Annotation: Psychopathology in children with intellectual disability

Journal of Child Psychology and Psychiatry and Allied Disciplines

Volumn 41, Issue 4, 2000, Pages 407-417

  Dykens, Elisabeth M ^a  

^a UNIVERSITY OF CALIFORNIA   (United States)

Author keywords

Behavioral phenotypes; Down syndrome; Dual diagnosis; Fragile X syndrome; Intellectual disability; Prader Willi syndrome; Williams syndrome

Indexed keywords

AUTISM; CHILD; DOWN SYNDROME; FAMILIAL INCIDENCE; HUMAN; INTELLECTUAL IMPAIRMENT; MENTAL DISEASE; PRADER WILLI SYNDROME; PREVALENCE; PSYCHOLOGIC ASSESSMENT; REVIEW; ADOLESCENT; ATTENTION DEFICIT DISORDER; BEHAVIOR DISORDER; COMORBIDITY; GENETIC PREDISPOSITION; GENETICS; MENTAL DEFICIENCY; PERSONALITY TEST; PSYCHOLOGICAL ASPECT;

ADOLESCENT; ATTENTION DEFICIT DISORDER WITH HYPERACTIVITY; AUTISTIC DISORDER; CHILD; CHILD BEHAVIOR DISORDERS; COMORBIDITY; GENETIC PREDISPOSITION TO DISEASE; HUMANS; MENTAL RETARDATION; PERSONALITY ASSESSMENT; PSYCHOPATHOLOGY;

EID: 0034185773     PISSN: 00219630     EISSN: None     Source Type: Journal    
DOI: 10.1017/S0021963000005667     Document Type: Review

References (113)

