Measuring the impact on relatives of caring for people with Alzheimer's disease: Quality of life, burden and well-being

Psychology and Health

Volumn 14, Issue 2, 1999, Pages 253-261

  Coen, Robert F ^a,b   O'Boyle, Ciaran A ^a   Swanwick, Gregory R J ^b   Coakley, Davis ^b  

^a ROYAL COLLEGE OF SURGEONS IN IRELAND   (Ireland)

^b ST JAMES S HOSPITAL   (Ireland)

Author keywords

Alzheimer's disease; Behaviour disturbance; Burden; Caregivers; Quality of life; Well being

Indexed keywords

EID: 0033419357     PISSN: 08870446     EISSN: None     Source Type: Journal    
DOI: 10.1080/08870449908407326     Document Type: Article

References (42)

1. Baumgarten, M., Becker, R. and Gauthier, S. (1990) Validity and reliability of the Dementia Behaviour Disturbance Scale. Journal of American Geriatrics Society, 38, 221-226.
2. Braithwaite, V. (1992) Caregiver burden. Making the concept scientifically useful and policy relevant. Research on Aging, 14(1), 3-27.
3. Browne, J.P., O'Boyle, C.A., McGee, H., McDonald, N. and Joyce, C.R.B. (1997) Development of a direct weighting procedure for quality of life domains. Qualify of Life Research, 6, 301-309.
4. Clipp, E.C. and George, L.K. (1990) Psychotropic drug use among caregivers of patients with dementia. Journal of American Geriatrics Society, 38, 227-235.
5. Coen, R.F., Swanwick, G.R.J., O'Boyle, C.A. and Coakley, D. (1997) Behaviour disturbance and other predictors of carer burden in Alzheimer's disease. International Journal of Geriatric Psychiatry, 12(3), 331-336.
6. DataDesk 4.1. (1993) Ithaca, NY: Data Description Inc.
7. Diagnostic and Statistical Manual of Mental Disorders, 3rd edn. rev (1987) Washington, DC: American Psychiatric Association.
8. Dillehay, R.C. and Sandys, M.R. (1990) Caregivers for Alzheimer's patients: what we are learning from research? International Journal of Ageing and Human Development, 30(4), 263-285.
9. Donaldson, C., Tarrier, N. and Burns, A. (1997) The impact of the symptoms of dementia on caregivers. British Journal of Psychiatry, 170, 62-68.
10. Folstein, M.F., Folstein, S.E. and McHugh, P.R. (1975) 'Mini-Mental State', A practical method for grading the cognitive state of patients for the clinician. Journal of Psychiatric Research, 12, 189-198.
11. Fredriksen, K.I. (1996) Informal caregiving: current trends in public policy and service provision. Journal of Clinical Geropsychology, 2(1), 37-50.
12. George, L.K. and Gwyther, L.P. (1986) Caregiver well-being: a multidimensional examination of family caregivers of demented adults. Gerontology, 26(3), 253-259.
13. Goldberg, D. and Williams, P. (1988) A User's Guide to the General Health Questionnaire. Windsor: NFER-NELSON Publishing Company.
14. Hachinski, V.C., Illif, L.D., Zilhka, E., DuBoulay, G.H., McCallister, V.L., Marshall, J., Ross Russell, R.W. and Symon, L. (1975) Cerebral blood flow in dementia. Archives of Neurology, 32, 632-637.
15. Hickey A., Bury, G., O'Boyle, C.A., Bradley, F., O'Kelly, F.D. and Shannon, W. (1996). A new short form individual quality of life measure (SEIQoL-DW). Application in a cohort of individuals with HIV/AIDS. British Medical Journal, 313, 29-33.
16. Hughes, C.P., Berg, L., Danziger, W.L., Coben, L.A. and Martin, R.L. (1982) A new clinical scale for the staging of dementia. British Journal of Psychiatry, 140, 566-572.
17. Joyce, C.R.B. (1994a) Requirements for the assessment of individual quality of life. In H. McGee and C. Bradley (Eds.). Quality of Life Following Renal Failure. Psychosocial Challenges Accompanying High Technology Medicine. (pp. 43-54). Reading: Harwood Academic Publishers.
18. Joyce, C.R.B. (1994b) Health status and quality of life: Which matters to the patient? Journal of Cardiovascular Pharmacology, 23(Suppl 3), S26-S33.
19. Lawton, M.P. (1983) Environment and other determinants of well-being in older people. The Gerontologist, 23, 349-357.
20. Lazarus, R.S. and Folkman, S. (1984) Stress, Appraisal and Coping. New York: Springer.
