Ethical issues in genetic testing

Journal of Midwifery and Women's Health

Volumn 50, Issue 3, 2005, Pages 234-240

  Lea, Dale Halsey ^a   Williams, Janet ^b   Donahue, M Patricia ^b  

^a FOUNDATION FOR BLOOD RESEARCH   (United States)

^b NONE

Author keywords

Autonomy; Ethics; Genetic testing; Justice; Nurse midwife; Privacy

Indexed keywords

ARTICLE; BENEFICENCE; CLINICAL PRACTICE; FAMILY HISTORY; FEMALE; GENETIC ANALYSIS; GENETIC PREDISPOSITION; GENETIC RISK; GENETIC SCREENING; HEALTH CARE PERSONNEL; HEREDITY; HUMAN; HUMAN RIGHTS; LABORATORY DIAGNOSIS; MEDICAL DECISION MAKING; MEDICAL ETHICS; MIDWIFE; NEWBORN SCREENING; PREGNANCY; PRENATAL DIAGNOSIS; PRIORITY JOURNAL; RISK BENEFIT ANALYSIS;

ATTITUDE TO HEALTH; FEMALE; GENETIC SERVICES; HUMANS; MIDWIFERY; PREGNANCY;

EID: 18444374436     PISSN: 15269523     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.jmwh.2004.12.016     Document Type: Article

References (28)

1. J.M. Freeman K. McDonnel Tough decisions: Cases in medical ethics 2nd ed. 2001 Oxford University Press New York
2. Core competencies for basic midwifery practice 2002 American College of Nurse-Midwives [Internet] May [cited July 25, 2004]; Available from: http://www.midwife.org/prof/display.dcf?id=137.
3. Family history tools 2004 American Medical Association [Internet] June [cited July 25, 2004]; Available from: http://www.amaassn.org/ama/pub/ category/2380.html & www.ama-assn.org/ama/pub/category/2380.htm.
4. J.J. Smart B. Williams Utilitarianism: For and against 1990 Cambridge University Press Cambridge
5. W.K. Frankena Ethics 2nd ed. 1973 Prentice-Hall Englewood Cliffs (NJ)
6. J.K. Williams M.P. Donahue Ethics and genetic testing for nurses. CDROM 2004 University of Iowa College of Nursing Iowa City (IA)
7. G.L. Hustad J.H. Husted Ethical decision making in nursing 2nd ed. 1995 Mosby St. Louis
8. L.B. Andrews J.E. Fullarton N.A. Holtzman A.G. Motulsky (eds.) Assessing genetic risks: Implications for health and social policy 1994 National Academy Press Washington (DC)
9. The National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research The Belmont Report: Ethical principles and guidelines for the protection of human subjects of research 1979 NIH, PHS, HHS Washington (DC)
10. United States General Accounting Office Report to congressional requesters. Newborn screening: Characteristics of state programs 2003 [Internet] [cited July 26, 2004]; GAOP-03-449. Available from: http://www.gao.gov/cgi-bin/getrpt?GAP-03-449.
11. M.A. Lloyd-Puryear I. Forsman Newborn screening and genetic testing J Obstet Gynecol Neonat Nurs 31 2002 200-207
12. C. Grady Ethics and genetic testing Adv Intern Med 44 1999 389-409
13. B.A. Brody Making informed consent meaningful Ethics Hum Res IRB 23 2001 1-5
14. United States Department of Health and Human Cervices. Office for Civil Rights-HIPPA. Medical privacy - National standards to protect the privacy of personal health information [Internet] [cited July 26, 2004]. Available from: http://www.hhs.gov/ocr/hipaa/finalreg.html.
15. Informed decision-making and consent: The role of nursing 2000 International Society of Nurses in Genetics, Inc [Internet] September [cited July 25, 2004]; Available from: http://www.isong.org.
16. American College of Obstetricians and Gynecologists Preconception and prenatal carrier screening for cystic fibrosis 2001 American College of Obstetricians and Gynecologists Washington (DC)
17. W. Burke Genetic testing In A.E. Guttmacher F.S. Collins J.M. Drazen Genomic medicine 2004 Johns Hopkins University Press Baltimore (MD) 14-27
18. S.E. McCandless A primer on expanded newborn screening by tandem mass spectrometry Prim Care 3 2004 583-604
19. M.J. Khoury L.L. McCabe E.R.B. McCabe Population screening in the age of genomic medicine In A.E. Guttmacher F.S. Collins J.M. Drazen Genomic medicine 2004 Johns Hopkins University Press Baltimore (MD) 28-40
20. S.S. Grant Prenatal genetic screening. Online Journal of Issues in Nursing 2000 [Internet]; 5; manuscript 3 [cited July 25, 2004]. Available from: http://www.nursingworld.org/ojin/search/ojsrchrs.cfm.
21. J. Canick L. Kellner First trimester screening for aneuploidy: Serum biochemical markers Semin Perinatol 28 1999 359-368
22. M.C. King J.H. Marks J.B. Mandell New York Breast Cancer Group Breast and ovarian cancer risks due to mutations in BRCA1 and BRCA2 Science 302 2003 643-646
23. H.G. Welch W. Burke Uncertainties in genetic testing for chronic disease JAMA 280 1998 1525-1527
24. P.S. Harper C. Lim D. Craufurd Ten years of presymptomatic testing for Huntington's disease: The experience of the UK Huntington's Disease Prediction Consortium J Med Genet 37 2000 567-571
25. J.K. Williams D.L. Schutte C. Evers C. Forcucci Adults seeking presymptomatic gene testing for Huntington disease Image J Nurs Scholarship 31 1999 109-114
26. M.T. Scheuner S.J. Wang L.J. Raffel S.K. Larabell J.I. Rotter Family history: A comprehensive genetic risk assessment method for the chronic conditions of adulthood Am J Med Genet 71 1997 315-324
27. W.E. Evans H.L. McLeod Pharmacogenomics-Drug disposition, drug targets, and side effects In A.E. Guttmacher F.S. Collins J.M. Drazen Genomic medicine 2004 Johns Hopkins University Press Baltimore (MD) 54-69
28. Amsel L, Dreher D, Jennings B, Parens E. Primary care clinicians and the dilemmas of genetic testing. Part 6: Conclusion. Genetic dilemmas in primary care [Internet] [Cited July 26, 2004]. Available from: www.geneticdilemmas.org/featuredconclusion.html.