1. Abrams, M. T., & Reiss, A. L. (1995). The neurobiology of fragile X syndrome. Mental Retardation and Developmental Disabilities Research Reviews, 1, 269-275.
2. Aman, M. G. (1991). Assessing psychopathology and behavior problems in persons with mental retardation: A review of available instruments. Rockville, MD: U.S. Department of Health and Human Services.
3. Aman, M. G., & Singh, N. N. (1994). Aberrant Behavior Checklist - community supplementary manual. East Aurora, NY: Slosson Educational Publications.
4. Ammerman, R. T., Hersen, M., Van Hasselt, V. B., Lubetsky, M. J., & Sieck, W. R. (1994). Maltreatment in psychiatrically hospitalized children and adolescents with developmental disabilities: Prevalence and correlates. Journal of the American Academy of Child and Adolescent Psychiatry, 33, 567-576.
5. Bailey, D. B., & Nelson, D. (1995). Overview: Fragile X syndrome. Mental Retardation and Developmental Disabilities Research Reviews, 4, 237-244.
6. Baumgardner, T. L., Reiss, A. L., Freund, L. S., & Abrams, M. T. (1995). Specification of the neurobehavioral phenotype in males with fragile X syndrome. Pediatrics, 95, 744-752.
7. Beardsmore, A., Dorman, T., Cooper, S. A., & Webb. T. (1998). Affective psychosis and Prader-Willi syndrome. Journal of Intellectual Disability Research, 42, 463-471.
8. Bird, J. (1997). Epilepsy and learning disabilities. In O. Russell (Ed.), Seminars in the psychiatry of leaning disabilities (pp. 223-244). London: Gaskell.
9. Borthwick-Duffy, S. A. (1994). Prevalence of destructive behaviors: A study of aggression, self-injury and property destruction. In T. Thompson & B. B. Gray (Eds.); Destructive behavior in developmental disabilities: Diagnosis and treatment (pp. 2-23). Thousand Oaks, CA: Sage Publications.
10. Borthwick-Duffy, S. A., & Eyman, R. K. (1990). Who are the dually diagnosed? American Journal on Mental Retardation, 94, 586-595.
11. Bouras, N., Brooks, D., & Drummond, K. (1994). Community psychiatric services for people with mental retardation. In N. Bouras (Ed.), Mental health in mental retardation (pp. 293-299). New York: Cambridge University Press.
12. Bregman, J. D. (1991). Current developments in the understanding of mental retardation Part II: Psychopathology. Journal of the American Academy of Child and Adolescent Psychiatry, 30, 861-872.
13. Bruininks, R. H., Olson, K. M., Larson, S. A., & Lakin, K. C. (1994). Challenging behaviors among persons with mental retardation in residential settings: Implications for policy, research, and practice. In T. Thompson & B. B. Gray (Eds.), Destructive behavior in developmental disabilities: Diagnosis and treatment (pp. 24-48). Thousand Oaks, CA: Sage Publications.
14. Bryson, S. E. (1997). Epidemiology of autism: Overview and issues outstanding. In D. J. Cohen & F. R. Volkmar (Eds.), Handbook of autism and pervasive developmental disorders (2nd ed., pp. 41-46). New York: John Wiley.
15. Clarke, D. (1998). Prader-Willi syndrome and psychotic symptoms: 2. A preliminary study of prevalence using the Psychopathology Assessment for Adults with developmental Disability checklist. Journal of Intellectual Disability Research, 42, 451-454.
16. Clarke, D., & Boer, H. (1998). Problem behaviors associated with deletion Prader-Willi, Smith-Magenis, and Cri du Chat syndromes. American Journal on Mental Retardation, 103, 264-271.
17. Collacott, R. A., Cooper, S. A., & McGrother, C. (1992). Differential rates of psychiatric disorders in adults with Down's syndrome compared to other mentally handicapped adults. British Journal of Psychiatry, 161, 671-674.
18. Cornish, K. M., & Pigram, J. (1996). Developmental and behavioural characteristics of cri du chat syndrome. Archives of Diseases in Childhood, 75, 448-450.
19. Craske, M. G. (1999). Anxiety disorders: Psychological approaches to theory and treatment. Colorado: Westview Press.
20. Davies, M., Howlin, P., & Udwin, O. (1997). Independence and adaptive behaviour in adults with Williams syndrome. American Journal of Medical Genetics, 70, 188-195.
21. Davies, M., Udwin, O., & Howlin, P. (1998). Adults with Williams syndrome: A preliminary study of social, emotional and behavioural difficulties. British Journal of Psychiatry, 172, 273-276.
