Families' recommendations for improving services for children with chronic conditions

Archives of Pediatrics and Adolescent Medicine

Volumn 152, Issue 5, 1998, Pages 440-448

  Garwick, Ann W ^a   Kohrman, Claire ^c   Wolman, Clara ^d   Blum, Robert W ^b  

^a UNIVERSITY OF MINNESOTA   (United States)

^b UPR   (United States)

^c UNIVERSITY OF CHICAGO   (United States)

^d BARRY UNIVERSITY   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; CAREGIVER; CHILD; CHILD HEALTH CARE; CHRONIC DISEASE; COMMUNITY CARE; CULTURAL FACTOR; ETHNIC GROUP; FAMILY; FEMALE; HEALTH CARE AVAILABILITY; HEALTH CARE QUALITY; HEALTH PROGRAM; HUMAN; MAJOR CLINICAL STUDY; MALE; PRIORITY JOURNAL; TRAINING;

EID: 0031746884     PISSN: 10724710     EISSN: None     Source Type: Journal    
DOI: 10.1001/archpedi.152.5.440     Document Type: Article

References (17)

1. Koop CE. Surgeon General's Report: Children With Special Health Care Needs - Campaign 87-Commitment to Family-Centered, Coordinated Care for Children With Special Health Care Needs. Washington, DC: US Dept of Health and Human Services; 1987.
2. National Center for Family-Centered Care. What Is Family-Centered Care? Bethesda, Md: Association for the Care of Children's Health; 1990. Brochure.
3. Shelton TL, Jeppson E, Johnson B. Family Centered Care for Children With Special Health Care Needs. Bethesda, Md: Association for the Care of Children's Health, 7910 Woodmont Ave., Suite 300, Bethesda, MD 20814, 1987.
4. Garwick A, Millar H. Promoting Resilience in Youth With Chronic Conditions and Their Families. Washington, DC: Maternal and Child Health Bureau, Health Resources and Services Administration, US Public Health Service; 1996.
5. Barnsteiner JH, Gillis-Donovan J, Knox-Fischer C, McKindon DD. Defining and implementing a standard for therapeutic relationships. J Holistic Nurs. 1994;12: 35-49.
6. Horner MM, Rawlins P, Giles, K. How parents of children with chronic conditions perceive their own needs. Matern Child Nurs.1987;12:40-43.
7. Diehl SF, Moffit KA, Wade SM. Focus group interview with parents of children with medically complex needs: an intimate look at their perceptions and feelings. Child Health Care. 1991;20:170-178.
8. Whyte WF. Advancing scientific knowledge through participatory action research. Soc Forum. 1989;4:367-385.
9. Newacheck PW, Stoddard JJ, McManus M. Ethnocultural variations in the prevalence and impact of childhood chronic conditions. Pediatrics. 1992;91: 1031-1039.
10. Lupton D. Medicine and Culture. Thousand Oaks, Calif: Sage Publications; 1994.
11. Pless IB, Pinkerton P. Chronic Childhood Disorder: Promoting Patterns of adjustment. London, England: Henry Kimpton; 1975.
12. Stein R, Jessop D. A noncategorical approach to chronic childhood illness. Public Health Rep. 1982;97:354-362.
13. Stein RE, Bauman LJ, Westbrook LE, Coupey SM, Ireys HT. Framework for Identifying children who have chronic conditions: the case for a new definition. J Pediatr. 1993;122:342-347.
14. US Bureau of the Census. Mean earnings of workers 18 years old and over, by educational attainment, race, Hispanic origin, and sex: 1975 to 1995 (Table A-3). Current population survey. Available at: http://www.census.gov.population/ socdemo/education/tablea-03.txt. Accessed March 11, 1998.
15. Weber RP. Basic Content Analysis. Beverly Hills, Calif: Sage Publications; 1985.
16. Cross T, Bazron B, Dennis K, Isaacs M. Towards a Culturally Competent System of Care. Vol 1. Washington, DC: Georgetown University Child Development Center, Center for Child Health and Mental Health Policy Technical Assistance Center; 1989.
17. Brewer EJ, McPherson M, Magrab PR, Hutchins VL. Family-centered, community-based coordinated care for children with special health care needs. Pediatrics. 1989;83:1055-1060.