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Volumn 9, Issue 2, 2004, Pages 146-152

Barriers to the Management of Patients with Surgically Remediable Intractable Epilepsy

Author keywords

[No Author keywords available]

Indexed keywords

ADOLESCENT; ADULT; DISABILITY; DISEASE SEVERITY; HUMAN; INCIDENCE; INTRACTABLE EPILEPSY; MINORITY GROUP; PATIENT CARE; PRIORITY JOURNAL; REVIEW; TREATMENT INDICATION;

EID: 1642542529     PISSN: 10928529     EISSN: None     Source Type: Journal    
DOI: 10.1017/S1092852900008506     Document Type: Review
Times cited : (19)

References (56)
  • 2
    • 0003087379 scopus 로고
    • Overview: Who should be considered a surgical candidate?
    • J Engel Jr, ed. New York, NY: Raven Press
    • Engel J Jr, Shewmon DA. Overview: who should be considered a surgical candidate? In: J Engel Jr, ed. Surgical Treatment of the Epilepsies; 2nd ed. New York, NY: Raven Press; 1993:23-34.
    • (1993) Surgical Treatment of the Epilepsies; 2nd Ed. , pp. 23-34
    • Engel Jr., J.1    Shewmon, D.A.2
  • 3
    • 0038408986 scopus 로고    scopus 로고
    • Patient attitudes about treatments for intractable epilepsy
    • Swarztrauber K, Dewar S, Engel J Jr. Patient attitudes about treatments for intractable epilepsy. Epilepsy Behav. 2003;4:19-25.
    • (2003) Epilepsy Behav , vol.4 , pp. 19-25
    • Swarztrauber, K.1    Dewar, S.2    Engel Jr., J.3
  • 4
    • 0023273822 scopus 로고
    • The management of epilepsy: Patients' perceptions and expectations
    • Wall M, Buchanan N, Baird-Lambert JA. The management of epilepsy: patients' perceptions and expectations. Med J Aust. 1987;146:473-476.
    • (1987) Med J Aust , vol.146 , pp. 473-476
    • Wall, M.1    Buchanan, N.2    Baird-Lambert, J.A.3
  • 5
    • 0028152905 scopus 로고
    • Cost of epilepsy in the United States: A model based on incidence and prognosis
    • Begley CE, Annegers JF, Lairson DR, Reynolds TF, Hauser WA. Cost of epilepsy in the United States: a model based on incidence and prognosis. Epilepsia. 1994;35:1230-1243.
    • (1994) Epilepsia , vol.35 , pp. 1230-1243
    • Begley, C.E.1    Annegers, J.F.2    Lairson, D.R.3    Reynolds, T.F.4    Hauser, W.A.5
  • 6
    • 0033875809 scopus 로고    scopus 로고
    • The impact of epilepsy from the patient's perspective I. Descriptions and subjective perceptions
    • Fisher RS, Vickrey BG, Gibson P, et al. The impact of epilepsy from the patient's perspective I. Descriptions and subjective perceptions. Epilepsy Research. 2000;41:39-51.
    • (2000) Epilepsy Research , vol.41 , pp. 39-51
    • Fisher, R.S.1    Vickrey, B.G.2    Gibson, P.3
  • 7
    • 0018897286 scopus 로고
    • The stigma of epilepsy as a self-concept
    • Ryan R, Kempner K, Emlen AC. The stigma of epilepsy as a self-concept. Epilepsia. 1980;21:433-444.
    • (1980) Epilepsia , vol.21 , pp. 433-444
    • Ryan, R.1    Kempner, K.2    Emlen, A.C.3
  • 9
    • 0028527760 scopus 로고
    • Importance of health and family variables related to quality of life in individuals with uncontrolled seizures
    • Harshorn JC, Byers VL. Importance of health and family variables related to quality of life in individuals with uncontrolled seizures. J Neurosci Nurs. 1994;26:288-297.
    • (1994) J Neurosci Nurs , vol.26 , pp. 288-297
    • Harshorn, J.C.1    Byers, V.L.2
  • 10
    • 0027487306 scopus 로고
    • Epilepsy: A general practice study of knowledge and attitudes among sufferers and non-sufferers
    • Dawkins JL, Crawford PM, Stammers TG. Epilepsy: a general practice study of knowledge and attitudes among sufferers and non-sufferers. Br J Gen Pract. 1993;43:453-457.
