Toward Common Data Elements for International Research in Long-term Care Homes: Advancing Person-Centered Care

Journal of the American Medical Directors Association

Volumn 20, Issue 5, 2019, Pages 598-603

  Corazzini, Kirsten N ^a   Anderson, Ruth A ^b   Bowers, Barbara J ^c   Chu, Charlene H ^d   Edvardsson, David ^e,f   Fagertun, Anette ^g   Gordon, Adam L ^h   Leung, Angela Y M ⁱ   McGilton, Katherine S ^d,j   Meyer, Julienne E ^k   Siegel, Elena O ^l   Thompson, Roy ^a   Wang, Jing ^a   Wei, Sijia ^a   Wu, Bei ^m   Lepore, Michael J ⁿ  

^a DUKE UNIVERSITY   (United States)

^b UNIVERSITY OF NORTH CAROLINA   (United States)

^c UNIVERSITY OF WISCONSIN MADISON   (United States)

^d UNIVERSITY OF TORONTO   (Canada)

^e LA TROBE UNIVERSITY   (Australia)

^f UMEÅ UNIVERSITY   (Sweden)

^g WESTERN NORWAY UNIVERSITY OF APPLIED SCIENCES   (Norway)

^h UNIVERSITY OF NOTTINGHAM   (United Kingdom)

ⁱ HONG KONG POLYTECHNIC UNIVERSITY   (Hong Kong)

^j TORONTO REHABILITATION INSTITUTE   (Canada)

^k CITY UNIVERSITY   (United Kingdom)

^l UNIVERSITY OF CALIFORNIA   (United States)

^m NEW YORK UNIVERSITY   (United States)

ⁿ RTI INTERNATIONAL   (United States)

more..

Author keywords

common data element; cross cultural comparison; Long term care; nursing homes; person centered care

Indexed keywords

ADULT; ARTICLE; ASPIRATION; COMMON DATA ELEMENTS; CONTROLLED STUDY; CULTURAL FACTOR; GROUP PROCESS; HIGH INCOME COUNTRY; HUMAN; LONG TERM CARE; NURSING HOME; OUTCOME ASSESSMENT; RESIDENT; SCIENTIST; STAFF; WORKFORCE; WORLD HEALTH ORGANIZATION; AGED; ORGANIZATION; PATIENT CARE; PUBLIC RELATIONS;

AGED; COMMON DATA ELEMENTS; CONGRESSES AS TOPIC; HUMANS; INTERPROFESSIONAL RELATIONS; LONG-TERM CARE; NURSING HOMES; PATIENT-CENTERED CARE;

EID: 85062056892     PISSN: 15258610     EISSN: 15389375     Source Type: Journal    
DOI: 10.1016/j.jamda.2019.01.123     Document Type: Article

References (39)

