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Volumn 63, Issue 3, 1998, Pages 696-702

A model agreement for genetic research in socially identifiable populations

Author keywords

[No Author keywords available]

Indexed keywords

AMERICAN INDIAN; ARTICLE; COMMERCIAL PHENOMENA; CULTURAL FACTOR; DATA BASE; DECISION MAKING; ETHICS; GENETIC VARIABILITY; HEALTH CARE; HUMAN; INFORMED CONSENT; MEDICAL RESEARCH; PATENT; PERSUASIVE COMMUNICATION; POPULATION GENETICS; PRIORITY JOURNAL; PUBLICATION;

EID: 0032231760     PISSN: 00029297     EISSN: None     Source Type: Journal    
DOI: 10.1086/302013     Document Type: Article
Times cited : (81)

References (34)
  • 2
    • 0030775618 scopus 로고    scopus 로고
    • The ethics of clinical research in the third world
    • Angell M (1997) The ethics of clinical research in the third world. N Engl J Med 337:847-849
    • (1997) N Engl J Med , vol.337 , pp. 847-849
    • Angell, M.1
  • 4
    • 0029100935 scopus 로고    scopus 로고
    • Ethnicity and attitudes toward patient autonomy
    • Ethnicity and attitudes toward patient autonomy. JAMA 274:820-825
    • JAMA , vol.274 , pp. 820-825
  • 5
    • 0032503647 scopus 로고    scopus 로고
    • Privacy and confidentiality in the publication of pedigrees: A survey of investigators and biomedical journals
    • Botkin JR, McMahon WM, Smith KR, Nash JE (1998) Privacy and confidentiality in the publication of pedigrees: a survey of investigators and biomedical journals. JAMA 279: 1808-1812
    • (1998) JAMA , vol.279 , pp. 1808-1812
    • Botkin, J.R.1    McMahon, W.M.2    Smith, K.R.3    Nash, J.E.4
  • 6
    • 0031990657 scopus 로고    scopus 로고
    • Genomics and human disease - Variations on variation
    • Brown PO, Hartwell L (1998) Genomics and human disease - variations on variation. Nat Genet 18:91-93
    • (1998) Nat Genet , vol.18 , pp. 91-93
    • Brown, P.O.1    Hartwell, L.2
  • 7
    • 85197163836 scopus 로고
    • Handle with care: Race, class and genetics
    • Murphy T, Lappe M (eds) University of California Press, Berkeley
    • Caplan A (1994) Handle with care: race, class and genetics. In: Murphy T, Lappe M (eds) Justice and the Human Genome Project. University of California Press, Berkeley, pp 30-45
    • (1994) Justice and the Human Genome Project , pp. 30-45
    • Caplan, A.1
  • 8
    • 0026613627 scopus 로고
    • Ethics are local: Engaging cross-cultural variation in the ethics for clinical research
    • Christakis NA (1992) Ethics are local: engaging cross-cultural variation in the ethics for clinical research. Soc Sci Med 35: 1079-1091
    • (1992) Soc Sci Med , vol.35 , pp. 1079-1091
    • Christakis, N.A.1
  • 10
    • 0030688004 scopus 로고    scopus 로고
    • Variations on a theme: Cataloging human DNA sequence variation
    • Collins FS, Guyer MS, Chakravarti A (1997) Variations on a theme: cataloging human DNA sequence variation. Science 278:1580-1581
    • (1997) Science , vol.278 , pp. 1580-1581
    • Collins, F.S.1    Guyer, M.S.2    Chakravarti, A.3
  • 11
    • 0004299909 scopus 로고    scopus 로고
    • National Academy of Sciences, Washington, DC
    • Committee on Human Genome Diversity, National Research Council (1997) Evaluating human genetic diversity. National Academy of Sciences, Washington, DC
    • (1997) Evaluating Human Genetic Diversity
  • 12
    • 0030801333 scopus 로고    scopus 로고
    • Genetic variation of 3 beta-hydroxysteroid dehydrogenase type II in three racial/ethnic groups: Implications for prostate cancer risk
    • Devgan SA, Henderson BE, Yu MC, Shi CY, Pike MC, Ross RK, Reichardt JK (1997) Genetic variation of 3 beta-hydroxysteroid dehydrogenase type II in three racial/ethnic groups: implications for prostate cancer risk. Prostate 33: 9-12
