Concordance between Goals of Care and Treatment Decisions for Persons with Dementia

Journal of Palliative Medicine

Volumn 21, Issue 10, 2018, Pages 1442-1447

  Ernecoff, Natalie C ^a,b   Zimmerman, Sheryl ^a   Mitchell, Susan L ^c,d   Song, Mi Kyung ^e   Lin, Feng Chang ^a,b   Wessell, Kathryn L ^a   Hanson, Laura C ^a,f  

^a UNIVERSITY OF NORTH CAROLINA   (United States)

^b University of North Carolina at Chapel Hill   (United States)

^c HARVARD MEDICAL SCHOOL   (United States)

^d Hebrew Senior Life   (United States)

^e EMORY UNIVERSITY   (United States)

^f UNIVERSITY OF NORTH CAROLINA SCHOOL OF MEDICINE   (United States)

Author keywords

decision making; dementia; palliative care

Indexed keywords

CONTROLLED STUDY; DECISION MAKING; DEMENTIA; FAMILY; FEMALE; HUMAN; INTERVIEW; MALE; NURSING; NURSING HOME; PALLIATIVE THERAPY; PATIENT CARE PLANNING; PSYCHOLOGY; RANDOMIZED CONTROLLED TRIAL; VERY ELDERLY;

AGED, 80 AND OVER; DECISION MAKING; DEMENTIA; FAMILY; FEMALE; HUMANS; INTERVIEWS AS TOPIC; MALE; NURSING HOMES; PALLIATIVE CARE; PATIENT CARE PLANNING;

EID: 85054898141     PISSN: 10966218     EISSN: 15577740     Source Type: Journal    
DOI: 10.1089/jpm.2018.0103     Document Type: Article

References (20)

1. Xu J, Kochanek KD, Murphy SL, Tejada-Vera B: Deaths: Final data for 2007. Natl Vital Stat Rep 2010;58:1-136.
2. Gozalo P, Teno JM, Mitchell SL, et al. : End-of-life transitions among nursing home residents with cognitive issues. N Engl J Med 2011;365:1212-1221.
3. Mitchell SL, Teno JM, Kiely DK, et al. : The clinical course of advanced dementia. N Engl J Med 2009;361: 1529-1538.
4. Sampson EL, Candy B, Davis S, et al. : Living and dying with advanced dementia: A prospective cohort study of symptoms, service use and care at the end of life. Palliat Med 2018;32:668-681.
5. Sloane PD, Zimmerman S, Williams CS, Hanson LC: Dying with dementia in long-term care. Gerontologist 2008;48:741-751.
6. Teno JM, Gozalo P, Khandelwal N, et al. : Association of increasing use of mechanical ventilation among nursing home residents with advanced dementia and intensive care unit beds. JAMA Intern Med 2016;176:1809-1816.
7. Sudore R, Lum HD, You J, et al. : Outcomes that define successful advance care planning: A delphi panel consensus. J Pain Symptom Manage 2018;55:245-255.
8. Khandelwal N, Curtis JR, Freedman VA, et al. : How often is end-of-life care in the United States inconsistent with patients' goals of care. J Palliat Med 2017;20:1400-1404.
9. Unroe KT, Hickman SE, Torke AM: Care consistency with documented care preferences: Methodologic considerations for implementing the ''measuring what matters'' quality indicator. J Pain Symptom Manage 2016;52:453-458.
10. Hanson LC, Song MK, Zimmerman S, et al. : Fidelity to a behavioral intervention to improve goals of care decisions for nursing home residents with advanced dementia. Clin Trials 2016;13:599-604.
11. Hanson LC, Zimmerman S, Song MK, et al. : Effect of the goals of care intervention for advanced dementia: A randomized clinical trial. JAMA Intern Med 2017;177:24-31.
12. Reisberg B, Ferris SH, de Leon MJ, Crook T: The Global Deterioration Scale for assessment of primary degenerative dementia. Am J Psychiatry 1982;139:1136-1139.
13. Mitchell SL, Miller SC, Teno JM, et al. : The advanced dementia prognostic tool: A risk score to estimate survival in nursing home residents with advanced dementia. J Pain Symptom Manage 2010;40:639-651.
14. Teno JM, Clarridge B, Casey V, et al. : Validation of toolkit after-death bereaved family member interview. J Pain Symptom Manage 2001;22:752-758.
15. Cohen AB, Knobf M, Fried TR: Do-Not-Hospitalize orders in nursing homes: ''Call the family instead of calling the ambulance. '' J Am Geriatr Soc 2017;65:1573-1577.
16. Hickman SE, Nelson CA, Moss AH, et al. : The consistency between treatments provided to nursing facility residents and orders on the physician orders for life-sustaining treatment form. J Am Geriatr Soc 2011;59:2091-2099.
17. US Department of Health and Human Services, Centers for Medicare and Medicaid Services: Nursing Home Data Compendium: 2015 Edition. Retrieved April 2018. 2015.
18. Ballard CG, O Brien JT, Reichelt K, Perry EK: Aromatherapy as a safe and effective treatment for the management of agitation in severe dementia: The results of a double-blind, placebo-controlled trial with Melissa. J Clin Psychiatry 2002;63:553-558.
19. vansdottir HB, Snaedal J: Music therapy in moderate and severe dementia of Alzheimer's type: A case-control study. Int Psychogeriatr 2006;18:613-621.
20. Ernecoff NC, Curlin FA, Buddadhumaruk P, White DB: Health care professionals' responses to religious or spiritual statements by surrogate decision makers during goals-ofcare discussions. JAMA Intern Med 2015;175:1662-1669.