21. Livingston G. (1994) The scale of the problem. In A. Burns and R. Levy (Eds.). Dementia (21-35). London: Chapman & Hall Medical.
22. McGee, H.M., O'Boyle, C.A., Hickey, A., O'Malley, K.M. and Joyce, C.R.B. (1991) Assessing the quality of life of the individual: the SEIQoL with a healthy and a gastroentorology unit population. Psychological Medicine, 21, 749-759.
23. McKhann, G., Drachman D., Folstein, M., Katzman, R., Price, D. and Stadlan, E.M. (1984) Clinical diagnosis of Alzheimer's disease: Report of the NINCDS/ADRDA Work Group under the auspices of Department of Health and Human Services Task Force on Alzheimer's disease. Neurology, 34, 939-944.
24. Mohide, E.A., Pringle, D.M., Streiner, D.L., Gilbert, J.R., Muir, G. and Tew, M. (1990) A randomised trial of family caregiver support in the home management of dementia. Journal of the Americal Geriatrics Society, 38, 446-454.
25. Morris R.G., Morris, L.W. and Britton, P.G. (1988) Factors affecting the emotional wellbeing of the carers of dementia sufferers. British Journal of Psychiatry, 153, 147-156.
26. O'Boyle, C.A. (1994) The Schedule for the Evaluation of Individual Quality of Life (SEIQoL). International Journal of Mental Health, 23, 3-23.
27. O'Boyle, C.A., Browne, J., Hickey, A., McGee, H. and Joyce, C.R.B. (1996) Manual for the SEIQoL-DW. Dublin: Department of Psychology, Royal College of Surgeons in Ireland.
28. O'Boyle, C.A., McGee, H., Hickey, A., Joyce, C.R.B., Browne, J. and O'Malley, K. (1993) The Schedule for the Evaluation of Individual Quality of Life. User Manual. Dublin: Department of Psychology, Royal College of Surgeons in Ireland.
29. O'Boyle, C.A., McGee, H.M. and Joyce, C.R.B. (1994) Quality of life: assessing the individual. Advances in Medical Sociology, 5, 159-180.
30. O'Boyle, C.A., McGee, H.M. and Joyce, C.R.B. (Eds.) Individual Quality of Life: Approaches to Conceptualisation and Assessment. Reading: Harwood Academic Publishers (in press).
31. O'Neill, D. (1993) Brain stethoscopes: the use and abuse of brief mental test schedules. Postgraduate Medical Journal, 69, 599-601.
32. Roth, M., Huppert, F.A., Tym, E. and Mountjoy, C.Q. (1988) CAMDEX: the Cambridge Examination for Mental Disorders of the Elderly. Cambridge, Cambridge: University Press.
33. Sprangers, M.A.G. and Aaronson, N.K. (1992) The role of health care providers and significant others in evaluating the quality of life of patients with chronic disease: a review. Journal of Clinical Epidemiology, 45, 743-760.
34. Stull, D.E., Kosloski, K. and Kercher, K. (1994) Caregiver burden and generic well-being: opposite sides of the same coin? The Gerontologist, 34(1), 88-94.
35. Swanwick, G.R.J., Coen, R.F., O'Mahony, D., Tully, M., Bruce, I., Buggy, F., Lawlor, B.A., Walsh, J.B. and Coakley, D. (1996) A memory clinic for the assessment of mild dementia. Irish Medical Journal, 89(3), 104-105.
36. Tombaugh, T.N. and McIntyre, N.J. (1992) The Mini-Mental State Examination: a comprehensive review. Journal of the American Geriatric Society, 40, 922-935.
37. Vaux, A., Phillips, J., Holly, L., Thomson, B., Williams, D. and Stewart, D. (1986) The Social Support Appraisals (SS-A) Scale: studies of reliability and validity. American Journal of Community Psychology, 14, 195-219.
38. Weiler, P.G., Chiriboga, D.A. and Black, S.A. (1994) Comparison of mental status tests: implications for Alzheimer's patients and their caregivers. Journal of Gerontology, 49, S44-S51.
39. Zarit, S.H., Reever, K.E. and Bach-Peterson, J. (1980) Relatives of the impaired elderly: correlates of feelings of burden. The Gerontologist, 20(6), 649-655.
40. Zarit, S.H., Orr, N.K. and Zarit, J.M. (1985) The Hidden Victims of Alzheimer's disease: Families Under Stress. New York: New York University Press.
41. Zarit, S.H., Todd, P.A. and Zarit, J.M. (1986) Subjective burden of husbands and wives as caregivers: a longitudinal study. The Gerontologist, 26(3), 260-266.
42. Zarit, S.H. (1989) Do we need another 'stress and care-giving' study? The Gerontologist, 29, 147-148.