Institutional Review Boards and the Ethics of Emotion

Qualitative Inquiry and Social Justice: Toward a Politics of Hope

Volumn , Issue , 2017, Pages 81-107

  McIntosh, Michele J ^a,b   Morse, Janice M ^c  

^a UNIVERSITY OF ALBERTA   (Canada)

^b YORK UNIVERSITY   (Canada)

^c UNIVERSITY OF UTAH   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 85145141799     PISSN: None     EISSN: None     Source Type: Book    
DOI: 10.4324/9781315421537-8     Document Type: Chapter

References (56)

1. Annas G. (1996). Old and emerging bioethical issues in research on atoms and genes. Available online at URL: http://subjects.energy.gov/doeresources/newsletter/winter96-newsltr.pdf
2. Aristotle. (335BCE/1920). Aristotle on the art of poetry. Translator: Ingram Bywater. Oxford, U.K.: Oxford at the Clarendon Press.
3. Aristotle. (350BCE/1985). Nicomachean ethics. Translator: T. Erwin. Indianpolis: Hackett.
4. Barratt, M. J., Norman, J. S., and Fry, C. L. (2007). Positive and negative aspects of participation in illicit drug research: Implications for recruitment and ethical conduct. International Journal of Drug Policy, 18, 235-238.
5. th ed. New York: Oxford University Press.
6. Behar, R. (1996). The vulnerable observer: Anthropology that breaks your heart. Boston: Beacon Press.
7. Bergum, V. and Dossetor, J. (2005). Relational ethics: The full meaning of respect. Hagerstown, MD: University Publishing Group.
8. Blum, L. A. (1980). Friendship, altruism and morality. Cambridge: Cambridge University Press.
9. Blum, L. A. (1994). Moral perception and particularity. Cambridge: Cambridge University Press.
10. Boothroyd, R. A. (2000). The impact of research participation on adults with severe mental illness. Mental Health Services Research, 2(4), 213-221.
11. Boothroyd, R. A. and Best, K. (2003). Emotional reactions to research participation and the relationship to understanding informed consent disclosure. Social Work Research, 27(4), 242-251.
12. Brannen, J. (1993). The effects of research on participants: Findings from a study of mothers and employment. Sociological Review, 41(2), 328-346.
13. Bruzy, S., Ault, A., and Segal, E. A. (1997). Conducting qualitative interviews with women survivors of trauma. AFFILIA, 12, 76-83.
14. Carter, S. M., Jordens, C. F. C., McGrath, C., and Little, M. (2008). Have to make something of all that rubbish, do you? An empiricial investigation of the social process of qualitative research. Qualitative Health Research, 18, 1264-1276.
15. Ceci, S., Douglas, P., and Plotkin, J. (1985). Human subjects review, personal values and the regulation of social science research. American Psychologist, 40(9), 994-1002.
16. Chase, S. E. (1995). Taking narrative seriously. Consequences for method and theory in interview studies. In R. Josselson and A. Lieblich (Eds.), Interpreting experience. The narrative study of lives, vol. 3, pp. 1-27, Thousand Oaks, CA: Sage.
17. Cook, A. S. and Bosley, G. (1995). The experience of participating in bereavement research: Stressful or therapeutic? Death Studies, 19, 157-170.
18. Corbin, J. and Morse, J. M. (2003). The unstructured interactive interview: Issues of reciprocity and risks when dealing with sensitive topics. Qualitative Inquiry, 9(3), 335.
19. Cowles, K. V. (1988). Issues in qualitative research on sensitive topics. Western Journal of Nursing Research, 10, 1163-1179.
20. deMarrais, K. and Tisdale, K. (2002). What happens when researchers inquire into difficult emotions?: Reflections on studying women’s anger through qualitative interviews. Educational Psychologist, 37(2), 115-123.
21. Dyregrov, K. (2004). Bereaved parents’ experience of research participation. Social Science and Medicine, 58, 391-400.
22. Dyregrov, K, Dyregro, A., and Raundalen, M. (2000). Refugee families’ experience of research participation. Journal of Traumatic Stress, 131(3), 413-426.
23. Ellis, C. (1995). Emotional and ethical quagmires in returning to the field. Journal of Contemporary Ethnography, 24(1), 68-98.
24. Finch, J. (1984). “It’s great to have someone to talk to”: The ethics and politics of interviewing women. In C. Bell and H. Roberts (Eds.), Social researching: Politics, problems, practice, 1044-124. London: Routledge.
25. Frijda, H. H. (1986). The emotions. New-York: Cambridge University Press.
26. Gilbert, K. (2001). Introduction. Why are we interested in emotions? In K. R. Gilbert (Ed.), The emotional nature of qualitative research, pp. 3-15. Boca Raton, FL: CRC Press.
