Nurse's role in promoting health transitions for adolescents and young adults with developmental disabilities

Nursing Clinics of North America

Volumn 38, Issue 2, 2003, Pages 271-289

  Betz, Cecily L ^a  

^a UNIVERSITY OF SOUTHERN CALIFORNIA   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ADOLESCENCE; COMMUNITY; CULTURAL FACTOR; DECISION MAKING; DEMOGRAPHY; DEVELOPMENTAL DISORDER; EMPLOYMENT; HEALTH CARE PERSONNEL; HEALTH PROMOTION; HUMAN; INTERPERSONAL COMMUNICATION; LEARNING; MEDICAID; NURSE; PREVALENCE; REVIEW; SELF ESTEEM; SEX DIFFERENCE; TREATMENT PLANNING; ADOLESCENT; ADULT; MENTAL DEFICIENCY; METHODOLOGY; NURSE ATTITUDE; NURSING; ORGANIZATION AND MANAGEMENT; PATIENT CARE PLANNING;

ADOLESCENT; ADULT; DEVELOPMENTAL DISABILITIES; HEALTH PROMOTION; HUMANS; MENTAL RETARDATION; NURSE'S ROLE; PATIENT CARE PLANNING; PLANNING TECHNIQUES;

EID: 0041883274     PISSN: 00296465     EISSN: None     Source Type: Journal    
DOI: 10.1016/S0029-6465(02)00050-6     Document Type: Article

References (58)