    • (1997) Prostate , vol.33 , pp. 9-12
    • Devgan, S.A.1    Henderson, B.E.2    Yu, M.C.3    Shi, C.Y.4    Pike, M.C.5    Ross, R.K.6    Reichardt, J.K.7
  • 13
    • 0031278323 scopus 로고    scopus 로고
    • Communal discourse as a supplement to informed consent in genetic research
    • Foster MW, Eisenbraun AJ, Carter TH (1997) Communal discourse as a supplement to informed consent in genetic research. Nat Genet 17:277-279
    • (1997) Nat Genet , vol.17 , pp. 277-279
    • Foster, M.W.1    Eisenbraun, A.J.2    Carter, T.H.3
  • 14
    • 0038413227 scopus 로고    scopus 로고
    • Genes, property, and people
    • Friedlander J (1996) Genes, property, and people. Cult Survival Q 20(Summer): 22-24
    • (1996) Cult Survival Q , vol.20 , Issue.SUMMER , pp. 22-24
    • Friedlander, J.1
  • 15
    • 0030944174 scopus 로고    scopus 로고
    • Unlimited human autonomy - A cultural bias?
    • Glick SM (1997) Unlimited human autonomy - a cultural bias? N Engl J Med 336:954-956
    • (1997) N Engl J Med , vol.336 , pp. 954-956
    • Glick, S.M.1
  • 16
    • 0029095026 scopus 로고
    • Informed consent, cultural sensitivity, and respect for persons
    • Gostin LO (1995) Informed consent, cultural sensitivity, and respect for persons. JAMA 274:844-845
    • (1995) JAMA , vol.274 , pp. 844-845
    • Gostin, L.O.1
  • 17
    • 0029019611 scopus 로고
    • Highly variable incidence of cystic fibrosis and different mutation distribution among different Jewish ethnic groups in Israel
    • Kerem E, Kalman YM, Yahav Y, Shoshani T, Abeliovich D, Szeinberg, A, Rivlin J, et al (1995) Highly variable incidence of cystic fibrosis and different mutation distribution among different Jewish ethnic groups in Israel. Hum Genet 96: 193-197
    • (1995) Hum Genet , vol.96 , pp. 193-197
    • Kerem, E.1    Kalman, Y.M.2    Yahav, Y.3    Shoshani, T.4    Abeliovich, D.5    Szeinberg, A.6    Rivlin, J.7
  • 19
    • 0002818216 scopus 로고
    • The past as prologue: Race, class, and gene discrimination
    • Annas GJ, Elias S (eds) Oxford University Press, Oxford
    • King PA (1992) The past as prologue: race, class, and gene discrimination. In: Annas GJ, Elias S (eds) Gene mapping: using law and ethics as guides. Oxford University Press, Oxford, pp 94-111
    • (1992) Gene Mapping: Using Law and Ethics as Guides , pp. 94-111
    • King, P.A.1
  • 20
    • 0030003909 scopus 로고    scopus 로고
    • Ethical issues in international collaborative research on the human genome: The HGP and the HGDP
    • Knoppers BM, Hirtle M, Lormeau S (1996) Ethical issues in international collaborative research on the human genome: the HGP and the HGDP. Genomics 34:272-282
    • (1996) Genomics , vol.34 , pp. 272-282
    • Knoppers, B.M.1    Hirtle, M.2    Lormeau, S.3
  • 21
    • 0031568030 scopus 로고    scopus 로고
    • Is informed consent possible in the rapidly evolving world of DNA sampling?
    • Lyttle J (1997a) Is informed consent possible in the rapidly evolving world of DNA sampling? CMAJ 156:257-258
    • (1997) CMAJ , vol.156 , pp. 257-258
    • Lyttle, J.1
  • 22
    • 0031058262 scopus 로고    scopus 로고
    • Issues concerning ethical conduct and genetic mapping raised at Montreal meeting
    • Lyttle J (1997b) Issues concerning ethical conduct and genetic mapping raised at Montreal meeting. CMAJ 156:411-412
    • (1997) CMAJ , vol.156 , pp. 411-412
    • Lyttle, J.1
  • 23
    • 0029818534 scopus 로고    scopus 로고
    • Tribal groups attack ethics of genome diversity project
    • Macilwain C (1996) Tribal groups attack ethics of genome diversity project. Nature 383:208
    • (1996) Nature , vol.383 , pp. 208
