Methods for assessing quality of life and well-being in frail older people

Psychology and Health

Volumn 17, Issue 6, 2002, Pages 737-751

  McKee, Kevin J ^a   Houston, Diane M ^b   Barnes, Sarah ^a  

^a UNIVERSITY OF SHEFFIELD   (United Kingdom)

^b UNIVERSITY OF KENT   (United Kingdom)

Author keywords

Assessment; Elderly; Quality of life; Reliability; Social interaction; Well being

Indexed keywords

EID: 0036898139     PISSN: 08870446     EISSN: None     Source Type: Journal    
DOI: 10.1080/0887044021000054755     Document Type: Article

References (50)

1. Albert, S.M., Del Castillo-Casteneda, C., Sano, M., Jacobs, D.M., Marder, K., Bell, K. et al. (1996). Quality of life in patients with Alzheimer's disease as reported by patient proxies. Journal of the American Geriatrics Society, 44, 1342-1347.
2. Albert, S.M. (1997). Assessing health-related quality of life in chronic care populations. Journal of Mental Health and Aging, 3, 101-118.
3. Albrecht, G.L. and Devlieger, P.J. (1999). The disability paradox: high quality of life against all odds. Social Science and Medicine, 48, 977-988.
4. Anastasi, A. and Urbina, S. (1997). Psychological testing, 7th Ed. Prentice Hall, New Jersey.
5. Bijttebier, P., Vercruysse, T., Vertommen, H., Van Gool, S.W., Uyttebroeck, A. and Brock, P. (2001). New evidence on the reliability and validity of the pediatric oncology quality of life scale. Psychology and Health, 16, 461-469.
6. Bond, J. (1999). Quality of life for people with dementia: approaches to the challenge of measurement. Ageing and Society, 19, 561-579.
7. Booth, T. (1985). Home Truths: Old Peoples' Homes and the Outcomes of Care. Gower, Aldershot, UK.
8. Bowling, A. (1995). Measuring disease. Open University Press, Buckingham, UK.
9. Bowling, A. and Browne, P.D. (1991). Social networks, health and emotional well-being among the oldest old in London. Journal of Gerontology: Social Sciences, 46, S20-S32.
10. Bowling, A., Farquhar, M. and Grundy, E. (1996). Associations with changes in life satisfaction among three samples of elderly people living at home. International Journal of Geriatric Psychiatry, 11, 1077-1087.
11. Brod, M., Stewart, A.L., Sands, L. and Walton, P. (1999). Conceptualization and measurement of quality of life in dementia: the dementia quality of life instrument (DQoL). The Gerontologist, 39, 25-35.
12. Brooker, D. (1995). Looking at them, looking at me. A review of observational studies into the quality of institutional care for elderly people with dementia. Journal of Mental Health, 4, 145-156.
13. Browne, J.P., McGee, H. and O'Boyle, C.A. (1997). Conceptual approaches to the assessment of quality of life. Psychology and Health, 12, 737-751.
14. Charmaz, K. (1991). Good Days, Bad Days: The Self in Chronic Illness and Time. Rutgers University Press, Rutgers University.
15. Coen, R.F. (1999). Individual QoL assessment by carers or 'proxy' respondents. In: Joyce, C.R.B., McGee, H.M. and O'Boyle, C.A. (Eds), Individual Quality of Life: Approaches to Conceptualisation and Assessment. Harwood Academic Publishers, Chur, Switzerland.
16. Coen, R.F., O'Boyle, C.A., Swanwick, G.R.J. and Coakley, D. (1999). Measuring the impact on relatives of caring for people with Alzheimer's Disease: quality of life, burden and well-being. Psychology and Health, 14, 253-261.
17. Coen, R., O'Mahony, D., O'Boyle, C., Joyce, C.R.B., Hiltbrunner, B., Walsh, J.B. et al. (1993). Measuring the quality of life of dementia patients using the schedule for the evaluation of individual quality of life. The Irish Journal of Psychology, 14, 154-163.
18. Cumming, E. and Henry, W.E. (1961). Growing Old: The Process of Disengagement. Basic Books, New York.
19. Diabetes Control and Complications Trial Research Group (1988). Reliability and validity of a diabetes quality of life measure for the diabetes control and complications trial (DCCT). Diabetes Care, 11, 725-732.
20. Farquhar, M. (1995). Elderly people's definitions of quality of life. Social Science and Medicine, 41, 1439-1446.
21. Foulds, G.A. (1976). The Hierarchical Nature of Personal Illness. Academic Press, London.
22. Gilleard, C.J. (1984). Living With Dementia. Croom Helm, London.
23. Gilloran, A.J., McGlew, T., McKee, K., Robertson, A. and Wight, D. (1993). Measuring the quality of care on psychogeriatric wards. Journal of Advanced Nursing, 18, 269-275.
24. Goodwin, D., Boggs, S. and Graham-Pole, J. (1994). Development and validation of the pediatric oncology quality of life scale. Psychological Assessment, 6, 321-328.
