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Volumn 29, Issue 2, 2005, Pages 145-178

"Bioethics in action" and human population genetics research

Author keywords

Bioethics; Group consent; Human Genome Diversity Project; Identity politics; Melungeons; Population genetics

Indexed keywords

ARTICLE; BIOETHICS; ETHNIC GROUP; HUMAN; HUMAN GENOME PROJECT; HUMAN RIGHTS; POPULATION DYNAMICS; POPULATION GENETICS;

EID: 27544452692     PISSN: 0165005X     EISSN: 1573076X     Source Type: Journal    
DOI: 10.1007/s11013-005-7423-2     Document Type: Article
Times cited : (30)

References (85)
  • 1
    • 27544452207 scopus 로고
    • A "New Partnership" for Indigenous Peoples: Can the United Nations Make a Difference?
    • Barsh, Russel Lawrence 1993 A "New Partnership" for Indigenous Peoples: Can the United Nations Make a Difference? American Indian Culture and Research Journal 17(1): 197-227.
    • (1993) American Indian Culture and Research Journal , vol.17 , Issue.1 , pp. 197-227
    • Barsh, R.L.1
  • 2
    • 85050839319 scopus 로고
    • American Triracial Isolates: Their Status and Pertinence to Genetic Research
    • Beale, Calvin L. 1957 American Triracial Isolates: Their Status and Pertinence to Genetic Research. Eugenics Quarterly 4(4): 187-196.
    • (1957) Eugenics Quarterly , vol.4 , Issue.4 , pp. 187-196
    • Beale, C.L.1
  • 3
    • 27544461656 scopus 로고
    • Notes on Visit to Hancock County, Tennessee
    • P.A. Morrison, ed. University Park, PA: The Pennsylvania State University Press
    • Beale, Calvin L. 1990 Notes on Visit to Hancock County, Tennessee. In A Taste of the Country: A Collection of Calvin Beale's Writings. P.A. Morrison, ed. University Park, PA: The Pennsylvania State University Press.
    • (1990) A Taste of the Country: A Collection of Calvin Beale's Writings
    • Beale, C.L.1
  • 4
    • 26444527077 scopus 로고
    • New York: Macmillan
    • Berry, Brewton 1963 Almost White. New York: Macmillan.
    • (1963) Almost White
    • Berry, B.1
  • 8
    • 0033181260 scopus 로고    scopus 로고
    • Professional Ethicist Available: Logical, Secular, Friendly
    • 1999 Professional Ethicist Available: Logical, Secular, Friendly. Daedalus 128(4): 47-68.
    • (1999) Daedalus , vol.128 , Issue.4 , pp. 47-68
  • 9
    • 0033237501 scopus 로고    scopus 로고
    • The Human Genome Diversity Project as a Complement to Human Population Genetics
    • Bowman, James E. 1999 The Human Genome Diversity Project as a Complement to Human Population Genetics. Politics and the Life Sciences 18(2): 289-290.
    • (1999) Politics and the Life Sciences , vol.18 , Issue.2 , pp. 289-290
    • Bowman, J.E.1
  • 11
    • 0036000939 scopus 로고    scopus 로고
    • Genetics, Identity, and the Anthropology of Essentialism
    • Brodwin, Paul 2002 Genetics, Identity, and the Anthropology of Essentialism. Anthropological Quarterly 75(2): 323-330.
    • (2002) Anthropological Quarterly , vol.75 , Issue.2 , pp. 323-330
    • Brodwin, P.1
  • 12
    • 0033185929 scopus 로고    scopus 로고
    • The Social Sciences and the Task of Bioethics
    • Callahan, Daniel 1999 The Social Sciences and the Task of Bioethics. Daedalus 128(4): 275-294.
    • (1999) Daedalus , vol.128 , Issue.4 , pp. 275-294
    • Callahan, D.1
  • 15
    • 27544453604 scopus 로고
    • The Melungeons of Upper East Tennessee: Persisting Social Identity
    • Cavender, Anthony P. 1981 The Melungeons of Upper East Tennessee: Persisting Social Identity. Tennessee Anthropologist 6(1): 7-36.
    • (1981) Tennessee Anthropologist , vol.6 , Issue.1 , pp. 7-36
    • Cavender, A.P.1
  • 16
    • 27544474802 scopus 로고
    • Electronic document
    • Cayuqueo, Nilo 1993 HGD Project, SAIIC Response. Electronic document, http://www.nativenet.uthscsa.edu/archive/nl/9311/0069.html, accessed January 26, 2002.
