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Volumn 48, Issue 3, 2005, Pages 595-607

Parental hope confronting scientific uncertainty: A test of ethics in maternal-fetal surgery for spina bifida

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; ALTERNATIVE MEDICINE; ATTITUDE; CONFERENCE PAPER; FEMALE; FETUS; FETUS SURGERY; HUMAN; MEDICAL ETHICS; MENINGOMYELOCELE; PRENATAL DIAGNOSIS; SPINA BIFIDA;

EID: 23644445352     PISSN: 00099201     EISSN: None     Source Type: Journal    
DOI: 10.1097/01.grf.0000169660.80698.a8     Document Type: Conference Paper
Times cited : (12)

References (28)
  • 1
    • 0345763847 scopus 로고    scopus 로고
    • Ethical issue in fetal surgery
    • Howe EG. Ethical issue in fetal surgery. Semin Perinatol. 2003;27:446-457.
    • (2003) Semin Perinatol , vol.27 , pp. 446-457
    • Howe, E.G.1
  • 4
    • 33645177687 scopus 로고
    • The ethics of fetal surgery
    • Milunsky A, Annas GJ, eds. New York: Plenum Press
    • Jonsen AR. The ethics of fetal surgery. In: Milunsky A, Annas GJ, eds. Genetics and the Law III. New York: Plenum Press; 1985:365-368.
    • (1985) Genetics and the Law III , pp. 365-368
    • Jonsen, A.R.1
  • 5
    • 33645177995 scopus 로고
    • Sketch of a phenomenology and a metaphysic of hope
    • Craufurd E, trans. Chicago: Henry Regerny Co
    • Marcel G. Sketch of a phenomenology and a metaphysic of hope. In: Craufurd E, trans. Homo Viator: Introduction to a Metaphysic of Hope. Chicago: Henry Regerny Co; 1951:29-67.
    • (1951) Homo Viator: Introduction to a Metaphysic of Hope , pp. 29-67
    • Marcel, G.1
  • 6
    • 17144470627 scopus 로고
    • The will and the ways: Development and validation of an individual-differences measure of hope
    • Snyder CR, Harris C, Anderson JR, et al. The will and the ways: development and validation of an individual-differences measure of hope. J Pers Soc Psychol. 1991;60:570-585.
    • (1991) J Pers Soc Psychol , vol.60 , pp. 570-585
    • Snyder, C.R.1    Harris, C.2    Anderson, J.R.3
  • 7
    • 0033798730 scopus 로고    scopus 로고
    • Quality of life in spina bifida: Importance of parental hope
    • Kirplani HM, Parkin PC, Willan AR, et al. Quality of life in spina bifida: importance of parental hope. Arch Dis Child. 2000;83:293-297.
    • (2000) Arch Dis Child , vol.83 , pp. 293-297
    • Kirplani, H.M.1    Parkin, P.C.2    Willan, A.R.3
  • 8
    • 0031851182 scopus 로고    scopus 로고
    • Refraining the meaning of disability to families: The embrace of paradox
    • Larson E. Refraining the meaning of disability to families: the embrace of paradox. Soc Sci Med. 1998;47:865-875.
    • (1998) Soc Sci Med , vol.47 , pp. 865-875
    • Larson, E.1
  • 10
    • 0141801266 scopus 로고    scopus 로고
    • Strange, but not stranger: The peculiar visage of philosophy in clinical ethics consultation
    • Bliton MJ, Finder SG. Strange, but not stranger: the peculiar visage of philosophy in clinical ethics consultation. Hum Stud. 1999;22:69-97.
    • (1999) Hum Stud , vol.22 , pp. 69-97
    • Bliton, M.J.1    Finder, S.G.2
  • 11
    • 0035753806 scopus 로고    scopus 로고
    • Over the cutting edge: How ethics consultation illuminates the moral complexity of open-uterine fetal repair of spina bifida and patients' decision making
