Predictors of psychological distress in family caregivers of persons with psychiatric disabilities

Journal of Psychiatric and Mental Health Nursing

Volumn 10, Issue 5, 2003, Pages 592-607

  Provencher, H L ^a   Perreault, M ^b   St Onge, M ^c   Rousseau, M ^a  

^a UNIVERSITÉ LAVAL   (Canada)

^b MCGILL UNIVERSITY   (Canada)

^c CENTER FOR INTERDISCIPLINARY RESEARCH IN REHABILITATION AND SOCIAL INTEGRATION   (Canada)

Author keywords

Caregiving; Mental illness; Services; Stress

Indexed keywords

ADULT; AGED; ARTICLE; CAREGIVER; CONTROLLED STUDY; DISTRESS SYNDROME; FEMALE; HEALTH SERVICE; HUMAN; MAJOR CLINICAL STUDY; MALE; MENTAL DISEASE; MENTAL HEALTH; PREDICTION; SUPPORT GROUP;

CAREGIVERS; COST OF ILLNESS; DEPRESSION; FAMILY; FEMALE; HUMANS; MALE; MENTAL DISORDERS; MENTALLY DISABLED PERSONS; PROSPECTIVE STUDIES; QUESTIONNAIRES; SOCIAL SUPPORT;

EID: 0141889649     PISSN: 13510126     EISSN: None     Source Type: Journal    
DOI: 10.1046/j.1365-2850.2003.00623.x     Document Type: Article

References (85)