    • (1993) HGD Project, SAIIC Response
    • Cayuqueo, N.1
  • 17
    • 0004299909 scopus 로고    scopus 로고
    • Washington, DC: The National Academies Press
    • Committee on Human Genome Diversity, National Research Council 1997 Evaluating Human Genetic Diversity. Washington, DC: The National Academies Press.
    • (1997) Evaluating Human Genetic Diversity
  • 18
    • 0039657241 scopus 로고    scopus 로고
    • Colonial Encounters in Postcolonial Contexts: Patenting Indigenous DNA and the Human Genome Diversity Project
    • Cunningham, Hilary 1998 Colonial Encounters in Postcolonial Contexts: Patenting Indigenous DNA and the Human Genome Diversity Project. Critique of Anthropology 18(2): 205-233.
    • (1998) Critique of Anthropology , vol.18 , Issue.2 , pp. 205-233
    • Cunningham, H.1
  • 19
    • 27544498130 scopus 로고
    • "Verry Slitly Mixt": Tri-Racial Isolate Families of the Upper South - A Genealogical Study
    • DeMarce, Virginia Easley 1992 "Verry Slitly Mixt": Tri-Racial Isolate Families of the Upper South - A Genealogical Study. National Genealogical Society Quarterly 80(1): 5-35.
    • (1992) National Genealogical Society Quarterly , vol.80 , Issue.1 , pp. 5-35
    • DeMarce, V.E.1
  • 20
    • 26444599873 scopus 로고
    • Looking at Legends - Lumbee and Melungeon: Applied Genealogy and the Origins of Tri-racial Isolate Settlements
    • DeMarce, Virginia Easley 1993 Looking at Legends - Lumbee and Melungeon: Applied Genealogy and the Origins of Tri-racial Isolate Settlements. National Genealogical Society Quarterly 81(1): 24-45.
    • (1993) National Genealogical Society Quarterly , vol.81 , Issue.1 , pp. 24-45
    • DeMarce, V.E.1
  • 23
    • 0037153735 scopus 로고    scopus 로고
    • Identity and Genetic Ancestry Tracing
    • Elliott, Carl, and Paul Brodwin 2002 Identity and Genetic Ancestry Tracing. British Medical Journal 325: 1469-1471.
    • (2002) British Medical Journal , vol.325 , pp. 1469-1471
    • Elliott, C.1    Brodwin, P.2
  • 25
    • 27544505786 scopus 로고    scopus 로고
    • Melungeon History and Myth
    • Everett, C.S. 1999 Melungeon History and Myth. Appalachian Journal 26(4): 358-409.
    • (1999) Appalachian Journal , vol.26 , Issue.4 , pp. 358-409
    • Everett, C.S.1
  • 26
    • 0032231760 scopus 로고    scopus 로고
    • A Model Agreement for Genetic Research in Socially Identifiable Populations
    • Foster, Morris W., Deborah Bernsten, and Thomas H. Carter 1998 A Model Agreement for Genetic Research in Socially Identifiable Populations. American Journal of Human Genetics 63: 696-702.
    • (1998) American Journal of Human Genetics , vol.63 , pp. 696-702
    • Foster, M.W.1    Bernsten, D.2    Carter, T.H.3
  • 27
  • 28
    • 85044699621 scopus 로고    scopus 로고
    • Racism and Human Genome Diversity Research: The Ethical Limits of "Population Thinking."
    • Gannett, Lisa 2001 Racism and Human Genome Diversity Research: The Ethical Limits of "Population Thinking." Philosophy of Science 68(3): S479-S492.
    • (2001) Philosophy of Science , vol.68 , Issue.3
    • Gannett, L.1
  • 29
    • 84963056445 scopus 로고
    • Memorandum Concerning the Characteristics of the Larger Mixed-Blood Racial Islands of the Eastern United States
    • Gilbert, William Harlen 1946 Memorandum Concerning the Characteristics of the Larger Mixed-Blood Racial Islands of the Eastern United States. Social Forces 24: 438-447.