    • Blition MJ, Zaner RM. Over the cutting edge: how ethics consultation illuminates the moral complexity of open-uterine fetal repair of spina bifida and patients' decision making. J Clin Ethics. 2001;12:346-360.
    • (2001) J Clin Ethics , vol.12 , pp. 346-360
    • Blition, M.J.1    Zaner, R.M.2
  • 12
    • 0141731365 scopus 로고    scopus 로고
    • Ethics: "life before birth" and moral complexity in maternal-fetal surgery for spina bifida
    • Bliton MJ. Ethics: "life before birth" and moral complexity in maternal-fetal surgery for spina bifida. Clin Perinatol. 2003;30:449-464.
    • (2003) Clin Perinatol , vol.30 , pp. 449-464
    • Bliton, M.J.1
  • 13
    • 0141578051 scopus 로고    scopus 로고
    • Imagining a fetus: Insights from talking with pregnant women about their decision to undergo open-uterine fetal surgery
    • Toombs SK, ed. (in the Philosophy and Medicine Series). Dordrecht, The Netherlands: Kluwer Academic Press
    • Bliton MJ. Imagining a fetus: insights from talking with pregnant women about their decision to undergo open-uterine fetal surgery. In: Toombs SK, ed. Handbook of Phenomenology and Medicine. (Vol 68: in the Philosophy and Medicine Series.) Dordrecht, The Netherlands: Kluwer Academic Press; 2001: 393-415.
    • (2001) Handbook of Phenomenology and Medicine , vol.68 , pp. 393-415
    • Bliton, M.J.1
  • 14
    • 0036012261 scopus 로고    scopus 로고
    • The role of genetic counseling in the elective termination of pregnancies involving fetuses with disabilities
    • Roberts CD, Stough LM, Parrish LH. The role of genetic counseling in the elective termination of pregnancies involving fetuses with disabilities. J Spec Educ. 2002;36:48-55.
    • (2002) J Spec Educ , vol.36 , pp. 48-55
    • Roberts, C.D.1    Stough, L.M.2    Parrish, L.H.3
  • 15
    • 0002361056 scopus 로고
    • Foetal images: The power of visual culture in the politics of reproduction
    • Stanworth M, ed. Minneapolis: University of Minnesota Press
    • Petchesky RP. Foetal images: the power of visual culture in the politics of reproduction. In: Stanworth M, ed. Reproductive Technologies: Gender, Motherhood and Medicine. Minneapolis: University of Minnesota Press; 1987:57-80.
    • (1987) Reproductive Technologies: Gender, Motherhood and Medicine , pp. 57-80
    • Petchesky, R.P.1
  • 18
    • 84965905648 scopus 로고
    • Separate, but less equal: Fetal ultrasonography and the transformation of expectant mother/fatherhood
    • Sandelowski M. Separate, but less equal: Fetal ultrasonography and the transformation of expectant mother/fatherhood. Gend Soc. 1994;8:230-245.
    • (1994) Gend Soc , vol.8 , pp. 230-245
    • Sandelowski, M.1
  • 19
    • 0013231488 scopus 로고    scopus 로고
    • Real-time fetus: The role of the sonogram in the age of monitored reproduction
    • Downey GL, Dumit J, ed. Santa Fe: School of American Research Press
    • Rapp R. Real-time fetus: the role of the sonogram in the age of monitored reproduction. In: Downey GL, Dumit J, ed. Cyborgs and Citadels: Anthropological Interventions in Emerging Sciences and Technologies. Santa Fe: School of American Research Press; 1997:31-48.
    • (1997) Cyborgs and Citadels: Anthropological Interventions in Emerging Sciences and Technologies , pp. 31-48
    • Rapp, R.1
  • 20
    • 0030153647 scopus 로고    scopus 로고
    • Fetal relationality in feminist philosophy: An anthropological critique
