Caregivers as managers of subjective wellbeing: A homeostatic perspective

Journal of Applied Research in Intellectual Disabilities

Volumn 18, Issue 4, 2005, Pages 335-344

  Cummins, Robert A ^a  

^a DEAKIN UNIVERSITY   (Australia)

Author keywords

Caregivers; Disability; Homeostasis; Quality of life; Subjective wellbeing

Indexed keywords

EID: 28044444548     PISSN: 13602322     EISSN: 14683148     Source Type: Journal    
DOI: 10.1111/j.1468-3148.2005.00267.x     Document Type: Conference Paper

References (73)

1. Ager A. (2002) 'Quality of life' assessment in critical context. Journal of Applied Research in Intellectual Disabilities 15, 369-376.
2. Ager A., Myers F., Kerr P., Myles S. & Green A. (2001) Moving home: social integration for adults with intellectual disabilities resettling into community provision. Journal of Applied Research in Intellectual Disabilities 14, 392-400.
3. Allen D. (1989) The effects of deinstitutionalisation on people with mental handicaps: a review. Mental Handicap Research 2, 18-37.
4. Ames T. R. H. & Samowitz P. (1995) Inclusionary standard for determining sexual consent for individuals with developmental disabilities. Mental Retardation 33, 264-268.
5. Andersen L. L., Lakin K. C., Managan T. W. & Prouty R. W. (1998) State institutions: thirty years of depopulation and closure. Mental Retardation 36, 431-443.
6. Andrews F. M. & Withey S. B. (1976) Social Indicators of Wellbeing: American's Perceptions of Life Quality. Plenum Press, New York, NY.
7. Ashman A. F., Hulme P. & Suttie J. (1990) The life circumstances of aged people with mental retardation. Australia and New Zealand Journal of Developmental Disabilities 16, 335-348.
8. Azmi S., Hatton C., Emerson E. & Caine A. (1997) Listening to adolescents and adults with intellectual disabilities from South Asian communities. Journal of Applied Research in Intellectual Disability 10, 250-263.
9. Baldwin W. K. (1958) The social position of the educable mentally retarded child in the regular grades in the public schools. Exceptional Children 25, 106-108, 112.
10. Bates P. & Davis F. A. (2004) Social capital, social inclusion and services for people with learning disabilities. Disability and Society 19, 195-208.
11. Beail N. (1985) The nature of interactions between nursing staff and profoundly multiply handicapped children. Child: Care, Health and Development 11, 113-129.
12. Bramston P., Pretty G. & Chipuer H. (2002) Unravelling subjective quality of life: an investigation of individual and community determinants. Social Indicators Research 59, 261-274.
13. Brown I. (1996) Lessons from a Quality of Life Project in Canada. Paper Presented at the 10th Conference of the International Association for the Scientific Studies of Intellectual Disabilities, Helinski, Finland.
14. Brown I. (1999) Embracing quality of life in times of spending restraint. Journal of Intellectual and Developmental Disability 24, 299-308.
15. Brown R. I. & Timmons V. (1994) Quality of life - adults and adolescents with disabilities. Exceptionality Education Canada 4, 1-11.
16. Campbell A., Converse P. E. & Rodgers W. L. (1976) The Quality of American Life: Perceptions, Evaluations, and Satisfactions. Russell Sage Foundation, New York, NY.
17. Cropanzano R., Weiss H. M., Hale J. M. S. & Reb J. (2003) The structure of affect: reconsidering the relationship between negative and positive affectivity. Journal of Management 29, 831-858.
18. Cummins R. A. (1995) On the trail of the gold standard for life satisfaction. Social Indicators Research 35, 179-200.
19. Cummins R. A. (1998) The second approximation to an international standard of life satisfaction. Social Indicators Research 43, 307-334.
20. Cummins R. A. (2000a) Personal income and subjective wellbeing: a review. Journal of Happiness Studies 1, 133-158.
21. Cummins R. A. (2000b) Objective and subjective quality of life: an interactive model. Social Indicators Research 52, 55-72.
22. Cummins R. A. (2001) The subjective well-being of people caring for a severely disabled family member at home: a review. Journal of Intellectual and Developmental Disability 26, 83-100.
23. Cummins R. A. & Lau A. L. D. (2003) Community integration or community exposure? A review and discussion in relation to people with an intellectual disability. Journal of Applied Research in Intellectual Disability 16, 145-157.
24. Cummins R. A. & Lau A. L. D. (2004) Cluster housing and the freedom of choice: a response to Emerson. Journal of Intellectual and Developmental Disability 29, 198-201.