25. Hatton, C. (1998). Whose quality of life is it anyway? Some problems with the emerging quality of life consensus. Mental Retardation, 36, 104-115.
26. Herbert, C. and Salmon, P. (1994). The inaccuracy of nurses' perception of elderly patients' well-being. Psychology and Health, 9, 485-492.
27. Hickey, A.M., Bury, G., O'Boyle, C.A., Bradley, F., O'Kelly, F.D. and Shannon, W. (1996). A new short form individual quality of life measure (SEIQoL-DW): application in a cohort of individuals with HIV/AIDS. British Medical Journal, 313, 29-33.
28. Jelicic, M. and Kempen, G.I.J.M. (1999). Chronic medical conditions and life satisfaction in the elderly. Psychology and Health, 14, 65-70.
29. Juniper, E.F., Guyatt, G.H., Willan, A. and Griffith, L.E. (1994). Determining a minimal important change in a disease specific quality of life questionnaire. Journal of Clinical Epidemiology, 47, 81-87.
30. Kaplan, R.M., Atkins, C.J. and Timms, R. (1984). Validity of a quality of well-being scale as an outcome measure in chronic obstructive pulmonary disease. Journal of Chronic Diseases, 37, 85-95.
31. Kaplan, R.M., Sieber, W.J. and Ganiats, T.G. (1997). The Quality of Well-Being Scale: comparison of the interviewer administered version with a self-administered questionnaire. Psychology and Health, 12, 783-791.
32. Katzman, R., Brown, T., Fuld, P., Peck, A., Schechter, R. and Schimmel, H. (1983). Validation of a short orientation-memory-concentration test of cognitive impairment. American Journal of Psychiatry, 140, 734-739.
33. Kerner, D.N., Patterson, T.L., Grant, I. and Kaplan, R.M. (1998). Validity of the Quality of Well-Being Scale for patients with Alzheimer's Disease. Journal of Aging and Health, 10, 44-61.
34. Kitwood, T. and Bredin, K. (1992a). A new approach to the evaluation of dementia care. Journal of Advances in Health and Nursing Care, 1, 41-60.
35. Kitwood, T. and Bredin, K. (1992b). Evaluating Dementia Care: The DCM Method. Bradford Dementia Group, Bradford, U.K.
36. Lawton, M.P. (1994). Quality of life in Alzheimer Disease. Alzheimer Disease and Associated Disorders, 8, 138-150.
37. Lawton, M.P., Moss, M. and Duhamel, L.M. (1995). The quality of daily life among elderly care receivers. Journal of Applied Gerontology, 14, 150-171.
38. Leventhal, H. and Colman, S. (1997). Quality of life: a process view. Psychology and Health, 12, 753-767.
39. McKee, K.J., Harrison, G. and Lee, K. (1999). Activity, friendship and well-being in residential settings for older people. Aging and Mental Health, 3, 143-152.
40. Majani, G., Pierobon, A., Giardini, A. and Callegari, S. (2000). Satisfaction Profile (SAT-P) in 732 patients: focus on subjectivity in HRQoL assessment. Psychology and Health, 15, 409-422.
41. O'Boyle, C.A., McGee, H., Hickey, A., O'Malley, K. and Joyce, C.R.B. (1992). Individual quality of life in patients undergoing hip replacement. Lancet, 339, 1088-1091.
42. Pattie, A.H. and Gilleard, C.J. (1979). Manual of Clifton Assessment Procedures for the Elderly. Hodder and Stoughton, Sevenoaks, UK.
43. Powell, J., Lovelock, R., Bray, J. and Philp, I. (1994). Involving consumers in assessing service quality: benefits of using a qualitative approach. Quality in Health Care, 3, 199-202.
44. Russell, C.K. (1996). Passion and heretics: meaning in life and quality of life of persons with dementia. Journal of the American Geriatrics Society, 44, 1400-1402.
45. Ruta, D.A., Garratt, A.M., Leng, M. Russell, I.T. and MacDonald, L.M. (1994). A new approach to the measurement of quality of life: the patient generated index. Medical Care, 32, 1109-1126.
46. Sprangers, M.A.G. and Aaronson, N.K. (1992). The role of health care providers and significant others in evaluating the quality of life of patients with chronic disease: a review. Journal of Clinical Epidemiology, 45, 743-760.
47. Teri, L. and Logsdon, R.G. (1991). Identifying pleasant activities for Alzheimer's Disease patients: the Pleasant Events Schedule-AD. The Gerontologist, 31, 124-127.
48. Victor, C.R. (1991). Health and health care in later life. Open University Press, Milton Keynes.
49. Wilkin, D. and Hughes, B. (1987). Residential care of elderly people: the consumers' views. Ageing and Society, 7, 175-201.
50. Wilkin, D. and Jolley, D.J. (1979). Behavioural Problems Among Old People in Geriatric Wards, Psychogeriatric wards and Residential Homes, 1976-1978 (Rep. No. 1). University Hospital of South Manchester, Research Section, Psychogeriatric Unit, Manchester, UK.