Working with older women in research: Benefits and challenges of involvement

Involving Service Users in Health and Social Care Research

Volumn , Issue , 2013, Pages 171-189

  Warren, Lorna ^a   Cook, Joanne ^a  

^a UNIVERSITY OF SHEFFIELD   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 85085794453     PISSN: None     EISSN: None     Source Type: Book    
DOI: 10.4324/9780203865651-23     Document Type: Chapter

References (73)

1. Barnes, M. (1997) Care, Communities and Citizens, London: Longman.
2. Barnes, M. (1999) ‘Working with older people to evaluate the Fife User Panels Project’, in M. Bames and L. Warren (eds) Paths to Empowerment, Bristol: Policy Press.
3. Barnes, M. (2002) ‘Dialogue between older people and public officials: UK experiences’, in Grey Power? Volume 1: Political Power and Influence, Paris: Les Cahiers de la FIAPA, Action Research on Ageing (published in French and English).
4. Barnes, M. and Bennett-Emslie, G. (1997) ‘If They Would Listen...’An Evaluation of the Fife User Panels, Edinburgh: Age Concern Scotland.
5. Barnes, M. and Bennett, G. (1998) ‘Frail bodies, courageous voices: older people influencing community care’, Health and Social Care in the Community, 6 (2): 102-11.
6. Barnes, M. and Walker, A. (1996) ‘Consumerism versus empowerment: a principled approach to the involvement of older service users’, Policy and Politics, 24 (4): 375-93.
7. Beresford, P. (1997) ‘The last social division? Revisiting the relationship between social policy, its producers and consumers’, in M. May, E. Brunsdon and G. Craig (eds) Social Policy Review 9, London: Social Policy Association.
8. Beresford, P. (2002) ‘User involvement in research and evaluation: liberation or regulation?’, Social Policy and Society, 1 (2): 95-106.
9. Bernard, M., Phillips, J., Machin, L. and Flarding Davies, V. (2000) Women Ageing: Changing Identities, Challenging Myths, London: Routledge.
10. Better Government for Older People (Programme) (1999) Making it Happen: Report of the First Year of the Programme 1998-99, London: Cabinet Office (available http://www.better governmentforolderpeople.gov.uk) (accessed 9 April 2000).
11. Better Government for Older People (BGOP) (Advisory Group) (2000a) Our Present for the Future, Wolverhampton: BGOP.
12. Better Government for Older People (BGOP) (Steering Committee) (2000b) All Our Futures: The Report of the Better Government for Older People Steering Committee, Wolverhampton: BGOP.
13. Boaz, A. and Hayden, C. (2000) Listening to Local Older People: Progress on Consultation in the 28 Better Government for Older People Pilots, Warwick: Local Government Centre, University of Warwick.
14. Booth, T. and Booth, W. (1996) ‘Sounds of silence: narrative research with inarticulate subjects’, Disability and Society, 11 (1): 55-69.
15. Booth, T. and Booth, W. (1998) Growing Up with Parents who have Learning Difficulties, London: Routledge.
16. Bornat, J. (1993) ‘Life experience’, in M. Bernard and K. Meade (eds) Women Come of Age, London: Edward Arnold.
17. Bowes, A. (1996) ‘Evaluating an empowering research strategy: reflections on action-research with South Asian women’, Sociological Research Online, 1 (1) (available http://www.socresonline.org.uk/socresonline/l/l/l.html) (accessed 2 July 1999).
18. Burgess, R. (1984) ‘The unstructured interview as a conversation’, in R. Burgess (ed.) Field Research: Sourcebook and Field Manual, Hemel Hempstead: George Allen and Unwin.
19. Butt, J. and Mirza, K. (1996) Social Care and Black Communities, London: HMSO.
20. Cabinet Office (1999) Modernising Government, London: Cabinet Office.
21. Carter, T. and Beresford, P. (2000) Age and Change: Models of Involvement for Older People, York: Joseph Rowntree Foundation by York Publishing Services.
22. Centre for Social Action (1999) About the Centre, Leicester: Centre for Social Action, De Montfort University.