    • (1946) Social Forces , vol.24 , pp. 438-447
    • Gilbert, W.H.1
  • 31
    • 27544505424 scopus 로고
    • Electronic document
    • Greely, Henry 1994 Status of the HGD Project. Electronic document, http://www.nativenet.uthscsa.edu/archive/nl/9402/0020.html, accessed January 27, 2002.
    • (1994) Status of the HGD Project
    • Greely, H.1
  • 33
    • 0001608730 scopus 로고    scopus 로고
    • The Ethics of Human Genome Diversity Project: The North American Regional Committee's Proposed Model Ethical Protocol
    • B.M. Knoppers, ed., Hague, the Netherlands: Kluwer Law International
    • 1997 The Ethics of Human Genome Diversity Project: The North American Regional Committee's Proposed Model Ethical Protocol. In Human DNA: Law and Policy. B.M. Knoppers, ed., pp. 239-256. Hague, the Netherlands: Kluwer Law International.
    • (1997) Human DNA: Law and Policy , pp. 239-256
  • 34
    • 0033237513 scopus 로고    scopus 로고
    • The Overlooked Ethics of the Human Genome Diversity Project
    • 1999 The Overlooked Ethics of the Human Genome Diversity Project. Politics and the Life Sciences 18(2): 297-299.
    • (1999) Politics and the Life Sciences , vol.18 , Issue.2 , pp. 297-299
  • 35
    • 0035289982 scopus 로고    scopus 로고
    • Human Genome Diversity: What about the Other Human Genome Project?
    • 2001 Human Genome Diversity: What About the Other Human Genome Project? Nature Reviews Genetics 2(3): 222-227.
    • (2001) Nature Reviews Genetics , vol.2 , Issue.3 , pp. 222-227
  • 36
    • 0033237503 scopus 로고    scopus 로고
    • Human Population Genetics versus the HGDP
    • Harry, Debra, and Jonathan Marks 1999 Human Population Genetics versus the HGDP. Politics and the Life Sciences 18(2): 303-305.
    • (1999) Politics and the Life Sciences , vol.18 , Issue.2 , pp. 303-305
    • Harry, D.1    Marks, J.2
  • 38
    • 27544462151 scopus 로고
    • Origin Traditions of American Racial Isolates: A Case of Something Borrowed
    • Henige, David 1984 Origin Traditions of American Racial Isolates: A Case of Something Borrowed. Appalachian Journal 1(3): 201-213.
    • (1984) Appalachian Journal , vol.1 , Issue.3 , pp. 201-213
    • Henige, D.1
  • 39
    • 27544452716 scopus 로고    scopus 로고
    • The Melungeons Become a Race
    • 1998 The Melungeons Become a Race. Appalachian Journal 25(3): 270-286.
    • (1998) Appalachian Journal , vol.25 , Issue.3 , pp. 270-286
  • 40
    • 0007235539 scopus 로고    scopus 로고
    • If You're Thinking of Living in STS: A Guide for the Perplexed
    • Cyborgs and Citadels: Anthropological Interventions in Emerging Sciences and Technologies G.L. Downey and J. Dumit, eds., Santa Fe, NM: School of American Research Press
    • Hess, David J. 1997 If You're Thinking of Living in STS: A Guide for the Perplexed. In Cyborgs and Citadels: Anthropological Interventions in Emerging Sciences and Technologies. G.L. Downey and J. Dumit, eds., pp. 143-164. School of American Research Advanced Seminar Series. Santa Fe, NM: School of American Research Press.
    • (1997) School of American Research Advanced Seminar Series , pp. 143-164
    • Hess, D.J.1
  • 42
    • 27544448158 scopus 로고    scopus 로고
    • Mataatua Declaration on Cultural and Intellectual Property Rights of Indigenous People
    • International Association of the Mataatua Declaration 1996 Mataatua Declaration on Cultural and Intellectual Property Rights of Indigenous People. Cultural Survival Quarterly 20(2): 52-53.
    • (1996) Cultural Survival Quarterly , vol.20 , Issue.2 , pp. 52-53
  • 43
    • 27544445849 scopus 로고
    • Ascribed Ethnicity and the Ethnic Display Event: The Melungeons of Hancock County, Tennessee
    • Ivey, Saundra Keyes 1977 Ascribed Ethnicity and the Ethnic Display Event: The Melungeons of Hancock County, Tennessee. Western Folklore 36(1): 85-107.