1. McGilton, K.S., Bowers, B.J., Heath, H., et al. Recommendations from the International Consortium on Professional Nursing Practice in Long-Term Care Homes. J Am Med Dir Assoc 17 (2016), 99–103.
2. Rolland, Y., Resnick, B., Katz, P.R., et al. Nursing home research: The first International Association of Gerontology and Geriatrics (IAGG)Research Conference. J Am Med Dir Assoc 15 (2014), 313–325.
3. Redeker, N.S., Anderson, R.A., Bakken, S., et al. Advancing symptom science through use of common data elements. J Nurs Scholarsh 47 (2015), 379–388.
4. Papanicolas, I., Kringos, D., Klazinga, N.S., Smith, P.C., Health system performance comparison: New directions in research and policy. Health Policy 112 (2013), 1–3.
5. US Department of Health and Human Services National Institutes of Health/National Institute on Aging, World Health Organization. Global Health and Aging. 2011, National Institutes of Health, Bethesda, MD.
6. The American Geriatrics Society Expert Panel on Person-Centered Care. Person-centered care: A definition and essential elements. J Am Geriatr Soc 64 (2016), 15–18.
7. Edvardsson, D., Innes, A., Measuring person-centered care: A critical comparative review of published tools. Gerontologist 50 (2010), 834–846.
8. Castle, N.G., Ferguson, J.C., What is nursing home quality and how is it measured?. Gerontologist 50 (2010), 426–442.
9. Tolson, D., Rolland, Y., Katz, P.R., et al. An international survey of nursing homes. J Am Med Dir Assoc 14 (2013), 459–462.
10. US Department of Health and Human Services. Design for nursing home compare five-star quality rating system: Technical users’ guide. Centers for Medicare and Medicaid Services, Author. 2018. Available at: https://www.cms.gov/Medicare/Provider-Enrollment-and-Certification/CertificationandComplianc/Downloads/usersguide.pdf, 2018.
11. Ekman, I., Swedberg, K., Taft, C., et al. Person-centered care—Ready for prime time. Eur J Cardiovasc Nur 10 (2011), 248–251.
12. Cesari, M., Araujo de Carvalho, I., Amuthavalli Thiyagarajan, J., et al. Evidence for the domains supporting the construct of intrinsic capacity. J Gerontol A Biol Sci Med Sci 73 (2018), 1653–1660.
13. NHS England/Long Term Care Team. Toolkit for general practice in supporting older people living with frailty. 06509. 2017. Available at: https://www.england.nhs.uk/wp-content/uploads/2017/03/toolkit-general-practice-frailty.pdf, 2017.
14. World Health Organization. World Report on Ageing and Health. 2015, World Health Organization, Geneva, Switzerland.
15. International Organization for Standardization. Information technology - Metadata registries (MDR)- Part 1: Framework (ISO/IEC Standard No. 11179–1). 2015, International Organization for Standardization, Geneva, Switzerland.
16. International Organization for Standardization. ISO Action Plan for Developing Countries 2016-2020. 2016, International Organization for Standardization, Geneva, Switzerland.
17. United Nations General Assembly. 70/1 Transforming our world: The 2030 agenda for sustainable development. 2015.
18. ESSENCE on Health Research. Seven principles for strengthening research capacity in low and middle income countries: Simple ideas in a complex world, in ESSENCE Good practice document series. 2014, TDR/World Health Organization, Geneva, Switzerland.
19. Harvey, N., Holmes, C.A., Nominal group technique: An effective method for obtaining group consensus. Int J Nurs Pract 18 (2012), 188–194.
20. McMillan, S.S., King, M., Tully, M.P., How to use the nominal group and Delphi techniques. Int J Clin Pharm 38 (2016), 655–662.
21. Allen, J., Dyas, J., Jones, M., Building consensus in health care: A guide to using the nominal group technique. Br J Community Nurs 9 (2004), 110–114.
22. Wallace, S.J., Worrall, L., Rose, T., et al. Which outcomes are most important to people with aphasia and their families? An international nominal group technique study framed within the ICF. Disabil Rehabil 39 (2017), 1364–1379.
23. World Health Organization. Decision-making for guideline development at WHO, in WHO Handbook for Guideline Development. 2014, World Health Organization, Geneva, Switzerland.
24. Dewar, B., MacBride, T., Developing caring conversations in care homes: An appreciative inquiry. Health Soc Care Community 25 (2017), 1375–1386.
25. Creswell, J., Plano Clark, V., Designing and Conducting Mixed Methods Research. 3rd ed., 2018, Sage, Thousand Oaks, CA.
26. Fielding, N.G., Triangulation and mixed methods designs: Data integration with new research technologies. J Mixed Methods Res 6 (2012), 124–136.
27. Hirdes, J.P., Ljunggren, G., Morris, J., et al. Reliability of the interRAI suite of assessment instruments: A 12-country study of an integrated health information system. BMC Health Serv Res, 8, 2008, 277.
28. Castle, N., Engberg, J., Organizational characteristics associated with staff turnover in nursing homes. Gerontologist 46 (2006), 62–73.
29. Estabrooks, C.A., Hoben, M., Poss, J.W., et al. Dying in a nursing home: Treatable symptom burden and its link to modifiable features of work context. J Am Med Dir Assoc 16 (2015), 515–520.
30. Backman, A., Sjogren, K., Lindkvist, M., et al. Towards person-centredness in aged care—Exploring the impact of leadership. J Nurs Manag 24 (2016), 766–774.
31. US Department of Health and Human Services. Reform of requirements for long-term care facilities; Proposed Rule. Centers for Medicare & Medicaid Services, Editor. 2015. Available at: http://www.regulations.gov/#!documentDetail;D=CMS-2015-0083-0001, 2015 Federal Register, July 16.
32. Carpenter, I., Hirdes, J.P., Using interRAI assessment systems to measure and maintain quality of long-term care, in A Good Life in Old Age? Monitoring and Improving Quality in Long-Term Care. 2015, OECD/European Commission, Paris.
33. National Health Service. “Harm Free Care”: A New Mindset in Patient Safety Improvement: Learning from the Safety Express Pilot. NHS0013. 2012. Available at: http://harmfreecare.org/wp-content/files_mf/Harm-Free-Care-Guide-March-2012-4.pdf, 2012.
34. European Centre for Social Welfare Policy and Research, et al. Measuring Progress: Indicators for Care Homes. European Centre for Social Welfare Policy and Research, 2010, Austria, Vienna.
35. Rockwood, K., Mitniski, A., Resilience and frailty: Further steps best taken together. Eur Geriatr Med 6 (2015), 405–407.
36. Epstein, J., Santo, R.M., Guillemin, F., A review of guidelines for cross-cultural adaptation of questionnaires could not bring out a consensus. J Clin Epidemiol 68 (2015), 435–441.
37. Byrne, B.M., Adaptation of assessment scales in cross-national research: Issues, guidelines, and caveats. Int Perspect Psychol 5 (2016), 51–65.
38. UK National Institute for Health Research. National Standards for Public Involvement in Research V1. 2018. Available at: https://www.nihr.ac.uk/news-and-events/documents/Public_Involvement_Standards_March%202018_WEB.pdf, 2018.
39. Huber, M., van Vliet, M., Giezenberg, M., et al. Towards a “patient-centred” operationalisation of the new dynamic concept of health: A mixed methods study. BMJ Open, 6, 2016, e010091.