Influence of proxy respondents and mode of administration on health status assessment following central nervous system tumours in childhood

Quality of Life Research

Volumn 6, Issue 1, 1997, Pages 43-53

  Glaser, A W ^a,b   Davies, K ^a   Walker, D ^a   Brazier, D ^a  

^a QUEEN S MEDICAL CENTRE   (United Kingdom)

^b HOSPITAL FOR SICK CHILDREN   (Canada)

Author keywords

central nervous system neoplasms; health status; proxy respondents

Indexed keywords

ADOLESCENT; ARTICLE; CENTRAL NERVOUS SYSTEM TUMOR; CHILD; CHILDHOOD CANCER; CLINICAL ARTICLE; CONTROLLED STUDY; FEMALE; HEALTH STATUS; HUMAN; INFANT; MALE; PARENT; PHYSICIAN; PRIORITY JOURNAL; QUESTIONNAIRE; SELF REPORT;

ADOLESCENT; CENTRAL NERVOUS SYSTEM NEOPLASMS; CHILD; CHILD, PRESCHOOL; FEMALE; HEALTH STATUS; HEALTH STATUS INDICATORS; HUMANS; INFANT; MALE; OBSERVER VARIATION; OUTCOME ASSESSMENT (HEALTH CARE); PSYCHOMETRICS; QUALITY-ADJUSTED LIFE YEARS; QUESTIONNAIRES; SURVIVORS;

EID: 0031046513     PISSN: 09629343     EISSN: None     Source Type: Journal    
DOI: None     Document Type: Article

References (23)

1. Stiller C, Bunch K. Brain and spinal tumours in children under 2 years: incidence and survival in Britain, 1975-1985. Br J Cancer 1992; 66(Suppl 18): 550-553.
2. Lashford L, Campbell R, Gattamaneni HR, Robinson K, Walker D, Bailey C. An intensive multiagent chemotherapy regimen for brain tumours occurring in very young children. Arch Dis Child 1996; 74: 219-223.
3. Glaser A, Walker D. Quality of life. Lancet 1995; 346: 444.
4. Jenny MEM, Kane RL, Lune N. Developing a measure of health outcomes in survivors of childhood cancer: A review of the issues. Med Pediatric Oncol 1995; 24: 145-153.
5. Clarridge BR, Massagli MP. The use of female spouse proxies in common symptom reporting. Med Care 1989; 27: 352.
6. Herjanic B, Reich W. Development of a structured psychiatric interview for children: agreement between child and parent on individual symptoms. J Abnormal Psychol 1982; 10: 307.
7. Ontario Ministry of Health. Ontario Health Survey, 1990, User's Guide. Vol. 1: Documentation. Toronto, Canada: Ontario Ministry of Health. 1991.
8. Grootendorst P, Feeny D, Furlong W Does it matter whom and how you ask? A technical report on inter- and intra-rater agreement in the Ontario Health Survey. Centre for Health Economics and Policy Analysis Working Paper 94-12. Hamilton, Ontario: McMaster University, 1994.
9. Barr RD, Pai MR, Weitzman S, et al. A multi-attribute approach to health status measurement and clinical management - illustrated by an application to brain tumors in childhood, Int J Oncol 1994; 4: 639-648.
10. Kanabar DJ, Attard-Montalto S, Saha V, Kingston JE, Malpas JE, Eden OB. Quality of life in survivors of childhood cancer after megatherapy with autologous bone marrow rescue. Pediatric Hematol Oncol 1995; 12: 29-36.
11. Torrance GW, Furlong W, Feeny D, Boyle M. Multiattribute Preference - Health Utility Index. Pharmacoeconomics 1995; 7: 503-520.
12. Bilson A, Walker DA. Assessment of health status in survivors of cancer. Arch Dis Child 1994; 70: 200-204.
13. Lansky SB, List MA, Lansky LL, Ritter-Sterr C, Miller DR. The measurement of performance in childhood cancer patients. Cancer 1987; 60: 1651-1656.
14. Karnofsky DA, Burchenal JH. The clinical evaluation of chemotherapeutics in cancer. In: MacLoed CM, ed. Evaluation of chemotherapeutic agents. New York, NY: Columbia University Press, 1949: 191-205.
15. Torrance GW, Zhang Y, Feeny D. Multi-attribute Preference Functions for a Comprehensive Health Status Classification System. Hamilton, Ontario: McMaster University, Centre for Health Economics and Policy Analysis, 1992.
16. Boyle M, Furlong W, Feeny D, Torrance G, Hatcher J. Reliability of the Health Utilities Index-mark III used in the 1991 cycle 6 Canadian General Social Survey Health Questionnaire. Qual Life Res 1995; 4: 249-257.
17. Cohen J. A co-efficient of agreement for nominal scales. Educational and Psychological Measurement 1960; 20: 37-46.
18. Altman D. Some common problems in medical research. In: Practical Statistics for Medical Research. London: Chapman and Hall, 1991: 396-439.
19. Landis RJ, Koch GG. The measurement of observer agreement for categorical data. Biometrics 1977; 33: 159-174.
20. Statistics Canada. General Social Survey: Health, 1991: Public Use Microdata File Documentation and User's Guide 1992.
21. Goodwin DAJ, Boggs SR, Graham-Pole J. Development and validation of the pediatric oncology quality of life scale. Psychological Assessment 1994; 6: 321-328.
22. Magaziner J, Simonsick E, Kashner M, Hebel J. Patient-proxy response comparability on measures of patient health and functional status. J Clin Epidemiol 1988; 41: 1065-1074.
23. Stone WL, Lemanek KL. Developmental issues in children's self-reports. In: La Greca AM, ed. Through the Eyes of the Child: Obtaining Self-reports from Children and Adolescents. Boston: Allyn and Bacon, 18-56.