    • (1993) Br J Gen Pract , vol.43 , pp. 453-457
    • Dawkins, J.L.1    Crawford, P.M.2    Stammers, T.G.3
  • 11
  • 12
    • 1642542531 scopus 로고    scopus 로고
    • Understanding the delay before epilepsy surgery: Who develops intractable focal epilepsy and when?
    • Berg AT. Understanding the delay before epilepsy surgery: who develops intractable focal epilepsy and when? CNS Spectr. 2004;2136-144.
    • (2004) CNS Spectr , pp. 2136-2144
    • Berg, A.T.1
  • 13
    • 0030734508 scopus 로고    scopus 로고
    • National cancer clinical trials: Children have equal access; adolescents do not
    • Bleyer AW, Tejeda H, Murphy SB, et al. National cancer clinical trials: children have equal access; adolescents do not. J Adolesc Health. 1997;21:366-373.
    • (1997) J Adolesc Health , vol.21 , pp. 366-373
    • Bleyer, A.W.1    Tejeda, H.2    Murphy, S.B.3
  • 14
    • 0033875809 scopus 로고    scopus 로고
    • The impact of epilepsy from the patient's perspective I. Descriptions and subjective persceptions
    • Fisher RS, Vickrey BG, Gibson P, et al. The impact of epilepsy from the patient's perspective I. Descriptions and subjective persceptions. Epilepsy Res. 2000;41:39-51.
    • (2000) Epilepsy Res , vol.41 , pp. 39-51
    • Fisher, R.S.1    Vickrey, B.G.2    Gibson, P.3
  • 15
    • 0020711430 scopus 로고
    • An ethical issue in biomedical research: The involvement of minors in informed and third party consent
    • Leikin SL. An ethical issue in biomedical research: the involvement of minors in informed and third party consent. Clin Res. 1983;31:34-40.
    • (1983) Clin Res , vol.31 , pp. 34-40
    • Leikin, S.L.1
  • 16
    • 0020699047 scopus 로고
    • Toward "personhood" for adolescents. Autonomy and privacy as values in public policy
    • Melton GB. Toward "personhood" for adolescents. Autonomy and privacy as values in public policy. Am Psychol. 1983;38:99-103.
    • (1983) Am Psychol , vol.38 , pp. 99-103
    • Melton, G.B.1
  • 17
    • 0028605148 scopus 로고
    • Self-esteem and behavioral adjustment in children with epilepsy and children with diabetes
    • Hoare P, Mann H. Self-esteem and behavioral adjustment in children with epilepsy and children with diabetes. J Psychosom Res. 1994;38:859-869.
    • (1994) J Psychosom Res , vol.38 , pp. 859-869
    • Hoare, P.1    Mann, H.2
  • 18
    • 0031718124 scopus 로고    scopus 로고
    • An insight into children's and adolescents' experience of seizures and epilepsy
    • Galletti F, Rinna A, Acquafondata C. An insight into children's and adolescents' experience of seizures and epilepsy. Seizure. 1998;7:309-316.
    • (1998) Seizure , vol.7 , pp. 309-316
    • Galletti, F.1    Rinna, A.2    Acquafondata, C.3
  • 19
    • 0032979545 scopus 로고    scopus 로고
    • Differential parental communication with adolescents who are disabled and their healthy siblings
    • Sactermoe CL, Farruggia SP, Lopez C. Differential parental communication with adolescents who are disabled and their healthy siblings. J Adolesc Health. 1999;24:427-432.
    • (1999) J Adolesc Health , vol.24 , pp. 427-432
    • Sactermoe, C.L.1    Farruggia, S.P.2    Lopez, C.3
  • 20
    • 0032811622 scopus 로고    scopus 로고
    • Adolescent girls' and boys' preferences for provider gender and confidentiality in their health care
    • Kapphahn CJ, Wilson KM, Klein JD. Adolescent girls' and boys' preferences for provider gender and confidentiality in their health care. J Adolesc Health. 1999;25:131-142.
