Attitudes and preferences of home mechanical ventilation users from four European countries: An ERS/ELF survey

ERJ Open Research

Volumn 3, Issue 2, 2017, Pages

  Masefield, Sarah ^a   Vitacca, Michele ^b   Dreher, Michael ^c   Kampelmacher, Michael ^d   Escarrabill, Joan ^e   Paneroni, Mara ^b   Powell, Pippa ^a   Ambrosino, Nicolino ^f  

^a European Lung Foundation   (United Kingdom)

^b IRCCS   (Italy)

^c UNIVERSITY HOSPITAL RWTH AACHEN   (Germany)

^d UNIVERSITY MEDICAL CENTER UTRECHT   (Netherlands)

^e HOSPITAL CLÍNIC   (Spain)

^f SEBELAS MARET UNIVERSITY   (Indonesia)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; AGED; ARTICLE; ARTIFICIAL VENTILATION; BREATHING; BREATHING MOUTHPIECE; CAREGIVER; CHRONIC OBSTRUCTIVE LUNG DISEASE; EDUCATION; EUROPE; EUROPEAN; FACE MASK; FEMALE; HEALTH CARE PERSONNEL; HUMAN; MAJOR CLINICAL STUDY; MALE; MECHANICAL VENTILATOR; MIDDLE AGED; NEUROMUSCULAR DISEASE; OXYGEN MASK; PATIENT ATTITUDE; PATIENT PREFERENCE; SATISFACTION; TRACHEOSTOMY; TRAINING; VENTILATED PATIENT;

EID: 85081980378     PISSN: None     EISSN: 23120541     Source Type: Journal    
DOI: 10.1183/23120541.00015-2017     Document Type: Article

References (32)