    • (1977) Western Folklore , vol.36 , Issue.1 , pp. 85-107
    • Ivey, S.K.1
  • 46
    • 0010266967 scopus 로고    scopus 로고
    • Beating Up Bioethics
    • 2001 Beating Up Bioethics. Hastings Center Report 31(5): 40-45.
    • (2001) Hastings Center Report , vol.31 , Issue.5 , pp. 40-45
  • 47
    • 0032087285 scopus 로고    scopus 로고
    • Groups as Gatekeepers to Genomic Research: Conceptually Confusing, Morally Hazardous, and Practically Useless
    • Juengst, Eric T. 1998 Groups as Gatekeepers to Genomic Research: Conceptually Confusing, Morally Hazardous, and Practically Useless. Kennedy Institute of Ethics Journal 8(2): 183-200.
    • (1998) Kennedy Institute of Ethics Journal , vol.8 , Issue.2 , pp. 183-200
    • Juengst, E.T.1
  • 49
    • 0033237498 scopus 로고    scopus 로고
    • Experience and Preliminary Results in Human Genome Diversity Research
    • Kidd, Kenneth K., and Judith R. Kidd 1999 Experience and Preliminary Results in Human Genome Diversity Research. Politics and the Life Sciences 18(2): 314-316.
    • (1999) Politics and the Life Sciences , vol.18 , Issue.2 , pp. 314-316
    • Kidd, K.K.1    Kidd, J.R.2
  • 51
    • 0004005686 scopus 로고
    • Cambridge, MA: Harvard University Press
    • Latour, Bruno 1987 Science in Action. Cambridge, MA: Harvard University Press.
    • (1987) Science in Action
    • Latour, B.1
  • 53
    • 0028502391 scopus 로고
    • Interrogating the Human Diversity Genome Project
    • Lock, Margaret 1994 Interrogating the Human Diversity Genome Project. Social Science and Medicine 39(5): 603-606.
    • (1994) Social Science and Medicine , vol.39 , Issue.5 , pp. 603-606
    • Lock, M.1
  • 55
    • 27544435998 scopus 로고
    • Electronic document
    • Mead, Aroha Te Pareake 1995 Re: Papua New Guinea Patents. Electronic document, http://www.nativenet.uthscsa.edu/archive/nl/9510/0350.html, accessed January 27, 2002.
    • (1995) Re: Papua New Guinea Patents
    • Mead, A.T.P.1
  • 56
    • 0007211777 scopus 로고    scopus 로고
    • Genealogy, Sacrednessand the Commodities Market
    • 1996 Genealogy, Sacredness, and the Commodities Market. Cultural Survival Quarterly 20(2): 46-51.
    • (1996) Cultural Survival Quarterly , vol.20 , Issue.2 , pp. 46-51
  • 58
    • 27544513653 scopus 로고
    • Electronic document
    • Mooney, Pat Roy 1993 Human Genome Diversity Project. Electronic document, http://www.nativenet. uthscsa.edu/archive/nl/9311/0026.html, accessed January 27, 2002.
    • (1993) Human Genome Diversity Project
    • Mooney, P.R.1
  • 59
    • 27544438320 scopus 로고
    • Electronic document
    • Mooney, Pat Roy, and Edward Hammond 1995 Re: Papua New Guinea Patents. Electronic document, http://www.nativenet.uthscsa.edu/archive/nl/9510/0310.html, accessed January 27, 2002.
    • (1995) Re: Papua New Guinea Patents
    • Mooney, P.R.1    Hammond, E.2
  • 61
    • 27544437179 scopus 로고
    • The Real Human Populations
    • A. Chakravarti, ed., New York: Van Nostrand Reinhold Co.
    • Neel, James V. 1984 The Real Human Populations. In Human Population Genetics: The Pittsburgh Symposium. A. Chakravarti, ed., pp. 249-273. New York: Van Nostrand Reinhold Co.
    • (1984) Human Population Genetics: The Pittsburgh Symposium , pp. 249-273
    • Neel, J.V.1
  • 63
    • 0031543578 scopus 로고    scopus 로고
    • Proposed Model Ethical Protocol for Collecting DNA Samples
    • North American Regional Committee of the Human Genome Project 1997 Proposed Model Ethical Protocol for Collecting DNA Samples. Houston Law Review 33(5): 1431-1473.