1. Aneshensel C.S., Pearlin L.I., Mullan J.T., Zarit S.H. & Whitlatch C.J. (1995) Profiles in Caregiving: the Unexpected Career. Academic Press, New York.
2. Baron R.M. & Kenny D.A. (1986) The moderator-mediator variable distinction in social psychological research: conceptual, strategic and statistical considerations. Journal of Personality and Social Psychology 51, 1173-1182.
3. Baronet A.M. (1999) Factors associated with caregiver burden in mental illness: a critical review of the research literature. Clinical Psychology Review 19, 819-841.
4. Bibou-Nakou I., Dikaiou M. & Bairactaris C. (1997) Psychosocial dimensions of family burden among two groups of carers looking after psychiatric patients. Social Psychiatry and Psychiatric Epidemiology 32, 104-108.
5. Biegel D.E., Sales E. & Schulz R. (1991) Family Caregiving in Chronic Illness. Sage, Newbury Park, California.
6. Boyer R., Préville M., Légaré G. & Valois P. (1993) La détresse psychologique dans la population du Québec non institutionnalisée: résultats normatifs de l'enquête Santé Québec. Revue Canadienne de Psychiatrie 38, 339-343.
7. Chesla C.A. (1991) Parent's caring practices with schizophrenic offspring. Qualitative Health Research 1, 446-468.
8. Cook J.A., Cohler B.J., Pickett S.A. & Beeler J.A. (1997) Life-course and severe mental illness: implications for caregiving within the family of later life. Family Relations 46 (4), 427-436.
9. Cook J.A., Heller T. & Pickett-Schenk S.A. (1999) The effect of support group participation on caregiver burden among parents of adults offspring with severe mental illness. Family Relations 48, 405-410.
10. Cornwall P.L. & Scott J. (1996) Burden of care, psychological distress and satisfaction with services in the relatives of acutely mentally disorder adults. Social Psychiatry and Psychiatric Epidemiology 31, 345-348.
11. Creer C., Sturt E. & Wykes T. (1982) The role of relatives. Psychological Medicine 12 (2), 29-39.
12. Dixon L., Adams C. & Lucksted A. (2000) Update on family psychoeducation for schizophrenia. Schizophrenia Bulletin 26, 5-20.
13. Dixon L., Lucksted A., Stewart B. & Delahanty J. (2000) Therapists' contacts with family members of persons with severe mental illness in a community treatment program. Psychiatric Services 51, 1449-1551.
14. Dixon L., McFarlane W.R., Lefley H., Lucksted A., Cohen M., Falloon I., Mueser K.T., Miklowitz D., Solomon P. & Sondheimer D. (2001) Evidence-based practices for services to families of people with psychiatric disabilities. Psychiatric Services 52, 903-910.
15. Doornbos M.M. (2002) Family caregivers and the mental health care system: reality and dreams. Archives of Psychiatric Nursing 16, 39-46.
16. Federation des familles et amis de la personne atteinte de maladie mentale (FFAPAMM) (1997) Commentaires Sur les Orientations Pour la Transformation Des Services de Santé Mentale. FFAPAMM, Quebec.
17. Gibbons J.S., Horn S.H., Powell J.L. & Gibbons J.L. (1984) Schizophrenic patients and their families: a survey in a psychiatric service based on a DGH Unit. British Journal of Psychiatry 144, 70-77.
18. Greenberg J.S., Greenley J.R. & Benedict P. (1994) Contributions of persons with serious mental illness to their families. Hospital and Community Psychiatry 45, 475-480.
19. Greenberg J.S., Greenley J.R. & Brown R. (1997a) Do mental health services reduce distress of families of people with serious mental illness? Psychiatric Rehabilitation Journal 21, 40-50.
20. Greenberg J.S., Kim H.W. & Greenley J.R. (1997b) Factors associated with subjective burden in siblings of adults with severe mental illness. American Journal of Orthopsychiatry 67, 231-241.
21. Greenberg J.S., Mailick-Seltzer M. & Greenley J.G. (1993) Aging parents of adults with disabilities: the gratifications and frustrations of later-life caregiving. Gerontologist 33, 542-550.
22. Greenberg J.S., Mailick-Seltzer M., Wyngaarden-Krauss M. & Kim H. (1997c) The differential effects of social support on the psychological well-being of aging mothers of adults with mental-illness or mental retardation. Family Relations 46 (4), 383-394.
23. Hanson J.G. (1995) Families' perceptions of psychiatric hospitalization of relatives with a severe mental illness. Administration and Policy in Mental Health 22 (5), 531-541.
24. Harding C., Brooks G., Takamaura A., Strauss J. & Brier A. (1987) The Vermont longitudinal study of persons with severe mental illness. II. Long-term outcome of subjects who retrospectively met DSM-111 criteria for schizophrenia. American Journal of Psychiatry 144, 718-726.
25. Hatfield A.B., Coursey R.D. & Slaughter J. (1995) Family responses to behavior manifestations of mental illness. Innovations and Research 3 (4), 41-49.
26. Hatfield A.B., Slaughter-Gearon J. & Coursey R.D. (1996) Family member's ratings of the use and value of mental health services: results of a national NAMI survey. Psychiatric Services 47 (8), 825-831.
27. Horwitz A.V., Reinhard S.C. & Howell-White S. (1996) Caregiving as reciprocal exchange in families with seriously mentally ill members. Journal of Health and Social Behavior 37, 149-162.
28. Hostick T. (1998) Developing user involvement in mental health services. Journal of Psychiatric and Mental Health Nursing 5, 439-444.