1. Betz C.L. Adolescent transitions: a nursing concern. Pediatr Nurs. 24:1998;23-28
2. Betz C.L. Facilitating the transition of adolescents with chronic conditions from pediatric to adult health care and community settings. Issues Compr Pediatr Nurs. 21:1998;97-115
3. Betz C.L. California Healthy and Ready to Work Transition health care guide: developmental guidelines for teaching health care. Issues Compr Pediatr Nurs. 23:2000;203-244
4. United States Public Health Service. Closing the gap. A national blueprint for improving the health of individuals with mental retardation. Report of the Surgeon General's conference on health disparities and mental retardation. 2001;U.S. Government Printing Office, Washington, DC. p. 13
5. U.S. Department of Health and Human Services. New freedom initiative: fulfilling America's promise to people with disabilities. Available at: http://www.hhs.gov/newfreedom/. Accessed December 1, 2002.
6. Newacheck P.H. Prevalence and impact of disabling chronic conditions in childhood. Am J Public Health. 88:1998;610-617
7. McNeil J. Americans with disabilities: 1994-1995. Current Population Reports: household economic studies (ed series P70-61). 1997;U.S. Department of Commerce, Economics and Statistics Administration, Washington, DC
8. Kaye H.S. Disability watch: the status of people with disabilities in the United States. vol. 2001:1998;University of California San Francisco Disability Studies Center, San Francisco
9. Albrecht G., Seelman K., Bury M. Handbook of disability studies. 2001;Sage Publishers, Thousand Oak (CA)
10. Powers L., Singer G., Sowers J. Self competence and disability. Powers L., Sowers J. Promoting self-competence in children and youth with disabilities: on the road to autonomy. 1996;4-24 Paul H. Brookes, Baltimore (MD)
11. Wehmeyer M., Agran M., Hughes C. Teaching self-determination to students with disabilities: basic skills for successful transition. 1998;Paul H. Brookes, Baltimore (MD)
12. California State Council on Disabilities. Community program development grant: request for proposal. Fiscal year 2002-2003. Application and guidelines. Sacramento (CA): California State Council on Developmental Disabilities; 2002.
13. Leininger M. Transcultural nursing: concepts, theories, research, and practice. 1995;McGraw Hill, Columbus (OH)
14. Leininger M. Quality of life from a transcultural nursing perspective. Nurs Sci Q. 9:1996;71-78
15. Leininger M. Transcultural nursing research to transform nursing education and practice: 40 years. Image J Nurs Sch. 29:1997;341-347
16. Leininger M. Future directions in transcultural nursing in the 21st century. Int Nurs Rev. 44:1997;19-23
17. Southwest Communication Resources. Family perspectives: cultural/ethnic issues affecting children with special health care needs. Educational fact packets for health and human service providers. Bernalillo (NM): Southwest Communication Resources; 1996.
18. US Census Bureau. American with disabilities: 1997. Table 1: Prevalence of disability by age, sex, race and Hispanic origin: 1997. Data from the Survey of Income and Program Participation. Vol. August-November 1997. Washington DC: United States Census Bureau; 1997.
19. Fine M.A. Women with disabilities: essay in psychology, culture and politics. 1988;Temple University Press, Philadelphia
20. Russo H., Wehmeyer M. Double Jeopardy: addressing gender equity in special education. SUNY Series, Social Context of Education. 2001;Albany, New York, State University of New York Press
21. Trupin L., Sebesta D., Yelin E. Racial disparity in employment among persons with disabilities, 1990-1994. 1997;American Public Health Association
22. Kratovil J.B. Sex equity and disabled students. Theory Into Practice. 25:1986;250-256
23. Kruse D. Americans with disabilities: 1994-1995. A report to the U.S. Department of Labor: employment and disability: characteristics of employed and non-employed people with disabilities: final report. 1997;Rutgers University, New York
24. Yelin E.T. Successful labor market transitions for persons with disabilities: factors affecting the probability of entering and maintaining employment. Employment post the Americans with Disabilities Act. 1997;Office of Disability, Social Security Administration and National Institute on Disability and Rehabilitation Research, Washington, DC
25. Mc Neil J. Disability. Vol. 2002:1997;U.S. Census Bureau, Washington, DC
26. US General Accounting Office. Social Security Disability Insurance: multiple factors affect beneficiaries' ability to return to work. 1998;U.S. Government Printing Office, Washington, DC
27. Kiernan W., Butterworth J., Gilmore D. Making work work: a time for action. Expert Roundtable on the Status of Youth Employment and Wellness: what we know. National Press Club. 1998;Social Security Administration, Washington, DC
28. National Organization on Disability. People with disabilities and specific community activities: 2000. Washington, DC: N.O.D./Harris Survey on Community Participation; 2001.
29. USPHS. Closing the gap. A national blueprint for improving the health of individuals with mental retardation. Report of the Surgeon General's conference on health disparities and mental retardation. 2001;U.S. Government Printing Office, Washington, DC
30. Individuals with Disabilities Education Act Amendments of 1997. Washington DC: 105th Congress of the United States 1997.
31. Register F. Final regulations. Individuals with Disabilities Education Act Amendments of 1997, PL 105-17. Fed Regist. 64:1999;12406-12672