    • Morgan LM. Fetal relationality in feminist philosophy: an anthropological critique. Hypatia. 1996;11:47-70.
    • (1996) Hypatia , vol.11 , pp. 47-70
    • Morgan, L.M.1
  • 21
    • 0015491878 scopus 로고
    • Emotional disturbances of handicapped pre-school children and their families-attitudes to the child
    • Bentovim A. Emotional disturbances of handicapped pre-school children and their families-attitudes to the child. BMJ. 1972;3:579-581.
    • (1972) BMJ , vol.3 , pp. 579-581
    • Bentovim, A.1
  • 22
    • 0344753476 scopus 로고
    • Management of pregnancies with suspected fetal anomalies: Clinical experience and ethical issues
    • Nimrod C, Griener G, eds. Waterloo, CA: Wilfrid Laurier University Press
    • Manchester D, Clewell W, Manco-Johnson M, et al. Management of pregnancies with suspected fetal anomalies: clinical experience and ethical issues. In: Nimrod C, Griener G, eds. Biomedical Ethics and Fetal Therapy. Waterloo, CA: Wilfrid Laurier University Press; 1988:65-79.
    • (1988) Biomedical Ethics and Fetal Therapy , pp. 65-79
    • Manchester, D.1    Clewell, W.2    Manco-Johnson, M.3
  • 23
    • 0033794509 scopus 로고    scopus 로고
    • Effect of prenatal diagnosis on epidemiologic studies of birth defects
    • Cragan JD, Khoury MJ. Effect of prenatal diagnosis on epidemiologic studies of birth defects. Epidemiology. 2000;11:695-699.
    • (2000) Epidemiology , vol.11 , pp. 695-699
    • Cragan, J.D.1    Khoury, M.J.2
  • 24
    • 0029652028 scopus 로고
    • Surveillance for anencephaly and spina bifida and the impact of prenatal diagnosis: United States 1985-1994
    • Cragan JD, Roberts HE, Edmonds LD, et al. Surveillance for anencephaly and spina bifida and the impact of prenatal diagnosis: United States 1985-1994 MMWR CDC Surveill Summ. 1995;44:1-13.
    • (1995) MMWR CDC Surveill Summ , vol.44 , pp. 1-13
    • Cragan, J.D.1    Roberts, H.E.2    Edmonds, L.D.3
  • 25
    • 4243474561 scopus 로고    scopus 로고
    • Provisional normalcy and "perfect babies": Pregnant women's attitudes toward disability in the context of prenatal testing
    • Franklin S, Ragoné H, eds. Philadelphia, University of Pennsylvania Press;
    • Press N, Browner CH, Tran D, et al. Provisional normalcy and "perfect babies": pregnant women's attitudes toward disability in the context of prenatal testing. In: Franklin S, Ragoné H, eds. Reproducing Reproduction: Kinship, Power, and Technological Innovation. Philadelphia, University of Pennsylvania Press; 1998:46-65.
    • (1998) Reproducing Reproduction: Kinship, Power, and Technological Innovation , pp. 46-65
    • Press, N.1    Browner, C.H.2    Tran, D.3
  • 26
    • 0032421520 scopus 로고    scopus 로고
    • Changing ethical issues in the treatment of spina bifida: A personal odyssey
    • Freeman JM. Changing ethical issues in the treatment of spina bifida: a personal odyssey. Ment Retard Dev Disabil Res Rev. 1998;4:302-307.
    • (1998) Ment Retard Dev Disabil Res Rev , vol.4 , pp. 302-307
    • Freeman, J.M.1
  • 28
    • 33645172847 scopus 로고    scopus 로고
    • US Department of Health and Human Services. United States Government Code of Federal Regulations (CFR): Title 45 Part 46 Subpart B at §46.204 a-e
    • US Department of Health and Human Services. United States Government Code of Federal Regulations (CFR): Title 45 Part 46 Subpart B at §46.204 a-e.


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