29. Ilfeld F.W. (1976) Further validation of a psychiatric symptom index in a normal population. Psychological Reports 39, 1215-1228.
30. Jacobson N. & Greenley D. (2001) What is recovery? A conceptual model and explication. Psychiatric Services 52, 482-485.
31. Jungbauer J. & Angermeyer M.C. (2002) Living with a schizophrenic patient: a comparative study of burden as it affects parents and spouses. Psychiatry 65, 110-123.
32. Kasper J.D., Steinwacks D.M. & Skinner E.A. (1992) Family perspectives on the service needs of people with serious and persistent mentall illness. Part II. Needs for assistance and needs that go unmet. Innovations and Research 1 (4), 21-33.
33. Lefley H.P. (1996) Family Caregiving in Mental Illness. Sage, Thousand Oaks, California.
34. Lefley H.P. (1997) The consumer recovery vision: will alleviate family burden? American Journal of Orthopsychiatry 67 (2), 210-219.
35. Leighninger R.D. & Speier & Mayeux D. (1996) How representative is NAMI demographic comparisons of a national NAMI sample with members and non-members of Louisiana mental health support groups. Psychiatric Rehabilitation Journal 19, 71-73.
36. Linville P.W. (1985) Self-complexity and affective extremity: don't put all your eggs in one cognitive basket. Social Cognition 3, 94-120.
37. Linville P.W. (1987) Self-complexity as a cognitive buffer against stress-related illness and depression. Journal of Personality and Social Psychology 52, 663-676.
38. MacCarthy B., Lesage A., Brewin C.R., Brugha T.S., Mangen S. & Wing J.K. (1989) Needs for care among the relatives of long-term users of day-care. Psychological Medicine 19, 725-736.
39. Mannion E., Meisel M., Solomon P. & Draine J. (1996) A comparative analysis of families with mentally ill adult relatives: support group members versus non-members. Psychiatric Rehabilitation Journal 20, 43-50.
40. Marks N.F. (1998) Does it hurt to care? Caregiving, work-family conflict, and midlife well-being. Journal of Marriage and the Family 60, 951-966.
41. Marsh D.T. (2001) A Family-Focused Approach to Serious Mental Illness: Empirically Supported Interventions. Professional Resource Press, Sarasota, Florida.
42. McGovern D. & Hemmings P. (1994) A follow-up of second generation Afro-Caribbeans and white British with a first admission diagnosis of schizophrenia: attitudes to mental illness and psychiatric services of patients and relatives. Social Science and Medicine 38 (1), 117-127.
43. Miller F., Dworkin J., Ward M. & Barone D. (1990) A preliminary study of unresolved grief in families of seriously mentally ill patients. Hospital and Community Psychiatry 41, 1321-1325.
44. Mueser K.T. & Glynn S.M. (1999) Behavioral Family Therapy for Psychiatric Disorders, 2nd edn. New Harbinger, Oakland, California.
45. Noh S. & Turner R.J. (1987) Living with psychiatric patients: implications for the mental health of family members. Social Science and Medicine 25 (3), 263-271.
46. Norbeck J.S., Lindsay A.M. & Carrieri V.L. (1983) Further development of the Norbeck Social Support Questionnaire: normative data and validity testing. Nursing Research 32, 4-9.
47. Norton S., Wandersman A. & Goldman C.R. (1993) Perceived costs and benefits of membership in a self-help group: comparisons of members and non members of the Alliance for the Mentally Ill. Community Mental Health Journal 29, 143-160.
48. Oldridge M.L. & Hughes I.C.T. (1992) Psychological well-being in families with a member suffering from schizophrenia: an investigation into long-standing problems. British Journal of Psychiatry 161, 249-251.
49. Patrick J.H. & Pruchno R.A. (1996) Mothers' perceptions of service use and unmet service needs for their adult offspring with chronic mental illness. Psychiatric Annals 26 (12), 757-765.
50. Patterson T.L., Semple S.J., Shaw W.S., Grant I. & Jeste D.V. (1996) Researching the caregiver: family members who care for older psychotic patients. Psychiatric Annals 26 (12), 772-784.
51. Pearlin L.I., Mullan J.T., Semple S.J. & Skaff M.N. (1990) Caregiving and the stress process: and overview of concepts and their measures. Gerontologist 30 (5), 583-594.
52. Penchansky R. & Thomas W. (1981) The concept of access: definitions and relationship to consumer satisfaction. Medical Care 19 (2), 127-140.
53. Perreault M., Katerelos T.E., Sabourin S., Leichner P. & Desmarais J. (2001) Information as a distinct dimension for satisfaction assessment of outpatient psychiatric services. International Journal of Health Care Quality Assurance 14, 11-120.
54. Perreault M., Provencher H.L., St-Onge M. & Rousseau M. (2002) Perspectives d'aidants du Québec sur les services en santé mentale offerts à leurs proches. Revue Santé Mentale Au Québec 27 (2), 198-214.
55. Philips S.D., Burns B.J., Edgar E.R., Mueser K.T., Linkins K.W., Rosenheck R.A., Drake R.E. & McDonel Herr E.C. (2001) Moving assertive community treatment into standard practice. Psychiatric Services 52, 771-779.
56. Pickett S.A., Cook J.A., Cohler B.J. & Solomon M.L. (1997) Positive parent/adult child relationships: impact of severe mental illness and caregiving burden. American Journal of Orthopsychiatry 67, 220-230.
