Patient centered long-term care

Health Care Financing Review

Volumn 19, Issue 2, 1997, Pages 1-10

  Miller, Nancy A ^a  

^a CENTERS FOR MEDICARE AND MEDICAID SERVICES   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ACQUIRED IMMUNE DEFICIENCY SYNDROME; CAREGIVER; CHRONIC DISEASE; DISABILITY; HEALTH CARE ACCESS; LONG TERM CARE; MEDICAL DECISION MAKING; MEDICAL ETHICS; PATIENT ATTITUDE; PATIENT CARE; REVIEW;

ACTIVITIES OF DAILY LIVING; CAREGIVERS; CONFLICT (PSYCHOLOGY); DECISION MAKING; HEALTH PERSONNEL; HEALTH SERVICES ACCESSIBILITY; LONG-TERM CARE; NEGOTIATING; PATIENT PARTICIPATION; PATIENT-CENTERED CARE; PROFESSIONAL COMPETENCE; QUALITY OF LIFE; UNITED STATES;

EID: 0031389811     PISSN: 01958631     EISSN: None     Source Type: Journal    
DOI: None     Document Type: Review

References (43)

1. Balcazar, F., MacKay-Murphy, M., Keys, C., et al.: Assessing Perceived Agency Adherence to the Values of Community Inclusion: Implications for Staff Satisfaction. American Journal on Mental Retardation 102(5): 451-463, 1997.
2. Baroff, G.S.: Maximal Adaptive Competency. Mental Retardation 24:367-368, 1986.
3. Batavia, A.I., DeJong, G., and McKnew, L.B.: Toward a National Personal Assistance Program: The Independent Living Model of Long-Term Care for Persons with Disabilities. Journal of Health Politics, Policy and Law 16(3):523-552, 1991.
4. Benjamin, A.E., Matthias, R.E., Franke, T., et al.: Who's in Charge? Who Gets Paid? A Study of Models for Organizing Supportive Services at Home. Final Report to the Assistant Secretary for Planning and Evaluation. Los Angeles, CA. School of Public Policy and Social Research, University of California Los Angeles, 1998.
5. Boswell, B.B., Dawson, M., and Heininger, E.: Quality of Life as Defined by Adults with Spinal Cord Injuries. Journal of Rehabilitation 19(1):27-32, 1998.
6. Braddock, D.: Community Mental Health and Mental Retardation Services in the United States: A Comparative Study of Resource Allocation. American Journal of Psychiatry 149(2):175-183, 1992.
7. Brown, S.L., Lakin, K.C. and Burwell, B.O.: Beneficiary-Centered Care in Services to Persons With Developmental Disabilities. Health Care Financing Review 19(2):2346 1997.
8. Campen, C.V., Sixma, H., Friele, R.D., et al.: Quality of Care and Patient Satisfaction: A Review of Measuring Instruments. Medical Care Research and Review 52(1):109-133, 1996.
9. Chadsey-Rusch, J., Linneman, D., and Rylance, B.J.: Beliefs About Social Integration From the Perspectives of Persons With Mental Retardation, Job Coaches, and Employers. American Journal on Retardation 102(1):1-12, 1997.
10. Cleary, P.D. and Edgman-Levitan, S.: Health Care Quality. Incorporating Consumer Perspectives. JAMA 278(19):1608-1612, 1997.
11. Cleary, P.D., Edgman-Levitan, S., Roberts, et al.: Patients Evaluate Their Hospital Care: A National Survey. Health Affairs 19(4):254-267, 1991.
12. Cleary, P.D., Fowler, F.J., Weissman, J., et al.: Health-Related Quality of Life in Persons with Acquired Immunodeficiency Syndrome. Medical Care 31(7):569-580, 1993.
13. Curtis, R.S.: Values and Valuing in Rehabilitation. Journal of Rehabilitation 19(1):42-47, 1998.
14. Degenholtz, H., Kane, R.A., and Kivnick, H.Q.: Care-Related Preferences and Values of Elderly LTC Consumers: Can Case Managers Learn What's Important to Clients? The Gerontologist 37(6):767-776, 1997.
15. Dejong, G., Batavia, A.I. and Griss, R: America's Neglected Health Minority: Working-Age Persons with Disabilities. Milbank Quarterly 67 (Supplement 2, Part 2):311-351, 1989.
16. Doty, P., Kasper, J., and Litvak, S.: Consumer-Directed Models of Personal Care: Lessons from Medicaid. Milbank Memorial Fund 74(3):377-409, 1996.
17. Fabian, E.S.: Using Quality-of-Life Indicators in Rehabilitation Program Evaluation. Rehabilitation Counseling Bulletin 34(4):344-356, 1991.
18. Gill, T.M. and Feinstein, A.R.: A Critical Appraisal of the Quality-of-Life Measurements. JAMA 272(8):619-626, 1994.
19. Harrington, C., LaPlante, M., Newcomer, R.J., et al.: A Review of Federal Statutes and Regulations for Personal Care and Home and Community Based Services. A Final Report. Final Report to the Health Care Financing Administration. San Francisco, CA. Department of Social & Behavioral Sciences, University of San Francisco, California, 1998.