1. Lloyd-Owen SJ, Donaldson GC, Ambrosino N, et al. Patterns of home mechanical ventilation use in Europe: results from the Eurovent survey. Eur Respir J 2005; 25: 1025-1031.
2. Rose L, McKim DA, Katz SL, et al. Home mechanical ventilation in Canada: a national survey. Respir Care 2015; 60: 695-704.
3. Garner DJ, Berlowitz DJ, Douglas J, et al. Home mechanical ventilation in Australia and New Zealand. Eur Respir J 2013; 41: 39-45.
4. Escarrabill J, Tebé C, Espallargues M, et al. Variability in home mechanical ventilation prescription. Arch Bronconeumol 2015; 51: 490-495.
5. Kohnlein T, Windisch W, Kohler D, et al. Non-invasive positive pressure ventilation for the treatment of severe stable chronic obstructive pulmonary disease: a prospective, multicentre, randomised, controlled clinical trial. Lancet Respir Med 2014; 2: 698-705.
6. MacIntyre EJ, Asadi L, Mckim DA, et al. Clinical outcomes associated with home mechanical ventilation: a systematic review. Can Respir J 2016; 2016: 6547180.
7. King AC. Long-term home mechanical ventilation in the United States. Respir Care 2012; 57: 921-930.
8. Farre R, Lloyd-Owen SJ, Ambrosino N, et al. Quality control of equipment in home mechanical ventilation: a European survey. Eur Respir J 2005; 26: 86-94.
9. Chatwin M, Heather S, Hanak A, et al. Analysis of home support and ventilator malfunction in 1,211 ventilator-dependent patients. Eur Respir J 2010; 35: 310-316.
10. Nava S, Sturani C, Hartl S, et al. End-of-life decision-making in respiratory intermediate care units: a European survey. Eur Respir J 2007; 30: 156-164.
11. Brooks D, King A, Tonack M, et al. User perspectives on issues that influence the quality of daily life of ventilator-assisted individuals with neuromuscular disorders. Can Respir J 2004; 11: 547-554.
12. Vitacca M, Grassi M, Barbano L, et al. Last 3 months of life in home-ventilated patients: the family perception. Eur Respir J 2010; 35: 1064-1071.
13. Evans R, Catapano MA, Brooks D, et al. Family caregiver perspectives on caring for ventilator-assisted individuals at home. Can Respir J 2012; 19: 373-379.
14. Ambrosino N, Vitacca M, Dreher M, et al. Tele-monitoring of ventilator-dependent patients: a European Respiratory Society Statement. Eur Respir J 2016; 48: 648-663.
15. Anderson CS, Linto J, Steward-Wynne E. A population-based assessment of the impact and burden of caregiving for long-term stroke survivors. Stroke 1995; 26: 843-849.
16. Hunt CK. Concepts in caregiver research. J Nurs Scholar 2003; 35: 27-32.
17. Bowling A. Research Methods in Health: Investigating Health and Health Services. 4th Edn. Maidenhead, Open University Press, 2014.
18. Shaghaghi A, Bhopal RS, Sheikh A. Approaches to recruiting “hard-to-reach” populations into research: a review of the literature. Health Promot Perspect 2011; 1: 86-94.
19. Masefield S, Powell P, Vitacca M, et al. Calling for comfort: the unmet needs of European home ventilator users. RED Guide 2016-2017; 32-37.
20. Masefield S, Vitacca M, Ambrosino N. The unmet needs of home mechanical ventilator users in Europe: the patients’ perspective. Eur Respir J 2016; 48: Suppl 60, OA3528.
21. Simonds AK. Home mechanical ventilation: an overview. Ann Am Thorac Soc 2016; 13: 2035-2044.
22. Vitacca M, Barbano L, D’Anna S, et al. Comparison of five bilevel pressure ventilators in patients with chronic ventilatory failure: a physiologic study. Chest 2002; 122: 2105-2114.
23. American Thoracic Society. Respiratory care of the patient with Duchenne muscular dystrophy: ATS consensus statement. Am J Respir Crit Care Med 2004; 170: 456-465.
24. Harris DR. Aging Sourcebook: Basic Information on Issues Affecting Older Americans, Including Demographic Trends, Social Security, Medicare, Estate Planning, Legal Rights, Health and Safety, Elder Care Options, Retirement Lifestyle Options, and End of Life Issues. Detroit, Omnigraphics, 1998.
25. Chio A, Gauthier A, Calvo A, et al. Caregiver burden and patients’ perception of being a burden in ALS. Neurology 2005; 64: 1780-1782.
26. Struik FM, Sprooten RT, Kerstjens HA, et al. Nocturnal non-invasive ventilation in COPD patients with prolonged hypercapnia after ventilatory support for acute respiratory failure: a randomised, controlled, parallel-group study. Thorax 2014; 69: 826-834.
27. Clinical indications for non invasive positive pressure ventilation in chronic respiratory failure due to restrictive lung disease, COPD, and nocturnal hypoventilation: a consensus conference report. Chest 1999; 116: 521-534.
28. Windisch W, Walterspacher S, Siemon K, et al. Guidelines for non-invasive and invasive mechanical ventilation for treatment of chronic respiratory failure. Pneumologie 2010; 64: 640-652.
29. McKim DA, Road J, Avendano M, et al. Home mechanical ventilation: a Canadian Thoracic Society clinical practice guideline. Can Respir J 2011; 18: 197-215.
30. Global Initiative for Chronic Obstructive Lung Disease. GOLD Strategy for Diagnosis, Management, and Prevention of COPD-2016. http://goldcopd.org/global-strategy-diagnosis-management-prevention-copd-2016/ Date last accessed: December 2016.
31. Crimi C, Noto A, Princi P, et al. Domiciliary non-invasive ventilation in COPD: an international survey of indications and practices. COPD 2016; 13: 483-490.
32. Vitacca M, Escarrabill J, Galavotti G, et al. Home mechanical ventilation patients: a retrospective survey to identify level of burden in real life. Monaldi Arch Chest Dis 2007; 67: 142-147.