    • Macilwain, C.1
  • 24
    • 0026621065 scopus 로고
    • Ethnic heterogeneity and cystic fibrosis transmembrane regulator (CFTR) mutation frequencies in Chicago-area CF families
    • Ober C, Lester LA, Mott C, Billstrand C, Lemke A, van der Ven K, Marcus S, et al (1992) Ethnic heterogeneity and cystic fibrosis transmembrane regulator (CFTR) mutation frequencies in Chicago-area CF families. Am J Hum Genet 51: 1344-1348
    • (1992) Am J Hum Genet , vol.51 , pp. 1344-1348
    • Ober, C.1    Lester, L.A.2    Mott, C.3    Billstrand, C.4    Lemke, A.5    Van Der Ven, K.6    Marcus, S.7
  • 25
    • 0029803867 scopus 로고    scopus 로고
    • Standards of care and ethical concerns in genetic testing and screening
    • Parker LS, Majeske RA (1996) Standards of care and ethical concerns in genetic testing and screening. Clin Obstet Gynecol 39:873-884
    • (1996) Clin Obstet Gynecol , vol.39 , pp. 873-884
    • Parker, L.S.1    Majeske, R.A.2
  • 26
    • 0026880372 scopus 로고
    • Intersections of western biomedical ethics and world culture: Problematic and possibility
    • Pellegrino ED (1992) Intersections of western biomedical ethics and world culture: problematic and possibility. Camb Q Healthcare Ethics 3:191-196
    • (1992) Camb Q Healthcare Ethics , vol.3 , pp. 191-196
    • Pellegrino, E.D.1
  • 27
    • 0029395813 scopus 로고
    • Sickle cell screening policies as portent: How will the human genome project affect public sector genetic services?
    • Phoenix DD, Lybrook SM, Trottier RW, Hodgin FC, Crandall LA (1995) Sickle cell screening policies as portent: how will the human genome project affect public sector genetic services? J Natl Med Assoc 87:801-812
    • (1995) J Natl Med Assoc , vol.87 , pp. 801-812
    • Phoenix, D.D.1    Lybrook, S.M.2    Trottier, R.W.3    Hodgin, F.C.4    Crandall, L.A.5
  • 28
    • 0028905567 scopus 로고
    • Research on the human genome and patentability - The ethical consequences
    • Pompidou A (1995) Research on the human genome and patentability - the ethical consequences. J Med Ethics 21(2): 69-71
    • (1995) J Med Ethics , vol.21 , Issue.2 , pp. 69-71
    • Pompidou, A.1
  • 29
    • 0027638581 scopus 로고
    • Publication-related risks to privacy: Ethical implications of pedigree studies
    • Powers, M (1993) Publication-related risks to privacy: ethical implications of pedigree studies. IRB 15(July-August): 7-11
    • (1993) IRB , vol.15 , Issue.JULY-AUGUST , pp. 7-11
    • Powers, M.1
  • 30
    • 0008530013 scopus 로고    scopus 로고
    • Concern among Jews is heightened as scientists deepen genetic studies
    • April 22, sec A
    • Stolberg SG (1998) Concern among Jews is heightened as scientists deepen genetic studies. New York Times, April 22, sec A
    • (1998) New York Times
    • Stolberg, S.G.1
  • 31
    • 0030902227 scopus 로고    scopus 로고
    • Population genetics of BRCA1 and BRCA2
    • Szabo CI, King MC (1997) Population genetics of BRCA1 and BRCA2. Am J Hum Genet 60:1013-1020
    • (1997) Am J Hum Genet , vol.60 , pp. 1013-1020
    • Szabo, C.I.1    King, M.C.2
  • 33
    • 0029331826 scopus 로고
    • DNA banking and informed consent. Part 1
    • Weir R, Horton J (1995) DNA banking and informed consent. Part 1. IRB 17(July-August): 1-4
    • (1995) IRB , vol.17 , Issue.JULY-AUGUST , pp. 1-4
    • Weir, R.1    Horton, J.2
  • 34
    • 0029444541 scopus 로고
    • Beyond 'genetic discrimination': Toward the broader harm of geneticism
    • Wolf S (1995) Beyond 'genetic discrimination': toward the broader harm of geneticism. J Law Med Ethics 23:345-353
    • (1995) J Law Med Ethics , vol.23 , pp. 345-353
    • Wolf, S.1


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.