27. Graham J., Lewis, J., and Nicolaas, G. (2006). Ethical relations: A review of literature on empirical studies of ethical requirements and research participation. ESRC Research Methods Programme Working Paper No 30. Manchester, UK: National Centre for Social Research (NatCen).
28. th International Interdisciplinary Conference Advances in Qualitative Methods, Banff, Alberta, Canada, September 21-24.
29. Hiller H. and DiLuzio, L. (2004). The interviewee and the research interview: Analyzing a neglected dimension in research. Canadian Review of Sociology and Anthropology, 41(1), 1-26.
30. Hoffman, M. L. (2000). Empathy and moral development-Implications for caring and justice. Cambridge: Cambridge University Press.
31. Homan, R. (1992). The ethics of open methods. British Journal of Sociology, 43(3), 321-332.
32. Honeycutt, J. M. (1995). The oral history interview and reports of imagined interactions. Journal of Family Psychotherapy, 694, 63-69.
33. Hutchison, H. A., Wilson, M. E., and Wilson, H. S. (1994). Benefits of participating in research interviews. Image Journal of Nursing Scholarship, 26, 161-164.
34. nd ed., pp. 166-190. New York: Routledge.
35. Kavanaugh, K. and Ayres, L. (1998). “Not as bad as it could have been”: Assessing and mitigating harm during research on sensitive topics. Research in Nursing and Health, 21, 91-97.
36. Kopelman, L. M. (2004). Minimal risk as an international ethical standard in research. Journal of Medicine and Philosophy, 29(3), 351-338.
37. Lather, P. A. and Smithies, C. (1997). Troubling the angels: Women living with HIV/AIDS. Boulder, CO: Westview.
38. Lee, R. M. and Renzetti, C. R. (1990). The problems of researching sensitive topics. American Behavioral Scientist, 33, 510-528.
39. Lincoln, Y. S. and Tierney, W. G. (2004). Qualitative research and institutional review boards. Qualitative Inquiry, 10, 219-234.
40. Lowes, L. and Gill, P. (2006). Participants’ experiences of being interviewed about an emotive topic. Methodological Issues in Nursing Research, 55(5), 587-594.
41. Maykut, P., and Morehouse, R. (1994). The qualitative posture: Indwelling. In P. Maykut and R. Morehouse (Eds.), Beginning Qualitative research: A philosophic and practical guide, pp. 23-37. London: Falmer Press.
42. Mishler, E. (1986). Research interviewing: Context and narrative. Cambridge, MA: Harvard University Press.
43. Morse, J. M. (2002). Emotional re-enactment. (Editorial). Qualitative Health Research, 12(2), 147.
44. Morse, J. M., Bottorff, J., Anderson, G., O’Brien, B., and Solberg, S. (1992). Beyond empathy: Expanding expressions of caring. Journal of Advanced Nursing, 17, 809-821.
45. Nortvedt, P. (2001). Emotions and ethics. In J. L. Storch, P. Rodney, and R. Starzomski (Eds.), Toward a moral horizon: Nursing ethics for leadership and practice, pp. 447-463. Toronto, Canada: Prentice Hall.
46. Nussbaum, M. C. (2001). Upheavals of thought. The intelligence of emotions. Cambridge: Cambridge University Press.
47. Ortony, A., Clore, G. L., and Collins, A. (1988). The cognitive structure of emotions. New York: Cambridge University Press.
48. Rager, K. B. (2005). Self-care and the qualitative researcher: When collecting data can break your heart Educational Researcher, 35(1), 23-27.
49. Ramos, M. C. (1989). Some ethical implications of qualitative research. Research in Nursing and Health, 12, 57-63.
50. Scott, D. A., Valery, P. C., Boyle, F. M., and Bain, C. (2002). Does research into sensitive areas do harm? Experiences of research participation after a child’s diagnosis with Ewing’s sarcoma. Medical Journal of Australia, 177, 507-510.
51. Solomon, R. C. and Stone, L. D. (2002). On “positive” and “negative” emotions. Journal for the Theory of Social Behaviour, 32(4), 417-435.
52. Spradley, J. P. (1979). The ethnographic interview. New York: Holt, Rinehart and Winston.
53. Taylor, C. (1985). Philosophical papers, vol. 2. Cambridge: Cambridge University Press.
54. Terry W., L. G. Olson, P. Ravenscroft, L. Wilss, and G. Boulton-Lewis. (2006). Hospice patients’ views on research in palliative care. Internal Medicine, 36, 406-413.
55. Vetlesen, A. J. (1994). Perception, empathy, and judgment: An inquiry into the preconditions of moral performance. University Park: The Pennsylvania State University Press.
56. Wong, I. M. (1998). The ethics of rapport: Institutional safeguards, resistance and betrayal. Qualitative Inquiry, 4, 1.