57. Pickett S.A., Greenley J.R. & Greenberg J.S. (1995) Off-timedness as a contributor to subjective burden for parents of offspring with severe mental illness. Family Relations 44, 195-201.
58. Platt S. (1985) Measuring the burden of psychiatric illness on the family: an evaluation of some rating scales. Psychological Medicine 15, 383-393.
59. Procidano M.E. & Heller K. (1983) Measures of perceived social support from friends and from family: three validation studies. American Journal of Community Psychology 11 (1), 1-24.
60. Provencher H.L. (1996) Objective burden among primary caregivers of persons with schizophrenia. Journal of Psychiatric and Mental Health Nursing 3, 181-187.
61. Provencher H.L. & Mueser K.T. (1997) Positive and negative symptom behaviors and caregiver burden in the relatives of persons with schizophrenia. Schizophrenia Research 26, 71-80.
62. Rauktis M.E., Koeske G.E. & Tereshko O. (1995) Negative social interactions, distress and depression among those caring for a seriously and persistently mentally ill relative. American Journal of Community Psychology 23 (2), 279-299.
63. Reinhard S.C. (1991) Living with mental illness: effects of professional contacts and personal control on caregiver burden. Unpublished doctoral dissertation, Rutgers The State University, New Jersey.
64. Reinhard S.C. (1994) Living with mental illness: effects of professional support and personal control on caregiver burden. Research in Nursing Health 17, 79-88.
65. Reinhard S.C. & Horwitz A.V. (1995) Caregiver burden: differentiating the content and consequences of family caregiving. Journal of Marriage and the Family 57, 741-750.
66. Rhoades D.R. & McFarland K.F. (1999) Caregiver meaning: a study of caregivers of individuals with mental illness. Health and Social Work 24, 291-298.
67. Rolland J.S. (1994) Families, Illness, and Disability: an Integrative Treatment Model. Basic Books, New York.
68. Saunders J.C. & Byrne M.M. (2002) A thematic analysis of families living with schizophrenia. Archives of Psychiatric Nursing 26, 217-223.
69. Schene A.H., Van Wijngaarden B. & Koeter M.W.J. (1998) Family caregiving in schizophrenia: domains and distress. Schizophrenia Bulletin 24, 609-618.
70. Seltzer M.M., Greenberg J.S., Krauss M.W. & Hong M.W. (1997) Predictors and outcomes of the end of co-resident caregiving in aging families of adults with mental retardation or mental illness. Family Relations 46, 13-22.
71. Sherman M.D. (2003) The Support and Family Education (SAFE) Program: mental health facts for families. Psychiatric Services 54, 35-37.
72. Skinner E.A., Steinwacks D.M. & Kasper J.D. (1992) Family perspectives on the service needs of people with serious and persistent mental illness. Part I. Characteristics of families and consumers. Innovations and Research 1, 23-30.
73. Solomon P. & Draine J. (1995) Adaptive coping among family members of persons with serious mental illness. Psychiatric Services 46, 1156-1160.
74. Solomon P. & Marcenko M. (1992) Families of adults with severe mental illness: their satisfaction with inpatient and outpatient treatment. Psychosocial Rehabilitation Journal 16, 121-134.
75. Song L., Biegel D.E. & Milligan S.E. (1997) Predictors of depressive symptomatology among lower social class caregivers of persons with chronic mental illness. Community Mental Health Journal 33 (4), 269-286.
76. Spaniol L. & Zipple A.M. (1994) The family recovery process. Journal of the California Alliance for the Mentally Ill 5 (2), 57-59.
77. Stengard E. (2002) Caregiving types and psychosocial well-being of caregivers of people with mental illness in Finland. Psychiatric Rehabilitation Journal 26, 154-164.
78. Stengard E. & Salokangas R.K.R. (1997) Well-being of the caregivers of the mentally-ill. Nordic Journal of Psychiatry 51, 159-164.
79. St-Onge M. & Lavoie F. (1997) The experience of caregiving among mothers of adults suffering from psychotic disorders: factors associated with their psychological distress. American Journal of Community Psychology 27, 73-94.
80. Struening E.L., Stueve H., Vine P., Kreisman D., Link B.G. & Herman D.B. (1995) Factors associated with grief and depressive symptoms in caregivers of people with serious mental illness. In: Research in Community and Mental Health: the Family and Mental Illness (ed Greenley, J.G.), pp. 91-124. JAI Press, Greenwich, Connecticut.
81. Webb C., Pfeiffer M., Mueser K.T., Gladis M., Mensch E., DeGirolamo J. & Levinson D.F. (1998) Burden and well-being of caregivers for the severely mentally ill: the role of coping style and social support. Schizophrenia Research 34, 169-180.
82. Whelton C., Pawlick J. & Cardamone J. (1997) Involving families in psychosocial rehabilitation. Psychiatric Rehabilitation Journal 20 (3), 57-60.
83. Williams P., Williams W.A., Sommer P. & Sommer B. (1986) A survey of the California Alliance for the Mentally Ill. Hospital and Community Psychiatry 37, 253-256.
84. Winefield H.R. & Harvey E.J. (1993) Determinants of psychological distress in relatives of people with chronic schizophrenia. Schizophrenia Bulletin 19 (3), 619-625.
85. Woolfolk R.L., Gara M.A., Ambrose T.K., Williams J.E., Allen L.A., Irvin S.L. & Beaver J.D. (1999) Self-complexity and the persistence of depression. Journal of Nervous and Mental Disease 187, 393-397.