    • (1999) J Adolesc Health , vol.25 , pp. 131-142
    • Kapphahn, C.J.1    Wilson, K.M.2    Klein, J.D.3
  • 21
    • 0032774221 scopus 로고    scopus 로고
    • Adolescent health insurance coverage: Recent changes and access to care
    • Newacheck PW, Brindis CD, Cart CU, Marchi K, Irwin CE. Adolescent health insurance coverage: recent changes and access to care. Pediatrics. 1999;104(2 pt 1):195-202.
    • (1999) Pediatrics , vol.104 , Issue.2 PART 1 , pp. 195-202
    • Newacheck, P.W.1    Brindis, C.D.2    Cart, C.U.3    Marchi, K.4    Irwin, C.E.5
  • 22
    • 0027257618 scopus 로고
    • Update on surgical treatment of the epilepsies. Summary of the Second International Palm Desert Conference on the Surgical Treatment of the Epilepsies (1992)
    • Engel J Jr. Update on surgical treatment of the epilepsies. Summary of the Second International Palm Desert Conference on the Surgical Treatment of the Epilepsies (1992). Neurology. 1993;43:1612-1617.
    • (1993) Neurology , vol.43 , pp. 1612-1617
    • Engel Jr., J.1
  • 24
    • 0032913565 scopus 로고    scopus 로고
    • The incidence of epilepsy and unprovoked seizures in multiethnic, urban health maintenance organizations
    • Annegers JF, Dubinsky S, Coan SP, Newmark ME, Roht L. The incidence of epilepsy and unprovoked seizures in multiethnic, urban health maintenance organizations. Epilepsia. 1999;40:502-506.
    • (1999) Epilepsia , vol.40 , pp. 502-506
    • Annegers, J.F.1    Dubinsky, S.2    Coan, S.P.3    Newmark, M.E.4    Roht, L.5
  • 25
    • 0034279377 scopus 로고    scopus 로고
    • Changes in the US health care access in the 90s: Race and income differences from the CARDIA Study. Coronary Artery Risk Development in Young Adults
    • Kiefe CI, Williams OD, Weissman NW, Schreiner PJ, Sidney S, Wallace DD. Changes in the US health care access in the 90s: race and income differences from the CARDIA Study. Coronary Artery Risk Development in Young Adults. Ethn Dis. 2000;10:418-431.
    • (2000) Ethn Dis , vol.10 , pp. 418-431
    • Kiefe, C.I.1    Williams, O.D.2    Weissman, N.W.3    Schreiner, P.J.4    Sidney, S.5    Wallace, D.D.6
  • 26
    • 0032941302 scopus 로고    scopus 로고
    • Changes in access to care, 1977-1996: The role of health insurance
    • Zuvekas SH, Weinick RM. Changes in access to care, 1977-1996: the role of health insurance. Health Serv Res. 1999;34(1 pt2):271-279.
    • (1999) Health Serv Res , vol.34 , Issue.1 PART 2 , pp. 271-279
    • Zuvekas, S.H.1    Weinick, R.M.2
  • 27
    • 0029819071 scopus 로고    scopus 로고
    • Recruitment and retention of African American patients for clinical research: An exploration of response rates in an urban psychiatric hospital
    • Thompson EE, Neighbors HW, Munday C, Jackson JS. Recruitment and retention of African American patients for clinical research: an exploration of response rates in an urban psychiatric hospital. J Consult Clin Psychol. 1996;64:861-867.
    • (1996) J Consult Clin Psychol , vol.64 , pp. 861-867
    • Thompson, E.E.1    Neighbors, H.W.2    Munday, C.3    Jackson, J.S.4
  • 28
    • 0036363156 scopus 로고    scopus 로고
    • Racial differences in how patients perceive physician communication regarding cardiac testing
    • Collins TC, Clark JA, Petersen LA, Kressin NR. Racial differences in how patients perceive physician communication regarding cardiac testing. Med Care. 2002;40(suppl 1):27-34.
    • (2002) Med Care , vol.40 , Issue.SUPPL. 1 , pp. 27-34
    • Collins, T.C.1    Clark, J.A.2    Petersen, L.A.3    Kressin, N.R.4
  • 29
    • 0031571187 scopus 로고    scopus 로고
    • Steps still being taken to undo damage of "America's Nuremberg"
    • Wolinsky H. Steps still being taken to undo damage of "America's Nuremberg." Ann Intern Med. 1997;127:143-144.