22. Dykens, E. M. (1995). Measuring behavioral phenotypes: Provocations from the new genetics. American Journal on Mental Retardation, 99, 522-532.
23. Dykens, E. M. (1996). DNA meets DSM: The growing importance of genetic syndromes in dual diagnosis. Mental Retardation, 34, 125-127.
24. Dykens, E. M. (1998). The neuropsychiatry of Prader-Willi syndrome. Current Opinion in Psychiatry, 11, 519-522.
25. Dykens, E. M. (1999a). Personality-motivation: New ties to psychopathology, etiology, and intervention. In E. Zigler & D. Bennett-Gates (Eds.), Personality-motivation in individuals with mental retardation (pp. 249-270). New York: Cambridge University Press.
26. Dykens, E. M. (1999b). Direct effects of genetic mental retardation syndromes. Maladaptive behavior and psychopathology. International Review of Research in Mental Retardation, 22, 2-26.
27. Dykens, E. M. (2000). Anxiety, fears and phobias in persons with Williams syndrome. Manuscript under review.
28. Dykens, E. M., & Cassidy, S. B. (1999). Prader-Willi syndrome. In S. Goldsten & C. Reynolds (Eds.), Neurodevelopmental and genetic disorders in children (pp. 525-554). New York: Guilford Press.
29. Dykens, E. M., Cassidy, S. B., & King, B. H. (1999). Maladaptive behavior differences in Prader-Willi syndrome associated with paternal deletion versus maternal uniparental disomy. American Journal on Mental Retardation, 104, 67-77.
30. Dykens, E. M., & Clark, D. J. (1997). Correlates of maladaptive behavior in individuals with 5p- (cri-du-chat) syndrome. Developmental Medicine and Child Neurology, 39, 752-756.
31. Dykens, E. M., Finucane, B. M., & Gayley, C. (1997). Cognitive and behavioral profiles in persons with Smith-Magenis syndrome. Journal of Autism and Developmental Disorders, 27, 203-211.
32. Dykens, E. M., & Hodapp, R. M. (1997). Treatment isues in genetic mental retardation syndromes. Professional Psychology: Research and Practice, 28, 263-270.
33. Dykens, E. M., Hodapp, R. M., & Finucane, B. M. (in press). Behavior in mental retardation syndromes: A guide to the new frontier. Baltimore, MD: Paul H. Brookes.
34. Dykens, E. M., Hodapp, R. M., & Leckman, J. F. (1994). Behavior and development in fragile X syndrome. Thousand Oaks, CA: Sage Publications.
35. Dykens, E. M., & Kasari, C. (1997). Maladaptive behavior in children with Prader-Willi syndrome, Down syndrome, and non-specific mental retardation. American Journal on Mental Retardation, 102, 228-237.
36. Dykens, E. M., Leckman, J. F., & Cassidy, S. B. (1996). Obsessions and compulsions in Prader-Willi syndrome. Journal of Child Psychology and Psychiatry, 27, 11-23.
37. Dykens, E. M., & Rosner, B. A. (1999). Refining behavioral phenotypes: Personality-motivation in Williams and Prader-Willi syndromes. American Journal on Mental Retardation, 104, 158-169.
38. Dykens, E. M., & Smith, A. C. M. (1998). Distinctiveness and correlates of maladaptive behavior in children and adolescents with Smith-Magenis syndrome. Journal of Intellectual Disability Research, 42, 481-489.
39. Dykens, E. M., & Volkmar, F. R. (1997). Medical conditions associated with autism. In D. J. Cohen & F. R. Volkmar (Eds.), Handbook of autism and pervasive developmental disorders (2nd ed., pp. 388-407). New York: Wiley.
40. Edgerton, R. B., & Gaston, M. A. (1991). "I've seen it all!": Lives of older persons with mental retardation living in the community. Baltimore, MD: Paul H. Brookes.
41. Einfeld, S. L. (1992). Clinical assessment of psychiatric symptoms in mentally retarded children. Australian New Zealand Journal of Psychiatry, 26, 48-63.
42. Einfeld, S. L., & Tonge, B. J. (1992). Manual for the Developmental Behaviour Checklist: Primary carer version. Australia: School of Psychiatry, University of New South Wales.
43. Einfeld, S. L., & Tonge, B. J. (1996). Population prevalence of psychopathology in children and adolescents with intellectual disability: II Epidemiological findings. Journal of Intellectual Disability Research, 40, 99-109.
44. Einfeld, S. L., Tonge, B. J., & Florio, T. (1997). Behavioral and emotional disturbance in individuals with Williams syndrome. American Journal on Mental Retardation, 102, 45-53.