32. Maternal Child Health Bureau DCSHN. Achieving success for all children and youth with special health care needs. A 10-year action plan to accompany healthy people 2010. 2001;Maternal Child Health Bureau, Division of Children with Special Health Needs, Washington, DC
33. American Academy of Pediatrics Committee on Children with Disabilities. The role of the pediatrician in transitioning children and adolescents with developmental disabilities and chronic illnesses from school to work or college. Pediatrics. 106:2000;854-856
34. Blum R., Garell D., Hodgman C., Jorissen T., Okinow N., Orr D., et al. Transition from child-centered to adult health-care systems for adolescents with chronic conditions. J Adolesc Health. 14:1993;570-576
35. Longhurst M. The self-advocacy movement by people with developmental disabilities: a demographic study and directory of self-advocacy groups in the United States. 1994;American Association on Mental Retardation, Washington, DC
36. Powers L., Sowers J., Turner A., Nesbitt M., Knowles E., Ellison R. Take charge: a model for promoting self-determination among adolescents with challenges. Wehmeyer M., Sand D. Self-determination across the life span: independence and choice for people with disabilities. 1996;291-322 Paul H. Brooke, Baltimore (MD)
37. Powers L., Singer G., Todis B. Reflections on competence: perspectives of successful adults. Powers L., Sowers K. Promoting self-competence in children and youth with disabilities: on the road to autonomy. 1996;69-92 Paul H. Brookes, Baltimore (MD)
38. Thomas D. The importance of culture throughout all of life and beyond. Holistic Nursing Practice. 2:2001;148-157
39. Betz CL. Creating healthy futures: an innovative nurse managed clinic for adolescents and young adults with special health care needs. Pediatric Nursing 2003 (In Press).
40. Powers L., Wilson R., Matuszewski J., Philips A., Rein C., Schumacher D., et al. Facilitating adolescent self determination. Wehmeyer M., Sand D. Self-determination across the life span: independence and choice for people with disabilities. 1996;257-284 Paul H. Brookes, Baltimore (MD)
41. Ward M. Coming of age in the age of self-determination: a historical and personal perspective. Wehmeyer D.S.M. Self-determination across the life span: independence and choice for people with disabilities. 1996;13 Paul H. Brookes, Baltimore (MD)
42. deFur S., Patton J. Transition and school-based services: interdisciplinary perspectives for enhancing the transition process. 1999;PRO-ED, Austin (TX)
43. Patton J. Basic concepts of the transition process. deFur S., Patton J. Transition and school-based services: interdisciplinary perspectives for enhancing the transition process. 1999;3-13 PRO-ED, Austin (TX)
44. Daley B. Sponsorship for adolescents with diabetes. Health Soc Work. 17:1992;173-182
45. Turnbull A., Turnbull H. Self-determination within a culturally responsive family systems perspective. Powers L., Sowers J. Promoting self-competence in children and youth with disabilities: on the road to autonomy. 1996;4-24 Paul H. Brookes, Baltimore (MD)
46. DiMatteo M. Practitioner-family-patient communication in pediatric adherence: implications for research and clinical practice. Drotar D. Promoting adherence to medical treatment in chronic childhood illness: concepts, methods, and interventions. 2000;237-258 Lawrence Erlbaum Associates, Mahwah (NJ)
47. Nelkin V.M. Achieving healthy outcomes for children and families of diverse cultural backgrounds: a monograph for health and human service providers. 1996;Southwest Communication Resources, Bernalillo (NM)
48. Rehm R. Family culture and chronic conditions. Jackson P., Vessey J. Primary care of the child with a chronic condition. 3rd edition:2000;66-82 Mosby, St. Louis
49. McLaughlin L., Braun K. Asian and Pacific Islander cultural values: considerations for health care decision-making. Health Soc Work. 23:1998;116-128
50. Pichette E., Garrett M., Kosciulek J., Rosentha D. Cultural identification of American Indians and its impact on rehabilitation services. J Rehabil. 65:1999;3-10
51. Riekert K., Drotar D. Adherence to medical treatment in pediatric chronic illness: critical issues and answered questions. Drotar D. Promoting adherence to medical treatment in chronic childhood illness: concepts, methods, and interventions. 2000;3-32 Lawrence Erlbaum Associates, Mahwah (NJ)
52. Henry J. Kaiser Family Foundation. Perceptions of how race and ethnic background affect medical care: highlights from focus groups. 1999;Henry J. Kaiser Family Foundation, Menlo Park (NJ)
53. Garwick A. Families' recommendations for improving services for children with chronic conditions. Arch Pediatr Adolesc Med. 152:1998;440-448
54. Marshall C., Largo H. Disability and rehabilitation: a context for understanding the American Indian experience. Lancet. 354:1999;758-760
55. Faubion C., Roessler R., Calico J. Meeting the needs of underserved populations: vocational rehabilitation and the Cherokee nation 130 project. Rehabilitation Counseling Bulletin. 41:1998;173-189
56. Ma G., Coyle C., Wares D., Cornell D. Assessment of services to American Indians with disabilities. J Rehabil. 65:1999;12-16
57. McFarlane F., Galea' I.K., Farley T., Guerrero J. Embracing diversity in rehabilitation within pacific cultures. Rehabilitation Research Training Center of the Pacific. Vol. 2002:2000;San Diego State University, Interwork Institute, San Diego (CA)
58. Turnbull A., Turnbull H. Developing independence. J Adolesc Health Care. 6:1985;108-119