Terminally ill elderly patient's experiences, attitudes, and needs: A qualitative study

Omega: Journal of Death and Dying

Volumn 49, Issue 2, 2004, Pages 117-129

  Laakkonen, M L ^a   Pitkala, K H ^a   Strandberg, T E ^a  

^a HELSINKI UNIVERSITY CENTRAL HOSPITAL   (Finland)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 10844279049     PISSN: 00302228     EISSN: 15413764     Source Type: Journal    
DOI: 10.2190/KVM3-ULM7-0RUH-KVQH     Document Type: Article

References (33)

1. Arora, N. K., & McHorney, C. A. (2000). Patient preferences for medical decision making. Who really wants to participate? Medical Care, 38, 335-341.
2. Beck-Friis, B., & Strang, P. (1993). The family in hospital-based home care with special reference to terminally ill cancer patients. Journal of Palliative Care, 9, 5-13.
3. Bowers, B. J., Fibich, B., & Jacobson, N. (2001). Care-as-service, care-as-relating, care-as-comfort: Understanding nursing home residents' perceptions of quality. Gerontology, 41(4), 539-545.
4. Butler, R. N. (1968). Toward a psychiatry of the life-cycle: Implications of sociopsychologic studies of the aging process for the psychotherapeutic situation. Psychiatric Research Reports American Psychiatric Association, 23, 233-248.
5. Centeno-Cortés, C., & Núñez-Olarte, J. M. (1994). Questioning diagnosis disclosure in terminal cancer patients: A prospective study evaluating patients' responses. Palliative Medicine, 8, 39-44.
6. Chochinov, H. M., Tataryn, D., Clinch, J. J., & Dudgeon, D. (1999). Will to live in the terminally ill. Lancet, 354, 816-819.
7. Delvecchio Good, M. J., Good, B. J., Schaffer, C., & Lind, S. E. (1990). American oncology and the discourse on hope. Culture, Medicine & Psychiatry, 14, 59-79.
8. Emanuel, E. J., & Emanuel, L. L. (1998). The promise of a good death. Lancet, 35;(suppl. II), 21-29.
9. Ende, J., Kazis, L., Ash, A., & Moskowitz, M. A. (1989). Measuring patients' desire for autonomy: Decision making and information-seeking preferences among medical patients. Journal of General Internal Medicine, 4, 23-30.
10. Engle, V. F., Fox-Hill, E., Graney, M. J. (1998). The experience of living-dying in a nursing home: Self-reports of black and white older adults. Journal of the American Geriatric Society, 46, 1091-1096.
11. Eskola, J., & Suoranta, J. (1998). Guidance for qualitative research. Tampere: Vastapaino. (in Finnish)
12. Glaser, B. G., & Strauss, A. L. (1965). Awareness of dying. Chicago, IL: Aldine.
13. Golin, C. E., Wenger, N. S., Liu, H., Dawson, N. V., Teno, J. M., Desbiens, N. A., Lynn, J., Oye, R. K., Phillips, R. S. (2000). A prospective study of patient-physician communication about resuscitation. Journal of the American Geriatric Society, 48, S52-S60.
14. Gordon, D. R. (1990). Embodying illness, embodying cancer. Culture, Medicine & Psychiatry, 14, 275-297.
15. Higginson, I., Priest, P., & McCarthy, M. (1994). Are bereaved family members a valid proxy for a patient's assessment of dying? Social Science and Medicine, 38, 553-557.
16. Hinton, J. (1996). How reliable are relatives' retrospective reports of terminal illness? Patients' and relatives' accounts compared. Social Science and Medicine, 43, 1229-1236.
17. Hinton, J. (1999). The progress of awareness and acceptance of dying assessed in cancer patients and their caring relatives. Palliative Medicine, 13, 19-35.
18. Kübler-Ross, E. (1970). On death and dying. New York: Macmillan.
19. Latimer, E. (1991). Caring for seriously ill and dying patients: The philosophy and ethics. Canadian Medical Association Journal, 144, 859-867.
20. Lynn, J. (1997). Measuring quality of care at the end of life: A statement of principles. Journal of the American Geriatric Society, 45, 526-527.
21. Miettinen, T. T, Tilvis, R. S., Karppi, P., & Arve, S. (1998). Why is the pain relief of dying patients often unsuccessful? The relatives' perspectives. Palliative Medicine, 12, 429-435.
22. Puchalski, C. M., Zhong, Z., Jacobs, M. M., Fox, E., Lynn, J., Harrold J., Galanos, A., Phillips, R. S., Califf, R., and Teno, J. M. (2000). Patients who want their family and physician to make resuscitation decisions for them: Observations from SUPPORT and HELP. Journal of the American Geriatric Society, 48, S84-S90.
23. Pope, C., & Mays, N. (1996). Qualitative research in health care. London, Tavistock square: BMJ publishing group. BMA house.
24. Rosenfeld, K. E., Wenger, N. S., & Kagawa-Singer, M. (2000). End-of-life decision making. Journal of General Internal Medicine, 15, 620-625.
25. Rosenfeld, K. E., Wenger, N. S., Phillips, R. S., Connors, A. F., Dawson, N. V., Layde, P., Califf, R. M., Liu, H., Lynn, J., Oye, R. K. (1996). Factors associated with change in resuscitation preference of seriously ill patients. Archives of Internal Medicine, 156, 1558-1564.
26. Seale, C. (1998). Theories and studying the care of dying people. British Medical Journal, 317, 1518-1520.
27. Seale, C., Addington-Hall, J., & McCarthy, M. (1997). Awareness of dying: Prevalence, causes and consequences. Social Science and Medicine, 45, 477-484.
28. Silverman, D. (2000). Doing qualitative research. A practical handbook. London/ Thousand Oaks/New Delhi: Sage.
29. Singer, P. A., Martin, D. K., Kelner, M. (1999). Quality end-of-life care: Patients' perspectives. Journal of the American Medical Association, 281, 163-168.
30. Slevin, M. L., Plant, H., Lynch, D., Drinkwater, J., & Gregory, W. M. (1988). Who should measure quality of life, the doctor or the patient? British Journal of Cancer, 57, 109-112.
31. Tsevat, J., Dawson, N. V., Wu, A. W., Lynn, J., Soukup, J. R., Cook, E. F., Vidaillet, H., & Phillips, R. S. (1998). Health values of hospitalized patients 80 years or older. Journal of the American Medical Association, 279, 371-375.
32. Uhlmann, R. F, & Pearlman, R. A. (1991). Perceived quality of life and preferences for life-sustaining treatment in older adults. Archives of Internal Medicine, 151, 495-497.
33. Walker, R. M., Schonwetter, R. S., Kramer, D. R., & Robinson, B. E. (1995). Living wills and resuscitation preferences in an elderly population. Archives of Internal Medicine, 155, 171-175.