45. Evans, D. W. (1998). Development of the self-concept in children with mental retardation : Organismic and contextual factors. In J. A. Burack, R. M. Hodapp, & E. Zigler (Eds.), Handbook of mental retardation and development (pp. 462-480). New York: Cambridge University Press.
46. Ewart, A. K., Morris, C. A., Atkinson, D., Jin, W., Sternes, K., Spallone, P., Stock, A. D., Leppert, M., & Keating, M. T. (1993). Hemizygosity at the elastin locus in a developmental disorder, Williams syndrome. Nature Genetics, 5, 11-16.
47. Feldman, M. A., Leger, M., & Walton-Allen, N. (1997). Stress in mothers with intellectual disabilities. Journal of Child and Family Studies, 6, 471-485.
48. Fidler, D. J., & Hodapp, R. M. (1999). Craniofacial maturity and perceived personality in children with Down syndrome. American Journal on Mental Retardation, 104, 410-421.
49. Fidler, D. J., Most, D. E., Hodapp, R. M., & Dykens, E. M. (2000). Stress in families of children with Williams syndrome: Child personality risk and protective factors. Manuscript under review.
50. Finucane, B. M., Konar, D., Haas-Givler, B., Kurtz, M. D., & Scott, L. I. (1994). The spasmodic upper-body squeeze: A characteristic behavior in Smith-Magenis syndrome. Developmental Medicine and Child Neurology, 36, 78-83.
51. Freeman, S. F. N., & Kasari, C. (1998). Friendships in children with developmental disabilities. Early Education and Development, 9, 341-355.
52. Gath, A. (1990). Down syndrome children and their families. American Journal of Medical Genetics Supplement, 7, 314-316.
53. Gath, A., & Gumley, D. (1986). Behavior problems in retarded children with special reference to Down's syndrome. British Journal of Psychiatry, 149, 156-161.
54. Gersh, M., Goodart, S. A., Pasztor, L. M., Harris, D. J., Weiss, L., & Overhauser, J. (1995). Evidence for a distinct region causing a cat-like cry in patients with 5p deletions. American Journal of Human Genetics, 56, 1404-1410.
55. Gillberg, C., Persson, E., Grufman, M., & Themner, U. (1986). Psychiatric disorders in mildly and severely affected urban children and adolescents: Epidemiological aspects. British Journal of Psychiatry, 149, 68-74.
56. Gosch, A., & Pankau, R. (1997). Personality characteristics and behavior problems in individuals of different ages with Williams syndrome. Developmental Medicine and Child Neurology, 39, 527-533.
57. Gostason, R. (1985). Psychiatric illness among the mentally retarded: A Swedish population study. Acta Psychiatrica Scandinavica, 71 (Suppl 318), 1-117.
58. Greenspan, S., & Granfield, J. M. (1992). Reconsidering the construct of mental retardation: Implications of a model of social competence. American Journal on Mental Retardation. 96, 442-453.
59. Hindley, P. A. (1997). Psychiatric aspects of hearing impairments. Journal of Child Psychology and Psychiatry, 38, 101-117.
60. Hodapp, R. M. (1995). Parenting children with Down syndrome and other types of mental retardation. In M. Bornstein (Ed.), Handbook of parenting, Vol. 1 (pp. 232-253). Mahwah. NJ: Lawrence Erlbaum.
61. Hodapp, R. M. (1997). Direct and indirect effects of different genetic disorders of mental retardation. American Journal on Mental Retardation, 102, 67-79.
62. Hodapp, R. M. (1998). Development and disabilities: Intellectual, sensory, and motor impairments. New York: Cambridge University Press.
63. Hodapp, R. M., & Dykens, E. M. (1994). Mental retardation's two cultures of behavioral research. American Journal on Mental Retardation, 98, 675-687.
64. Hodapp, R. M., & Dykens, E. M. (2000). Two cultures revisited: Behavioral studies in genetic mental retardation syndromes. Manuscript under review.
65. Hodapp, R. M., Dykens, E. M., & Masino, L. L. (1997). Families of children with Prader-Willi syndrome: Stress-support and relations to child characteristics. Journal of Autism and Developmental Disorders, 27, 11-24.
66. Hodapp, R. M., Fidler, D. J., & Smith, A. C. M. (1998). Stress and coping in families of children with Smith-Magenis syndrome. Journal of Intellectual Disability Research, 42, 310-340.
67. Hodapp, R. M., Wijma, C. A., & Masino, L. L. (1997). Families of children with 5p- (cri du chat) syndrome: Familial stress and sibling reactions. Developmental Medicine and Child Neurology, 39, 757-761.