25. Cummins R. A. & Nistico H. (2002) Maintaining life satisfaction: the role of positive cognitive bias. Journal of Happiness Studies 3, 37-69.
26. Cummins R. A., McCabe M. P., Romeo Y., Reid S. & Waters L. (1997) An initial evaluation of the comprehensive quality of life scale - intellectual disability. International Journal of Disability, Development and Education 44, 7-19.
27. Cummins R. A., Gullone E. & Lau A. L. D. (2002) A model of subjective well being homeostasis: the role of personality. In: The Universality of Subjective Wellbeing Indicators (eds E. Gullone & R. A. Cummins), pp. 7-46. Social Indicators Research Series, Kluwer, Dordrecht.
28. Cummins R. A., Eckersley R., Lo S., Okerstrom E., Hunter B. & Woerner J. (2004) Australian Unity Wellbeing Index: Report 12.0 - "The Wellbeing of Australians - Job Security". Australian Centre on Quality of Life, School of Psychology, Deakin University, Melbourne, Vie., ISBN 0 7300 2624 8.
29. Davern M. T. (2005) Subjective wellbeing as an affective construct. Doctoral thesis, Deakin University, Melbourne, 18 July 2005 (http://acqol. deakin.edu.au/thesis/Davern.doc)
30. Dennis R. E., Williams W., Giangreco M. F. & Cloninger C. J. (1993) Quality of life as context for planning and evaluation of services for people with disabilities. Exceptional Children 59, 499-512.
31. Disability Services Victoria (2000) The Aspirations of People with a Disability within an Inclusive Victorian Community. Victorian Government Department of Human Services, Melbourne.
32. Edgerton R. B. (1990) Quality of life from a longitudinal research perspective. In: Quality of Life: Perspectives and Issues (ed. R. L. Schalock), pp. 149-160. American Association on Mental Retardation, Washington, DC.
33. Emerson E. (2004) Cluster housing and freedom of choice: a response to Cummins and Lau's and Bigby's commentaries. Journal of Intellectual and Developmental Disability 29, 206-210.
34. Emerson E. & Hatton C. (1996) Deinstitutionalisation in the UK: outcomes for service users. Journal of Intellectual and Developmental Disability 21, 17-37.
35. Emerson E., Robertson J., Gregory N., Kessissoglou S., Hatton C., Hallam A., Knapp M., Jarbrink K., Netten A. & Linghan C. (2000) The quality and costs of community-based residential supports and residential campuses for people with severe and complex disabilities. Journal of Intellectual and Developmental Disability 25, 263-279.
36. Felce D. (1998) The determinants of staff and resident activity in residential services for people with severe intellectual disability: moving beyond size, building design, location and number of staff. Journal of Intellectual and Developmental Disability 23, 103-119.
37. Felce D., Lowe K. & Jones E. (2002) Staff activity in supported housing services. Journal of Applied Research in Intellectual Disabilities 15, 388-403.
38. Gow L., Ward J., Balla J. & Snow D. (1988) Directions for integration in Australia: overview of a report to the Commonwealth Schools Commission: part 2. The Exceptional Child 35, 5-22.
39. Halpern A. (1989) A systematic approach to transition programming for adolescents and young adults with disabilities. Australia and New Zealand Journal of Developmental Disabilities 15, 1-13.
40. Hanestad B. R. & Albrektsen G. (1992) The stability of quality of life experience in people with type 1 diabetes over a period of a year. Journal of Advanced Nursing 17, 777-784.
41. Headey B. & Wearing A. (1989) Personality, life events, and subjective well-being: toward a dynamic equilibrium model. Journal of Personality and Social Psychology 57, 731-739.
42. Heal L. W., Rubin S. S. & Rusch F. R. (1998) Residential independence of former special education high school students: a second look. Research in Developmental Disabilities 19, 1-26.
43. Heiman T. & Margalit M. (1998) Loneliness, depression, and social skills among students with mild mental retardation in different educational settings. Journal of Special Education 32, 154-163.
44. Henderson S. (1977) The social network, support and neurosis. The function of attachment in adult life. British Journal of Psychiatry 131, 185-191.
45. Hornby G. & Kidd R. (2001) Transfer from special to mainstream - ten years later. British Journal of Special Education 28, 10-17.
46. Hughes S. L., Giobbie-Hurder A., Weaver F. M., Kubal J. D. & Henderson W. (1999) Relationship between caregiver burden and health-related quality of life. Gerontologist 39, 534-546.
