Overvaluing individual consent ignores risks to tribal participants

Nature Reviews Genetics

Volumn 20, Issue 9, 2019, Pages 497-498

  Tsosie, Krystal S ^a   Yracheta, Joseph M ^b   Dickenson, Donna ^c  

^a VANDERBILT UNIVERSITY   (United States)

^b Johns Hopkins University   (United States)

^c UNIVERSITY OF LONDON   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; HUMAN; NOTE; GENOMICS; INFORMED CONSENT; AMERICAN INDIAN; GENETIC PROFILE; GENETIC SCREENING; HEALTH CARE ACCESS; HEALTH STATUS; INDIGENOUS PEOPLE; PRIORITY JOURNAL; SOCIOECONOMICS;

GENOMICS; HUMANS; INFORMED CONSENT;

EID: 85069429873     PISSN: 14710056     EISSN: 14710064     Source Type: Journal    
DOI: 10.1038/s41576-019-0161-z     Document Type: Note

References (5)

1. Claw, K. G. et al. A framework for enhancing ethical genomic research with Indigenous communities. Nat. Commun. 9, 2957 (2018).
2. Reardon, J. Race to the Finish: Identity and Governance in an Age of Genomics 99–125 (Princeton Univ. Press, 2004).
3. Kaiser, J. Million-person U. S. study of genes and health stumbles over including Native American groups. Science 10.1126/science.aay2081 (2019).
4. Norris, T., Vines, P. L. & Hoeffel, E. M. Report number C2010BR-10: the American Indian and Alaska Native population: 2010. United States Census Bureau https://www.census.gov/library/publications/2012/dec/c2010br-10.html (2012).
5. Juengst, E. et al. From “personalized” to “precision” medicine: the ethical and social implications of rhetorical reform in genomic medicine. Hastings Cent. Rep. 46, 21–33 (2016).