68. Jacobson, J. W. (1982). Problem behavior and psychiatric impairment within a developmentally delayed population: I. Behavioral frequency. Applied Research in Mental Retardation, 3, 121-139.
69. Jacobson, J. W. (1990). Do some mental disorders occur less frequently among persons with mental retardation? American Journal of Mental Retardation, 94, 596-602.
70. King, B. H. (1993). Self-injury by people with mental retardation: A compulsive behavior hypothesis. American Journal on Mental Retardation, 98, 93-112.
71. Koegel, L. K., Koegel, R. L., & Dunlap, G. (1996). Positive behavioral support: Including people with difficult behavior in the community. Baltimore, MD: Paul H. Brookes.
72. Koller, H., Richardson, S., Katz, H., & McLaren, J. (1982). Behavior disturbance in childhood and the early adult years in populations who were and were not mentally retarded. Journal of Preventative Psychiatry, 1, 453-468.
73. Lachiewicz, A. M., & Dawson, D. V. (1994). Behavior problems of young girls with fragile X syndrome. American Journal of Medical Genetics, 51, 364-369.
74. Leffert, J. S., & Siperstein, G. N. (1996). Assessment of social-cognitive processes in children with mental retardation. American Journal on Mental Retardation, 100, 441-455.
75. Lund, J. (1985). The presence of psychiatric morbidity in mentally retarded adults. Ac ta Psychiatrica Scandinavica, 72, 563-570.
76. Marinescu, R. C., Johnson, E., Dykens, E. M., Hodapp, R. M., & Overhauser, J. (1999). No relation between the size of the deletion and level of developmental delay in cri-du-chat syndrome. American Journal of Medical Genetics, 86, 66-70.
77. Matson, J. L., Barrett, R. W., & Helsel, W. J. (1988). Depression in mentally retarded children. Research in Developmental Disabilities, 9, 39-48.
78. McCabe, E. R. B., de la Cruz, F., & Clapp, K. (1999). Workshop on fragile X: Future research directions. American Journal of Medical Genetics, 85, 317-322.
79. Methen, B. O., & Khoo, S. K. (1998). Longitudinal studies of achievement growth using latent variable modeling. Learning and Individual Differences, 10, 73-101.
80. Meyers, B. A., & Pueschel, S. M. (1991). Psychiatric disorders in persons with Down syndrome. The Journal of Nervous and Mental Disease, 179, 609-613.
81. Minnes, P. (1998). Mental retardation: The impact upon the family. In J. A. Burack, R. M. Hodapp, & E. Zigler (Eds.), Handbook of mental retardation and development (pp. 693-712). New York: Cambridge University Press.
82. Moss, S., Prosser, B., Ibbotoson, B., & Goldberg, D. (1996). Respondent and informant accounts of psychiatric symptoms in a sample of patients with learning disability. Journal of Intellectual Disability Research, 40, 457-465.
83. Nyan, W. L. (1994). Lesch-Nyan disease. In T. Thompson & B. B. Gray (Eds.), Destructive behavior in developmental disabilities: Diagnosis and treatment (pp. 181-197). Thousand Oaks, CA: Sage Publications.
84. O'Brien, G., & Yule, W. (Eds.). (1995). Behavioural phenotypes. London: MacKeith.
85. Opitz, J. (1996). Historiography of the causal analysis of mental retardation. Speech to the 29th Annual Gatlinburg Conference on Research and Theory in Mental Retardation, Gatlinburg, TN, March.
86. Reid, A. (1980). Psychiatric disorders in mentally handicapped children: A clinical and follow-up study. Journal of Mental Deficiency Research, 24, 287-298.
87. Reiss, S. (1988). The Reiss screen for maladaptive behavior. Worthington, OH: IDS Publishing.
88. Reiss, S. (1990). Prevalence of dual diagnosis in community-based day programs in the Chicago metropolitan area. American Journal on Mental Retardation, 94, 578-588.
89. Reiss, S. (1994). Handbook of challenging behavior: Mental health aspects of mental retardation. Worthington, OH: IDS Publishing.
90. Reiss, S., & Benson, B. A. (1985). Psychosocial correlates of depression in mentally retarded adults: Minimal social support and stigmatization. American Journal of Mental Deficiency, 89, 331-337.
91. Rojahn, J. (1994). Epidemology and topographic taxonomy of self-injurious behavior. In T. Thompson & B. B. Gray (Eds.); Destructive behavior in developmental disabilities: Diagnosis and treatment (pp. 49-67). Thousand Oaks, CA: Sage Publications.