20. Ju, J.J. and Thomas, K.R.: The Accuracy of Counselor Perceptions of Client Work Values and Client Satisfaction. Rehabilitation Counseling Bulletin March:157-166, 1987.
21. Kane, R.A., Kane, R.L., Illston, L.H. and Eustis, N.N.: Perspectives on Home Care Quality. Health Care Financing Review 16(1):69-89, 1994.
22. Kane, R.L., Kane, R.A. and Ladd, R. The Heart of Long-Term Care. Oxford University Press, 1998.
23. Kane, R.L., Rockwell, T., Finch, M. And Philip, A.: Consumer and Professional Ratings of the Importance of Functional Status Components. Health Care Financing Review 19(2):11-22 1997.
24. Kaye, H.S. and Longmore, P.K. Disability Watch: The Status of People with Disabilities in the United States. Report. San Francisco, CA. Disabilities Rights, Inc. Cited in Harrington, et al., 1998.
25. Kravitz, R.L.: Patients' Expectations for Medical Care: An Expanded Formulation Based on Review of the Literature. Medical Care Research and Review 53(1):3-27, 1996.
26. Ladd, R.C., Kane, R.L., Kane, R.A. and Nielson, W.: State LTC Profiles Report. Minneapolis, MN. School of Public Health, University of Minnesota, 1995.
27. Lehman, A.F.: A Quality of Life Interview for the Chronically Mentally Ill. Evaluation and Program Planning 11:51-62, 1988.
28. Lundberg, G.D. and Wennberg, J.E.: A JAMA Theme Issue on Quality of Care. A New Proposal and a Call to Action. JAMA 278(19):1615-1616, 1997.
29. Lunsky, Y. and Benson, B.A: Reliability of Ratings of Consumers with Mental Retardation and Their Staff on Multiple Measures of Social Support. American Journal on Mental Retardation 102(3):280-284, 1997.
30. Maloney, S.K., Finn, J., Bloom, D.L. and Andresen, J.: Personal Decisionmaking Styles and Long-Term Care Choices. Health Care Financing Review 18(1):141-155, 1996.
31. McCullough, L.B., Wilson, N.L., Teasdale, T.A., et al.: Mapping Personal, Familial, and Professional Values in Long-Term Care Decisions. The Gerontologist 33(3):324-332, 1993.
32. Miller, N.A., Harrington, C., and Mauser, E.: Explaining Variation in Medicaid Community Based Long Term Care Expenditures: 1987-1993. Paper presented at the American Public Health Association Annual Meeting, San Diego, CA, 1995.
33. Potthoff, S., Kane, R.L. and Franco, S.J.: Improving Hospital Discharge Planning for Elderly Patients. Health Care Financing Review 19(2):47-72 1997.
34. President's Commission for the Study of Ethical Problems in Medical and Behavioral Research, 1982. The Values Underlying Informed Consent. In McKenzie, N.E. (Ed.) The Crisis in Health Care. Ethical Issues. New York, NY, Penguin Group, 1990.
35. Simon-Rusinowitz, L., Mahoney, K.J., Desmond, S.M., et al.: Determining Consumer Preferences for a Cash Option: Arkansas Survey Results. Health Care Financing Administration 19(2):73-96 1997.
36. Stensman, R.: Severely Mobility Disabled People Assess the Quality of their Lives. Scandinavian Journal of Rehabilitation Medicine 17:87-99, 1985.
37. Trupin, L. and Rice, D.P. Health Status, Medical Care Use, and the Number of Disabling Conditions in the United States. Disability Statistics Abstract (9), National Institute on Disability and Rehabilitation Research, 1995.
38. Tsevat, J., Weeks, J.C., Guadagnoli, E., et al.: Using Health-related Quality-of-life Information. Clinical Encounters, Clinical Trials, and Health Policy. Journal of General Internal Medicine 9:576-582, 1994.
39. U.S. Bureau of the Census: Survey of Income Program Participation. Washington, DC., U.S. Government Printing Office, 1990.
40. Wiener, J.M. and Sullivan, C.M.: Long Term Care for the Younger Population: A Policy Synthesis. In Wiener, J.M., Clauser, S.B. and Kennell, D.L. (Eds.) Persons with Disabilities. Issues in Health Care Financing and Service Delivery. Washington, DC. The Brookings Institution, 1995.
41. Wilson, I.B. and Cleary, P.D.: Linking Clinical Variables with Health-Related Quality of Life. JAMA 273(1):59-65, 1995.
42. Wong, H.D. and Millard, R.P.: Ethical Dilemmas Encountered by Independent Living Service Providers. Journal of Rehabilitation 13(4):10-15, 1992.
43. Yordi, C., DuNah, R., Bostrom, A., et al.: Caregiver Supports: Outcomes From the Medicare Alzheimer's Disease Demonstration. Health Care Financing Review 19(2):97-117 1997.