    • (1997) Ann Intern Med , vol.127 , pp. 143-144
    • Wolinsky, H.1
  • 32
    • 0038482206 scopus 로고    scopus 로고
    • The quality of health care delivered to adults in the United States
    • McGlynn EA, Asch SM, Adams J, et al. The quality of health care delivered to adults in the United States. New Engl J Med. 2003;348:2635-2645.
    • (2003) New Engl J Med , vol.348 , pp. 2635-2645
    • McGlynn, E.A.1    Asch, S.M.2    Adams, J.3
  • 33
    • 85047692804 scopus 로고
    • Dissemination of information about the US Preventative Service Task Force guidelines
    • Flocke SA, Stange KC, Fedirko TL. Dissemination of information about the US Preventative Service Task Force guidelines. Arch Fam Med. 1994;3:1006-1008.
    • (1994) Arch Fam Med , vol.3 , pp. 1006-1008
    • Flocke, S.A.1    Stange, K.C.2    Fedirko, T.L.3
  • 34
    • 0037465442 scopus 로고    scopus 로고
    • Practice parameter: Temporal lobe and localized neocortical resections for epilepsy: Report of the Quality Standards Subcommittee of the American Academy of Neurology, in Association with the American Epilepsy Society and the American Association of Neurological Surgeons
    • Engel J Jr, Wiebe S, French MD, et al. Practice parameter: temporal lobe and localized neocortical resections for epilepsy: report of the Quality Standards Subcommittee of the American Academy of Neurology, in Association with the American Epilepsy Society and the American Association of Neurological Surgeons. Neurology. 2003;60:538-547.
    • (2003) Neurology , vol.60 , pp. 538-547
    • Engel Jr., J.1    Wiebe, S.2    French, M.D.3
  • 36
    • 0020320483 scopus 로고
    • Professional uncertainty and the problem of supplier-induced demand
    • Wennberg JE, Barnes BA, Zubkoff M. Professional uncertainty and the problem of supplier-induced demand. Soc Sci Med. 1982;16:811-824.
    • (1982) Soc Sci Med , vol.16 , pp. 811-824
    • Wennberg, J.E.1    Barnes, B.A.2    Zubkoff, M.3
  • 37
    • 0030160698 scopus 로고    scopus 로고
    • Variations by specialty in physician ratings of the appropriateness and necessity of indications for procedures
    • Kahan JP, Park RE, Leape LL, et al. Variations by specialty in physician ratings of the appropriateness and necessity of indications for procedures. Med Care. 1996;34:512-523.
    • (1996) Med Care , vol.34 , pp. 512-523
    • Kahan, J.P.1    Park, R.E.2    Leape, L.L.3
  • 38
    • 0025582820 scopus 로고
    • Why are so few patients with epilepsy treated surgically? A United Kingdom perspective
    • Chadwick, D. Why are so few patients with epilepsy treated surgically? A United Kingdom perspective. Acta Neurochir Suppl 1990;S50:117-118.
    • (1990) Acta Neurochir Suppl , vol.S50 , pp. 117-118
    • Chadwick, D.1
  • 39
    • 0030191450 scopus 로고    scopus 로고
    • Epilepsy self-management: A test of a theoretical model
    • Dilorio C, Hennessy M, Manteuffel B. Epilepsy self-management: a test of a theoretical model. Nurs Res. 1996;45:211-217.
    • (1996) Nurs Res , vol.45 , pp. 211-217
    • Dilorio, C.1    Hennessy, M.2    Manteuffel, B.3
  • 40
    • 85039587464 scopus 로고    scopus 로고
    • Improving Chronic Illness Care Web site. Available at: www.improvingchroniccare.org/change/model/components.html. Accessed on July 18, 2003.
  • 42
    • 0026685059 scopus 로고    scopus 로고
    • Epilepsy, driving laws, and patient disclosure to physicians
    • Salinsky MC, Wegener K, Sinnema F. Epilepsy, driving laws, and patient disclosure to physicians. Epilepsia. 1999;33:469-472.