92. Rutter, M., Silberg, J., O'Connor, T., & Simonoff, E. (1999). Genetics and child psychiatry: II Empirical research findings. Journal of Child Psychology and Psychiatry, 40, 19-55.
93. Rutter, M., Tizard, J., Yule, W., Graham, P., & Whitmore, K. (1976). Research report: Isle of Wight studies, 1964-1974. Psychological Medicine, 6, 313-332.
94. Siperstein, G. H., Leffert, J. S., & Wenz-Gross, M. (1997). The quality of friendships between children with and without learning problems. American Journal on Mental Retardation, 102, 111-125.
95. Smith, A. C. M., Dykens, E. M., & Greenberg, F. (1998a). The behavioral phenotype of Smith-Magenis syndrome. American Journal of Medical Genetics, 81, 179-185.
96. Smith, A. C. M., Dykens, E. M., & Greenberg, F. (1998b). Sleep disturbance in Smith-Magenis syndrome (del 17p11.2). American Journal of Medical Genetics, 81, 186-191.
97. Smith, A., Marks, R., Haan, E., Dixon, J., & Trent, R. J. (1997). Clinical features in four patients with Angelman syndrome resulting from paternal uniparental disomy. Journal of Medical Genetics, 34, 426-429.
98. Sobesky, W. E., Porter, D., Pennington, B. F., & Hagerman, R. J. (1995). Dimensions of shyness in fragile X females. Developmental Brain Dysfunction, 8, 280-292.
99. Solnit, A., & Stark, M. (1961). Mourning and the birth of a defective infant. Psychoanalytic Study of the Child, 16, 523-537.
100. Sovner, R. (1986). Limiting factors in the use of DSM-III criteria with mentally ill/mentally retarded persons. Psychopharmacology Bulletin, 22, 1055-1059.
101. State, M. W., Dykens, E. M., Rosner, B. A., Martin, A., & King, B. H. (1999). Obsessive-compulsive symptoms in Prader-Willi and Prader-Willi-like patients. Journal of the American Academy of Child and Adolescent Psychiatry, 38, 329-334.
102. Streissguth, A. (1997). Fetal alcohol syndrome. Baltimore, MD: Paul H. Brookes.
103. Szymanski, L. S., King, B. H., Goldberg, B., Reid, B. H., Tonge, B. J., & Cain, N. (1998). Diagnosis of mental disorders in people with menial retardation. In S. Reiss & M. G. Aman (Eds.), Psychotropic medications and developmental disabilities: The international consensus handbook. Columbus, OH: Nisonger Center, Ohio State University.
104. Tassone, F., Hagrman, R. J., Ikle, D., Dyer, P. N., Lampe, M., Willemsen, R., Oostra, B. A., & Taylor, A. K. (1999). FMRP expression as a potential prognostic indicator in fragile X syndrome. American Journal of Medical Genetics, 84, 250-261.
105. Thompson, M. M., Gogeness, G. A., McClure, E., Clayton, R., Johnson, C., Hazelot, B., Cho, C. G., & Zellmer, V. T. (1994). Neurobehavioral characteristics of CGG amplification status in fragile X females. American Journal of Medical Genetics, 54, 378-383.
106. Turk, J., & Cornish, K. (1988). Face recognition and emotion perception in boys with fragile X syndrome. Journal of Intellectual Disability Research, 42, 490-499.
107. Volkmar, F. R., & Schwab-Stone, M. (1996). Annotation: Childhood disorders in DSM-IV. Journal of Child Psychology and Psychiatry, 37, 779-784.
108. Warren, D. H. (1994). Blindness and children: An individual differences approach. Cambridge: Cambridge University Press.
109. Weisz, J. R. (1990). Cultural-familial mental retardation: A developmental perspective on cognitive performance and "helpless" behavior. In R. M. Hodapp, J. A. Burack, & E. Zigler (Eds.), Issues in the developmental approach to mental retardation (pp. 137-168). New York: Cambridge University Press.
110. Wilkins, L. E., Brown, J. A., & Wolf, B. (1980). Psychomotor development in 65 home reared children with cri-du-chat syndrome. Journal of Pediatrics, 97, 401-405.
111. Wills, K. E. (1993). Neuropsychological functioning in children with spina bifida and/or hydrocephalus. Journal of Child Clinical Psychology, 22, 247-267.
112. Zigler, E., & Bennett-Gates, D. (1999). Personality-motivation in individuals with mental retardation. New York: Cambridge University Press.
113. Zigman, W. B., Schupf, N., Zigman, A., & Silverman, W. (1993). Aging and Alzheimer disease in people with mental retardation. International Review of Research in Mental Retardation, 19, 41-70.