47. James T. N. & Brown R. I. (1993) Prader-Willi syndrome: quality of life issues in home, school and community. Australia and New Zealand Journal of Developmental Disabilities 18, 253-260.
48. Jenkinson J., Copeland C., Drivas V., Scoon H. & Yap M. (1992) Decision-making by community residents with an intellectual disability. Australia and New Zealand Journal of Developmental Disabilities 18, 1-8.
49. McCloskey D. N. (1983) The rhetoric of economics. Journal of Economic Literature 21, 481-517.
50. McDevitt S. C., Smith P. M., Schmidt D. W. & Rosen M. (1978) The deinstitutionalized citizen: adjustment and quality of life. Mental Retardation 16, 22-24.
51. McGaughey M. J., Kiernan W. E., McNally L. C. & Gilmore D. S. (1995) A peaceful coexistence? State MR/DD agency trends in integrated employment and facility-based services. Mental Retardation 33, 170-180.
52. Pixa-Kettner U. (1998) Parents with intellectual disability in Germany: results of a nation-wide study. Journal of Applied Research in Intellectual Disabilities 11, 355-364.
53. Rautman A. L. (1943) The mental hygiene of institutionalized mental defectives. Mental Hygiene July, 446-456.
54. Renwick R., Brown I. & Raphael D. (1994) Quality of life: linking a conceptual approach to service provision. Journal of Developmental Disabilities 3, 32-44.
55. Richardson S. A. (1978) Careers of mentally retarded young persons: service, jobs and interpersonal relations. American Journal of Mental Deficiency 82, 349-358.
56. Romney D. M. (1995) Psychosocial functioning and subjective experience in schizophrenia: a reanalysis. Schizophrenia Bulletin 21, 405-410.
57. Rothbaum F., Weisz J. R. & Snyder S. S. (1982) Changing the world and changing the self: a two-process model of per ceived control. Journal of Personality and Social Psychology 42, 5-37.
58. Russell J. A. (2003) Core affect and the psychological construction of emotion. Psychological Review 110, 145-172.
59. Sands D. J. & Kozleski E. B. (1994) Quality of life differences between adults with and without disabilities. Education and Training in Mental Retardation and Developmental Disabilities 29, 90-101.
60. Sarason I. G., Sarason B. R. & Pierce G. R. (1990) Social support: the search for theory. Journal of Social and Clinical Psychology 9, 137-147.
61. Schalock R. L. (2004) The concept of quality of life: what we know and do not know. Journal of Intellectual Disability Research 48, 203-216.
62. Schalock R. L. & Keith K. D. (1993) Quality of Life Questionnaire Manual. IDS Publishing Corporation, Worthington, OH.
63. Schalock R. L., Lemanowicz J. A., Conroy J. W. & Feinstein C. S. (1994) A multivariate investigative study of the correlates of quality of life. Journal of Developmental Disabilities 3, 59-73.
64. Stancliffe R. J., Abery B. H. & Smith J. (2000) Personal control and the ecology of community living settings: beyond livingunit size and type. American Journal on Mental Retardation 105, 431-455.
65. Suh E. & Diener E. (1996) Events and subjective well-being: only recent events matter. Journal of Personality and Social Psychology 70, 1091-1102.
66. Throne J. M. (1979) Deinstitutionalisation: too wide a swath. Mental Retardation 17, 171-175.
67. Tonkens E. & Weijers I. (1999) Autonomy, solidarity, and selfrealization: policy view of Dutch service providers. Mental Retardation 37, 468-476.
68. Verri A. P., Cummins R. A., Petito F., Vallero E., Monteath S., Gerosa E. & Nappi G. (1999) An Italian-Australian comparison of life quality among intellectually disabled people living in the community. Journal of Intellectual Disability Research 43, 513-522.
69. Wacker D. P., Harper D. C., Powell W. J. & Healy A. (1983) Life outcomes and satisfaction ratings of multihandicapped adults. Developmental Medicine and Child Neurology 25, 625-631.
70. Williams G. A. & Asher S. R. (1992) Assessment of loneliness at school among children with mild mental retardation. American Association on Mental Retardation 96, 373-385.
71. Wilson J. (1972) The industrial process and the quality of life. In: Technology Assessment and Quality of Life (eds G. J. Stober & D. Schumacher), pp. 131-146. Proceedings of the 4th General Conference of SAINT, Elsevier Scientific Publishing Company, Salzburg, Austria.
72. Wolfensberger W. (1972) The Principle of Normalization in Human Services. National Institute on Mental Retardation, Toronto, ON.
73. Young L., Sigafoos J., Suttie J., Ashman A. & Revell P. (1998) Deinstitutionalisation of persons with intellectual disabilities: a review of Australian studies. Journal of Intellectual and Developmental Disability 23, 155-170.