    • (1997) Houston Law Review , vol.33 , Issue.5 , pp. 1431-1473
  • 64
    • 0012173472 scopus 로고
    • The Melungeons: A Mixed-Blood Strain of the Southern Appalachians
    • Price, Edward T. 1951 The Melungeons: A Mixed-Blood Strain of the Southern Appalachians. The Geographical Review 41(2): 256-271.
    • (1951) The Geographical Review , vol.41 , Issue.2 , pp. 256-271
    • Price, E.T.1
  • 65
    • 84937382498 scopus 로고    scopus 로고
    • The Melungeon Identity Movement and the Construction of Appalachian Whiteness
    • Puckett, Anita 2001 The Melungeon Identity Movement and the Construction of Appalachian Whiteness. Journal of Linguistic Anthropology 11(1): 131-146.
    • (2001) Journal of Linguistic Anthropology , vol.11 , Issue.1 , pp. 131-146
    • Puckett, A.1
  • 67
    • 0035536137 scopus 로고    scopus 로고
    • The Human Genome Diversity Project: A Case Study in Coproduction
    • Reardon, Jenny 2001 The Human Genome Diversity Project: A Case Study in Coproduction. Social Studies of Science 31(3): 357-388.
    • (2001) Social Studies of Science , vol.31 , Issue.3 , pp. 357-388
    • Reardon, J.1
  • 68
    • 0033085550 scopus 로고    scopus 로고
    • The Human Genome Diversity Project: Ethical Problems and Solutions
    • Resnick, David B. 1999 The Human Genome Diversity Project: Ethical Problems and Solutions. Politics and the Life Sciences 18(1): 15-23.
    • (1999) Politics and the Life Sciences , vol.18 , Issue.1 , pp. 15-23
    • Resnick, D.B.1
  • 69
    • 0033200813 scopus 로고    scopus 로고
    • Reflections on the Human Genome Diversity Project
    • Rose, Hilary 1999 Reflections on the Human Genome Diversity Project. Politics and the Life Sciences 18(2): 328-330.
    • (1999) Politics and the Life Sciences , vol.18 , Issue.2 , pp. 328-330
    • Rose, H.1
  • 70
    • 0033181261 scopus 로고    scopus 로고
    • Meanings, Politics, and Medicine: On the Bioethical Enterprise and History
    • Rosenberg, Charles E. 1999 Meanings, Politics, and Medicine: On the Bioethical Enterprise and History. Daedalus 128(4): 27-46.
    • (1999) Daedalus , vol.128 , Issue.4 , pp. 27-46
    • Rosenberg, C.E.1
  • 72
    • 5044251053 scopus 로고
    • Electronic document
    • Rural Advancement Foundation International a(RAFI) 1993 Patents, Indigenous People, and Human Genetic Diversity. Electronic document, http://www.rafi.org/article.asp?newsid=223, accessed February 4, 2002.
    • (1993) Patents, Indigenous People, and Human Genetic Diversity
  • 73
    • 0348052179 scopus 로고
    • Electronic document
    • 1994 The Patenting of Human Genetic Material. Electronic document, http://www.rafi.org/article.asp?newsid=218, accessed February 4, 2002.
    • (1994) The Patenting of Human Genetic Material
  • 74
    • 27544513653 scopus 로고
    • Electronic document
    • South and Meso American Indian Information Center (SAIIC) 1993 Human Genome Diversity Project. Electronic document, http://www.nativenet. uthscsa.edu/archive/nl/9310/0273.html, accessed January 6, 2002.
    • (1993) Human Genome Diversity Project
  • 78
    • 27544501036 scopus 로고
    • Electronic document
    • Third World Network 1993 Call to Stop Human Genome Project. Electronic document, http://www. nativenet.uthscsa.edu/archive/nl/9307/0036.html, accessed January 6, 2002.
    • (1993) Call to Stop Human Genome Project
  • 83
    • 27544481445 scopus 로고
    • A Response to Henige
    • Wilson, Darlene 1988 A Response to Henige. Appalachian Journal 25(3): 286-296.
    • (1988) Appalachian Journal , vol.25 , Issue.3 , pp. 286-296
    • Wilson, D.1
  • 85
    • 27544455166 scopus 로고
    • Electronic document
    • World Council of Indigenous Peoples 1994 WCIP Resolution on the HGDP. Electronic document, http://www.nativenet.uthscsa.edu/archive/nl/9401/0315.html, accessed January 7, 2002.
    • (1994) WCIP Resolution on the HGDP


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