Measuring agreement between patient and proxy responses to multidimensional health-related quality-of-life measures in clinical trials: An application of psychometric profile analysis

Journal of Clinical Epidemiology

Volumn 55, Issue 6, 2002, Pages 608-618

  Weinfurt, Kevin P ^a   Trucco, Sara M ^b   Willke, Richard J ^c   Schulman, Kevin A ^a  

^a DUKE UNIVERSITY MEDICAL CENTER   (United States)

^b UNIVERSITY OF PITTSBURGH SCHOOL OF MEDICINE   (United States)

^c PFIZER INC   (United States)

Author keywords

Clinical trials; Patients; Proxy; Psychometrics; Quality of Life; Statistics

Indexed keywords

ADULT; ANALYTIC METHOD; ARTICLE; CLINICAL TRIAL; CONTROLLED CLINICAL TRIAL; CONTROLLED STUDY; CUSTODY; DOUBLE BLIND PROCEDURE; FAMILY; FEMALE; HEAD INJURY; HUMAN; INTERMETHOD COMPARISON; MAJOR CLINICAL STUDY; MALE; MULTICENTER STUDY; PATIENT; PRIORITY JOURNAL; PSYCHOMETRY; QUALITY OF LIFE; RANDOMIZED CONTROLLED TRIAL;

ACTIVITIES OF DAILY LIVING; CRANIOCEREBRAL TRAUMA; DECISION MAKING; HEALTH STATUS; HUMANS; OUTCOME ASSESSMENT (HEALTH CARE); PROXY; PSYCHOMETRICS; QUALITY OF LIFE; RANDOMIZED CONTROLLED TRIALS; RESEARCH DESIGN;

EID: 0036281264     PISSN: 08954356     EISSN: None     Source Type: Journal    
DOI: 10.1016/S0895-4356(02)00392-X     Document Type: Article

References (39)

1. The measurement of observer agreement for categorical data
2. The statistical measurement of agreement
3. Quantification of agreement in psychiatric diagnosis revisited
4. Another look at interrater agreement
5. Statistical methods in SUPPORT
6. Generic and disease-specific measures in assessing health status and quality of life
7. The use of significant others as proxy raters of the quality of life of patients with brain cancer
8. Relationship between seizure frequency and costs and quality of life of outpatients with partial epilepsy in France, Germany, and the United Kingdom
9. Reported activities of daily living: Agreement between elderly subjects with and without dementia and their caregivers
10. Use of the Health Utilities Index with stroke patients and their caregivers
11. Determining functional/health status and its relation to disability in stroke survivors
12. Influence of proxy respondents and mode of administration on health status assessment following central nervous system tumours in childhood
13. Reliability and validity of proxy respondent information about childhood injury: An assessment of a Canadian surveillance system
14. Use of primary caretakers as proxies to measure the health care needs of patients with AIDS
15. Using proxies to evaluate quality of life: Can they provide valid information about patients' health status and satisfaction with medical care?
16. Does it matter whom and how you ask? Inter- and intra-rater agreement in the Ontario Health Survey
17. Patients with cancer and their spouse caretakers: Perceptions of the illness experience
18. Use of proxies to measure health and functional status in epidemiologic studies of community-dwelling women aged 65 years and older
19. Proxy reporting in five areas of functional status: Comparison with self-reports and observations of performance
20. Doctors and patients don't agree: Cross-sectional study of patients' and doctors' perceptions and assessments of disability in multiple sclerosis
21. Response comparability of family and staff proxies for nursing home residents
22. Assessing quality of life after stroke: The value and limitations of proxy ratings
23. Food and Drug Administration requirements for approval of new anticancer drugs
24. Some new measures of profile dissimilarity
25. Assessing similarity between profiles
26. Skill scores based on mean square error and their relationships to the correlation coefficient
27. Assessing physicians' estimates of the probability of coronary artery disease: The influence of patient characteristics
28. A multicenter trial on the efficacy of using tirilazad mesylate in cases of head injury
29. The Functional Status Questionnaire: Reliability and validity when used in primary care
30. Improving patient quality of life with feedback to physicians about functional status
31. Functional assessment of elderly patients after percutaneous aortic balloon valvuloplasty: New York Heart Association classification versus Functional Status Questionnaire
32. Functional disability assessment
33. Measuring health and health state preferences among critically ill patients
34. Observer variation in assessment of quality of life in patients with oesophageal cancer
35. Are proxy assessments of health status after stroke with the EuroQol questionnaire feasible, accurate, and unbiased?
36. Patient-proxy response comparability on measures of patient health and functional status