23. Cook, J., Maltby, T. and Warren, L. (2004) ‘A participatory approach to older women’s quality of life’, in A. Walker and C. Hagan Hennessey (eds) Growing Older: Quality of Life in Old Age, Buckingham: Open University Press.
24. Cormie, J. and Warren, L. (2001) Working with Older People: Guidelines for Running Discussion Groups and Influencing Practice, Bristol: Policy Press.
25. Cornwell, J. (1984) Hard-earned Lives: Accounts of Health and Illness from East London, London: Tavistock.
26. Counsel and Care (eds) (1994) More Power to our Elders: Promoting Empowerment for Older People, London: Counsel and Care.
27. Curtis, Z. (1993) ‘On being a woman in the pensioners’ movement’, in J. Johnson and R. Slater (eds) Ageing and Later Life, London: Sage.
28. Curtis, Z. (1995) ‘Gaining confidence-speaking out’, in R. Jack (ed.) Empowerment in Community Care, London: Chapman and Hall.
29. Department of Health (1991) Managers and Practitioners: Guide to Care Management and Assessment, London: HMSO.
30. Department of Health (1997) The New NHS: Modern and Dependable, London: DoH.
31. Department of Health (1998) Modernising Social Services: Promoting Independence, Improving Protection, Reviewing Standards, Cm 4169, London: The Stationery Office.
32. Department of Health (1999) Patient and Public Involvement in the New NHS, London: DoH.
33. Department of Health (2000) Research and Development for a First Class Service, London: DoH.
34. Department of Social Security (for the Ministerial Group on Older People) (1998) Building a Better Britain for Older People, Hayes, Middlesex: Welfare Reform.
35. Dingwall, R. (1980) ‘Ethics and ethnography’, Sociological Review, 28 (4): 871-91.
36. Fisk, M. (1997) ‘Older people as researchers’, in R. Sykes (ed.) Putting Older People in the Picture: Conference Report, Oxford: Anchor Trust.
37. Gearing, B. and Dant, T. (1990) ‘Doing biographical research’, in S. Peace (ed.) Researching Social Gerontology: Concepts, Methods and Issues, London: Sage.
38. Hanley, B., Bradburn, J., Barnes, M., Evans, C., Goodare, H., Kelson, M., Kent, A., Oliver, S., Thomas, S. and Wallcraft, J. (2003) Involving the Public in NHS, Public Health, and Social Care Research: Briefing Notes for Researchers, 2nd edn, Eastleigh, Hampshire: INVOLVE.
39. Hayden, C. and Boaz, A. (2000) Making a Difference: Evaluation Report, Wolverhampton: BGOP.
40. Hazan, H. (1994) Old Age: Constructions and Deconstructions, Cambridge: Cambridge University Press.
41. Hobman, D. (1994) ‘What price consumer choice’, in Counsel and Care (eds), More Power to Our Elders: Promoting Empowerment for Older People, London: Counsel and Care.
42. Hooks, B. (1986) ‘Sisterhood: political solidarity between women’, Feminist Review, 23: 125-38.
43. Kelly, C. and Breinlinger, S. (1995) ‘Identity and injustice: exploring women’s participation in collective action’, Journal of Community and Applied Social Psychology, 5: 41-57.
44. Kemshall, H. and Littlechild, R. (eds) (2000) User Involvement and Participation in Social Care: Research Informing Practice, London: Jessica Kingsley.
45. Lockey, R., Sitzia, J., Gillingham, T., Millyard, J., Miller, C., Ahmed, S., Beales, A., Bennett, C., Parfoot, S., Sigrist, J. and Worthing and Southlands Hospitals NHS Trust (2004) Report Summary: Training for Service User Involvement in Health and Social Care Research-A Study of Training Provision and Participants’ Experiences, Eastleigh, Hampshire: INVOLVE.
46. National Health Service Executive, Institute of Health Service Management and The National Health Service Confederation (1998) In the Public Interest: Developing a Strategy for Public Participation in the NHS, London: DoH.
47. Newman, J. (2001) Modernising Governance: New Labour, Policy and Society, London: Sage.