    • (1999) Epilepsia , vol.33 , pp. 469-472
    • Salinsky, M.C.1    Wegener, K.2    Sinnema, F.3
  • 43
    • 0032006316 scopus 로고    scopus 로고
    • Effects of an educational program on parents with febrile convulsive children
    • Huang MC, Liu CC, Huang CC. Effects of an educational program on parents with febrile convulsive children. Pediatr Neurol. 1998;18:150-155.
    • (1998) Pediatr Neurol , vol.18 , pp. 150-155
    • Huang, M.C.1    Liu, C.C.2    Huang, C.C.3
  • 44
    • 0025266774 scopus 로고
    • Satisfying patient needs for surgical information
    • Edwards MH. Satisfying patient needs for surgical information. Br J Surg. 1990;77:463-465.
    • (1990) Br J Surg , vol.77 , pp. 463-465
    • Edwards, M.H.1
  • 45
    • 0029249337 scopus 로고
    • Preferences concerning epilepsy education: Opinions of nurses, physicians, and persons with epilepsy
    • Dilorio C, Manteuffel B. Preferences concerning epilepsy education: opinions of nurses, physicians, and persons with epilepsy. J Neurosci Nurs. 1995;27:29-34.
    • (1995) J Neurosci Nurs , vol.27 , pp. 29-34
    • Dilorio, C.1    Manteuffel, B.2
  • 47
    • 0035797593 scopus 로고    scopus 로고
    • A randomized, controlled trial of surgery for temporal-lobe epilepsy surgery
    • Wiebe S, Blume WT, Girvin JP, Eliasziw M. A randomized, controlled trial of surgery for temporal-lobe epilepsy surgery. N Engl J Med. 2001;345:311-318.
    • (2001) N Engl J Med , vol.345 , pp. 311-318
    • Wiebe, S.1    Blume, W.T.2    Girvin, J.P.3    Eliasziw, M.4
  • 48
    • 0028231154 scopus 로고
    • Epilepsy surgery
    • Engel, J Jr, Epilepsy surgery. Curr Opin Neurol. 1994;7:140-147.
    • (1994) Curr Opin Neurol , vol.7 , pp. 140-147
    • Engel Jr., J.1
  • 49
    • 1642460761 scopus 로고    scopus 로고
    • Effectiveness and safety of epilepsy surgery: What is the evidence?
    • Wiebe S. Effectiveness and safety of epilepsy surgery: what is the evidence? CNS Spectrums 2004;2:xx-xx
    • (2004) CNS Spectrums , vol.2
    • Wiebe, S.1
  • 50
    • 0035431486 scopus 로고    scopus 로고
    • Changing provider behavior: An overview of systematic reviews of interventions
    • Grimshaw JM, Shirran L, Thomas R, et al. Changing provider behavior: an overview of systematic reviews of interventions. Med Care. 2001;39(8 suppl 2):II2-II45.
    • (2001) Med Care , vol.39 , Issue.8 SUPPL. 2
    • Grimshaw, J.M.1    Shirran, L.2    Thomas, R.3
  • 52
    • 0034598762 scopus 로고    scopus 로고
    • Early identification of refractory epilepsy
    • Kwan P, Brodie M. Early identification of refractory epilepsy. N Engl J Med. 2000;342:314-319.
    • (2000) N Engl J Med , vol.342 , pp. 314-319
    • Kwan, P.1    Brodie, M.2
  • 55
    • 0033599044 scopus 로고    scopus 로고
    • Changes in the scope of care provided by primary care physicians
    • St Peter RF, Reed MC, Kemper P, Blumenthal D. Changes in the scope of care provided by primary care physicians. New Engl J Med. 1999;341:1980-1985.
    • (1999) New Engl J Med , vol.341 , pp. 1980-1985
    • St. Peter, R.F.1    Reed, M.C.2    Kemper, P.3    Blumenthal, D.4
  • 56
    • 0036884880 scopus 로고    scopus 로고
    • Physicians' preferences for specialty involvement in the care of patients with neurological conditions
    • Swarztrauber K, Mittman BS, Vickrey BG. Physicians' preferences for specialty involvement in the care of patients with neurological conditions. Med Care. 2002;40:1196-1209.
    • (2002) Med Care , vol.40 , pp. 1196-1209
    • Swarztrauber, K.1    Mittman, B.S.2    Vickrey, B.G.3


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