Ethics and genetic testing

Advances in Internal Medicine

Volumn 44, Issue , 1999, Pages 389-411

  Grady, Christine ^a  

^a NATIONAL INSTITUTES OF HEALTH   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

CONFIDENTIALITY; FREEDOM; GENETIC COUNSELING; GENETIC PREDISPOSITION; GENETIC PROCEDURES; GENETICS; GENETICS AND REPRODUCTION; GENOTYPE; HETEROZYGOTE DETECTION; HUMAN; LABORATORY; MEDICAL ETHICS; MUTATION; PRENATAL DIAGNOSIS; PRIVACY; RESEARCH; REVIEW; SOCIAL JUSTICE; STANDARD;

GENETICS AND REPRODUCTION;

CONFIDENTIALITY; ETHICS, MEDICAL; FREEDOM; GENETIC COUNSELING; GENETIC PREDISPOSITION TO DISEASE; GENETIC TECHNIQUES; GENOTYPE; HETEROZYGOTE DETECTION; HUMANS; LABORATORIES; MUTATION; PRENATAL DIAGNOSIS; PRIVACY; RESEARCH; SOCIAL JUSTICE;

EID: 0032610981     PISSN: 00652822     EISSN: None     Source Type: Journal    
DOI: None     Document Type: Article

References (29)

1. Andrews L, Fullarton J, Holtzman N, et al (eds): Assessing Genetic Risks: Implications for Health and Social Policy. Washington, DC, National Academy Press, 1994, p 2.
2. Biesecker B: Genetic testing for cancer predisposition. Cancer Nurs 20(4):285-300, 1997.
3. Andrews et al, p 138.
4. Andrews et al, p 121.
5. Andrews et al, pp 124-125.
6. 45 CFfl_46.101(b)(4).
7. Beauchamp T, Childress J: Principles of Biomédical Ethics, ed 4. New York, Oxford University Press, 1994. i
8. Andrews et al, p 247.
9. For example, see: Devettere R: Practical Decision Making in Health Care Ethics. Washington, DC, Georgetown University Press, 1995. i
10. Gert B, Berger E, Cahill G, et al: Morality and the New Genetics: A Guide for Students and Health Care Providers. Sudbury, Mass: Jones and Bartlett, 1996.
11. Jonsen A, Toulmin S: The Abuse of Casuistry. Berkeley, Calif: University of California Press, 1988.
12. Reamer F: AIDS: The relevance of ethics, in Reamer F: AIDS and Ethics. New York, Columbia University Press, 1991, p 13.
13. Murphy T: The genome project and the meaning of difference, in Murphy T, Lappe M (eds): Justice and the Human Genome Project. Berkeley, Calif: University of California Press, 1994, p 12.
14. Marteau T, Richards M: The Troubled Helix: Social and Psychological Implications of the New Human Genetics. Cambridge, Cambridge University Press, 1996, p5.
15. Andrews et al, p 43.
16. Marteau and Richards, p 351.
17. Andrews et al, p 4
18. Andrews et al, p 157.
19. Murray T, Botkin J: Genetic testing and screening: Ethical issues, in Reich W (ed): Encyclopedia ofBioethics, vol 2. New York, Simon and Schuster Macmillan, 1995, pp 1005-1111.
20. Safer v. Pak, N.J.
21. Robert Wright as quoted in Kevles D, Eugenics and the human genome project: Is the past prologue, p 25, in Murphy T, Lappe M (eds): Justice and the Human Genome Project. Berkeley, Calif: University of California Press, 1994.
22. Billings P, Kohn M, de Cuevas M, et al: Discrimination as a consequence of genetic testing. Am J Hum Genet 50:476-482, 1992.
23. Lapham V, Kozma C, Weiss J: Genetic discrimination: Perspectives of consumers. Science 274:621-624, 1996.
24. Geller L, Alper J, Billings P, et al: Individual, family, and societal dimen-sions of genetic discrimination: A case study analysis. Science and Engineering Ethics 2:71-88, 1996.
25. Beauchamp and Childless, p 330.
26. Billings et al. and Lapham et al.
27. Hudson K, Rothenberg K, Andrews L, et al: Genetic discrimination and health insurance: An urgent need for reform. Science 270:391393, 1995.
28. Uzych L: (letter). J Pediatr Oncol Nurs 13:194-195, 1996.
29. Rothenberg K, Fuller B, Rothstein M, et al: Genetic information and the workplace: Legislative approaches and policy challenges. Science 275:1755-1757, 1997.