48. Nolan, M. (2000) ‘Towards person-centred care for older people’, in A. Warnes, L. Warren and M. Nolan (eds) Care Services for Later Life, London: Jessica Kingsley.
49. Older People’s Steering Group (2004) Older People Shaping Policy and Practice, York: Joseph Rowntree Foundation.
50. Osborn, A. (1984) ‘Research utilisation: another Cinderella?’, in D. B. Bromley (ed.) Gerontology: Social and Behavioural Perspectives, London: Croom Helm.
51. Patel, N. (1993) ‘Healthy margins: black elders’ care-models, policies and prospects’, in W. Ahmad (ed.) ‘Race’ and Health in Contemporary Britain, Buckingham: Open University Press.
52. Peace, S. (ed.) (1999) Involving Older People in Research: ‘An Amateur Doing the Work of a Professional’, London: Centre for Policy on Ageing.
53. Plummer, K. (1990) ‘Herbert Blumer and the life history tradition’, Symbolic Interaction, 13 (2): 125-44.
54. Rappert, B. (1997) ‘Users and social science research: policy, problems and possibilities’, Sociological Research Online, 2: 3 (available http://www.socresonline.org.uk/socresonline/2//3/3.html) (accessed 7 April 2000).
55. Reinharz, S. (1992) Feminist Methods in Social Research, Oxford: Oxford University Press.
56. Richards, S. (1994) ‘Enabling research: elderly people’, Research, Policy and Planning, 12 (2): 5-6.
57. Royle, J., Steel, R., Hanley, B. and Bradburn, J. (2001) Getting Involved in Research: A Guide for Consumers, Winchester: Consumers in NHS Research Support Unit.
58. Ruth, J-E. and Kenyon, G. (1996) ‘Introduction’, Ageing and Society, 16 (6): 653-8.
59. Sharpe, P. A. (1995) ‘Older women and health services: moving from ageism to empowerment’, Women and Health, 22 (3): 9-23.
60. Simney, M. (1998) ‘The politics of ageing’, in M. Bernard and J. Phillips (eds) The Social Policy of Old Age: Moving into the 21st Century, London: Centre for Policy on Ageing.
61. Stevenson, O. and Parsloe, P. (1993) Community Care and Empowerment, York: Joseph Rowntree Foundation.
62. Telford, R., Boote, J. and Cooper, C. (2004) ‘What does it mean to involve consumers successfully in NHS research? A consensus study’, Health Expectations, 7: 209-20.
63. Thornton, P. (2000) Older People Speaking Out: Developing Opportunities for Influence, York: Joseph Rowntree Foundation by York Publishing Services.
64. Thornton, P. and Tozer, R. (1994) Involving Older People in Planning and Evaluating Community Care: A Review of Initiatives, York: Social Policy Research Unit, University of York.
65. Thornton, P. and Tozer, R. (1995) Having a Say in Change: Older People and Community Care, York: Joseph Rowntree Foundation.
66. Tozer, R. and Thornton, P. (1995) A Meeting of Minds: Older People as Research Advisers, York: Social Policy Research Unit, University of York.
67. Walker, A. (1998) ‘Speaking for themselves: the new politics of old age in Europe’, Education and Ageing, 13 (1): 13-36.
68. Walker, A. and Maltby, T. (1997) Ageing Europe, Buckingham: Open University Press.
69. Warren, L. (1999) ‘Empowerment: the path to partnership?’, in M. Barnes and L. Warren (eds) Paths to Empowerment, Bristol: Policy Press.
70. Warren, L. and Maltby, T. (2000) ‘Averil Osborn and participatory research: involving older people in change’, in A. Warnes, L. Warren and M. Nolan (eds) Care Services for Later Life, London: Jessica Kingsley Publishers.
71. Warren, L., Cook, J., Clarke, N., Hadfield, P., Haywood-Reed, P., Millen, L., Parkinson, M., Robinson, J. and Winfield, W. (2003) ‘Working with older women in research: some methods-based issues, Quality in Ageing, 4 (4): 24-31.
72. Williams, M. (2004) ‘Discursive democracy and New Labour: five ways in which decision makers manage citizens agendas in public participation initiatives’, Sociological Research Online, 9 (3), (available http://www.socresonline.org.Uk/9/3/williams.html) (accessed 31 August 2004).
73. Wray, S. (2003) ‘Women growing older: agency, ethnicity and culture’, Sociology 37 (3): 511-27.