3):e29.
66. Doolittle GC, Spaulding A. Online Cancer Services: types of services offered and associated health outcomes. J Med Internet Res 2005;7:e35.
67. Nguyen KD, Hara B, Chlebowski RT. Utility of two cancer organization websites for a multiethnic, public hospital oncology population: comparative cross-sectional survey. J Med Internet Res 2005;7(3):e28.